Adam's Heart Valve Surgery Blog – Page 24

There is one statistic about heart disease that makes me very uncomfortable and very sad. Here it is…  Heart disease is responsible for 1 out of 3 deaths among women. Imagine that? Shocking, right?

For that reason… In 1998, the American Heart Association (AHA) set a wonderful, 10-year goal to reduce the number of deaths from heart disease and stroke by 25 percent. Now, 10 years later, that goal has been exceeded.  Watch this video to learn how the AHA’s patient education efforts have saved the lives 1.7 million people.

Many thanks to the AHA for its extraordinary campaign to educate and empower patients with heart disease. And specifically, many thanks to all the volunteers, the corporate sponsors, and the donors who have come together to fight heart disease.

Keep on tickin’ AHA!
Adam

I have some great and fun news to share with our community!  The Pick family has expanded by four feet.  That’s right.  I am happy to introduce you to Bodie Pick, our new 16-week old puppy.  He also goes by “BoBo”, “Bear” and “Bodiferous”.

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At the recent Heart Valve Summit, I was overwhelmed with wonderful patient questions for our “Ask Adam Anything” event.  For example, Eileen asked me about atrial fibrillation (AFib) which is an abnormal heart rhythm.  Eileen’s question was, “Is atrial fibrillation after heart valve surgery common?”

As you may know… Atrial fibrillation is closely associated with heart valve disease.  For that reason, I wanted to get Eileen an expert opinion.  So, I tracked down Dr. Marc Gillinov who is the new Chair of Cardiac Surgery at the Cleveland Clinic.  So you know, Dr. Gillinov is a guru when it comes to valvular heart disease and atrial fibrillation.  You should also know that Dr. Gillinov has successfully treated many, many, many patients from our community including Anita Devine, Jeff Pirofsky and Fran Zilko.

Here are the highlights from my interview with Dr. Gillinov about atrial fibrillation after heart surgery.

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I am overly excited to share that Dr. Luis Castro just received his 103rd patient testimonial at his surgeon profile.

If you’re not familiar with Dr. Castro, let me introduce you to a special person whose patient-centric approach to cardiac care is fundamentally unique.  Dr. Castro goes above-and-beyond for his patients.  He gives out his cell phone number to his patients.  Dr. Castro goes surfing with his patients.  He educates his patients about each step in the surgical process.  And, most importantly, he delivers excellent surgical results.

Dr. Castro with Tom Fitzmorris (his aortic valve patient)

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Together, we’ve learned lots about the advantages of mitral valve repair procedures which include long-term durability and freedom from re-operation.  In the process, I’ve attended wonderful mitral valve conferences and I’ve even gone inside live surgeon workshops dedicated to teaching best practices for mitral valve repair.

That said, you might be wondering, “What about aortic valve repair?” and “Why don’t I hear much about aortic valve repair?”.  Unfortunately, our educational efforts specific to aortic valve repair have been minimal.  In the past, I simply haven’t received many patient questions about aortic valve repair.

Well…  It appears that is about to change.  During the recent Heart Valve Summit, I sat down with Dr. Vinay Badhwar, the Professor and Executive Chair of Cardiovascular and Thoracic Surgery at West Virginia University Medicine, to get the latest updates on new aortic valve repair devices and techniques.  Here are the exciting highlights from our discussion.

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Aortic stenosis is a wildly misunderstood form of heart disease that impacts 12% of the elderly population. The disease is often mis-diagnosed and often under-treated. This narrowing of the aortic valve is commonly referred to as an “insidious” disease considering (i) its symptoms are regularly and incorrectly discounted to normal aging processes and (ii) patients can be asymptomatic.  As the disease can have fatal implications, I’ve also heard several doctors call aortic stenosis a “silent killer”.

As my personal mission is to educate and empower our patient community, I wanted to learn more about aortic stenosis progression.  Specifically, I wanted to dig deeper because so many aortic stenosis patients in our community are in “watchful waiting”.  In watchful waiting, the patient has been diagnosed with aortic stenosis. However, the severity of the disease does not yet require surgical aortic valve replacement (SAVR) or transcatheter aortic valve replacement (TAVR).  So you know… I was in the “watchful waiting” for 7 years.

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The power of our patient community never ceases to amaze me. You guys and gals are simply amazing!!!

Interestingly… When you combine our “patient power” with social media, some unexpected and wonderful things can happen that drive awesome awareness to heart valve disease.  For example, John Dodson had aortic valve replacement due to aortic stenosis last week.  During John’s hospital stay, Seth (his son) posted several inspirational photos at John’s journal.  After seeing these inspirational photos, I posted them at our Facebook page.  Then, these photos went viral and were shared all over the world.  In total, John’s pictures had over 5,300 Facebook Likes and 750 Comments.

Here’s John flashing our community two “thumbs-up” just 4 hours after surgery. This one photo had 4,800 Facebook Likes, 619 Comments and 225 Timeline Shares. Fantastic!

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I wanted to take a moment to thank the patients and the caregivers who recently completed our online survey about HeartValveSurgery.com.  I really appreciate you taking the time to provide your honest feedback about the things I’m doing to educate and to empower the people in our community.

Your feedback was extraordinary.  And, your ideas will be used to enhance our community and shape our educational content going forward.  I really enjoyed learning about the content you find valuable, the media formats you prefer, and the types of topics you would like addressed in the future.

I would also like to thank you for the positive response to the question, “Would you recommend HeartValveSurgery.com to a patient?”.  As you might imagine, I’m always nervous when I see the response to this question.  I was overwhelmed to see that 99% of you answered “Yes” to this question.  Yay!

As always, thanks for your support and encouragement specific to this project! Once again, you have made my day, my week, my month, my year!

Keep on tickin!
Adam

At the recent “Ask Me Anything” session at the Heart Valve Summit in Chicago, I received a great question from Maria about heart valve repair rings (also known as annuloplasty rings). Maria wrote to me, “Hi, Adam, two questions. Could you please ask the surgeons about annuloplasty rings, and which styles  and brands have the best track record for long-term effectiveness following a mitral valve repair surgery? Thanks! Maria”

To answer this question, I was very fortunate to interview Dr. Steve Bolling from Michigan Medicine in Ann Arbor, MI.  So you know, Dr. Bolling is a mitral valve repair guru who performs about 350 mitral procedures a year. That said, Dr. Bolling was the perfect person to answer Maria’s question. Here’s what Dr. Bolling shared with me.

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I get lots of excellent questions about heart valve disease from our patient community. And, I do my best to answer those questions to help educate and empower people just like you.

Recently, I’ve received a different type of excellent question specific to our website. That question is, “Is HeartValveSurgery.com secure?”

The simple answer to this question is “Yes”.  This website is designed to be secure.  The long answer to this question is much more complex.  That said, I wanted to share with you several updates specific to the security that protects you, our community and the information shared at this website.

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If you have questions about heart valve disease and treatment… Let me get the answers for you from the world’s leading cardiologists and surgeons!!!

That’s right.  Send me your questions now and I’ll get them answered LIVE at the Heart Valve Summit in Chicago this Thursday, October 5!

Submit your questions right now at our Facebook Page or in the comments section below.

Looking forward to answering your questions LIVE at the Heart Valve Summit!

Keep on tickin!
Adam

This is completely unexpected!  I just learned that HeartValveSurgery.com ranks #3 in FeedSpot’s Top Heart Blogs for 2017. What an honor!

Personally, I was amazed to see that we ranked above 71 well-known and prestigious websites including the American Heart Association, Medical News Today, the British Heart Foundation, Google News and Drugs.com. Unbelievable!

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I have to congratulate Barry for being his own… best… patient advocate.

That’s right.  Given the common referral pattern – from primary care physician to cardiologist to surgeon – it’s fairly easy to let the health system (and the insurance companies) dictate your heart surgeon selection process.  Instead, I always encourage patients to find the right surgeon for them. And, for the patient’s specific valvular disorder.

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Many patients diagnosed with heart valve disease can also struggle with other disorders including atrial fibrillation and coronary artery disease. Another co-morbid disease that can have a sudden and fatal impact on heart valve patients is an aortic aneurysm. You might recall that an aortic aneurysm pre-maturely took the life of John Ritter, one of my favorite comedians best known for his portrayal of Jack Tripper on Three’s Company.

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Big News!!!

In case you missed it, there’s been LOTS of new information flying across the Internet about the use of the minimally invasive MitraClip for… tricuspid valve regurgitation.

That’s right! Let me repeat!  The MitraClip, which is typically used as a transcatheter mitral valve repair device, is now being implanted to help patients with leaking tricuspid valves! If you didn’t know, the MitraClip requires no incision to the patient’s sternum or ribs.

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For most patients needing heart valve surgery, a heart-lung machine is typically used during the operation. As you may know, the heart-lung machine enables the surgeon to stop and cool the heart so the valve can be fixed while the heart is not beating.

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I am happy and honored to announce that Dr. Patrick McCarthy just became the first surgeon at HeartValveSurgery.com to receive 100 patient testimonials at his surgeon profile!!!

That’s right… 100 patients have posted wonderful, authentic and celebratory reviews for Dr. McCarthy and his team at Northwestern Memorial Hospital in Chicago.

If you didn’t know… Dr. McCarthy is a heart valve guru. During his career, Dr. McCarthy has performed over 10,000 cardiac procedures of which 4,000 involved heart valve therapy. In addition, Dr. McCarthy invented several heart valve devices, has been featured in over 450 publications and… He’s a super nice guy who has built a passionate team that is dedicated to enhancing patient experiences — before, during and after surgery.

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I’m a big fan of simple and thoughtful advice for patients. So, when I learned about this new study, “Relation of Mitral Valve Surgery Volume to Repair Rate, Durability & Survival”, in the Journal of the American College of Cardiology, I wanted to share it with our community.

The study, which is featured at Consumer Reports, reveals that patients who chose surgeons with deep experience in performing a complex mitral valve procedure have a better chance of living longer and not needing additional procedures to correct the problem.

 
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I love patient education! I also really love real-time patient education!

That said, I’m excited to announce a Facebook Live event dedicated to heart valve disease!

Dr. Patrick McCarthy, executive director of the Bluhm Cardiovascular Institute at Northwestern Medicine, and Dr. Charles Davidson, medical director at the Bluhm Cardiovascular Institute, will be answering your questions LIVE at Facebook.com/northwesternmedicine from 4 to 4:30 pm CST next Tuesday, August 15.

Join the discussion by logging into Facebook.com/northwesternmedicine next Tuesday at 4pm CST to learn more about valve disease.  You can also post questions here – the doctors will try to answer your questions during the live event.

Keep on tickin!
Adam

Thanks to you… I’m happy to share that the HeartValveSurgery.com Facebook Page just reached 260,000 members!

In the last 72 hours alone, we welcomed over 7,200 new members to our community.

If you have yet to visit our Facebook page, you can check it out here. As you will see, the HVS Facebook page is great way to connect with patients and learn about valvular disorders and therapies. Plus, we love celebrating inspirational patient stories.

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