I was diagnosed with a bicuspid aortic valve with moderate regurgitation and 4.5 cm enlarged root about 7 months ago. I've come to accept that I will need surgery ...Read more
I was diagnosed with a bicuspid aortic valve with moderate regurgitation and 4.5 cm enlarged root about 7 months ago. I've come to accept that I will need surgery at some point. I've had high blood pressure ever since I had Pre-eclampsia with my son 19 years ago when I had no idea about any of this. I get my next echo to check growth on this Friday. I live in Virginia and I was wondering if anyone had recommendations on in-state surgeons and hospitals. I'm interested in repair but not sure that any surgeons in Virginia even do that. I will likely be getting a second opinion at either Cleveland Clinic or Northwestern --- but just getting a feel for closer options in case my insurance doesn't let me go to a specialty center out of state. Thanks!
Valarie Sullivan Hey Leslie! I’m sorry, I live in Texas, so I can’t help you find anyone. I hear ya about the insu ... Read more
Valarie Sullivan Hey Leslie! I’m sorry, I live in Texas, so I can’t help you find anyone. I hear ya about the insurance issues. Ugh! I hope you find the specialist you need!
Valerie Allen Your story sounds so similar - though I’m older. I had pre-eclampsia with my daughter and have been ... Read more
Valerie Allen Your story sounds so similar - though I’m older. I had pre-eclampsia with my daughter and have been on bp meds since. I was told I had an aortic aneurysm 10 years ago, at 60. Try the SurgeonFinder under the top right menu. You can search by state and by procedure needed. Good luck!
Adam Pick Hey Leslie, Great to meet you and welcome to our community! Stay tuned. We are getting ready to an... Read more
Adam Pick Hey Leslie, Great to meet you and welcome to our community! Stay tuned. We are getting ready to announce a special patient webinar all about Bicuspid Aortic Valve Surgery. I'm hopeful this could be a great educational session for you to learn more about BAV treatment options.
Richard Munson Interested to see that you are a children's reader. We had hoped to train shadow for his childrens re ... Read more
Richard Munson Interested to see that you are a children's reader. We had hoped to train shadow for his childrens reading certificate as we have 2 in our weekly training class but although he is a kid magnet he is too high energy. Probably not a lot of siberian husky readers around.