Adam's Heart Valve Surgery Blog – Page 72

Considering that a cardiac catheterization is on Time Magazine’s “Top 10 Scary Medical Procedures”, I am always looking for good patient information to dispel the fear associated with this procedure. (FYI, many heart valve surgery patients have a cardiac catheterization prior to valve repair and valve replacement operations.)

On that note, Ken just sent me a very detailed account of his recent cardiac catheterization. So you know, Ken has severe mitral regurgitation and is scheduled for surgery later this month. As you can read below, he has some interesting points specific to insurance, fear, the procedure and going home afterwards.

Without further ado, here are Ken’s thoughts specific to his recent cardiac catheterization:

Insurance Considerations For The Cardiac Catheterization

I am enrolled in an HMO and therefore needed referrals from my primary care physician for the cardiologist and the hospital. Since my cardiologist was performing the procedure at Massachusetts General Hospital, I also needed a referral for the admitting cardiologist there as well.

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Brenda just emailed me an interesting question about mitral valve prolapse and headaches. She writes, “Adam – I was diagnosed with prolapsed mitral valve over ten years ago. However, I have been completely asymptomatic since then. Recently, I have had really bad headaches… They might even be migraine headaches. Do you know if that is a symptom of mitral valve prolapse?”

This question raises two interesting points specific to heart valve disease.

• First, patients can be completely asymptomatic – meaning they do not have any of the documented symptoms of heart valve disease. I fell into this category of patients. Out of all the documented symptoms of leaking heart valves, I only really had one small symptom that forced me to see my cardiologist. To learn more about the symptoms, click here.
• Second, symptoms manifest differently for each patient case. There is no “one-size-fits-all” symptom-set that triggers the diagnosis of disorders including aortic stenosis or mitral regurgitation defects, etc.

Back to Brenda’s question… I just reviewed the symptoms of mitral valve prolapse. According to the Mayo Clinic and Cleveland Clinic, headaches are not common for mitral valve prolapse. However, after reviewing the symptoms listed at Medicine Net, migraine headaches are on their list of symptoms for MVP.

Given that variance in commonly identified symptoms, I would encourage you to see your cardiologist and get checked out. If, by chance, your mitral valve prolapse is triggering your headaches, it would be better to know sooner than later. I hope this helps.

Related Links:

• Jim’s Story: From Ocular Migraines to Mitral Valve Repair Surgery
• Vertigo, Headaches and Vision Problems After Heart Valve Surgery

Keep on tickin!
Adam

Jenny must be tired of seeing my scar sprinkled throughout this website. She asks, “Adam – Do you have any pictures of incision scars for women who have had open heart surgery? I’m getting ready for open heart surgery and would like to see what my chest scar might look like.”

Well, I do have two pictures of women which show an open heart surgery scar at different stages of the recovery. The picture below shows a woman still in the hospital (shortly after surgery).

The next picture shows a lady who appears to be fully recovered. You need to look real close to see the incision scar which is no longer red (as shown above) but white. Yes, this picture is a little artsy but it does a good job showing just how well the skin can heal.

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The list of political figures having heart valve surgery continues to grow. In addition to Governor Arnold Schwarzenegger and former Senator Jessie Helms, I just learned that Iraqi President, Jalal Talabani, was discharged Thursday from the Mayo Clinic after undergoing successful surgery on a heart valve.

The statement by the presidential press office said Jalal Talabani initially went to the hospital in Rochester, Minnesota, on August 2nd for knee surgery but that “the medical team found out that he suffers from a problem in one of the heart valves.”

“This has required surgery and it has been done with success,” the statement said. It said the president left the Mayo Clinic on Thursday morning and was “in good health.”

The 74-year-old Jalal Talabani collapsed and was hospitalized in Jordan and the United States in February 2007 after suffering from what aides called exhaustion and dehydration caused by lung and sinus infections. Mahmoud Othman, a prominent Kurdish lawmaker who is close to the Kurdish Jalal Talabani, said the Iraqi president would receive treatment for his knee at a later date.

Mayo Clinic spokesman Bryan Anderson said that at Talabani’s request, the clinic had no comment.

Keep on tickin’ President Talabani!
Adam

Don’t let the title of this blog fool you. There is no weird, sexy, fetish thing going on here. 🙂

Instead… With this post, I am asking for HELP from the female, heart surgery patients that regularly read this blog.

Specifically, Vicki is preparing for open heart surgery in three days. She just emailed me an urgent question about the use of bras after cardiac surgery. I have some thoughts on the topic (even though I don’t have breasts). But, I imagine a few of our female patients – that means you Becca, Joanne, Heather – might have some interesting advice for Vicki. That said, can you help her?

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I stunk at golf before heart surgery. Really, in thinking about it, that might be an understatement. Now, it is several years after my open heart surgery.

Guess what?

I still stink at golf!

But, that is not the point I’m trying to make. Here’s the point… Many patients head into heart surgery in a world of uncertainty with questions like “Can I do this activity post-surgery?” or “Will I be able to do that after surgery?”

All of these doubts are completely rational. I did the exact same thing when I was rolled in for my aortic valve replacement operation. But, I’m here to tell you, after a double heart valve replacement, that you can fully recover and you can restore your body to re-achieve whatever you set your mind too.

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Earlier this summer, we chatted about the debut of “Hopkins” on ABC and the sometimes, overly dramatic Grey’s Anatomy.

Well… Robyn (my wife) and I just watched the seventh-and-final episode of this very unique, very touching mini-series about the reality of working at Johns Hopkins Medical Center in Baltimore Maryland.

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There are some things about my aortic valve replacement surgery that I will never, ever, never, ever, nehhhhh-verrrrr forget. (To learn more, click here.)

One such memory is that of my LOUD and POUNDING heartbeat on the second night home from the hospital. It was around 10pm on a Monday evening. Robyn, my wife, had just laid down next to me in bed. We talked for a bit and then, after exchanging “I Love Yous”, we entered that silent period right before sleep.

As we laid quietly in the dark, my new heart decided to make its presence known. A “Bum-Bump” rattled in my chest and head. Then another “Bum-Bump”. It became louder and faster “BUM-BUMP! BUM-BUMP! BUM-BUMP!” I instantly became fixated on the loud repetitive sound. In fact, I became thrilled knowing that my heart valve flaps were working so well. (Fyi, your heart valve leaflets make the “Bum-Bump” sound in your heart as they open-and-close.)

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I just received this wildly coincidental email from Carol. It’s amazing to read about Carol’s perspective on heart valve surgery, considering she was formerly an intensive care unit (ICU) nurse. Here is what she wrote:

Dear Adam,

Thank you! Thank you! Thank you for sharing your experience in your book. I am 6 weeks post-op mechanical aortic valve replacement (Carbomedics). Now, here’s the weird part…

I was a patient in the same ICU that I was the Charge Nurse of back in the 1970’s! They say “a little knowledge is a dangerous thing”. I was VERY aware of my post-op complications as they were happening. Receiving four units of blood and going into a rapid atrial fibrillation with a heart rate of 150-160 several times was a unique experience!

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One of the most common questions I get relates to the life expectancy of heart valve replacement devices. It’s a great question that fundamentally underlies a critical patient concern. That concern is the fear of a second cardiac surgery operation.

In prior blogs, I have written about the life expectancy of pig valves, cow valves and human donor valves. Earlier today, I received an interesting email from Jason about the longevity of his Bjork-Shiley mechanical heart valve replacement. Here is what Jason had to say:

“Hi Adam – I just came across your website. I had my aortic valve replaced in 1982, at 29 years of age. I have just found out that I need surgery for an aortic aneurysm, I’m 55 now. I have a Bjork-Shiley mechanical valve. I asked my surgeon if he would be replacing the valve while he was in there, since it is now 26 years old. I was surprised to hear that he wouldn’t be, unless there were problems with it. Thanks. Jason”

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Dan, from California, wrote me an interesting email that I could relate to whole-heartedly. Here is Dan’s email and my response:

Adam,

I have always been very healthy, normal blood pressure and EKG, no problems. I am 65, low cholesterol, slender, no health history problems, and I do not smoke. Body scanning reveals no blockages.

After noticing some breath shortness after briskly walking, my doctor suggested a stress echo EKG test, which I had done yesterday. The tech and the doctor administering the test wouldn’t say anything, other than the tech saying the pictures appeared okay – a “good squeeze”.

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It doesn’t matter what sex you are, what race you are, what country you are from or what religion you are… Heart valve disease has and will continue to impact most segments of the population.

Recently, I received a note from Cindy about her mother who needs heart valve replacement. Cindi’s mother is Jehovah Witness. As a result of her faith, Cindi’s mother requires a no-blood surgery. She writes to me, “Dear Adam – My mother was recently diagnosed with needing aortic valve replacement and a bypass. She is a Jehovah’s Witness and requires “no-blood” open heart surgery. Do you personally know of anyone ever having this done? My brothers and sisters and I are gravely concerned. We have our doubts about the no-blood heart surgery. I would love to hear from you. Cindi”

So you know, I’ll be the first to admit when I don’t know something. And, this question definitely positioned me in the land of “I don’t know.” That said, I was very intrigued to learn more about practices of Jehovah’s Witnesses as it relates to no-blood or bloodless surgery.

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I’ll never forget my reaction when Dr. Vaughn Starnes explained to me the procedure for cooling, stopping and restarting my heart.

“So let me get this straight,” I emphatically questioned the gray-haired guru, “You’re going to stop my heart, cool it, fix it and then restart it using an electric shock?”

Doctor Starnes paused, looked calmly into my eyes and then replied with a simple, unemotional one-word response, “Yes.”

“Ohhhhhhhhh-kaaaaaay,” I slowly muttered in a humble daze as I pondered the magic of modern medicine.

 Dr. Vaughn Starnes Using A Defibrillator To Restart Patient’s Heart

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Sometimes when I write these blogs, the process is effortless. I sit down. I start writing. And… POOF! Five, ten or fifteen minutes later I have a draft specific to the question or topic at-hand.

Well… Not this time. Why? Well, I just received a question from Molly that reads, “What is the best way to care for a heart surgery patient?”

As I sat in front of my computer, I began to think about all the different elements (pre- and post-operative) that my own support group had to deal with – including the shock of diagnosis, getting a second opinion, finding the right surgeon, selecting the right procedure, my five days in the hospital, and of course, the challenges of heart surgery recovery (cardiac depression, pain, etc.).

In light of all that, a single answer to Molly’s question escaped me.

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I just received a question from Laura which asks, “My mom was recently diagnosed with a mitral valve regurgitation problem. During her discussion with the cardiologist, he said that her valve flaps were not closing tightly and causing a leak. What exactly does this mean?”

Understanding heart valve anatomy is critical to better understanding the diagnosis of heart valve disease and the surgical steps required to fix the problem. That is why this question about heart valve flaps is such a great inquiry.

Heart valve flaps are also known as “heart valve leaflets”. The flaps, or leaflets, are composed of tissue. The flaps sole purpose is to open-and-close tightly to secure that blood flows through the heart in one direction. Each heart valve has three (3) heart valve flaps, except for the mitral valve which has two (2) heart valve flaps. Below you can see two diagrams of the human heart* with the white valve flaps in the opened and closed position.

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The patient stories that arrive in my inbox are nothing short of inspirational. Here is the story of Vernon Young from Indiana. He writes:

Adam,

I’m scheduled for surgery next Wednesday – like you, I have to be at St. Vincent’s Heart Center of Indiana at 7AM. I have a great surgeon, Dr. Robert J. Robison, who will be performing the surgery.

I’m 63 years old and have known that I had some form of functional heart defect since I was 20. It was discovered by a United States Air Force (USAF) physician during my final physical before being assigned to Vietnam in 1965. At that time, it was not a problem… at least my USAF physicians didn’t think so.

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One of the most, highly regarded cardiothoracic surgeons I know is Dr. Kevin Accola from Florida.

Lucky for us, I just found a video that features Dr. Accola as he works on a patient requiring aortic valve replacement due to a congenital, bicuspid aortic valve. As you can see in this story Dr. Accola uses a homograft valve to replacement the patient’s defective valve.

Keep on tickin!
Adam

I’m incredibly lucky to receive touching and memorable letters from heart valve surgery patients and caregivers all over the world. In particular, I consider it a special honor when one of my book readers includes me on his or her email list during their heart surgery recovery.

Just today, Dean (from Colorado) sent me this wonderful email which illustrates his appreciation for his support group and his VERY RECENT heart valve replacement. I thought you might like to hear Dean’s thoughts on his hospital experience, so I asked him for permission to share it in this blog. Without further ado, here it is:

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One of the most popular forms of heart valve disease is mitral valve regurgitation. In fact, reports suggest that the mitral valve is the most commonly operated on heart valve.

As a result, I receive a lot of questions about mitral valve replacement and mitral valve repair. Earlier today, I received a question from Kim that reads, “Is there any way to naturally reduce mitral valve regurgitation?”

If you’ve been to this blog before, you know that I am an optimist. I believe that anything is possible. So it would be unlike me to answer that question with a definitive “no”. Interestingly enough, I have heard of some miracle stories from patients in which valve disease issues have mysteriously vanished over time.

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Hey everybody,

I just wanted to take a quick moment to thank you for all your incredible feedback and constructive criticism (following my request for ways to make this blog better). So you know, I received a ton of great ideas to enhance this fast-growing community of heart valve patients and caregivers.

Some of the key feedback items included:

• Add a video playback device into the blog that plays heart valve surgery clips and patient stories;
• Provide chat functionality so that our users can communicate in real-time;
• Create a patient success story directory;
• Enhance the navigation (links) throughout the blog;
• Consider adding a forum or Wiki-like tool to let users actively contribute content to the website.

I could go on-and-on-and-on. Instead, I’ll simply let you know that I will be working to improve this site over the next six months.

Again, thanks for all your excellent thoughts and guidance!!!

Keep on tickin!
Adam