Danielle's Guestbook

Danielle Smith  Hi Leslie, my spine issues are linked to Marfan syndrome. Scoliosis is very common symptom in Marfan sufferers. My spinal surgery was 21 years ago - it wasn't fun at the time and the recovery was long but it was well worth having. I've have had very few complications since.
My spine did not impact on my OHS and procedure was the same. My advice to you is when you have your surgery ensure that all the medical staff are aware of you spinal issues. It's easily overlooked when you're on a Cardiac ward and their priority is your heart. Ensure that the bed and chairs support your back correctly. This will make getting back on your feet quicker. The quicker you get back on your feet post surgery the better.
I've read your journal post - you have had a tough time of it. A positive outlook goes a long way when dealing with scary prospect of surgery. I found the waiting to be the hardest. Much like you I had a huge amount of anxiety. The anxiety symptoms for me were worse than the leaky MV symptoms. I hope that you manage to get both the hernia and heart surgery soon so you get onto the recovery side of this journey. You can do it!
This forum is a great source of knowledge and support and although you are by yourself in Budapest you will always find a ear to listen and support here. Dx

Danielle Smith  Thanks Bonnie. So far no cancellation call so looks like it's a go for tomorrow. Will post more when I can x

Adam Pick  Quick follow-up Danielle! I just saw that Dr. Wells is your surgeon. I was very fortunate to meet him a few years ago and film a video that he was in. Great guy. Here's the video if you would like to check it out. https://www.youtube.com/watch?v=mfczxQQQRRs&t=41s

Danielle Smith  Thanks Adam for the welcome and video referral. Mr Wells was lovely when I met him a few months ago - quietly confident - which was very reassuring when faced with surgery