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Melissa Delgadoposted an update

2 hours ago

What is the average length of time you've been told a TAVR valve lasts? I've heard from doctors 5 years, online 10 years, and I know some patients, while few, ...Read more

What is the average length of time you've been told a TAVR valve lasts? I've heard from doctors 5 years, online 10 years, and I know some patients, while few, who made it 15 years. I think on average 10 years is probably closer to the truth, and knowing everyone is different and different health can affect the valve differently. So just curious what you all out there were told. Thanks!

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Jen Ridge
Bicuspid Aortic Valve
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Mitral Regurgitation
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Tricuspid Regurgitation
March 31, 2025

Jim Moodyjust updated his profile

3 hours ago

Check out the new edits to 'My Story' page by clicking here.

Jim Moodyposted a journal

4 hours ago

Two years ago March 15th Debbie underwent the first of many procedures to repair her diseased aorta. Twelve hour open arch repair called a frozen elephant ...Read more

Two years ago March 15th Debbie underwent the first of many procedures to repair her diseased aorta. Twelve hour open arch repair called a frozen elephant trunk. They also replaced two tissue heart valves with mechanical. Cleveland Clinic in Cleveland Ohio the largest and highest rated cardio vascular surgery centers in the US. We have had a very tough journey three other vascular surgeries, a TEVAR extension in her descending aorta in July 2023 450 mm long extending the repair to her celiac artery. September 2024 another EVAR extension to the SMA artery to seal an endoleak. An Iliac artery repair, a complication of the EVAR procedure to fix a dissected artery. She had survived so much, but we just didn't think she'd make it through the next open procedure to take the repair below the kidney arteries. Cleveland Clinic advised that should be the next procedure when strong enough. In November, we reached out to a vascular surgeon in Houston, Texas at Baylor Medicine. We had a Zoom appointment in November that gave us hope and scheduled an in person visit in March. We had a CT scan to check her current status, and he told us the good news. Her stent grafts are holding up well with no leaks, he recommended we return in a year. Dr Oderich at Baylor Medicine is a vascular surgeon that has been a pioneer in the branched, sleeved endovascular stent graft procedure for noninvasive aneurysm repair. He practiced at Mayo Clinic for 20 years before moving to Texas. Not only was her current state good news, he assured us he could repair the next section endo vascularly.

Grace Mason I'm so glad to hear you received some good news from the recent CT🙌🏼🫶🏼. Debbie is a stron ... Read more

Grace Mason I'm so glad to hear you received some good news from the recent CT🙌🏼🫶🏼. Debbie is a strong lady with a warrior will and a great and supportive partner in you. Wishing you both well ❤️

Helen Adamsjust updated her profile

4 hours ago

Check out the new edits to 'My Story' page by clicking here.

Melissa Delgadoposted an update

4 hours ago

I'm in Wisconsin looking for an IR cardiologist who will perform TAVR on patients in their 50s. So far all I get is the hard sell on SAVR. My cardiologist told ...Read more

I'm in Wisconsin looking for an IR cardiologist who will perform TAVR on patients in their 50s. So far all I get is the hard sell on SAVR. My cardiologist told me I could have TAVR, but I can't find anyone to perform it. Any younger TAVR patients in Wisconsin who had TAVR?

J Alexander Lassally If you are in your 50s and relatively healthy that is quite young for TAVR. It will eventually fail - ... Read more

J Alexander Lassally If you are in your 50s and relatively healthy that is quite young for TAVR. It will eventually fail -- and you will then be confronted with needing another surgery... Cardiologists are not always right ! Surgeons can advise you better....

Melissa Delgado I understand SAVR is the "gold standard," but I also know of many patients having TAVR in their 50s. ... Read more

Melissa Delgado I understand SAVR is the "gold standard," but I also know of many patients having TAVR in their 50s. TAVR in TAVR is happening now, and I'm fine with the fact that I will need more surgery in the future. I cannot do the downtime required with a SAVR. I know if TAVR wasn't a thing, then I'd have no option other than do the SAVR. But knowing TAVR is a safe alternative, that's what I'm trying to do. Unfortunately, everyone I know in their 50s had it at hospitals that are too far from me, so I'm looking for somewhere closer. I appreciate your feedback though.

J Alexander Lassally Good luck in your search ! Can you do Mayo Clinic - hopefully not too far?

Melissa Delgadojust updated her profile

4 hours ago

Check out the new edits to 'My Story' page by clicking here.

Melissa Delgadoposted a photo

4 hours ago

Jon Oletzkegot a new guestbook post

7 hours ago

Kimberly Eisenhut writes, "Jon, first off, thank you for all the years you have been helping and being there for so many others. Now it is your turn! I have not met too many here... Read more

Kimberly Eisenhut writes, "Jon, first off, thank you for all the years you have been helping and being there for so many others. Now it is your turn! I have not met too many here with primary Tricuspid regurgitation and am so glad you are here. I have not had my surgery yet. I will be praying for you and hope to stay in touch here throughout your heart journey. I will be having a TEE on April 2nd and am very anxious about it. I am a single mom with a teenager still at home with me and it worries me every single day.
Wishing you peace and blessings on this journey.

Bob Le Vaillantposted a journal

8 hours ago

Kimberly Eisenhut reacted to this

While an anxious wait from diagnosis last June, the TAVI operation in Brighton this week went like a dream. Admitted 4pm on Monday, discharged with only ...Read more

While an anxious wait from diagnosis last June, the TAVI operation in Brighton this week went like a dream. Admitted 4pm on Monday, discharged with only a nick in my groin and a brand new aortic valve, 4pm on Wednesday. And I have walked the dog twice since.. The new valve is made either of cow or pig skin. I wasn't told which. However, I felt a bit guilty eating the pork pie my wife, Valerie, smuggled in, fearing it might be the new valve's mother!

Jessica F Very glad to hear all went well, Bob! I see the procedure didn't dampen your humor, laughter is the ... Read more

Jessica F Very glad to hear all went well, Bob! I see the procedure didn't dampen your humor, laughter is the best medicine! Best of luck on your recovery journey