Helen-- I've been one of your "followers" from the beginning but have been too shy to post anything. But tell me, please: did you have any problem connecting ...Read more
Helen-- I've been one of your "followers" from the beginning but have been too shy to post anything. But tell me, please: did you have any problem connecting with Dr. Adams at Mt Sinai?. I have severe MV insufficiency + moderate AV, stemming from endocarditis 3.5 years ago. I'm told I need MV replacement at the least, but I can't seem to identify a surgeon who specializes in MV surgery consequent to endocarditis. (Mount Sinai has been recommended by my cardiologist. ) Sorry to bother you with this, but you seem to have had a successful experience with Mount Sinai. Any thoughts? Thank you , Helen-- and best wishes for continued recovery. Diane
Helen Daw Dianne, We are all here because we have common issues and no need to be shy. We all want to help each ... Read more
Helen Daw Dianne, We are all here because we have common issues and no need to be shy. We all want to help each other, so please reach out and ask for help.
I called the office and made an appointment. I had all my echos and notes from my cardiologist sent there. I waited 4 months for the appt. You might be surprised of what he has to say. He specializes in mitral valve repairs and might be able to fix yours. I definitely think it is worth it to get his opinion. I was so pleased with everything from start to finish, except when I wasn't seen by him for my follow up. I'm over it now...lol. Let me know if you want to talk and I can send you my number. Or you can email me at
hsaardi@yahoo.com
Phyllis Petersen Hi Dianne, I just looked you up after seeing this. I'm from NYC, but live in Tucson now. I had my mit ... Read more
Phyllis Petersen Hi Dianne, I just looked you up after seeing this. I'm from NYC, but live in Tucson now. I had my mitral valve repaired at Cleveland Clinic, but would be glad to help in any way I can too. As Helen said, this is a great community of supportive people, so don't be afraid to ask anything.
Hey how are you doing? How’s being on the metoprolol?!? Symptoms get any better?
Helen Daw HI Melissa, My cardiologist changed it to the extended one and I take it at night just before I sleep ... Read more
Helen Daw HI Melissa, My cardiologist changed it to the extended one and I take it at night just before I sleep so that helped a lot. Very little dizziness now. Thanks for asking!
Hi Helen,
I hope you are still doing awesome. I know you loved Dr Adams. Did you have it done minimally invasively or robotically. Not sure if he does one ...Read more
Hi Helen,
I hope you are still doing awesome. I know you loved Dr Adams. Did you have it done minimally invasively or robotically. Not sure if he does one of both methods. Thanks in advance!
Helen Daw Hi Mark, They said I was not a candidate for the minimally invasive surgery and I did not want the ro ... Read more
Helen Daw Hi Mark, They said I was not a candidate for the minimally invasive surgery and I did not want the robotically one. I just trusted him and did not seek a second opinion. He looked at my echo and told me that my Mitral Valve was 100% repairable and that is all I wanted to hear. The incision is only about 4 inches or so and the pain was very minimal. He took the time to answer all my questions and never felt that I was rushed. Good luck to you!
Mark Caswell Trust is the most important aspect for me too. Thanks for sharing.
Hi Helen,
I just read your post & I was at Mt. Sinai today too! I saw Dr. Adams and was just told I needed mitral valve valve surgery & scheduled it at Mr.Sinai ...Read more
Hi Helen,
I just read your post & I was at Mt. Sinai today too! I saw Dr. Adams and was just told I needed mitral valve valve surgery & scheduled it at Mr.Sinai for next month.
I am still a bit overwhelmed with the news and lettting it sink in.
Funny, I live just a few towns away from you in NJ so we are neighbors :)
Feel free to contact me if you need someone to talk too. It is so nice that we can all support each other.
Hugs.
Suzanne
Helen Daw I would love to meet up with you for coffee. Before my surgery.Not sure how we can exchange phone num ... Read more
Helen Daw I would love to meet up with you for coffee. Before my surgery.Not sure how we can exchange phone numbers??
Suzanne Mazzarella I would love to meet up Helen. Maybe you could send me an e-mail with your phone number & I will repl ... Read more
Suzanne Mazzarella I would love to meet up Helen. Maybe you could send me an e-mail with your phone number & I will reply back with mine.
My email is smazz6@aol.com
Gina Josette Fiorentino posted a note for Helen that says:
Hi Helen, We are the same age. I am preparing for surgery as well- similar to you. I imagine you might feel alot like I felt for several months when I got ...Read more
Hi Helen, We are the same age. I am preparing for surgery as well- similar to you. I imagine you might feel alot like I felt for several months when I got this news. Slowly, with research and support I am having more moments where I am feeling more comfortable with this next life event.
Statistics are very good for us All, especially with trusted surgeon specialists. How lucky you are to be offered a repair, and also by a leading mitral valve specialists. Believe me, I relate, and I wish you well. I can speak from experience that a small amount of valium or Xanax can take the edge off of the terror feeling inside, and allow the body to relax and know it is safe. Also, EFT tapping has been very helpful for me - Emotional Freedom Tapping has helped me tremendously (helps to naturally turn off the fear center of the brain, thereby reducing stress, anxiety and panic). Let me know if your curious and I can send you a YOU TUBE link you can follow along with a coach. It's freen soothing (and kind of like acupressure). Wishing you well along your journey... you are NOT alone.
Helen Daw Thank you for the reassurance! Prescription drugs scare me. My mom started with one kind about my age ... Read more
Helen Daw Thank you for the reassurance! Prescription drugs scare me. My mom started with one kind about my age and now she is on 13 different ones. I’m terrified of ending up like her, however I would very much like the you tube link.
Gina Fiorentino Hi Helen, there are many examples of tapping on You Tube, presented by many different EFT coaches, b ... Read more
Gina Fiorentino Hi Helen, there are many examples of tapping on You Tube, presented by many different EFT coaches, but I'm sharing one of my favorites. I like Brad Yates' videos, and I hope this video on "Tapping for Fear, Anxiety and Panic" gives you some relief too. I notice about 15 minutes of the EFT tapping usually calms me down, releases a lot of tension/negative thoughts, and enables me to cope a little more easily. Hope it is a useful tool for you as well.
I hope you will enjoy this video and find it beneficial, and that you will share it with others. If you'd like to get instant access to well over 100 hours o...
Helen - I know you're nervous - believe me, I've been there recently myself. I found out last year that I needed mitral valve repair surgery, had it in December, ...Read more
Helen - I know you're nervous - believe me, I've been there recently myself. I found out last year that I needed mitral valve repair surgery, had it in December, and I can tell you that the waiting was the worst part. I had a very quick and nearly painless procedure and recovery. While he didn't do my surgery, Dr. Adams is very highly regarded in MVR. You're going to be fine. Think positively! Every day you're a step closer to putting this behind you, getting on with your life, and your newly-repaired heart.
Helen Daw I know I am in good hands, but I can't help feel the way I do. Thank you for the reassurance.
I called the office and made an appointment. I had all my echos and notes from my cardiologist sent there. I waited 4 months for the appt. You might be surprised of what he has to say. He specializes in mitral valve repairs and might be able to fix yours. I definitely think it is worth it to get his opinion. I was so pleased with everything from start to finish, except when I wasn't seen by him for my follow up. I'm over it now...lol. Let me know if you want to talk and I can send you my number. Or you can email me at
hsaardi@yahoo.com