I had Hodgkin's Lymphoma as a child of 16. I had damaging radiation and chemotherapy in 1981. Today all four of my valves are pretty bad and I have to have ...Read more
I had Hodgkin's Lymphoma as a child of 16. I had damaging radiation and chemotherapy in 1981. Today all four of my valves are pretty bad and I have to have all four of them repaired or replaced. I haven't got the slightest idea on where to start. I wish someone would be able to help me navigate through all of this.
Rita Savelis Lisa, if you are on facebook you might want to join the group "Hodgkin's lymphoma disease survival &a ... Read more
Rita Savelis Lisa, if you are on facebook you might want to join the group "Hodgkin's lymphoma disease survival & late effects 1960-mid 2000's" where there are many like you. I had Hodgkin's in 1977 and heart valve surgery (aortic and mitral valves replaced, tricuspid repaired, pacemaker implanted) in 2015 due to the stenosis of my radiated heart. Your situation, like everyone's, is singular and personal. You need a surgeon who is familiar with radiated hearts and she/he will be able to guide you and deal with what they find when they see your heart. Sugery is not easy and recovery can be long when you have several valves worked on. I was exhausted and in discomfort for a few months. My heart is "fine" now, although I have had several cancers since then (more late effects from Hodgkin's). Take care.
Richard Munson My experience with mitral valve repair at mass general in boston was very positive. No idea if my sur ... Read more
Richard Munson My experience with mitral valve repair at mass general in boston was very positive. No idea if my surgeon is even an option for your multi valve issue. Sergui melnichauk is his name and he was great. Best of luck.
Civita Fahey Hi Lisa ,I'm in Mass also and I went to the Brigham but as Richard said, all of the hospitals in the ... Read more
Civita Fahey Hi Lisa ,I'm in Mass also and I went to the Brigham but as Richard said, all of the hospitals in the Boston area are great. Start with who your doctor recommends and then get a few opinions. I got 3 before I chose. You need to be comfortable with who is doing your surgery. My doctors name was Prem Shaker, who is now at BI Lahey. He was magnificent. Let me know if you have any questions.. Best of luck.
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