Robert DeVita - Heart Valve Journal

My Journal

428 days ago

I am flying from out of state and going in to the Cleveland Clinic to have a transcatheter procedure done to close a paravalvular leak. The hospital stay is ...Read more

I am flying from out of state and going in to the Cleveland Clinic to have a transcatheter procedure done to close a paravalvular leak. The hospital stay is mandatory if I don't have someone with me for observation the night of the procedure.

Under those circumstances, does anyone know if Medicare will pay for the hospital room for the evening of the surgery?

I am concerned about getting a large bill for a one night stay simply because I had nobody to come to Cleveland with me....

DeWayne Adamson I don't see anything on their website for the hotel. How will they repair the leak Transcatheter?

DeWayne Adamson Just read about the plugs. When will you be there? I will be there for a couple weeks starting on the ... Read more

DeWayne Adamson Just read about the plugs. When will you be there? I will be there for a couple weeks starting on the 15th on nov.

Rob Nielsen Call Cleveland Clinic financial they will know or call Medicare

Deena Z It's all about how you document:) And the CC is a pro at this.

Robert DeVita DeWayne,
They are doing it with a transcatheter plug.., Dr Kapadia is the Doctor doing the procedure. Sounds like I will just miss you as I will be out of there by Nov 4th...

Rob,
Great idea to call CC Financial. Medicare only said that my hospital stays are covered. They didn't mention in the case of me not having somebody with me which would necessitate staying overnight.
... Read more

Rob Nielsen

DeWayne Adamson

Robert DeVitaposted an update

458 days ago

Just re-entering another request on this as we may have some new folks out here who could help me with some input:

Does anyone have experience with ...Read more

Just re-entering another request on this as we may have some new folks out here who could help me with some input:

Does anyone have experience with "Post SAVR moderate Paravalvular Leakage" ? I have two stiches that evidently pulled off the ON-X Aortic Valve sewing ring which has created a considerable leak around the portion of the valve that the hear tissue is sewn into....

Marie Myers I know I have read that some people mentioned paravalvular leaks on here. Hopefully they will see you ... Read more

Marie Myers I know I have read that some people mentioned paravalvular leaks on here. Hopefully they will see your post and contact you. I am sorry that you have to have reoperation for your leak. Prayers for your full recovery
I noticed you asked about radiation heart disease also. That is a condition of valve deterioration caused by radiation to the chest for treatment of diseases like lymphoma. Many times, people were treated as teens or young adults, and eventually went onto develop heart valve disease. That is a tough side effect!

Robert DeVita WOW.., thanks for sharing on the Radiation conversation ! I had never heard of it and appreciate the ... Read more

Robert DeVita WOW.., thanks for sharing on the Radiation conversation ! I had never heard of it and appreciate the learning!

Robert DeVitaposted an update

475 days ago

Jeff Williams reacted to this

Thats great Jeff.., congrats !

Robert DeVitaposted a journal

476 days ago

There was a gentleman out here earlier from Florida who is going to CC I believe next week for Surgery. I would like to wish him luck and share notes with him ...Read more

There was a gentleman out here earlier from Florida who is going to CC I believe next week for Surgery. I would like to wish him luck and share notes with him as well. I live in Florida as well and was up at Cleveland Clinic last week ! I will be having surgery up there in January.

Dana Knight I am also going to CC Oct 4. I also live in Florida. I have radiation heart disease.

Robert DeVita Thanks for reaching out Dana.., what is radiation heart disease?

Robert DeVitaposted an update

476 days ago

I had a SAVR Full sternotomy surgery last January and unfortunately now have moderate Paravalvular Leakage which will require a re-operation this coming January ...Read more

I had a SAVR Full sternotomy surgery last January and unfortunately now have moderate Paravalvular Leakage which will require a re-operation this coming January (I am told it is best to wait one year).

I have read that with reoperations it is best to have a surgeon who has a lot of experience in the re-operative SAVR world. I would like to have this done at the Cleveland Clinic in Ohio and I am hoping that someone has a strong recommendation of such a surgeon at Cleveland Clinic?

Grace Mason Roselli is tops at CC in aortic repairs

Robert DeVita Well thank you so much for that ! Now I need to go figure out how I can move my case over to him !

Grace Mason No problem. I think you can call and request him. He generally is scheduling out 4-6 months

john roland You will be very impressed with Dr. Roselli. He will tell you all your options and guide you to the o ... Read more

john roland You will be very impressed with Dr. Roselli. He will tell you all your options and guide you to the one that works best for you. Good luck

Robert DeVitaposted an update

524 days ago

I had SAVR surgery on January 24, 2023 to implant an ON-X metal Aortic Valve.., along with Left Atrial Appendage Clip and Cox Maze 3 procedure. Went through ...Read more

I had SAVR surgery on January 24, 2023 to implant an ON-X metal Aortic Valve.., along with Left Atrial Appendage Clip and Cox Maze 3 procedure. Went through 12 weeks of PT (3 times per week) as well. Two weeks ago I had my first echocardiogram and was told that I have Paravalvular Leakage in my aortic valve. I have a TEE procedure next week to attain a tighter diagnosis.
Does anyone have a similar experience or know how this can be treated ?

How dangerous it is?

Will they fix it transcathater or will they have to repeat Open Heart Surgery?

If so, what is the success rate and how long will the recovery be?

Marie Myers Hoping you get some answers to your problem. I do remember people posting about paravalvular leaks; h ... Read more

Marie Myers Hoping you get some answers to your problem. I do remember people posting about paravalvular leaks; hope one of them sees your question and can relate their experience. Hang in there!

Robert DeVita Thanks Marie!