Had my surgery last Wednesday.. Went into OR maybe 9:30 am. My anastesiologust was so comforting, really exceptional and allayed a lot of my anxiety. Waiting ...Read more
Had my surgery last Wednesday.. Went into OR maybe 9:30 am. My anastesiologust was so comforting, really exceptional and allayed a lot of my anxiety. Waiting in holding area till he came to take to the OR was slightly nerve racking but in any event mild inconvenience feels like lifetime ago!
The OR wasvbusybwith activity and I was ready for a 6-7 hour procedure. I was told I would be under for 10 something hours. My family waited in the waiting room but apparently my ross procedure was a bit more complex (I developed a kink in another artery that needed bypass and they removed a cyst (maybe thyroid thing) that they removed. Anyway surgery wend I’ve 20 hours and my family has no info (I joked my husband must have signed on to some dating apps in the interim, but seriously..) anyway I survived miraculously through effort and talents of my unbelievably talented and diligent Surgeon, Dr. Paul Stelzer, a true gift to all of humamkind. I remained in ICU for a couple of days and then the ‘’step down ‘ICU for a few days and was transferred to the 7th for oor cardiac unit on Monday afternoon. Btw, overall my experience was good to beyond excellent with 2 exceptions that still haunt me. The ICU nurse were kind and so caring throughout their 12 hour shifts and with few exceptions despite having 2,or 3 patients I really felt attende to and cared for. Only one nurse (Rob) was inappropriate and hurtful and I plan on to give a full report to Mt. Sinai of my expriences. The othervperson thAt detracted from my stay was a Dr Chen (not even sure hecgavecreal name afte google check!) in ICU who spoke to us in such a condescending and uncaring manner it was horrifying actually. Even though we had been told we were moving to a specific room - and I had transferred all my belongings ther as they had taken my catheter out and there are NO bathrooms available in the stern down ICU!!- this man lying leisurely around with his fist holding up his head (some words come to mind to better describe his pompous attitude repeatedly lied and told us I would need to be monitored and remain in my current ‘room’ mire like prison cell, and that he didn’t even know if there was a room available. This was complete BS as we had been assigned a room hours earlier. It was now close to 2pm whereas I had been woken up early to walk and only ate my oatmeal after the walk as they said a 8am I would get moved up to my designated room. Then returning to the walk I was told to eat breakfast in a chair and it was there I waited unti my upsetting encounter with this icu doctor who I never met but in juxtaposition to my REAL doctors is a demented cruel uncompassionate jerk who looks like he is a sadistic frat throwback and acts like an exaggerated character of the most egoistic sit-com Doctor. He would actually be a great sinister dr on a sitcom but in no way shape or form should this man be in contact with patients!!! Anyway I stood my ground and we got another person to approve transfer.
Even though the nurse to patient ratio is much lower there I felt so much better in a quit room with a scenic window and my own bathroom (the cammode can be slightly disconcerting, especially trying to make an initial bowel movement.
I was also able to experience my first shower after surgery, which felt absolutely incredible!!!
Doctor Stelzer who always sports a smile and despite his amazing skill and exceptional reputation is never dismissive, suggested I go home as there were reports of snow and I live in LI .a distance from the hospital. His staff, with his efficient direction miraculously got my drain tube removed and my IV and swiftly I retrieved my things and was so happy and surprised I could actually dress myself!! But here’s why I’m really writing at this time.
The biggest shock was that despite having eaten not more than an oatmeal an a few yogurts (the intubation soreness precluded most foods for me) I could barely fit in my clothes which I ha even purchased a size lager! I was up 20 pounds since the surgery!!! I look and feel like I did when I gave birth to my twin boys!!
Is there anyone out there who had success combatting this shocking weigh gain and what should I do/expect????
Despite the hole, scabs and scars of having a relatively nice body disfigured for now, I’m still thrilled to be home and hopeful for a full and fast recovery (within normal guidelines)
Also one other thing - my daughter is coming home from college with her service dog poodle which is very sweet and ordinarily cheers me up. Anyone with comments on the puppy restriction. She will be disappointed if I have no interaction with Auggie Doggie, should I was thinking to wear a heavy down fill long coat when I hold him? Anyone with other suggestions /comment most welcome!!
Rochelle : had Ross Procedure 2/13/19!!!
Rochelle Rottenstein Just re-read and saw sooo many typos but the only one that make a difference is that my surgery was a ... Read more
Rochelle Rottenstein Just re-read and saw sooo many typos but the only one that make a difference is that my surgery was about 10 hours not 20 😱
Sandy Laine Don't see another response - so in case your anxious - there is often a pretty large water weight gai ... Read more
Sandy Laine Don't see another response - so in case your anxious - there is often a pretty large water weight gain connected to these surgeries, and Lasix is often prescribed to counter that. I think most people lose that fairly quickly. I do know if you have a rapid weight gain after discharge, your circulation may be impaired and the medical professionals want to know. With the poodle - enjoy the comfort but probably keep him on the lap and away from the chest... Congratulations on a successful (though long) surgery!
Bruce Adams Don't worry about the typos. Speaking for myself, we're not all English teachers here examing and jud ... Read more
Bruce Adams Don't worry about the typos. Speaking for myself, we're not all English teachers here examing and judging ppl. I could not even type or text decently till 2 weeks after my operation. Weight gain is normal. I gained 25+ lbs. after my operations. By the time I was released to go home I'd lost 15 lbs from my original weight. I was huge. Felt like a hockey or football player. It all comes right off and really quickly.
Susan Lynn Incredible story! I'm glad surgery and your hospital stay are behind you. Hope you have a speedy ... Read more
Susan Lynn Incredible story! I'm glad surgery and your hospital stay are behind you. Hope you have a speedy recovery. I'm curious why you chose Mt Sinai instead of one of the facilities in LA?
Catie B Welcome to recovery!
Don't worry--as Sandy said, it's water weight. Many of us were on Lasix awhile ... Read more
Catie B Welcome to recovery!
Don't worry--as Sandy said, it's water weight. Many of us were on Lasix awhile to gradually ease it out.
Susan Casey Thank you for sharing...lam having surgery next Wednesday and have such anxiety and fear..just want t ... Read more
Susan Casey Thank you for sharing...lam having surgery next Wednesday and have such anxiety and fear..just want to get it done...you look great and hope all continues to go well for you
Thomas Brusstar Thanks for sharing all that. Sounds like some drama around the ICU. It only takes one dr or nurse t ... Read more
Thomas Brusstar Thanks for sharing all that. Sounds like some drama around the ICU. It only takes one dr or nurse to ruin it. I think I lost literally 15 pounds in 3 days after discharge, from all the water weight. The IVs pump fluids in, but that seriously went away fast. Nothing beats being home. The holes and scars heal!
Rochelle Rottenstein Thank you all for your thoughtful suggestions. It is amazing not to have to go this alone💕💕💕 ... Read more
Rochelle Rottenstein Thank you all for your thoughtful suggestions. It is amazing not to have to go this alone💕💕💕
Can anyone on here comment between Ross Procedure versus aortic animal valve replacement surgery?? I’m so torn. Also between NY (Mount Sinai) and LA- Cedars ...Read more
Can anyone on here comment between Ross Procedure versus aortic animal valve replacement surgery?? I’m so torn. Also between NY (Mount Sinai) and LA- Cedars or UCLA versus Dr Stewart in Miami? If anyone has experience or knowledge about any of these choices PLEASE help me, I’m so stressed out with this decision!!
Marie Myers I think Adam (the founder) had a Ross procedure. Check out his story and journal.
Adam Pick Hi Rochelle, I had a Ross Procedure 13 years ago with Dr. Vaughn Starnes. I'm doing great. Here's a ... Read more
Get important information about the Ross Procedure for aortic valve replacement patients that have aortic stenosis or regurgitation.
Jennifer McInerney I had tissue valve. I’m happy to share my experience with you.
Willie Radl When I was looking at all my options the Ross Procedure was high on my list. I spoke with several su ... Read more
Willie Radl When I was looking at all my options the Ross Procedure was high on my list. I spoke with several surgeons at Mayo Clinic and their comment on the Ross was it was a great procedure for kids, teens, young adults, but for older folks a tissue valve is an easier straight forward procedure with great results as well. Additionally with either, the odds of needing another surgery down the road are likely as the tissue valve or the homograft used in the pulmonary position for the Ross may eventually wear out. Repeat surgeries for the aortic tissue valves are low risk. The Ross procedure is an operation on both aortic and pulmonary valve so there is a risk for more complex issues down the road but not necessarily. There are a lot of papers out there showing the Ross has performed well if done by an experienced surgeon. So, if you go with the Ross I would make sure your surgeon is highly skilled in the procedure and performs it often, you will likely have a good outcome that way. There is no easy answer to your question and we've all struggled with this decision. Ultimately it comes down to what you feel is best for you and what makes you comfortable.
Rochelle Rottenstein Thank you for your thoughtful responses. I’m still scheduled for the Ross Procedure and after readi ... Read more
Rochelle Rottenstein Thank you for your thoughtful responses. I’m still scheduled for the Ross Procedure and after reading all the information you and Adam Pick’s link provided, I do feel much more comfortable with my decision. I will have to just put my trust in my good doctors and I am grateful that I can with their capable hands and G-d’s help I will be able to get my life back, by my next birthday, hopefully sooner.
Can anyone on here comment between Ross Procedure versus aortic animal valve replacement surgery?? I’m so torn. Also between NY (Mount Sinai) and LA- Cedars ...Read more
Can anyone on here comment between Ross Procedure versus aortic animal valve replacement surgery?? I’m so torn. Also between NY (Mount Sinai) and LA- Cedars or UCLA versus Dr Stewart in Miami? If anyone has experience or knowledge about any of these choices PLEASE help me, I’m so stressed out with this decision!!
Don't worry--as Sandy said, it's water weight. Many of us were on Lasix awhile ... Read more
Don't worry--as Sandy said, it's water weight. Many of us were on Lasix awhile to gradually ease it out.