Ginny Turner posted a note for Annabelle that says:
Hello Anabelle and welcome to the group! You will find this to be a very supportive community. I saw your question about choosing a surgeon. I also have severe ...Read more
Hello Anabelle and welcome to the group! You will find this to be a very supportive community. I saw your question about choosing a surgeon. I also have severe mitral regurgitation but feel well and am asymptomatic except for a lot of PVCs. I strongly believe in getting a second opinion from a surgeon at a recommended hospital of excellence in valve surgeries (see the list in Heart Hospitals tab above). I live in rural East Texas and will be traveling to the Cleveland Clinic in Ohio for my mitral and tricuspid valve repairs and a maze procedure with Dr. Marc Gillinov the first week in January. My first consult was with a surgeon in Texas, but his rates of valve replacements (30%) vs. repairs (70%) were higher than what are ideal repair rates, which should be in the mid to high 90% range. After having my records sent to Dr. Gillinov, and comparing his recommended surgery plan, I am certain I made the right decision. There were a number of differences in the two surgeons' approaches to my surgery. It's not just the surgeon who needs to be very experienced, it's the whole surgical and after-care teams. If possible, you should choose a surgeon who has done thousands of your type of surgery with very high success rates. The only downside is that the wait for surgery may be longer because they often schedule months in advance, but for me, it's been worth it to wait a few extra months to have the utmost confidence in the person doing my surgery. I know of many patients who have traveled across the country for their surgeries and the travel doesn't seem to be a problem. Best of luck as you go forward on the journey!
Richard Munson It might be different now regards long distance ohs travel. A year ago i was operated on right in the ... Read more
Richard Munson It might be different now regards long distance ohs travel. A year ago i was operated on right in the midst of covid and was happy to be an hours drive from home. No visitors were allowed. But then i also live close to boston that offers a few top rated alternatives. The heart surgery wing at mass general has a top shelf staff of post surgery employees from the surgeon right down to the person that gave me my first shower. It takes special people and no doubt most ohs hospitals have them.
Annabelle Picz Richard, thank you for the encouragement and advise.
Annabelle Picz Richard, thank you for the encouragement and advise.
Annabelle Picz Richard, thank you for the encouragement and advise.
Annabelle Picz Richard, thank you for the encouragement and advise.
Annabelle Picz Richard please forgive my redundant post. I’m new to this and still learning to navigate my way aro ... Read more
Annabelle Picz Richard please forgive my redundant post. I’m new to this and still learning to navigate my way around getting help and doing my own research. Thank you for your understanding. I met with one surgeon locally and I wasn’t impressed with his approach and patient-doctor chemistry wasn’t there. I’m going to meet with another surgeon in the Orlando area tomorrow. I’ve been watching a lot of podcast and been educating myself more about MR and possible procedures for my condition. I’ll post more later. Again thank you Adam and this community for all the helpful advice.