Guestbook of Margaret Fielden

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Margaret Fieldengot a new guestbook post

16 hours ago

Suzette Schear posted a note for Margaret that says:

I was so happy to find out about me, then further great news tiger is okay it’s not cancerous. I lit a candle in at Patrick’s cathedral for you and others ...Read more

I was so happy to find out about me, then further great news tiger is okay it’s not cancerous. I lit a candle in at Patrick’s cathedral for you and others in hopes of your healing and getting my photo of you from Greece. Hopefully you are still motivating yourself to get out. Please post pictures of your adventures.

Margaret Fielden Fantastic, so Tiger looks forward to a healthier New Year with you. Thank you for the candle. I know ... Read more

Margaret Fielden Fantastic, so Tiger looks forward to a healthier New Year with you. Thank you for the candle. I know I survived only by God's Grace and I intend to make the most of my time. My cardiac rehab nurse called today who I knew from previous rehab for heart failure. She said , having read the notes and seen what I had gone through, she didn't expect me to be doing as well as I am. She said nicking the aorta was very serious, my HB was only 9.9 on discharge after numerous transfusions so it will take a while to build up HB to 14 or so. However, I can start cardiac rehab with my old team in early February after my post op. So that was encouraging. I'm making small walks each day, so far not very interesting but a few more steps each day. I will photo the Norman tower of our church on the corner of our street, that was my pre-op walk. A good place to go to give thanks. Lots of thanks to give!

Margaret Fielden The Norman tower of our village church, St Mary and St Nicholas, a mix of Protestant and Roman Cathol ... Read more

Margaret Fielden The Norman tower of our village church, St Mary and St Nicholas, a mix of Protestant and Roman Catholic and very old. The tower was built around 1086 so ancient and crumbling I enjoyed the walk! Hope your treatment is underway Suzette.

Suzette Schear Oh it’s beautiful. That right down the block from you, you are lucky. My boyfriend and I go to chu ... Read more

Suzette Schear Oh it’s beautiful. That right down the block from you, you are lucky. My boyfriend and I go to churches all the time. Here was Sunday at Patrick’s cathedral

Suzette Schear Sunday

Margaret Fieldengot a new guestbook post

13 days ago

Suzette Schear posted a note for Margaret that says:

Hi Margaret, so glad you're home. One thing I learned is not to be a super hero and let the people around you love you and help. Really hard for me to do... Read more

Hi Margaret, so glad you're home. One thing I learned is not to be a super hero and let the people around you love you and help. Really hard for me to do. My friends have always been amazing I just see it so much more now. I'm sorry I haven't been online but you're in my daily prayers and for some silly reason I use your last name in them. Go figure. I'm glad your healing it's going to take awhile as to everyone's journey is different. I'm glad you got home care nurse coming in. Do they plan to set you up with in home physically therapy? Are you starting to walk more steadily? Things will change it's just going to be longer than you think as you I wanted it to be "fixed" right away. If you can't walk outside then walk inside. You'll need to motivate yourself . Glad you survived surgery

Margaret Fielden Thank you Suzette. I need the push as the moment. I'm being a real baby about the itching skin, I think associated with blood thinners, which may be temporary and return to my old ones at post op. I'm ready to claw the skin off in places, stupid I know. It will not let me sleep and is making me so miserable. I have a nurse morning and evening to help bathing and bed routines, observe really, and a district nurse who attends the bed sores, she had a string of interesting photos as it isn't easy to see the area! I would like to get more walks outside, so far they are just the paved garden area. It hasn't stopped raining. I may ask to go to the next town or garden centre to get something to look at and ignore the rain. Cardiac rehabilitation starts with a call from the senior nurse on 17th December. It is a 45 minute drive, although I suspect that is nothing in the States. I can call the heart specialist nurse at Papworth with concerns. My BP is very low and HR higher than desired although I think it is common in valve surgery.
Three minutes yo codeine and paracetamol, then maybe I'll sleep.
Thinking of Tiger today and praying all is benign. It is a lot of worry for you now. Too much uncertainty about your health and now Tigers. You are in my prayers 🙏 ❤️

... Read more

Suzette Schear Why would you want to see those photos . Here’s my butt. I know when I was younger I didn’t mind ... Read more

Suzette Schear Why would you want to see those photos . Here’s my butt. I know when I was younger I didn’t mind but now no thanks Only kidding, but you got to learn to laugh at these things. Ask if you can get children’s Benadryl might help take edge off, it actually sounds like you’re allergic to one of the meds. Ask the nurses to read the back of side effects and see if one has hives. Maybe they can cut it in half. Nothing is stupid sounds like hives and you are suffering. Send me a photo of flowers and yes you should do that being inside mentally made me afraid to leave the house. My blood pressure was high and low as well . Amazon or nurse should be on that . I was on a lot of meds and one of them made my blood pressure drop. I had to be at least 110 to take it. If my blood pressure went lower they made me skip it. Two of the pills were taken at the same time also cause that problem. So my nurse changed one for morning and one at night. Don’t be afraid to speak up and ask questions. You have to be your own advocate. Hope you have heart pillow or pillow to sit in back of car when driving. They don’t want a person in front with seat bags that can go off your sternum isn’t heal and can cause stuff to shift around in a bad manner. I’m sure you know but if not sit with pillow in back seat then sealtbelt around. You need to go out it will help. If you get tired that’s okay to. The more you walk the less bed sores. I just got tiger home with a cone they didn’t have to go deep in his ear canal, which meant cutting his ear flap so much of a blessing. I did not get codine though that would have been wonderful. You have to watch constipation with that.

Margaret Fielden You are right , who wants to see the progression of a healing sore on a coccyx, very unappealing. It... Read more

Margaret Fielden You are right , who wants to see the progression of a healing sore on a coccyx, very unappealing. It is 12.55 am and we ate sitting or lying in my case on a hard trolley for the night. Waiting for the medical team to promounce HR too high, BP too low, CRP too high so infection somewhere. Looks like I'm staying in at the local hospital. Husband has to find a cab home. Neither have a good prospect, mine is a sore coccyx on a hard couch waiting for meds to kick in His is finding a cab home in the cold rain. Bad day again, better for tiger.though!
I just took 60mg codeine, good stuff but needs limiting
Fantastic that Tiger had less surgery than predicted. He will look cute and

offended in that cone. Wishing him well.

wishing you joyxx

Suzette Schear Rather then be on it no pun intended. It’s okay if you have to go back- rather that than traveling ... Read more

Suzette Schear Rather then be on it no pun intended. It’s okay if you have to go back- rather that than traveling to several doctors and appointments to fix it. And they can adjust the meds for the high and low blood pressure and get rid of those hives. It stinks but you can also walk in the hospital with help and keep motivated. Come back stronger . It stinks your husband had to find cab in rain but he probably knew this setback will help you heal so much better in the long run. Here mr cone head.

Margaret Fielden Oh poor Tiger! How undignified for such a very fine specimen!
Back home after 24 hours in hospital. B... Read more

Margaret Fielden Oh poor Tiger! How undignified for such a very fine specimen!
Back home after 24 hours in hospital. Back on antibiotics for pleural cavity infection. Still patches of fluids even after the huge drainage 2 weeks ago. They hope the a-fib will settle when the infection goes. They left meds as they are, but I think timing is important, sometimes doses are too close and the BP and HR are affected. I'll ring Papworth Hospital on Monday to discuss management of the a-fib. Should be my post op in a few weeks, a change of meds again I'm sure. I keep thinking this all has to pass but I know so many people, like you, haven't found recovery so easy or staightforward

.
Tomorrow is a new day, so if the rain stops, I'll encourage my lungs by walking around the garden. Couldn't see the views for rain on the way back today!

Suzette Schear They had to change my drugs a couple of time sue to blood pressure that eloquis and I forgot the othe ... Read more

Suzette Schear They had to change my drugs a couple of time sue to blood pressure that eloquis and I forgot the other name both are blood clotting as well as aspirin so it the pressure of your blood pressure is slower your numbers fluctuate. They messed with your insides and everything has to find its settling down place. Just got to learn to be really patient it took my around 51 days . I felt good then a couple months after that I collapsed. Which was new different journey. Keep a list of questions and understand what the drugs do. They slowly pull you off them as you heal. Sorry about the infection but glad they know about it and are asters it. As I told you from beginning everyone’s journey is different. Everyone was so supportive but to me I felt like why after 10 months is this a problem when I hear others running marathons and returning to work with no problems. I am truly sincerely happy for them but it started to be hard cause I don’t want to complain and be negative so I slowed down going in this website. You need to walk it will help thing moving around you might be tire but just a little a day you’d be surprise when the endorphins start moving. Tiger keeps bumping into everything but I’m extremely grateful he’s home just hope biopsy comes back good

Margaret Fielden Thank you Suzette. It is a balance to hear about more difficult recovery as well as the great positi... Read more

Margaret Fielden Thank you Suzette. It is a balance to hear about more difficult recovery as well as the great positive stories. I would feel much more alone and despairing if I hadn't heard of your struggles and others on this site. It is slower and a different path for some of us and worse to think we struggle alone.
Today I am going to work at walking, horrible weather here, but I need to see what has happened to my house whilst I haven't been around so house inspection walks!
Poor Tiger, he does look cute but hard for him and you. I hope the biopsy results are fast and very encouraging. Thinking of you

Suzette Schear I understand the struggles and you are not alone it’s how you pick yourself up afterwards. You sou ... Read more

Suzette Schear I understand the struggles and you are not alone it’s how you pick yourself up afterwards. You sound like you have a great support team of doctors and hubby . I hate to tell you this it’s just going to take time. You have to mentally go through a lot which I wasn’t prepared for. Kind of for me -hey I went through ohs I’m not the same your live continues as if nothing happened. Especially when I was getting better. I did get displaced anger but I can see how it can happen and did not lash out. I also was wearing the same clothes because they felt comfortable on my skin even after shower I three outfits, but I started the routine of morning. Day clothes and nite clothes. At that point I was physically hurting and didn’t care but it was pointed out to me. So I went with it and made conscious efforts. I kept pushing the walking even if ever so slightly because it will help your organs settle. You been through a lot and from your texts I’m proud of you and your determination to get through this. That’s one of the reason I write these long texts. Besides being selfish of wanting to see you in Greece. Tiger keeps bumping his head around but he’s adjusting. I raised his food bowl so it wasn’t cone covering the bowl. I had to give him some dignity

Margaret Fielden Thank you Suzette, you are so kind. I really value your support. Come on Tiger! And us!

Suzette Schear My pleasure I didnt have anyone around me who understood. Just kept me isolated then I found this w ... Read more

Suzette Schear My pleasure I didnt have anyone around me who understood. Just kept me isolated then I found this website. It helped but ultimately it’s on you and just pull from your inner strength Send me a photo from your walk .

Margaret Fieldengot a new guestbook post

22 days ago

Ruth joy posted a note for Margaret that says:

Welcome home Margaret !!!
Pace yourself , you are doing really well .

Margaret Fielden Hi Joy,Thank you for your welcome home message. It is all very uncomfortable and I have to say the be ... Read more

Margaret Fielden Hi Joy,Thank you for your welcome home message. It is all very uncomfortable and I have to say the bed sore on the b.t.m. doesn't help! I 'm hoping to walk a little in the garden tomorrow, pretty cold here!

Margaret Fieldengot a new guestbook post

23 days ago

Kimberly Eisenhut, Margaret Fielden reacted to this

Ruth joy posted a note for Margaret that says:

Morning Margaret ,
Safe journey home .
Make sure that you wrap something around the car safety belt .
Take it steady and pace yourself

Margaret Fieldengot a new guestbook post

32 days ago

Deena Z reacted to this

Ruth joy posted a note for Margaret that says:

Dear Margaret ,
Little steps . One day at a time .
Eat well and sleep as much as you can .
You are doing really well .

Margaret Fielden Thank you Ruth. I need that reminderx

Margaret Fieldengot a new guestbook post

37 days ago

Geoff Curtis, Marcus Krauss, Rose Madura reacted to this

Ruth joy posted a note for Margaret that says:

Dear Margaret ,
Welcome to recovery .
Once you can have a shower and wash your hair you ‘ll start to feel much better .
Make sure that you ...Read more

Dear Margaret ,
Welcome to recovery .
Once you can have a shower and wash your hair you ‘ll start to feel much better .
Make sure that you are eating well and drinking enough fluids .
You are doing really well .
Little steps , one day at a time .

Margaret Fielden

Margaret Fielden Thank you, still way to go with tubes and oxygen in place. I find it difficult to eat cewy foods beca ... Read more

Margaret Fielden Thank you, still way to go with tubes and oxygen in place. I find it difficult to eat cewy foods because of shortness of breath. However, I now have wrinkly arms which look wonderful after my puff balls!

Margaret Fieldengot a new guestbook post

46 days ago

Suzette Schear posted a note for Margaret that says:

Just thinking about you.

Margaret Fielden Thank you

Suzette Schear Hoping they are patching you up and taking good care of you. Do you know when they want to send you ... Read more

Suzette Schear Hoping they are patching you up and taking good care of you. Do you know when they want to send you home.?

Margaret Fielden Another two weeks. I cannot yet here.so some physiotherapy needed Cardioversion this morning

Margaret Fielden Walk!

Suzette Schear That’s good, you rather be monitored and taken care of properly rather than go home and come back ... Read more

Suzette Schear That’s good, you rather be monitored and taken care of properly rather than go home and come back. Wish I could help so I’ll continue with the prayers. Hopefully you get a cute nurse man. Lol

Margaret Fielden I will be here at Papworth for another ten days or so. Still on oxygen and the cardioversion failed.... Read more

Margaret Fielden I will be here at Papworth for another ten days or so. Still on oxygen and the cardioversion failed. It will be better here once I'm off tubes. Prayers are so much needed

Margaret Fieldengot a new guestbook post

48 days ago

Ruth joy posted a note for Margaret that says:

Morning Margaret ,
Wishing you good luck for your surgery .

Margaret Fielden Thank you Ruth, I'm relieved my surgery is not an emergency like yours

. My surgeon decided waiting ... Read more

Margaret Fielden Thank you Ruth, I'm relieved my surgery is not an emergency like yours

. My surgeon decided waiting out the 7 weeks recommended after my covid wasn't wise, so the mitral valve disease won at 31/2 weeks post covid.

Kimberly Eisenhut You will be in my prayers Maragaret. We are all here for you and please keep us posted along the way... Read more

Kimberly Eisenhut You will be in my prayers Maragaret. We are all here for you and please keep us posted along the way. Much love and hugs sent!

Margaret Fielden Thank you so much Kimberly. I will report back!

Margaret Fieldengot a new guestbook post

64 days ago

Suzette Schear posted a note for Margaret that says:

I just read your post sorry about Covid. I’ve been praying for you. I didn’t forget. As you indicated at least you have more time to prepare. ...Read more

I just read your post sorry about Covid. I’ve been praying for you. I didn’t forget. As you indicated at least you have more time to prepare. Hope the COVID wasn’t too aggressive.

Margaret Fielden Thank you Suzette, I am doing fine. I had an anti viral drip and I'm testing negative with no symptom ... Read more

Margaret Fielden Thank you Suzette, I am doing fine. I had an anti viral drip and I'm testing negative with no symptoms now. It means a few weeks wait for surgery as post covid surgery has adverse outcomes for about 7 weeks.
I am so sorry you haven't had a clear diagnosis of what is causing your symptoms yet. Thinking of you and praying your problem will be found.

Suzette Schear I’m glad you did the drip and you are tested negative. I am glad you’re doing fine and understan ... Read more

Suzette Schear I’m glad you did the drip and you are tested negative. I am glad you’re doing fine and understand the scarey part of waiting but then you get to a point I’m tired of this let’s just get the surgery over. Did they set a new date for you!

Margaret Fielden I have to wait for a call from my surgeon maybe today or next week. Surgery will be toward the end of ... Read more

Margaret Fielden I have to wait for a call from my surgeon maybe today or next week. Surgery will be toward the end of November, I think. I'm enjoying some days in my garden as it is cold but bright here. I hope I will be ready next time! Hope you are coping with the disappointment of not getting a clear diagnosis.

Suzette Schear Glad you’re enjoying the garden. It’s one of my favorite things I had a real greenhouse until it ... Read more

Suzette Schear Glad you’re enjoying the garden. It’s one of my favorite things I had a real greenhouse until it got destroyed in a winter storm. This year I already started drying out my sunflower seeds. I’m had a meltdown in the office. I’m went from two appts to 7 appts. So it’s a part time job. I like to read so I been reading obsessively keeps my mine occupied. How are you doing with having to wait?

Margaret Fielden I love greenhouses and reading. I paint too, trying to discipline myself to paint something most days ... Read more

Margaret Fielden I love greenhouses and reading. I paint too, trying to discipline myself to paint something most days. So waiting time is OK. I think I'll freak out when I get a surgery date! I hope your work is not too demanding, relaxing seems to help heart's tick better!

Suzette Schear Funny I paint too. You might freak out then you might just get tired of waiting. We seem to have a ... Read more

Suzette Schear Funny I paint too. You might freak out then you might just get tired of waiting. We seem to have a lot in common. Work is demanding but I actually love what I do. What type of medium and subjects do you like to paint

Margaret Fielden That's interesting. I like painting people best, strangely when I worked all day with people I painte ... Read more

Margaret Fielden That's interesting. I like painting people best, strangely when I worked all day with people I painted landscapes! My preference is pastel but, at present, I 'm just doing watercolour sketches to make myself paint. What is your choice in art? What work do you do?
I think you are right that my freaking out will be followed by resignation and just wanting to get the op out of the way.

Suzette Schear I’m eclectic on what I paint. Lately butterfly’s, and flowers, lighthouses. I just finished thi ... Read more

Suzette Schear I’m eclectic on what I paint. Lately butterfly’s, and flowers, lighthouses. I just finished this for my sister-in-law who was sick. It’s a hobby for me, I just finished this for my sister in law

Margaret Fielden That's a lovely gift. I'll try to photo something of mine. A Greek theme!

Suzette Schear That’s absolutely gorgeous this was pastels or water colors.? Looks impressionistic. Also has a fl ... Read more

Suzette Schear That’s absolutely gorgeous this was pastels or water colors.? Looks impressionistic. Also has a flare of Norman Rockwell .

Margaret Fielden It is pastel. I have a lot of impressionist type stuff from my Greek days! I hope to go back next spr ... Read more

Margaret Fielden It is pastel. I have a lot of impressionist type stuff from my Greek days! I hope to go back next spring, God willing, when the surgery is over.

Suzette Schear You will can’t wait to see a picture of you there. That’s amazing you do beautiful work. I’m ... Read more

Suzette Schear You will can’t wait to see a picture of you there. That’s amazing you do beautiful work. I’m on the train so tired. We go to slot of museums and galleries. Do you show your work?

Margaret Fielden I can't wait to see me there! I have shown paintings in the past and held an art group for a few ye ... Read more

Margaret Fielden I can't wait to see me there! I have shown paintings in the past and held an art group for a few years in my home in Crete. I do hope you get some rest, it must be exhausting taking the train to and from work. Is your work in New York, I loved it there? My home in the UK is a long way from galleries, out in the sticks. One day I will visit museums and galleries again!

Suzette Schear I can’t wait to see you there. Corny but I’ll have a big smile on my face. I live on Long Island ... Read more

Suzette Schear I can’t wait to see you there. Corny but I’ll have a big smile on my face. I live on Long Island but go into nyc 2 days a week for work. My boyfriend and I are theater goers and we love art galleries. Our headquarters are in the uk. I just learned of the musician Paul Weller. I had lost my ljob about 3 1/2 years ago due to COVID always wanted to work in the city and found a job there I was close to working for nbc network but they hired within. I learned a new trade and have been there 3 1/2 years. I’ll be up for senior management position as long as my health doesn’t get the best of me. It must be amazing having a home I’m Crete. What made you come back?

Margaret Fielden I'll look forward to that smile. Long Island sounds a lovely place from what I read. New York is amaz ... Read more

Margaret Fielden I'll look forward to that smile. Long Island sounds a lovely place from what I read. New York is amazing for theatre and galleries. I pray your health holds up and you get that position you want.
I was at my lovely home in Crete from February 6th to April 21st this year but collapsed twice, first time 11th February, when I broke my spine in the fall. Second time just before I returned to the UK to see family. So this year has been hospitals in Greece and UK and finally the diagnosis of severe mitral valve disease causing all my problems. So not allowed to fly back to Crete until after the surgery! I will make it there in spring 25! I'll have to listen to Paul Weller, get in touch with music again.

Suzette Schear Music helps me. Sorry about the falls. Hope it’s completely healed. My collapses happened 6 month ... Read more

Suzette Schear Music helps me. Sorry about the falls. Hope it’s completely healed. My collapses happened 6 months after surgery. I listen to music and stories at night sort of puts me to sleep. Here is a picture from lunch in front sitting in front of macys looking at Empire State Building.

Margaret Fielden Fantastic photo, what a lunch venue. My spine is doing well, just the heart to fix. I pray that your ... Read more

Margaret Fielden Fantastic photo, what a lunch venue. My spine is doing well, just the heart to fix. I pray that your heart issues will be diagnosed and treated. Surgery is supposed to sort things out but I know that, sadly, things didn't run smoothly for you. I bought some wireless headphones so I'll try the music and audio books to get to sleep, not easy!

Suzette Schear I listen to the Aplacian story teller. His voice sounds like a grandfather telling you a story to sl ... Read more

Suzette Schear I listen to the Aplacian story teller. His voice sounds like a grandfather telling you a story to sleep. https://youtu.be/Watv0dir0rQ?si=opX5obAmas2kB0XZ">https://youtu.be/Watv0dir0rQ?si=opX5obAmas2kB0XZ

i also listen to Dan https://youtu.be/BMOBSodif2c?si=ZqjozrHbdf-geVSF">https://youtu.be/BMOBSodif2c?si=ZqjozrHbdf-geVSF. He takes breaths between his story and his voice is soothing for bedtime. I’m grateful for so

many things this is a temporary setback it just really wears me down. Both of there are on YouTube hope your able to access the links

The Walker Sisters Documentary

https://www.youtube.com/watch?si=opX5obAmas2kB0XZ

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Margaret Fielden Hi Suzette, I have managed to get into the first link. It sounds really good so I'll be testing that ... Read more

Margaret Fielden Hi Suzette, I have managed to get into the first link. It sounds really good so I'll be testing that tonight. I don’t have a date yet, so I'm hoping it won't be too long as I can feel the deterioration setting in! Hoping you are feeling better.

Suzette Schear I understand that. It makes it scary but take one day at a time I believe it will be okay. Here’s ... Read more

Suzette Schear I understand that. It makes it scary but take one day at a time I believe it will be okay. Here’s todays glamour shot. Everything normal.

Margaret Fielden Oh Suzette, It doesn't look a very normal experience, I hope you are OK, I assume it was a an EEG? D ... Read more

Margaret Fielden Oh Suzette, It doesn't look a very normal experience, I hope you are OK, I assume it was a an EEG? Did they make you do the sleep EEG, I found it awful having been kept awake all night and then being unable to control my falling asleep. Lots of horrible snorts when I woke my self! Just sleep apnea, nothing else significant in my case. We do go through some stuff we wouldn't choose!!!

Suzette Schear It was an EEG my brain hurts from the light I got a headache. It was to see if my brain short circui ... Read more

Suzette Schear It was an EEG my brain hurts from the light I got a headache. It was to see if my brain short circuits or if I had epilepsy but again everything came back normal. I had a zoom meeting with glue in my hair . Nobody knew. Can’t make this stuff up. They weren’t checking for sleep apena. That’s the thing I’m always tired always falling asleep collapsed twice . This was after 6 months after healing .

Margaret Fielden Yes, I remember the flashing lights. When I collapsed the Greek hospital were determined to find epil ... Read more

Margaret Fielden Yes, I remember the flashing lights. When I collapsed the Greek hospital were determined to find epilepsy but couldn't. That's why the EEG was repeated after I had been kept awake for 24 hours, no epilepsy but sleep apnea. Of course, they didn't find my broken spine until my bladder stopped working after five days! You are so right, you can't make up the things that happen. I hope the glue washed out and the headache has gone and you can rest. It is so upsetting knowing something just isn't working right but tests are not identifying the problem. Praying they look in the right place!

Suzette Schear My grandma had epilepsy but thankfully I don’t. I had an inactive gall bladder they removed it. I ... Read more

Suzette Schear My grandma had epilepsy but thankfully I don’t. I had an inactive gall bladder they removed it. I can’t believe you broke your spine. Do they consider your bones fragile? No more glue it’s all out no headache today. Still really cold. I feel like I missed a whole year of my life but glad to be around. Here is the other link for sleep. I actually used it last night and woke up with my phone dead. https://youtu.be/xMsg4UfPfJc?si=lKk-6VXYQFSN_L1J

Margaret Fielden Glad you don't have epilepsy, another thing off the list. Maybe, getting closer to finding that is h ... Read more

Margaret Fielden Glad you don't have epilepsy, another thing off the list. Maybe, getting closer to finding that is happening?
I landed on a hard tiled Greek floor but, as I wasn't concious when I fell, I had no idea the injury was that bad when I came round. I have severe osteoporosis but the fractures were from trauma not compression.
I hope you feel fully recovered from the EEG. The sleep link sounds a good one! I'll try it. I'm thinking my symptoms are saying it is time for my surgery, so hope for a date from my surgeon within the next 4 weeks.

Suzette Schear I felt a decline in my breathing and energy level. They told me a saving grace was that I was active ... Read more

Suzette Schear I felt a decline in my breathing and energy level. They told me a saving grace was that I was active. It’s weird how your body compensates. I use to lie asleep propped up a bit it helps the breathing, were you able to get reclining chair? You’ll have to lay on your back. That sounds very painful falling on tile floors. Last fall was in pot hole in city I banged up my leg pretty bad. Looking back I wonder if it was due to the balance.

Margaret Fielden Hi Suzette, I have had a few days of breathing problems and fatigue, so I am hoping I keep going to ... Read more

Margaret Fielden Hi Suzette, I have had a few days of breathing problems and fatigue, so I am hoping I keep going to my surgery date. I have a V shaped pillow for sleep and a recliner sofa, which I will need to use. I'm OK lying on my back now, getting in practice! Balance can certainly be an issue with falls. I was unconcious before I landed this time, apparently due to the mitral valve disease. Windy day here in the UK!

Suzette Schear When I felt a difference i called my surgeon and he pushed the date up. I didn’t want to go into ... Read more

Suzette Schear When I felt a difference i called my surgeon and he pushed the date up. I didn’t want to go into the emergency room and let a stranger operate on me. The fatigue is sort of normal for what’s going on.. when your body tells you to rest, just rest. No pride or ego involved . I get the balance thing just don’t put yourself into any compromising positions. It will help with your safety. Hope I’m not too overwhelming in telling you this.

Margaret Fielden No that's very helpful. I am calling the hospital and my general doctor tomorrow to see if I can get ... Read more

Margaret Fielden No that's very helpful. I am calling the hospital and my general doctor tomorrow to see if I can get a surgery date and advice on medication. I refused to go to emergency yesterday as I couldn't face the hours of waiting in NHS hospitals and catching somethingelse to postpone surgery. A GP friend advised me I needed to talk my doctor about upping diuretics because of my breathing problems. I took an extra 5mg today and have felt better, I was on the higher dose until recently. I have been very quiet today! Hope you have had a better day.

Suzette Schear It’s good that you stay away from hospital and honestly I wore a mask and stayed away from most peo ... Read more

Suzette Schear It’s good that you stay away from hospital and honestly I wore a mask and stayed away from most people until I had my surgery. Watch the amount of water you drink ask you doctor how much. You could possibly be drinking too much or too little. Glad the extra dose worked. Let you doctor know. They get paid to help you make friends with the practitioners who work with doctor and front desk. They become really helpful at times. I actually left 3:00 on Saturday and went to my boyfriends house. It was good going out. I had some moments losing breath climbing steps but took it pretty easy. Tiger was happy when I got home.

Margaret Fielden Hi Suzette, I'm getting anxious because the deterioration is becoming more obvious. My general doctor ... Read more

Margaret Fielden Hi Suzette, I'm getting anxious because the deterioration is becoming more obvious. My general doctor says I must call an ambulance if symptoms deteriorate or my oxygen drops. I have NYHA stage 3 heart failure too. My surgeon is having paternity leave for two weeks in November but, of course, doesn't know when his wife will have the baby, so planning is hard. I know surgery has to be delayed because I had covid but this uncertainty is getting to me. Also, the concern that I'll end up with emergency surgery. The cardiologist was concerned at how rapid the deterioration has been on repeat ECG's. I don't know what to do! The sun is shining but I'm too fatigued to enjoy my garden. I could do with borrowing Tiger to calm me down, very cute!

Suzette Schear Stress won’t help you you have to slow yourself down. I’m sorry it’s happening fast I’ve bee ... Read more

Suzette Schear Stress won’t help you you have to slow yourself down. I’m sorry it’s happening fast I’ve been there didn’t even have this website or time to research anything, I have a suggestion see if you can talk to your doctor when he is on doing surgery and arrange on the side to go to the emergency room that day. I had a doctor who did this with another surgery I had. . All they have to do is book the operating room. So it’s adding another procedure. You’re here just sit back and appreciate the gardens I get that feeling and I’m sorry you have to experience . did you get a negative COVID test? Maybe they are holding off to make sure you’re safe for the surgery you’ll endure I would ask or talk to his office practitioner. if it’s scheduling they may be able to do something. You’d be surprise sending love hugs and peace

Suzette Schear Here is some Tiger moments

Suzette Schear Tiger’s baby picture

Suzette Schear Tiger likes to stare at himself

Suzette Schear Old pic with Tiger

Suzette Schear Tiger saying hello

Margaret Fielden Tiger is gorgeous! I'm having a pretend cuddle. What beautiful eyes Tiger has, just like a tiger!
... Read more

Margaret Fielden Tiger is gorgeous! I'm having a pretend cuddle. What beautiful eyes Tiger has, just like a tiger!
I spoke with my surgeon's secretary and a decision on date should be made this week. The antiviral infusion really helped and I was negative for covid after five days. However, the evidence is that surgery outcome is poor after covid. It is a fine balance between danger of operating post covid and progression of mitral valve disease, but likely to be six weeks after covid onset. Depending on the baby's birth or a new surgeon. It was a better day today so I'm more hopeful of hanging on!

Suzette Schear Sounds much better, very hopeful. there’s a plan in place and they are double checking to make sure ... Read more

Suzette Schear Sounds much better, very hopeful. there’s a plan in place and they are double checking to make sure you’re safe. Makes sense. Tiger is a character except when he wakes me up before work he keeps me from going nuts.

Margaret Fielden I have a date 29th October 2024 for my surgery. I'd already taken my blood thinners this morning but ... Read more

Margaret Fielden I have a date 29th October 2024 for my surgery. I'd already taken my blood thinners this morning but Mr De Silva's secretary said it could be worse as, in an emergency, as I would have taken everything! Wow, it is a shock! Tiger, I need a cuddle!!!

Suzette Schear He would have given you one this morning he had me up from 4-6am. He does this thing he jumps onto ... Read more

Suzette Schear He would have given you one this morning he had me up from 4-6am. He does this thing he jumps onto the high cabinet and jumps on my bed like a wrestler on the ropes. He went from Tiger boo to monster boo this morning. So glad you got your date, I know it's been daunting to say the least. We are both sending you hugs and good wishes and prayers. I'm grateful you finally got a date, sometimes the mental preparation makes it worse.

Margaret Fielden A very cute monster! Many thanks for all your support Suzette. I hope to report back positively next... Read more

Margaret Fielden A very cute monster! Many thanks for all your support Suzette. I hope to report back positively next week

Suzette Schear My pleasure. I can’t wait to see pictures of you in Greece. My Tiger boo is going to the vet this ... Read more

Suzette Schear My pleasure. I can’t wait to see pictures of you in Greece. My Tiger boo is going to the vet this morning, he always gets an infection in his right ear. I have to prepare to sing to him. It’s the only thing that calms him. I have a bunch of songs for him real song with my made up words. When I came home from surgery I had a table set up with water meds, tissues remote, book, drawing pad and clock. Everything I needed was for the most part was reachable no raising your arms. I did not lift anything and I was able to get around. The worse for me was sleeping on my back and having to take a shower, the pain is what it is. The hospital took good care of me I was nervous to go home but they really feel comfortable letting you leave. I’ll continue to check website on up to and after surgery. I was surrounded and supported but nobody really understood. It was dectected and weeks later surgery. Watch the depression afterwards because it is common.

Margaret Fielden I hope Tiger's ear responds to treatment quickly.I bet he enjoys those trips with you singing sweetl... Read more

Margaret Fielden I hope Tiger's ear responds to treatment quickly.I bet he enjoys those trips with you singing sweetly to him. It says he's not your average cat! I've started the sterilising pre surgery showers, my hair looks like a haystack. I know Monday afternoon will be filling in pre- op tests as my actual pre- op was over a month ago. I'll see Mr De Silva and talk more about the level of risk from post covid complications versus worsening mitral valve synptoms. Maybe my condition. will be better understood as It has taken a long time to see the surgeon and family and friends have got more used to my situation. I'm concerned about depression as exhaustion makes me feel so low. I can bounce back quite well!
I Keep doing actions and saying to myself you won't do that after surgery! I listened to the Walker Sisters and got a warm fuzzy feeling thinking about Tiger and slept well last night. So I'm learning ways to cope, so thank you. Have a good

peaceful Sunday

Suzette Schear Tiger is really funny he cried partially on the way to the vet. He gets there the vet takes him out, ... Read more

Suzette Schear Tiger is really funny he cried partially on the way to the vet. He gets there the vet takes him out, gives him a shot does a couple of things he’s complacent like I did it. On the way home he was fine. Antibiotics / drops and a pill . He keeps me grounded. For awhile I didn’t tell a lot of people and friends for it happened fast and I didn’t want for people to feel sorry for me. I got one or two responses like oh my father had that done (yeah your father is 90) or that happened to my grandfather. I’m older and there are those younger but 59 working and achieving my goals this isn’t the time. But when is it ever. I didn’t want to spend time telling people it’s okay when doctors are telling me we are surprise you are functioning. I get the hair just do the best you can people love you for you not your hair lol. Somebody will always be willing to help if you allow it. My mom taught me to be completely independent so it was hard to put the pride away but I learned. I kept the left over soap for when my body healed and was able to take a real shower. I just thought it would help. Glad you are surrounded by lots of love family and friends. I learned a lot on who is really there. My friend from when we were 5 years old wasn’t. It was a shocker but I forgive her but chose not to be friends anymore I was sadden by that. The depression is inevitable, my boyfriend was warned by his accountant whose mom went through it. I think the thing is for me the rebooting of your body the shock of what I went through and how everyone else’s life continues . It’s illogical so I went on lexapro and it helped . I also kept asking why I didn’t feel better and when this is going to stop. Also the lack of sleep added. Just trying to give you a heads up sleep if you are sleeping not tell your doctor cause I didn’t sleep I felt 100% better after I slept a full night. Sorry these texts are long but i get the impression it’s okay.

Margaret Fielden It's very good to hear your experiences and the feelings it brought up and how you worked with them. ... Read more

Margaret Fielden It's very good to hear your experiences and the feelings it brought up and how you worked with them. I realise now that the dreadful anger I felt at first was really grief at knowing my life was changing. My son and daughter are being more open about love for me which helps me a lot. My son is driving over tonight to take me to Cambridge tomorrow, three hours away. Not far in the states! I take sleeping pills now so afterwards I will need them definitely.
I have to get energy for the pre-op shower now!
Glad Tiger is doing well, give him a hug from me!

Suzette Schear I’m glad your kids are opening up. I found this experience also brought a lot of good I had friend ... Read more

Suzette Schear I’m glad your kids are opening up. I found this experience also brought a lot of good I had friends seriously go out of their way humbled me inside to the point of tears. Do the best to stay in the moment. I kept thinking things like this is last time I see the ocean or the trees. I had disassociated a bit so I didn’t get lost in the feelings. That was my journey . Be safe in your travels and what you do and it’s okay to be vulnerable. Just be you. Hope you have a wonderful time loving your kids. Tiger said thanks he’s unhappy with me at the moment between making him swallow a pill and liquid antibiotics his hair is a bit haggard

Margaret Fielden Tiger looks offended! I'm at Papworth Hospital and all is set for tomorrow at 8.00. My surgeon says ... Read more

Margaret Fielden Tiger looks offended! I'm at Papworth Hospital and all is set for tomorrow at 8.00. My surgeon says surgery will take 5 hours but I may be brought out of sedation tomorrow night. My kids have been very caring. My son set off facing a 4 hour journey home.
So I will be in contact when it's over. God bless you and thank you

Suzette Schear I’m glad you there can’t wait to talk to you when you’re done in the other side and get your li ... Read more

Suzette Schear I’m glad you there can’t wait to talk to you when you’re done in the other side and get your life back. . I found a pill on the rug the little rebel. Sending you love, prayers. God is good he has your back.

Margaret Fieldengot a new guestbook post

70 days ago

Ruth joy posted a note for Margaret that says:

Hi Margaret ,
Welcome ,
I hope that you get well soon .
During “Covid times” I eventually had emergency open heart surgery at LGI .
It ...Read more

Hi Margaret ,
Welcome ,
I hope that you get well soon .
During “Covid times” I eventually had emergency open heart surgery at LGI .
It had been postponed due to the anaesthetists having Covid .
Mr. Kaul was my heart surgeon in Leeds, him and his wonderful team saved my life , thankfully .
No hospital visitors were allowed and we weren’t allowed to leave the ward , it was a surreal time to be a heart patient .
You are doing really well . Take care .

Margaret Fielden Hi Ruth, Well covid has delayed my surgery. I got it two days before my surgery date and my surgeon s ... Read more

Margaret Fielden Hi Ruth, Well covid has delayed my surgery. I got it two days before my surgery date and my surgeon says I must wait 4 to 6 weeks for safety. So covid is still around. That must have been a truly awful time to have your surgery. I am so pleased that your team were so good. I hope you are staying well. Thank you and best wishes

Margaret Fielden Hi Ruth, When you had emergency surgery how had your symptoms changed? I'm getting concerned that my ... Read more

Margaret Fielden Hi Ruth, When you had emergency surgery how had your symptoms changed? I'm getting concerned that my breathing difficulties, fatigue and tight chest are progression of the mitral valve disease.

Margaret Fieldengot a new guestbook post

77 days ago

Suzette Schear posted a note for Margaret that says:

Hopefully you are still on track to get your surgery. I know it’s coming up and was thinking about you

Margaret Fieldengot a new guestbook post

87 days ago

Suzette Schear posted a note for Margaret that says:

Hi Margaret, Just checking on you and was wondering how you are doing?

Margaret Fielden Hi Suzanne, Thank you for thinking of me. I'm OK, 'living within my symptoms' as the surgeon told me. ... Read more

Margaret Fielden Hi Suzanne, Thank you for thinking of me. I'm OK, 'living within my symptoms' as the surgeon told me. My pre-op is next Wednesday and the operation on October 5th. I think I am unable to believe it is really happening, like everyone facing this! How are your investigations going? I hope you are coping OK with it all.

Margaret Fielden Sorry predictive text changed you to Suzanne from Suzette. Much more unusual and a very pretty name

Suzette Schear October 5 , I’ll say some prayers, it’s good you have time to prepare and can live with symptoms ... Read more

Suzette Schear October 5 , I’ll say some prayers, it’s good you have time to prepare and can live with symptoms for now. Glad it’s coming up so you can just get well and be the best of you. I wished I lived closer I would have dropped off meals. Been wearing a heart monitor on the second one should have better idea after end of the month. I hope . My mother thought Suzette or Cassandra I’m glad she picked Suzette. Just wanted you to know you were thought if and cared about. Please post updates so I know you’re okay.

Margaret Fielden Thank you Suzette, I really appreciate your care. I hope the monitor isn't proving too uncomfortable, ... Read more

Margaret Fielden Thank you Suzette, I really appreciate your care. I hope the monitor isn't proving too uncomfortable, it is a long time to have it in place. I will post news. Take care

Margaret Fieldengot a new guestbook post

96 days ago

Yalitza posted a note for Margaret that says:

Ohhh Margaret! I know your scared? I am scared too! I have to have my tricuspid valve repaired or replaced not sure yet, I just had a TEE and heart cath done ...Read more

Ohhh Margaret! I know your scared? I am scared too! I have to have my tricuspid valve repaired or replaced not sure yet, I just had a TEE and heart cath done on Sept 6, just a couple days ago and the right side of my heart is very dilated and depressed. I go to see my surgeon again the 12th so I’ll know when surgery will be then. I was reading through comments and posts and seen yours and I HAD to write you! Everything is going to be just fine! These surgery’s are done so much these days and the technology is outstanding! When is your surgery date? How old are you. I’m 36, I live in Florida. I remember you said you’re in the Uk? Anyways, it would be great to hear back from you!!! Xoxo

Margaret Fielden Hi Yalitza, I do hope you have a treatment plan now. You are very young for such serious problems, I ... Read more

Margaret Fielden Hi Yalitza, I do hope you have a treatment plan now. You are very young for such serious problems, I am 77. I told my surgeon I was too old to bother but he said I would be fine! My surgery was meant to be 5th October here in the UK but I get covid and it has been postponed for safety reasons. I hope all is going well for you.

Margaret Fieldengot a new guestbook post

104 days ago

Margaret Fielden reacted to this

Ruth joy posted a note for Margaret that says:

Hi Margaret ,
Welcome .
Sleep can be difficult after open heart surgery .
It helps to be propped up with pillows .
Some people find that using ...Read more

Hi Margaret ,
Welcome .
Sleep can be difficult after open heart surgery .
It helps to be propped up with pillows .
Some people find that using a recliner chair helps or they hire one . I didn ‘t need one .
Day time napping can help with catching up with sleep until you start to sleep better at night . You are doing really well . Take care .

Margaret Fieldengot a new guestbook post

115 days ago

Belinda J Kenwood reacted to this

Richard Munson posted a note for Margaret that says:

I wish you all the best. Glad to hear you are a fighter. Fear of ohs is a normal thing. Who would not be but in the end the results are what count. I am now ...Read more

I wish you all the best. Glad to hear you are a fighter. Fear of ohs is a normal thing. Who would not be but in the end the results are what count. I am now 82 and believe it was the right thing to do at 79. Once you get over 80 it seems to never stop. One thing after the next. No doubt your husband would agree. But i try and take things as they come and deal with it. The alternative is to close your eyes and roll up in a ball. Not me. When they finally call my name i will go but not without a fight.

Margaret Fielden Keep fighting!

Margaret Fielden Keep ticking and fighting Richard! I'm still waiting as I caught covid which has delayed surgery. I ... Read more

Margaret Fielden Keep ticking and fighting Richard! I'm still waiting as I caught covid which has delayed surgery. I feel less anxious now!

Margaret Fieldengot a new guestbook post

116 days ago

Richard Munson posted a note for Margaret that says:

Read your story and wish you well in recovery. Not sure what you mean by mature but i was 79 which i guess qualifies. Not sure age changes things but having ...Read more

Read your story and wish you well in recovery. Not sure what you mean by mature but i was 79 which i guess qualifies. Not sure age changes things but having a positive attitude does for sure. I see many a lot younger that act ancient. I was lucky to have a wife to assist me once home but it was really about my attitude that hastened my recovery. The hardest thing for me was taking a shower. Exhausting. It was only 3 years ago but it seems like much longer.

Margaret Fielden Good to hear you coped with surgery at 79. I'm 77 so you give me hope! I'm praying for courage and pe ... Read more

Margaret Fielden Good to hear you coped with surgery at 79. I'm 77 so you give me hope! I'm praying for courage and peace over the surgery, which may be earlier than expected. Less time to worry. I'm usually a fighter but this has changed my life so much that it is getting to me. I can't fly and I can't go back to my home in Greece, my friends and the sunshine! My husband will help me in recovery but is in his 80's and has some problems, one being wet macular degeneration, so I will try to get other help too to make it easier for him. I do hope your eye surgery is very successful.

Margaret Fieldengot a new guestbook post

117 days ago

Betsy Davenport posted a note for Margaret that says:

I just saw your first post. Welcome to this little and important corner of the world. You joined the same day I had my aortic valve replaced. It sounds like ...Read more

I just saw your first post. Welcome to this little and important corner of the world. You joined the same day I had my aortic valve replaced. It sounds like you've really had a bad time of it and it's not over yet. I'm on the far side of a less complicated situation, but it's been a rough road.

I've found the process itself pretty dreadful, and I'm not done being exasperated, but the fact is, medical research has made it possible for us to get these crucial repairs and I'm grateful for that. This is a good place to hang out, read, acquire reliable information, and reap encouragement. I'll be eager to follow your progress.

Margaret Fielden Hi Betsy, Hope you are making good progress. I am still waiting as I caught covid and my surgery has ... Read more

Margaret Fielden Hi Betsy, Hope you are making good progress. I am still waiting as I caught covid and my surgery has been delayed for safety reasons. It is amazing what can be done help but it is challenging!