Renee - Your journaling and recovery are quite inspiring! I face SAVR on 8/18. Would love to hear more about your CBD massages - how soon did they ...Read more
Renee - Your journaling and recovery are quite inspiring! I face SAVR on 8/18. Would love to hear more about your CBD massages - how soon did they begin post surgery? And what product do you use?
Sounds like you're doing great Renee! So you've got cardiac rehab coming up? You'll find that recovery goes even faster. And, stay with it! ...Read more
Sounds like you're doing great Renee! So you've got cardiac rehab coming up? You'll find that recovery goes even faster. And, stay with it! I had mitral valve repair thirteen years ago, and I still go to cardiac rehab two or three times a week. Cardiologist says to keep at it.
Renee, I had shoulder pain near my clavicle for quite a while after surgery. It gets better as time goes on. Hope this is the case for you. It's still soon ...Read more
Renee, I had shoulder pain near my clavicle for quite a while after surgery. It gets better as time goes on. Hope this is the case for you. It's still soon after your surgery. Hang in there.
Hi Renee - One more thing, did Cleveland Clinic and Gillinov do both a resection and chord work for you? I see there are two schools of surgeons out there - ...Read more
Hi Renee - One more thing, did Cleveland Clinic and Gillinov do both a resection and chord work for you? I see there are two schools of surgeons out there - those that do mostly resection and those which employ chord work also... I'm finding it very overwhelming ! Thanks J Alex
Hi Renee - So happy to see your upbeat post. I'd like to hear a bit more about your Cleveland Clinic experience? ( I will be having a similar repair when I ...Read more
Hi Renee - So happy to see your upbeat post. I'd like to hear a bit more about your Cleveland Clinic experience? ( I will be having a similar repair when I schedule it) Were you super happy with the care at CC ? It seems quite hectic to get things scheduled.
Did that aspect relax once in their care - did it feel factory like? Also - did you meet Gillinov in person before? This is important for me. Anything you'd like to share good or bad, I am super interested! Thank you...
Phyllis Petersen Dr. Gillinov did my mitral valve repair in October 2016. I recently had an echo and my cardiologist i ... Read more
Phyllis Petersen Dr. Gillinov did my mitral valve repair in October 2016. I recently had an echo and my cardiologist is very happy with what he sees. I had a great experience at CC. Once you are there, you will be very impressed by how smoothly everything goes. I met Dr. Gillinov before my surgery and he was very open to any questions I might have. He also stopped by my room when I was in stepdown. Anything you need, just ask, and if they can they will definitely try to help. Good luck!
J Alexander Lassally Thank you Phyllis - I may ping you with a note also! So helpful and thank you. J Alex
Phyllis Petersen Feel free to ask away. Anything I can do to help, let me know. This is a tough journey, but easier wi ... Read more
Phyllis Petersen Feel free to ask away. Anything I can do to help, let me know. This is a tough journey, but easier with others who understand.
Renee, I'm sorry you are having complications. You are where you need to be. You are in the best hospital. Trust the doctors. The important ...Read more
Renee, I'm sorry you are having complications. You are where you need to be. You are in the best hospital. Trust the doctors. The important thing is to get better and if you need to be in ICU for a while, so be it. The recovery process can be slow and can have complications. Hang in there and God bless you.
Hello Renee. I was worried about the full sternotomy as well but as the others have said it really wasn’t that bad at all. Dr. Giilinov repaired ...Read more
Hello Renee. I was worried about the full sternotomy as well but as the others have said it really wasn’t that bad at all. Dr. Giilinov repaired my mitral and tricuspid in February 2022. Don’t worry too much as you have one of the best surgeons in one of the best facilities in the world. Prayers for your speedy recovery.
Deena Z It's true. I was told that the incision wouldn't hurt much and it didn't. -- after the first week.... Read more
Deena Z It's true. I was told that the incision wouldn't hurt much and it didn't. -- after the first week. But you will be extremely tired. I wasn't told this and was caught by surprise, which made me think something was wrong with me. So, don't be surprised how utterly exhausted you feel, but know that won't stop your nurse from getting you out of bed the day after your surgery!. What is amazing, and I wish I also told, is that while I was so tired the first four days, I was so happy how fast I started improving. So, keep the faith. You will be okay; your decision to go to such a great hospital and surgeon put you on a path of an excellent recovery. Godspeed,
Renee Leunig Thank you for the encouragement 💕 We are headed to Cleveland tomorrow morning and surprisingly, Iâ ... Read more
Renee Leunig Thank you for the encouragement 💕 We are headed to Cleveland tomorrow morning and surprisingly, I’m not feeling anxious. So far, the process has been smooth and I’m looking forward to meeting and talking with my medical team. Thanks to the community and heart valve surgery.com I’m mentally and emotionally ready to do this.
Renee Leunig I’ve actually done well following my sternototy. Im now at 6 days post surgery and having issues wi ... Read more
Renee Leunig I’ve actually done well following my sternototy. Im now at 6 days post surgery and having issues with my heart rate, still hanging in icu
Hi, Renee! I'm also having surgery done at Cleveland Clinic with Marc Gillinov. My surgery is scheduled for Monday, July 10. Who knows, maybe I'll see you there?! ...Read more
Hi, Renee! I'm also having surgery done at Cleveland Clinic with Marc Gillinov. My surgery is scheduled for Monday, July 10. Who knows, maybe I'll see you there?!
Valerie Allen Best wishes Renee! You are in good hands. I will say a prayer on your surgery day.
Hi Renee, I`m in Appleton, WI and have been diagnosed with mitral valve prolapse with severe reguritation. I'm on my own to find a surgeon and found this site ...Read more
Hi Renee, I`m in Appleton, WI and have been diagnosed with mitral valve prolapse with severe reguritation. I'm on my own to find a surgeon and found this site last week via YouTube videos.
I have a complex Medicare/insurance coverage plan which restricts me. Anyway, they will cover Cleveland Clinic and Franciscan Health in Indianspolis so I'm focussing on those facilities. Your appt is far out. My PCP is concerned about that.