Joanne's Posts

Member Since: May 30, 2018

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Joanne Siedhoff posted an update
9 months ago (November 24, 2025)
12 years has gone by and here I am needing another aortic valve replacement. I was treated for Hodgkins lymphoma decades ago and have faced a multitude of health issues, thyroid, breast cancer, valve disease but am more than grateful and blessed to still be here to complain haha! When... Read more.
9 months ago (November 25, 2025)
So sorry to hear your surgeon retired. Prayers for some good information on where to go next ! Hopefully one of our radiation-affected warriors will chime in.
9 months ago (November 25, 2025)
have you tried cleveland clinic? just thinking they have assembled the broadest set of specialists?
9 months ago (November 25, 2025)
Joanne - You have certainly been through a lot. You may want to try Dr. Joseph Lamelas. He's a high-volume valve surgeon in Florida. A call to his office should be sufficient to find out if he can handle your next surgery. Good luck! https://nchmd.org/dr-joseph-lamelas-md/
9 months ago (November 28, 2025)
I am one with you on the radiation damage. I also had Hodgkins in 96 and 3 months of full mantle radiation, which has resulted with a new aortic valve 5 weeks ago, I don't know if the surgeon that did my aortic valve replacement is considered a expert in... Read more.

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