Hi All,
My name is Justin Daniels and I am new to the community. On July 1st, 2013, I had Open Heart Surgery to fix a congenital Bicuspid Aortic Valve. The ...Read more
Hi All,
My name is Justin Daniels and I am new to the community. On July 1st, 2013, I had Open Heart Surgery to fix a congenital Bicuspid Aortic Valve. The surgery was successful and allowed me to live my normally life with no limitations. Doctors successfully replaced my valve with a 27mm bovine valve.
Now 7 years later, my bio prosthetic valve as rapidly begun to calcify and I will require another open heart within the next few weeks.
At this juncture, I am NOT considering a mechanical valve or a TAVR.
I am either going to be getting a new tissue valve to replace my current tissue valve or getting a “Ross Procedure”.
I am reaching out to the community looking to connect with anyone that had the procedure or knows someone who had the procedure. I am strongly considering this option but it is not as widely accepting in the industry. I am looking for some first person perspective.
Thank you all.
Justin.
Welcome to our community of heart warriors Justin. You are going through something I sometimes worry ... Read more
Welcome to our community of heart warriors Justin. You are going through something I sometimes worry about myself. Can’t be much help to you at this time but I’m hoping that our heart warriors would be able to provide you with some perspective on your situation. I will do what I do best and that is, pray for you to find the right answers. God bless you
Vance Austin Hi Justin! You might reach out to the founder of this site Adam Pick. He had the Ross procedure and i ... Read more
Vance Austin Hi Justin! You might reach out to the founder of this site Adam Pick. He had the Ross procedure and is doing great around 13 or 15 years now. I will join Ana and lift you up in prayer.
I really appreciate the kind words and thoughts from you both.
All the best to you and yours.
Jason Filopei Hi Justin, I really think it would be worthwhile for you to see Dr Stelzer or Dr El Hamamsy for a con ... Read more
Jason Filopei Hi Justin, I really think it would be worthwhile for you to see Dr Stelzer or Dr El Hamamsy for a consultation. Although they are world experts at the Ross, they also perform all the other AVR procedures and they would be a great resource to have a risk benefit discussion.
I really appreciate the kind words and thoughts from you both.
All the best to you and ... Read more
I really appreciate the kind words and thoughts from you both.
All the best to you and yours.