I am thrilled to share that the Evoque Tricuspid replacement valve by Edwards has recently been approved to be used commercially to the public. This was the ...Read more
I am thrilled to share that the Evoque Tricuspid replacement valve by Edwards has recently been approved to be used commercially to the public. This was the clinical trial that I participated in and it was approved by the FDA in record time. The results of the trial were amazing!
Kimberly Eisenhut Linda, did you get the valve? I have tricuspid regurgitation wihich is moderate to severe at this poi ... Read more
Kimberly Eisenhut Linda, did you get the valve? I have tricuspid regurgitation wihich is moderate to severe at this point and am being monitored every 6 months. I have never met anyone with same thing and would love to connect with you! What was the deciding factor for them to o.k you for surgery? I do not have too much swelling and they tell me my EF is good as well as my kidney function. I just worry about waiting too long. I am a single mom of an 18 year old and would like to be around for him for a long time to come, so try to advocate for myself, but sometimes it is difficult getting a straight answer from cardiac specialist about when it is time to fix the problem. I was told 2 years ago It is tricky timing surgery for tricuspid and they wait until it is strictly severe and go by the Heart Association guidelines. Thank you for any information and help you can give me on this topic.
Linda Stephenson Hi Kimberly! I do have this new valve. I got it through the clinical trial. I had very severe ( massi ... Read more
Linda Stephenson Hi Kimberly! I do have this new valve. I got it through the clinical trial. I had very severe ( massive to torrential) tricuspid regurgitation. They don’t like to wait to this point to replace but until this valve was approved, the only way to get the Tricuspid valve replaced was through OHS which is risky. I would certainly ask my doctor about the Evoque valve. They insert it through the groin. There may be only a certain number of centers offering this until they can get docs up to speed on the procedure. Let me know if you have any other questions. Linda
Kimberly Eisenhut Thank you, I will be asking my cardiologist about it when I go in July. Please keep me posted on you... Read more
Kimberly Eisenhut Thank you, I will be asking my cardiologist about it when I go in July. Please keep me posted on your experience and recovery. I look forward to having another person to speek to about this journey with tricuspid valve, since there really are not any other people I have found to discuss this illness with in particular. Many blessing to you and good wishes
BRENDA JUNIEL I will be getting the Edwards Aortic Valve!
It is been a little over two months since I received my new tricuspid valve. I received the Evoque valve by participating in a clinical trial. Feeling great!! ...Read more
It is been a little over two months since I received my new tricuspid valve. I received the Evoque valve by participating in a clinical trial. Feeling great!! The valve was inserted via the transfemoral route. I now have a St. Jude mitral valve, implanted almost 41 years ago through OHS and now this new valve by Edwards. Amazing things happening in valve surgery!
Susan Lynn Linda- Congratulations on your 2- month anniversary and your 41st anniversary! We reserve the titl... Read more
Susan Lynn Linda- Congratulations on your 2- month anniversary and your 41st anniversary! We reserve the title heart gladiator for people like you. Thanks for showing everyone how it's done!! Wishing you continued good health and many decades of future celebrations!
Just recently received a transfemoral tricuspid valve replacement on March 31. I was chosen to participate in the Triscend II Trial for the Edwards Evoque valve ...Read more
Just recently received a transfemoral tricuspid valve replacement on March 31. I was chosen to participate in the Triscend II Trial for the Edwards Evoque valve as a roll in patient. I have a St Jude mitral valve still going strong after 41 years. Had a mitral commisurotomy before that so having already had two open heart surgeries, another one wasn’t the best option. So thankful for this new technology.
Has the FDA approved any of the transcatheter tricuspid valve repair therapies? I’m almost 68 and have moderate to severe tricuspid regurgitation that has ...Read more
Has the FDA approved any of the transcatheter tricuspid valve repair therapies? I’m almost 68 and have moderate to severe tricuspid regurgitation that has caused cardiac cirrhosis. I will ask my cardiologist about this but just wondering what the latest info is. I also have right sided heart failure and a mechanical valve.
Hello! I'm new here but not new to heart surgery. I had a mitral commissurotomy in 1974 and a mitral valve replacement in1981. My diagnosis was mitral stenosis ...Read more
Hello! I'm new here but not new to heart surgery. I had a mitral commissurotomy in 1974 and a mitral valve replacement in1981. My diagnosis was mitral stenosis due to Rheumatic Fever (which I never knew I had). Fast forward to now...Because of some recent swelling of my ankles and legs and shortness of breath this past summer (which coincidently happened at the same time that my dr. increased my dosage of Norvasc), there was a question of whether or not I was in congestive heart failure. My dr. that had been following me since we moved here didn't think I was but after requesting my echos from the last several years and seeing that I had pulmonary hypertension (from at least seven years ago) I decided to seek another opinion from another cardiologist that was a specialist in pulmonary hypertension and heart failure. So I have seen the second dr. and he has diagnosed me with chronic congestive heart failure (diastolic with preserved ejection fraction), and something that I have never heard of...patient prosthetic mismatch which I understand is my St.Jude mitral valve is too small. Of course, I don't think they knew about this stuff 33 years ago when my valve was implanted. According to the echos that I have the pulmonary hypertension has remained mild for the last seven years but the tricuspid regurgitation has increased from mild to moderate. I have decided to stay with the new cardiologist and will have my next appointment April 1. Of course, after looking all this stuff up on the internet, I'm wondering what is coming...specifically having to possibly get my tricuspid valve repaired. It doesn't sound like an easy procedure. Any questions you all might have for me to ask my new doctor about this would be much appreciated. I've had some very good cardiologists following me all these years. We lived in Baltimore for 15 years and I was followed at Johns Hopkins and then in Atlanta for five years followed at Emory. Oh, I also have a pacemaker/defibrillator. A chest full of metal. Thanks for reading all this! As a side note on the SOB and swelling this past summer, when the Norvasc was decreased and my diuretics were doubled for three days, I lost almost 9 pounds overnight and it has never returned.
Nicole Blevins I have been searching for someone, like me, that has been diagnosed with patient prosthetic mismatch. ... Read more
Nicole Blevins I have been searching for someone, like me, that has been diagnosed with patient prosthetic mismatch. Can you give me an update?
Thank you for any information and help you can give me on this topic.
I look forward to having another person to speek to about this journey with tricuspid valve, since there really are not any other people I have found to discuss this illness with in particular.
Many blessing to you and good wishes