Lucille Elsberry - Heart Valve Journal

My Journal

174 days ago

Susan Lynn reacted to this

Hello,
Wondering if anyone has had a “single jet, very eccentric, seemingly paravalvular regurgitation” (as described by doctor after echocardiogram) ...Read more

Hello,
Wondering if anyone has had a “single jet, very eccentric, seemingly paravalvular regurgitation” (as described by doctor after echocardiogram) after one year checkup post TAVR?
I see my doctor on Monday to discuss but wanted to get some of your thoughts.

Susan Lynn Lucille - I haven't seen a condition described as a single jet on this site, is it possible it's re... Read more

Susan Lynn Lucille - I haven't seen a condition described as a single jet on this site, is it possible it's referred to by another name? I hope your post resonates with someone here and you get a reply. Good luck with your appointment and please keep us posted!

Lucille Elsberry Thank you for posting. I was looking more into it and apparently the valve is leaking but only mildly ... Read more

Lucille Elsberry Thank you for posting. I was looking more into it and apparently the valve is leaking but only mildly.
I will just have to be patient and see what the doctor says. It’s just worrisome and I’m just SO tired of worrying!

J Alexander Lassally Eccentric, I think, means it is just a funky angle of the flow, so a sort of personalized flow.

Richard Munson Could single jet just mean a single leak?

Lucille Elsberry I think it might mean a single leak.
I wonder if anyone has had any type of aortic valve leak afte ... Read more

Lucille Elsberry I think it might mean a single leak.
I wonder if anyone has had any type of aortic valve leak after TAVR

Lucille Elsberryposted an update

491 days ago

Lucille Elsberry reacted to this

Completed my TAVR on 7/14 and released on Saturday 7/15.
All went well just feeling a little tired.
I’m trying not to worry about everything but finding ...Read more

Completed my TAVR on 7/14 and released on Saturday 7/15.
All went well just feeling a little tired.
I’m trying not to worry about everything but finding it hard to do.
I’m so worried about having a stroke, I don’t know how likely that is post TAVR. I am on a blood thinner and aspirin.
Anyone else have/had the same concerns?

Marie Myers Unfortunately, the risk of stroke is present with TAVR and open heart surgery in general. All we can ... Read more

Marie Myers Unfortunately, the risk of stroke is present with TAVR and open heart surgery in general. All we can do is follow the post op instructions, take our meds as directed, and pray for a good outcome. It is hard not to worry about every possible complication, but we must learn to live again without the burden of constant worry.

DeLois Tweedy Lucille, I have been wondering how the TAVR went and how you are doing. Glad to see your post. I too ... Read more

DeLois Tweedy Lucille, I have been wondering how the TAVR went and how you are doing. Glad to see your post. I too am on Eliquis and a low dose aspirin per day. My TAVR was in June, 2020 and it's still doing ok. I am also on other medications since I have heart failure and pulmonary hypertension. I also have mitral and tricuspid valve issues. I feel as long as you keep your blood pressure in check, exercise lightly (walk) and follow your cardiologist's suggestions, that you will be ok. Unfortunately stroke is a risk with any type of heart issue and surgery.

Try to take a day at a time and enjoy life, worry less. God bless.

Lucille Elsberry Thank you for your comments, it really does help to know we are not alone.

Lucille Elsberryposted an update

498 days ago

Having TAVR procedure on Friday 7/14. I’m worried about a stroke. Anyone who has had this procedure please advise if any issues happened during or after your ...Read more

Having TAVR procedure on Friday 7/14. I’m worried about a stroke. Anyone who has had this procedure please advise if any issues happened during or after your procedure.
Thank you

Greg Lewis Hi Lucille! Normally I would say "don't worry, because nothing you do, can have any affect on the ou ... Read more

Greg Lewis Hi Lucille! Normally I would say "don't worry, because nothing you do, can have any affect on the outcome"... but I think you should worry a lot! I say this because I worried all the time about many things throughout my heart journey. And none of them happened!! Sooo...the more you worry, the less likely you will get a stroke, or the other million things that could happen. Worry all the time...keeps the bad things from happening. I mean it's just a theory, but it seems to work.
😉😜

Lucille Elsberry I’ll keep that in mind lol
Thank you for responding it means a lot!

Valerie Allen Lucille, I had wanted a TAVR procedure but found through testing not to be a candidate. Your recovery ... Read more

Valerie Allen Lucille, I had wanted a TAVR procedure but found through testing not to be a candidate. Your recovery should be so much easier. I know there are still concerns but if you have faith in your team that should help tremendously. Be sure to check back in!

Grace Mason Wishing you all the best. Sending prayers for you and your team on Friday

Marie Myers One of my good friends had TAVR in her late 90’s. It relieved her chest pain and shortness of breat ... Read more

Marie Myers One of my good friends had TAVR in her late 90’s. It relieved her chest pain and shortness of breath, and she lived to celebrate her 100th birthday. It is a great procedure, and I am sure you will do well!

Lucille Elsberry Thank you all so much for taking the time to reply, much appreciated!I will definitely check in once ... Read more

Lucille Elsberry Thank you all so much for taking the time to reply, much appreciated!I will definitely check in once I’m home from my procedure.