I'm curious to ask anyone here who's done the research about advancements in heart valve replacement and tissue valves. When do you think we'll advance to ...Read more
I'm curious to ask anyone here who's done the research about advancements in heart valve replacement and tissue valves. When do you think we'll advance to a time when less invasive dual valve replacement will be a thing? It seems to me that we are 20 years away from it but I'm wondering if I'm being unrealistic with that.
I've had two valves replaced (tissue for aortic and mitral valves) and need two new valves after 7 years. I really want to go tissue valves again but part of that is my hope that the technology will get better.
Any thoughts? Will we ever get to a point when surgeons will do a less invasive dual valve replacement? Surgeons don't seem to want to do it because supposedly less invasive heart valve replacement is slightly more risky than full open heart and then if you multiply that by two surgeries for each valve, your risk goes factor goes up twice as much.
Will we ever get to a point when that's not the case or do you think it will always be the case and there will never be any better solution for me?
Hi Ruben. I'm heading for AVR #1 and going mechanical with On-X valve (which apparently need less War ... Read more
Hi Ruben. I'm heading for AVR #1 and going mechanical with On-X valve (which apparently need less Warfarin therapy than others).
I initially wanted pig valve but surgeon said being 47 I would only get 8 yrs out of it. Being 80 you'd get 15ish from it...
He said 2nd AVR is a lot riskier.
Warfarin isn't the be all and end all, but I only want OHS the once if poss.
Best of luck with what you decide to run with. Either way it's a second chance 😆
Cathleen Weed Hi Ruben,
Not sure where you live but Dr Trento and Dr Raj Makkar at Cedars Sinai Los Angeles are ama ... Read more
Cathleen Weed Hi Ruben,
Not sure where you live but Dr Trento and Dr Raj Makkar at Cedars Sinai Los Angeles are amazing. They are on top of all of the advancements (current and future). They were my surgeons ❤️.
Cathleen
Ruben Romero Cathleen. Thanks for the recommendation. Unfortunately, I'm in Atlanta and I'm not sure my surgeon ... Read more
Ruben Romero Cathleen. Thanks for the recommendation. Unfortunately, I'm in Atlanta and I'm not sure my surgeon will let me do anything minimally invasive with my situation.
Melissa Alfred Hi Ruben, I had my aortic valve replaced 10 yrs ago at nyu and chose tissue valve bc of the coumadin ... Read more
Melissa Alfred Hi Ruben, I had my aortic valve replaced 10 yrs ago at nyu and chose tissue valve bc of the coumadin issue. and this past april my valve was in severe failure & I had ohs again & chose a tissue valve again. I came to that decision by thinking of the past 10 years and the way I had lived, I just took a baby aspirin and had my annual check ups and that's how I want to continue to live my life. I also anticipate that in another 10+ years when I need it again i'll be able to undergo TAVR, my surgeon mentioned this too.
Walter Lewandowski Best wishes on a successful surgery Ruben. I have surgery tomorrow, using a TAVR. Hopefully, you a ... Read more
Walter Lewandowski Best wishes on a successful surgery Ruben. I have surgery tomorrow, using a TAVR. Hopefully, you and your surgeon reached a best choice for yourself. I struggled with my decision. I am at peace with it now. A friend of mine is on Coumadin for 27 years and reports no major issues.
Hello. I'm 41 years old and in need of having a dual valve replacement (aeotic and mitral) again. It's been almost exactly 7 years since my last surgery. I ...Read more
Hello. I'm 41 years old and in need of having a dual valve replacement (aeotic and mitral) again. It's been almost exactly 7 years since my last surgery. I opted for tissue valves to avoid the life long sentence to Coumadin and hoping that my valves would last long enough for new procedures and techniques to evolve fast enough for new valve replacement techniques to arise. And while that happened to a degree, it doesn't seem that my valve lasted long enough for the technology to evolve quite enough.
I meet with the surgeon and he really wants to put in mechanical valves to avoid repeat surguries (although I know there's no guarantee with this and people with mechanical valves have had to have them replaced). I'm still on the fence. The thought of this surgery again and again has definitely made me consider mechanical valves more than I ever have. My surgeon also feels that since both valves need to be replaced, that the only real choice is full open heart surgery. He feels that the less invasive procedures just increase the risks.
I'm curious to hear what other people in their 30s and 40s who've actually gone through the procedure think about which valves they decided to go with, why and if they have any regrets.
Thanks for your feedback.
Noreen Kitchen I'm 48 and had my surgery March 23. I have a mechanical valve and am on Warfarin now which isn't too ... Read more
Noreen Kitchen I'm 48 and had my surgery March 23. I have a mechanical valve and am on Warfarin now which isn't too bad. I had been on another blood thinner previously that didn't need to be monitored or had any diet restrictions so I miss the ease of that. Honestly it took quite a bit of time to get therapeutic I have been quite good about what I'm eating it was in increase in activities that really made my INR fluctuate. I think once they find a good dose for you it's easier. I mostly eat the same as I did before I'm just more conscious of how much vitamin k I'm having and try to balance it out daily. I do avoid foods really high in it though. I am doing cardiac rehab 3 times a week and all is good. I only need to have it tested once a month so to me not a huge deal. It's bothersome in the beginning but worth it I think. Good luck
Martha Dean Sorry to hear you are going through all this again so soon. I'm 47 and just had both my mitral valve ... Read more
Martha Dean Sorry to hear you are going through all this again so soon. I'm 47 and just had both my mitral valve and aortic valve replaced with mechanical valves. (4 weeks post op). My doctor didnt really offer me choices, although I'm sure I could have said something, but he just said due to my age, mechanical is the way to go because they last way longer. I know I still run the risk of having to do this again, but fingers crossed, like you said, hopefully they will have made great advancements by then. I'm still in the middle of regulating my warfarin, but I look at it no different than all the other meds I have to take and life style changes I've made. It's just part of my life now. Good luck and hope a decision comes easy to you.
Laura Jacobs I am so sorry you are facing this again, and so soon.
Rita Savelis I"m really sorry that you have to go through this again.
I also had 2 valves replaced, and I can unde ... Read more
Rita Savelis I"m really sorry that you have to go through this again.
I also had 2 valves replaced, and I can understand why your surgeons recommend mechanical. With two valves, each one can require replacement at a different time. The mitral valve is a lot more tricky with more difficult access. Less invasive techniques are not really ready for double valve replacements. Your case is a special one, and not the same as someone with just an aortic replacement.
I got my mechanical valves at age 54, so not young, but life with coumadin is okay once you get used to it. I haven't changed what I eat or how I live. Meds and blood tests are just a part of my life now.
That said, I understand your dilemna, because one never knows how the other type of valve would have turned out. You just have to move forward. Any decision is the right decision.
I hope you can trust your surgeon, looking at your specific case.
I initially wanted pig valve but surgeon said being 47 I would only get 8 yrs out of it. Being 80 you'd get 15ish from it...
He said 2nd AVR is a lot riskier.
Warfarin isn't the be all and end all, but I only want OHS the once if poss.
Best of luck with what you decide to run with. Either way it's a second chance 😆
Not sure where you live but Dr Trento and Dr Raj Makkar at Cedars Sinai Los Angeles are ama ... Read more
Not sure where you live but Dr Trento and Dr Raj Makkar at Cedars Sinai Los Angeles are amazing. They are on top of all of the advancements (current and future). They were my surgeons ❤️.
Cathleen