Guestbook of Rhodie Jacobson

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Rhodie Jacobsongot a new guestbook post

725 days ago

Laurel Howard-Boardman posted a note for Rhodie that says:

Thank you,Rhodie. 🙂

Rhodie Jacobsongot a new guestbook post

725 days ago

Laurel Howard-Boardman posted a note for Rhodie that says:

Complications continue. Echo, labs, Halter Monitor, and Xrays on Fri.

Robert Miller Can you fill me in regarding the "halter monitor" and the "chip"? I just got off some monitor I had t ... Read more

Robert Miller Can you fill me in regarding the "halter monitor" and the "chip"? I just got off some monitor I had to wear for 2 weeks. It recorded my heartbeat looking for afib which I used to have (pretty significantly) and I know I still have but to a much lesser degree. The monitor didn't show anything except for a couple of episodes of fast heartbeat. The image shows what I was wearing. Pain in the butt as it constantly came off so I had to tape it back on with medical tape. It made the skin itchy. I also had to wear it across my chest because they didn't want to put it on top of my incision.

Richard Munson Yup, i explained it above to laurel but in my eyes, it far exceeds the holter for reasons I explained ... Read more

Richard Munson Yup, i explained it above to laurel but in my eyes, it far exceeds the holter for reasons I explained . My care link by medtronics.

Robert Miller Sorry but where did you explain this before? Can you post a link?

Richard Munson I will repeat it for you. Called my care link by metronics. Its a tiny chip similar to a chip they im ... Read more

Richard Munson I will repeat it for you. Called my care link by metronics. Its a tiny chip similar to a chip they implant on a dog that goes under the skin and it detects any a fib incidents. My cardiologist did it and the metronics local tech person observed. My insurance paid for it. Unless i told you it was there, you cannot see it. Tiny. It sends data to a bedside monitor which in turn sends data to my doctor. He checks it regularly. There is also a small hand clicker to use if you feel you need to alert them of an incident. Battery lasts 3 years, no shower issues, no rash, no falling off plus no 2 week window. I am sure you can google it on line. It sends the data at night so if something occurred during the day ( at work), it stores in the chip and relays it while you are in bed. I will post a picture of the bedside unit. Stay tuned.

Rhodie Jacobsongot a new guestbook post

725 days ago

Laurel Howard-Boardman posted a note for Rhodie that says:

Rhode, thank you for your kind words!!! Lori

Rhodie Jacobson Nice to hear from you, Laurel!
Has healing improved? You've been going through so much

Rhodie Jacobsongot a new guestbook post

811 days ago

Rhodie Jacobson reacted to this

Laurel Howard-Boardman posted a note for Rhodie that says:

Good luck with your research and heart repair journey. Lori

Subhash Chandel Hi, my echo also shows bicuspid with 4.6 aortic aneurysm and mild regurgitation. Taking BP medication ... Read more

Subhash Chandel Hi, my echo also shows bicuspid with 4.6 aortic aneurysm and mild regurgitation. Taking BP medication and next 6 month echo.

Laurel Howard-Boardman 👍

Rhodie Jacobsongot a new guestbook post

817 days ago

Rhodie Jacobson reacted to this

Lf posted a note for Rhodie that says:

Only using my local cardiologist just to keep him handy, since I have elected to have Cleveland clinic do my surgery when needed , I am seeing cardiologist ...Read more

Only using my local cardiologist just to keep him handy, since I have elected to have Cleveland clinic do my surgery when needed , I am seeing cardiologist there so they get to know me and my condition, trying not to think of symptoms want to make it to April when more test due. Severe now though

Rhodie Jacobsongot a new guestbook post

882 days ago

Rhodie Jacobson reacted to this

Susan Jones posted a note for Rhodie that says:

Hi Rhodie. I have them same diagnosis as you. 4.3 cm aorta. And am playing the waiting game to 5 cm. You are not alone. My knowledge of medical... Read more

Hi Rhodie. I have them same diagnosis as you. 4.3 cm aorta. And am playing the waiting game to 5 cm. You are not alone. My knowledge of medical terminology, test results and future surgery has grown exponentially! I have found comfort there. Also here in this community. The waiting is hardest for me but it is giving me time to build my courage and increase my trust in God. We're all here for you

Rhodie Jacobsongot a new guestbook post

882 days ago

Marie Myers posted a note for Rhodie that says:

Hi Rhodie, Welcome to the world of “impending” heart surgery. I read your comment on the eccentric jet, which is what I had also. It just means that as ...Read more

Hi Rhodie, Welcome to the world of “impending” heart surgery. I read your comment on the eccentric jet, which is what I had also. It just means that as the left ventricle contracts, the jet of blood that is ejected is not flowing in a smooth, concentric way due to our abnormal valve. My regurgitant bicuspid valve is what caused my eccentric jet, and that combined with the greater chance of aneurysm formation with a bicuspid valve, led me to surgery 5 years ago. My aneurysm was the driving factor in my surgery. I had an aortic root and ascending aneurysm. Have you already met with a cardiac surgeon? Lots of info to take in, as you are probably in the watch and wait phase. How often are you having echocardiograms? If you have any specific questions, ask away and some of the many people who have been down this road can answer some of your questions.

Richard Munson Marie, eccentric jet, i always learn something new from you. Here i was thinking 747.

Marie Myers No, more like F-22…

Richard Munson Stealthy

Marie Myers And effective…

Rhodie Jacobson Thanks for your note! I am seeing a cardiologist-no surgeon-every six months with a new echocardiogra ... Read more

Rhodie Jacobson Thanks for your note! I am seeing a cardiologist-no surgeon-every six months with a new echocardiogram. It IS a lot of info to sift through. My blood pressure is newly high and I am taking medicine to make it go down...is that a sign of things or just age? Thanks again!

Marie Myers Could be age, and meeting new doctors who say you might need heart surgery!

Rhodie Jacobson Ha...thanks!

Rhodie Jacobsongot a new guestbook post

891 days ago

Welcome Rhodie to our website. Hope the heart warriors on this site can be of comfort and support for you. If you have questions ask away. God bless you

Rhodie Jacobson Thank you!
This is a great site. I am looking into the different hospitals in the Minneapolis are ... Read more

Rhodie Jacobson Thank you!
This is a great site. I am looking into the different hospitals in the Minneapolis area. I do not know how far off my surgery is and I am being seen by North Memorial. I just don't know what I should be looking for in a hospital or if I just have too much time to think. Any opinions on hospitals in the Minneapolis area (specific to Bicuspid Aortic valves and aortic aneurysms)?

Rose Madura Hi Rhodie. I think they like to wait for the aneurysm to get 5 cm before they do surgery but your ao ... Read more

Rose Madura Hi Rhodie. I think they like to wait for the aneurysm to get 5 cm before they do surgery but your aorta may make them want to do it sooner. What does your cardiologist say? You may want to look into the Mayo Clinic. Also, I'm an advocate for getting a 2nd opinion. Please keep us updated and let us know if you have any questions. Godspeed!

Richard Munson Yes rose, they told me 5 cm also for mine. I get a yearly ct scan to check for any increase in size. ... Read more

Richard Munson Yes rose, they told me 5 cm also for mine. I get a yearly ct scan to check for any increase in size. That is the one they forgot to tell me about until i asked why it was on a report after my ohs. Oh that one, we have been watching it. No need for me to know, after all its only mine.

I learned from Rose to get a second and maybe a third opinion. In my latest case with dissection I di ... Read more

I learned from Rose to get a second and maybe a third opinion. In my latest case with dissection I didn’t have much of a choice. Three cardiologist and a thoracic surgeon explained the dangers of dissection and I also made my research.

Richard Munson I need to read up on dissection so i can educate myself

Rhodie Jacobson Thanks folks! I think that I have time to dig into a second opinion and will. There are a LOT of numb ... Read more

Rhodie Jacobson Thanks folks! I think that I have time to dig into a second opinion and will. There are a LOT of numbers in those tests. My cardiologist says I am a couple of years away from surgery. Thanks again!