Elaine Cutri I'm hoping and praying the ablation does the trick and allows your heart to heal. Glad to hear it's n ... Read more
Elaine Cutri I'm hoping and praying the ablation does the trick and allows your heart to heal. Glad to hear it's not time for valve surgery! Keep us posted.
I had a great experience at CC, first with sending the 2" medical record package, first consult, the surgery May 2015 and post-op check in Dec 2015. All good!
Ashley Molyneaux Thank you Adam! I'm looking forward to working with him and a great beside manner is a plus! I real ... Read more
Ashley Molyneaux Thank you Adam! I'm looking forward to working with him and a great beside manner is a plus! I really appreciate your encouraging words and all that you do for this group!
Ashley Molyneaux Ha! Thank you! Just making sure I don't leave anything out!
Cathleen Weed Looks like you've done a great job! <3 :)
Elaine Cutri Hope you get the answers you need. I was surprised how quickly I received a response from The surgeon ... Read more
Elaine Cutri Hope you get the answers you need. I was surprised how quickly I received a response from The surgeon at the Cleveland Clinic. Keep us posted. Best wishes!
Dr. Gillinov repaired my mitral valve on July 14, 2014 with an excellent outcome. They have the expertise to take care of your needs. I traveled from St. Louis to Cleveland to have the surgery. Let me know if you have any questions about the process. They are very structured in the process. The only significant gap we experienced was getting the records/test results from one hospital to another in a readable format.
Michael
Kim Murray While I know he is a great surgeon, I really want you to meet with dr. Kapadia at Cleveland clinic If ... Read more
Kim Murray While I know he is a great surgeon, I really want you to meet with dr. Kapadia at Cleveland clinic If your aortic valve is stenosed he can open it up with the balloon. Please at least see if your a candidate , because I'm sitting here in Cincinnati now with no mechanical valves , when I was told I needed two. Please try for a least a consult.
Ashley Molyneaux Kim Murray - thank you for that information! My heart valve surgery has been delayed as the ablation ... Read more
Ashley Molyneaux Kim Murray - thank you for that information! My heart valve surgery has been delayed as the ablation seemed to help my heart function for now. No doubt I'll need that aortic valve fixed down the road though. That's really cool about the balloon procedure, but I heard that doesn't typically last very long? hope you are doing well!
Kim Murray It’s been 2 years now for my mitral valve , I the doctor said it could last 20 years, so idk , I ho ... Read more
Kim Murray It’s been 2 years now for my mitral valve , I the doctor said it could last 20 years, so idk , I hope he is right .
This made me smile.
While not a cure for anything, it can sure make me feel a thousand times better!
Emily Rowley I love the beach, I started to grow up by the sea side so whenever I retreat there it is always relax ... Read more
Emily Rowley I love the beach, I started to grow up by the sea side so whenever I retreat there it is always relaxing and my mind is at ease :)
Ashley Molyneaux I completely agree. It's very a very spiritual and anxiety-reducing place for me. There's nothing l ... Read more
Ashley Molyneaux I completely agree. It's very a very spiritual and anxiety-reducing place for me. There's nothing like it!
Emily Rowley Sounds like you deserve a holiday by the sea, lots of sun, fun and sand :) Enya has really relaxing m ... Read more
Emily Rowley Sounds like you deserve a holiday by the sea, lots of sun, fun and sand :) Enya has really relaxing music with ocean in her songs-this helped me relax for my Operation.
I've seen people post about adult coloring books during recovery. I found this at Hobby Lobby, which I plan to bring with me to the hospital. I thought this ...Read more
I've seen people post about adult coloring books during recovery. I found this at Hobby Lobby, which I plan to bring with me to the hospital. I thought this would be more meaningful and encouraging than a regular coloring book so I wanted to share.
Ruth Valenzuela I've heard they have a calming effect on a person. Prayers for your upcoming surgery!
Joyce Shelby That's nice Ashley, love the message! I just picked up one of those adult coloring books at Dollar G ... Read more
Joyce Shelby That's nice Ashley, love the message! I just picked up one of those adult coloring books at Dollar General and I also picked up a word find and soduku book. Looking forward to coloring during my recovery!
Clare Auten Coloring is a good idea. I had a difficult time focusing right after surgery on reading and puzzles.
Ashley Molyneaux Yeah, I love the idea! You don't really have to use your brain much which is good and if you are at ... Read more
Ashley Molyneaux Yeah, I love the idea! You don't really have to use your brain much which is good and if you are at the hospital longer than expected, I imagine it may get boring.
Emily Rowley I was given an adult colouring book and pencils whilst in hospital-loved it! Was best present ever :) ... Read more
Emily Rowley I was given an adult colouring book and pencils whilst in hospital-loved it! Was best present ever :) Ps. remember to bring a sharpener for your pencils.
Wanda Mroz I have some coloring books at home! Love them.
Kelly Weisgarber Welcome Ashley! Just read your story, can't imagine finding out you'll need surgery while you were pr ... Read more
Kelly Weisgarber Welcome Ashley! Just read your story, can't imagine finding out you'll need surgery while you were pregnant. You have beautiful babies! My experience at the Cleveland clinic was great. My surgeon was Dr Svensson. He repaired my aortic valve and aortic aneurysm. I'm 4 months post surgery now and doing pretty well. Good luck to you. Let me know if I can answer any questions.
Petey Bello Ashley, what a great idea. I have always loved to color, a great past time in recovery. Your children ... Read more
Petey Bello Ashley, what a great idea. I have always loved to color, a great past time in recovery. Your children are beautiful! Good luck to you on your heart journey - prayers are with you and your beautiful family!
Ashley Molyneaux Thank you both so much for the encouraging words!
Clare Auten They are beautiful. Welcome to the website. Ask any questions you have.
Elaine Cutri Welcome to the group. I had surgery at the Cleveland Clinic and felt that I received the best care po ... Read more
Elaine Cutri Welcome to the group. I had surgery at the Cleveland Clinic and felt that I received the best care possible. My surgeon was Eric Roselli, an expert in my condition, ascending aorta aneurysm. He also replaced my aortic valve with a newer, larger model and repaired my leaky tricuspid valve.
I'm reading Dr. Gillinov's book, Heart 411, during my cardio rehab sessions. It's been very informative. I would also recommend Adam Pick's book also. As Clare Auten, said, ask questions or voice your concerns. We're here for you.
Ashley Molyneaux Thank you so much Clare! Of course, I may be a little biased. :) I'm sure I will have many question ... Read more
Ashley Molyneaux Thank you so much Clare! Of course, I may be a little biased. :) I'm sure I will have many questions as I embark on this journey.
Ashley Molyneaux Elaine - thank you. I'm so happy to hear that your experience at Cleveland Clinic was a good one! L ... Read more
Ashley Molyneaux Elaine - thank you. I'm so happy to hear that your experience at Cleveland Clinic was a good one! Luckily, my aorta looks good (through the limited testing I've had, which I'm thankful for). I loved Adam's book and it was great! I didn't know Dr. Gillinov had one - I may just have to get my hands on that one too.
Emily Rowley Naww they are gorgeous. Did you have your children before finding out you have a heart condition?
Ashley Molyneaux Emily, thank you! I did have my children before I found out about my heart condition. I found out w ... Read more
Ashley Molyneaux Emily, thank you! I did have my children before I found out about my heart condition. I found out when I was 28 weeks pregnant with my daughter. In a way, I'm thankful for that. I often wonder how my journey might have been different had I known before having kids. I'm grateful to have these beautiful souls by my side to give me strength that I never knew I had.
Emily Rowley You're welcome. That is good. Did they just monitor you during your pregnancy and was the labour extr ... Read more
Emily Rowley You're welcome. That is good. Did they just monitor you during your pregnancy and was the labour extra hard?
I had a great experience at CC, first with sending the 2" medical record package, first consult, the surgery May 2015 and post-op check in Dec 2015. All good!