Hello supportive people. Everything is turning out to be great as my girlfriend is now putting aside her fear. She is really beautiful and she has changed my ...Read more
Hello supportive people. Everything is turning out to be great as my girlfriend is now putting aside her fear. She is really beautiful and she has changed my life. As i told you earlier she has BAV. She is 17 year old. So what do you guys think? When should be the surgery take place. I hope she dont need surgery now.
Denise Campbell Only her doctor can tell her. It might not be for years or much sooner. Good luck to you both
Civita Fahey its up to her doctor when its time for surgery.. most of us have known about our BAV for years.. I st ... Read more
Civita Fahey its up to her doctor when its time for surgery.. most of us have known about our BAV for years.. I still have not had surgery and I am 55. I didnt know I had it til I was 50.. Fear is part of the story .. but, reading all the
se wonderful outcomes on this sites has made me feel so much better, and when the time comes for surgery, I wont say I wont be scared, thats normal, but I know that it will turned it ok.. and your girlfriend will be fine too.. I hope she takes some comfort in all these wonderful people who share their stories with us.. Best of luck..
Franklin Wyrick I agree, that only her doctor can determine when surgery is needed. I was born with BAV and it was d ... Read more
Franklin Wyrick I agree, that only her doctor can determine when surgery is needed. I was born with BAV and it was discovered when I was 13. At 66 I finally was advised that I needed surgery. Your girlfriend needs to have her heart checked at least yearly to keep track of any changes. Good luck to you both.
Aayush Ambastha Thank you so much guys. It is great to have you
My girlfriend feels uncomfortable talking about BAV. Can you guys help me out? i wanna know that if surgery will be successful.
Steven Dean From the perspective of the medical community, aortic valve replacement is pretty "routine." I think ... Read more
Steven Dean From the perspective of the medical community, aortic valve replacement is pretty "routine." I think the key is finding a good hospital and a good surgeon.
Adam Pick Aayush, Here are some educational links to help!
I just received this educational and inspirational note from Dr. Leo Hernandez, MD. I thought you might enjoy reading, seeing and learning about Leo's heart val
http://www.Heart-Valve-Surgery.com - See the patient success story of Laurence Msall, a bicuspid aortic valve patient who experienced fainting symptoms prior...
Maureen Breault You go through a lot of emotions while considering and planning surgery. Confidence in your surgeon a ... Read more
Maureen Breault You go through a lot of emotions while considering and planning surgery. Confidence in your surgeon and aftercare is key and for me, being educated on all aspects helped me have a sense of control. Obviously, once you enter the surgery suite that ends. I like to be a partner in managing my health with my providers; I've done everything I need to do; given them the best I can be to work on.
I highly recommend Adam's book; it has a chapter on the caregiver as well as a wealth of information to help calm you're fears.
Maureen Breault My success story; 9 weeks out and I'm back to working out regularly, I took my first indoor cycle cl ... Read more
Maureen Breault My success story; 9 weeks out and I'm back to working out regularly, I took my first indoor cycle class yesterday and feel terrific. I'm a fitness instructor anxious to get back to work and am getting back the confidence to teach classes again. My incision is fading day by day but it's my badge of honor!
Lilly Black Aayush, it is okay to be scared. We all went through the fear; fear of what we will find out, fear of ... Read more
Lilly Black Aayush, it is okay to be scared. We all went through the fear; fear of what we will find out, fear of the surgery, the outcome, and the recovery. Let your girlfriend know that most people do much better after the surgery. I have had 2 surgeries; the first one was to fix the aneurysm caused by the BAV and the second to replace the diseased Aortic valve with a Bovine valve. I never felt better in my life after having my second surgery. There is fear, but mostly there is hope, and there are great surgeons out there. My surgeon is in the Santa Monica, CA area and he is fantastic! Very gentle, caring and has been taking care of patients for over 30 years. I highly recommend him! He still keeps in touch with me. I love him! He save my life, and many, many others. You are a wonderful man for reaching out for your girlfriend! I wish you and her the best outcome. Let me know if you have any questions.
Rita Savelis Your girlfriend is experiencing this is in her own way. Perhaps her own way is not talking about it. ... Read more
Rita Savelis Your girlfriend is experiencing this is in her own way. Perhaps her own way is not talking about it.
You, as the caregiver, have a different experience and different needs.
Perhaps just let her know that you are there for her and willing to listen if she needs to talk.
Surgeries are successful these days, but there is anxiety pre and post surgery and recovery can be a long and tiring journey.
Take care Aayush.
Adam Pick Wonderful thoughts Maureen, Lilly and Rita! Thanks so much for supporting Aayush and his girlfriend!
Steven Dean Just to add, this is obviously not routine for the patient or their family, but it is comforting to k ... Read more
Steven Dean Just to add, this is obviously not routine for the patient or their family, but it is comforting to know that the surgery is happening all the time and has been happening for years (and is only getting better). One thing I find really helpful is to have someone with me at the bigger medical appointments because I often get a little woozy, forget to ask questions or really pay attention.
Lilly Black My pleasure, Adam. It is my way of paying forward, helping people as much as I can who are going thro ... Read more
Lilly Black My pleasure, Adam. It is my way of paying forward, helping people as much as I can who are going through the same thing as I have. I am so grateful, and I am so happy to have recovered so well. I'm sure you know that feeling! :o)
Aayush Ambastha Thank you so much guys. Your thoughts means world to me. God bless you. Thanks again
Barry Kanick Aayush,,,,,,,,,,,Have her read my 2 most recent post(s) on my own Journal page. ,,,,,,,Barry
Hey guys. I just joined this community because my girlfriend haves bicuspod valve. I love her and i wanna help her out. I just found this community and so happy ...Read more
Hey guys. I just joined this community because my girlfriend haves bicuspod valve. I love her and i wanna help her out. I just found this community and so happy about it. You guys give me hope and believe that everything will be alright. God Bless ☺
Denise Bilas I was 25 years old when I was diagnosed with BAV. Now, I'm 50 just had ohs almost a month ago. I'm ... Read more
Denise Bilas I was 25 years old when I was diagnosed with BAV. Now, I'm 50 just had ohs almost a month ago. I'm doing good. I do have some discomfort and soreness. I was told that in time things can be back to normal. I'm definitely looking forward to that normal. My husband is just like you alawys finding some way to seek comfort and information. So, your girlfriend is lucky to have you. God bless
Priscila Marino, Denise Bilas and 2 others reacted to this
se wonderful outcomes on this sites has made me feel so much better, and when the time comes for surgery, I wont say I wont be scared, thats normal, but I know that it will turned it ok.. and your girlfriend will be fine too.. I hope she takes some comfort in all these wonderful people who share their stories with us.. Best of luck..