Fighting to get the surgery I felt was needed was definitely the right thing to do; getting opinions from 3 cardiologists other than my own made me feel validated. ...Read more
Fighting to get the surgery I felt was needed was definitely the right thing to do; getting opinions from 3 cardiologists other than my own made me feel validated. Surgery was 8/1/17, and taking a deep breath is no longer a problem, and I can stay awake ALL DAY! For quite a while, however, I seemed to be having problems related to heart lung machine; I read the response from cardiologist that Adam posted, and started right in with more research. My plan was to do research related to symptoms recognized post-op, so first thing to do was look at list of medications started after surgery. Didn't take long, as the only drug that was new was Metoprolol; although my dosage had been reduced from 100mg to 50mg, I still suspected it was the bad guy. I consulted several different reputable sites that listed possible side effects, and the puzzle was solved! (apparently I only read the common side effects when starting the med) The worst of my symptoms were: very low BP, confusion, fatigue, memory problems. I called my cardiologist to find out how he'd feel about discontinuing the drug, and he said it was fine as long as I decreased dosage over a 3 week period. No more confusion, fatigue, or low bp! The memory is still a bit of a problem, but 3 out of 4 isn't bad!!! And it is good to know that I didn't just feel those things as part of the post op healing process. FYI: my normal bp was low-normal, and my heart had no narrowed blood vessels or accumulations of yucky stuff, so med was not really necessary. Anyway, mystery is solved, and I feel 20 years younger!!!
Lila Robinson I had a bevy of reactions to medications; each time it was a short-lived setback, but once you stack ... Read more
Lila Robinson I had a bevy of reactions to medications; each time it was a short-lived setback, but once you stack one or two or three of those up, well it's a bunch of wasted time! I couldn't take the Lipitor, or the Metoprolol or Carvedilol! All of them turned me into a joint-achy mess. And, as it has turned out, I am doing well without any of them! Recently the pcp added another bp med and I started feeling funky after that as well. It turns out that they were lousy at taking my bp. I have very large arms and they do not have a cuff that fit so their readings were always skewed. And so I didn't need to be on much of the medicine. Congrats on you researching and find your answers!
Rita Savelis I also was delighted when I could get off metoprolol! Alas, it seems to be standard/necessary for at ... Read more
Rita Savelis I also was delighted when I could get off metoprolol! Alas, it seems to be standard/necessary for at least a few weeks/months to slow down one's heart after OHS.
It certainly makes sense to stay on top of your meds and ask a lot of questions about why you have to take each one, so that your doctors don't forget to take you off them, when you're ready.
My mitral valve replacement (what I refer to as a 'valve job') was on August 1st '17 at Brigham & Womens where I received a St Jude valve. I feel at least 20 ...Read more
My mitral valve replacement (what I refer to as a 'valve job') was on August 1st '17 at Brigham & Womens where I received a St Jude valve. I feel at least 20 years younger! Want folks to know something I learned recently, in event you shared a problem I experienced.
After the interview/post recently regarding pumphead, I became a bit alarmed, as I had considerable symptoms that were not letting up. I reviewed all my meds, researching drug interactions and side effects. Became suspicious re: metoprolol, so called pharmacist to get her opinion on it causing my current symptoms and she said yes; after checking in with my cardiologist for his approval, I started to gradually decrease my dose. I have been off metoprolol for a couple of weeks now and feel more energy, and especially more clarity of mind. Even others are noticing this change.
Just wanted you all to be aware of this; also, my heart rate and BP have been just fine in during this change. BTW, my valve problem was re: rheumatic fever. There - now you know!
Heath Knight Thanks for sharing. I kept saying it was the metoprolol that was making me feel this way, but my doc ... Read more
Heath Knight Thanks for sharing. I kept saying it was the metoprolol that was making me feel this way, but my doc insisted that I be on it. I had my valve job Sept 6th of 2017. I finally have convinced her that I need to start reducing my meds, I am now down to 50 mg and working towards 25 mg soon so I can get off this med. I know my body and it doesn't want this med. Good luck with all.
Barbara Wood I know I've said this before but having taken both metoprolol ( the generic) & Toprolxl( the brand) f ... Read more
Barbara Wood I know I've said this before but having taken both metoprolol ( the generic) & Toprolxl( the brand) for 2 years, I find I tolerate Toprolxl well, no discernible side effects, but I'm a mess when I try the generic. Costs me more of course, but feeling decent is worth it to me !
Bonnie Stone-Hope Very good information. Still on Metoprolol 50mg BID but want to get off of it, or at least decrease ... Read more
Bonnie Stone-Hope Very good information. Still on Metoprolol 50mg BID but want to get off of it, or at least decrease the dose. Never took BP meds before and want to stop.
Vanessa Corwin Some people can't tolerate beta blockers (metropolol is one). I did not tolerate it well. My cardiolo ... Read more
Vanessa Corwin Some people can't tolerate beta blockers (metropolol is one). I did not tolerate it well. My cardiologist switched me to Cardizem...no discernible side effects for me, have been on it now for some time.
Received an 'all ok' from my surgeon a week ago, so started cardiac rehab yesterday. Great information. Amazing how much I was falling apart the last 2 years, ...Read more
Received an 'all ok' from my surgeon a week ago, so started cardiac rehab yesterday. Great information. Amazing how much I was falling apart the last 2 years, and how difficult so many things became, as symtoms grew worse (mitral stenosis with a dose of pulmonary hypertension). Hope I can get back into walking at a healthy pace, and camping, and mowing! Embarrassing that I broke into such a sweat after such light activity. They say it improves pretty quickly. Am VERY tired most of the time, and still have a serious case of foggy brain .. they say I will be back to my old self, but with new valve, in just a short while. Hope they are right.
Phyllis Petersen You'll start a little slow, but one day you'll turn around and be amazed at far you've gone. Enjoy!
Civita Fahey Cardiac rehab was great for me.. Gave me the confidence to go back to the exercise I love to do and t ... Read more
Civita Fahey Cardiac rehab was great for me.. Gave me the confidence to go back to the exercise I love to do and the it gave me the strength.. yes, you will be be slow at first but you'll be amazed at the end how much you have improved.. you will be better than your old self..I'm beginning to realize that now.. I never knew how compromised I was until now that I am not.. enjoy it .. is really worth it.
Civita Fahey just noticed we had our surgery at the same hospital.. Dr. Prem Shaker did my aortic valve replacemen ... Read more
Civita Fahey just noticed we had our surgery at the same hospital.. Dr. Prem Shaker did my aortic valve replacement.. its a great hospital, we are lucky to have it close by.
Laura Jacobs I know what it feels like to start exercising after a long hiatus. I stopped exercising about 18 mont ... Read more
Laura Jacobs I know what it feels like to start exercising after a long hiatus. I stopped exercising about 18 months before my surgery because it became so hard. Not knowing that I had an aneurysm or a major valve problem made me feel guilty and lazy. I was very symptomatic but wrote off all my symptoms as a result of aging. I have a lot of work to do as well Cynthia but I am just going to take it as it comes. Good luck to you!!!
Cynthia Pagiatakis Thank you, Phyllis! Have been caught up with feeling ashamed at what a slug I have become. Looking fo ... Read more
Cynthia Pagiatakis Thank you, Phyllis! Have been caught up with feeling ashamed at what a slug I have become. Looking forward to time when I can actually measure my progress.
I am a 62 year old female who had mitral stenosis due to rheumatic fever. It had progressed slowly, but started having a serious impact on my life about 2 years ...Read more
I am a 62 year old female who had mitral stenosis due to rheumatic fever. It had progressed slowly, but started having a serious impact on my life about 2 years ago. My regular cardiologist didn't feel surgery would get rid of my symptoms, so didn't recommend valve replacement. I decided to get a second opinion, and in no time at all was scheduled for surgery. August 1 2017 was the big day. Hard to believe it has already been more than 6 weeks! I went back to work week two with surgical okay (just phone answering/appointment making) .. as I could see surgical co-pays looming in my future. Saw surgeon last week and received a clean bill of health! Lungs are healing nicely (from pulmonary hypertension via stenosis) and mechanical valve looks great! Amazing how much better I feel now that blood flows freely through that valve! Life is so very much improved! For all of you anticipating surgery in your near future, it will make a huge difference in your quality of life; it isn't an easy process, but in the over all scheme of things, a few weeks of discomfort (okay, pain) are worth the payoff. Get all your ducks in a row, try to concentrate on practical concerns pre-op, don't spend time looking at videos of the procedure, and keep in mind the surgery is a process with a with a beginning and end. It is like climbing out of a deep hole, with the end result being reaching the summit .. complete with amazing view and manageable landscape to traverse. Ever so worth it!
Sherre Alfaro thank you for the words of encouragement I needed. I am a healthy 62 yr old that has the same disorde ... Read more
Sherre Alfaro thank you for the words of encouragement I needed. I am a healthy 62 yr old that has the same disorder. My surgery is on 10/5, and i;ve become deathly afraid of what happens after the surgery. Do I get to go back to who I was prior to all this? It's been slowing me down for almost 2 yrs, but I didn't go to the Dr till i couldn't take it any more ( Mar 2017) Other than this, i have no other health issues, but my mother and my sister have also had this same surgery, and I don't see any improvement in them since their surgeries. They keep telling me to not expect any difference.Then I'm like "Why do the procedure?"
I keep hoping that it's because they have several other health issues in each of them that is stopping them from fully recovering. Thank you for giving me that hope. Because I don't think i could live so confined the way they have to now.
Cynthia Pagiatakis Of course I can't speak to your Mom and sister's outcome; however, there are certain things you have ... Read more
Cynthia Pagiatakis Of course I can't speak to your Mom and sister's outcome; however, there are certain things you have under your control and they make a huge impact on the surgical results. My thought is we need to follow direction, do lots of research, make sure we are comfortable and confident in our choice of Surgeon and hospital, and know that everything you CAN do to improve your health IS BEING done. Don't hesitate to accept assistance from friends (one of my great short comings), and memorize your doctor's phone number so you can call readily with questions and concerns. Phew! Sorry for the overload! Cindy PS: my most concerning symptom pre-op was nasty, deep coughing and shorness of breath due to pulmonary hypertension ... cough was completely resolved within days of surgery!
Cynthia Pagiatakis By the way, the one 'problem' I had post-op was temporary memory loss due to having dilaudid for pain ... Read more
Cynthia Pagiatakis By the way, the one 'problem' I had post-op was temporary memory loss due to having dilaudid for pain. That only lasted a couple of days, and dilaudid was discontinues. Know what? The only pain management since the morning of day three post-op has been Naproxen or Tylenol! Never needed a prescription for pain management, which I was both surprised and delighted about.
It certainly makes sense to stay on top of your meds and ask a lot of questions about why you have to take each one, so that your doctors don't forget to take you off them, when you're ready.