jackie Taylor - Heart Valve Journal

My Journal

52 days ago

Anyone have mitral valve surgery after aorta replacement ? I understand one of our community said this possible. Has anyone had the two surgeries separately ...Read more

Anyone have mitral valve surgery after aorta replacement ? I understand one of our community said this possible. Has anyone had the two surgeries separately

J Alexander Lassally There are Mitral Valve reference centers in the US, about 25-30 of them, so make sure to at least get ... Read more

J Alexander Lassally There are Mitral Valve reference centers in the US, about 25-30 of them, so make sure to at least get a consult at one of those since you are a second surgery patient. I can forward link if you need it.

Rita Savelis I had both valves replaced at the same time, but some patients have the aortic done first (because it ... Read more

Rita Savelis I had both valves replaced at the same time, but some patients have the aortic done first (because it's the only valve that needs surgery at that time) and the mitral valve repaired/replaced later. Your surgeon should be able to advise you.

Susan Dunne I had my aortic valve replaced in Feb. this year. The results of that were great. My latest echo shows aortic valve clear but my mitral valve shows some calcification. Mild to moderate. No regurgitation or prolapse.
Have appointment with cardiologist next Jan. and another echo. She doesn't seem to be worried about it.

So I will wait and see. It may never progress further or move rapidly. I will handle the problem when and if it comes.

... Read more

jackie Taylorposted an update

53 days ago

Can you have mitral valve repair , 7 years after aortic replacement

J Alexander Lassally Sure, I think they are independent "jobs" so to speak. Good luck.

jackie Taylor Thanks for your response

jackie Taylorposted a journal

1957 days ago

I am most grateful for the extended life. I do feel different however. I have not gotten my full energy back but perhaps that is age related. (68 and counting ...Read more

I am most grateful for the extended life. I do feel different however. I have not gotten my full energy back but perhaps that is age related. (68 and counting ) My mitral valve is leaking at a moderate level and my blood pressure is low. I recently was taken off all blood pressure medication which I had taken for 20 years pre surgery of my aortic valve replacement . I thought I was as fully recovered but sustaining energy is a continuing problem. I believe each day is a gift so working to appreciate what is and not what was. I send support to those who anticipate surgery and those who are post surgery . I wish you peace of mind and a full joyful heart.

Mike Roskowinski Hey Jackie sorry to hear about your mitral valve leaking. But yes I am going on 14 weeks post surger ... Read more

Mike Roskowinski Hey Jackie sorry to hear about your mitral valve leaking. But yes I am going on 14 weeks post surgery and it is thankful to have a chance to live out a full life. I am back to the same as I felt pre-surgery just a few things here and there that still bug me. I am 39 and turning 40 in December so my gift this year was a new valve and aortic repairs!

Marie Myers It is indeed a new “normal” after open heart surgery. Some of your ongoing symptoms could be from ... Read more

Marie Myers It is indeed a new “normal” after open heart surgery. Some of your ongoing symptoms could be from the leaking mitral valve. I hope your energy problem improves with time and from the changes to your meds. Keep us posted!

jackie Taylor Thanks for your comments. Really helps!!

jackie Taylorposted an update

2166 days ago

I had an aneurysm repair and aortic valve replacement one year ago. I had been doing very well. Now it is discovered that I have a moderate mitral valve regurgitation. ...Read more

I had an aneurysm repair and aortic valve replacement one year ago. I had been doing very well. Now it is discovered that I have a moderate mitral valve regurgitation. Anyone else had this series of events . Thanks

Phyllis Petersen Sorry to hear that you are facing more uncertainty. Hopefully, you don't progress too quickly.

Tracy Fallu Sorry to hear; i completely understand the uncertainty feeling. I had a Mitral Valve Repair 14 months ... Read more

Tracy Fallu Sorry to hear; i completely understand the uncertainty feeling. I had a Mitral Valve Repair 14 months ago. At 8 months, it was discovered I have moderate regurg of Mitral and Tricuspid; heart is operating just fine, no dialation. Now on the watch list for an echo every 6 months . Best case scenario, the regurg never progresses.

Louanna Miller I am so sorry for both of you, Jackie and Tracy. Let’s all pray that the regurgitation never progr ... Read more

Louanna Miller I am so sorry for both of you, Jackie and Tracy. Let’s all pray that the regurgitation never progresses.

jackie Taylor Thanks for these posts. I am on a 6 month echocardiogram regime again. It will be wait and see

jackie Taylorposted a journal

2204 days ago

Rob Sparling, Louanna Miller, Lisa McLaughlin and 3 others reacted to this

For those awaiting surgery I send encouragement and support. One year later it feels as if my surgery was very long ago . We are blessed to have doctors with ...Read more

For those awaiting surgery I send encouragement and support. One year later it feels as if my surgery was very long ago . We are blessed to have doctors with the knowledge and skills for these surgeries. I am still a bit tired but overall very good. I wish you the same or better. Happy Holidays

Rob Sparling 👍 Thanks for the waypoint! Congrats and happy holidays!

Susan Lynn Happy upcoming Anniversary! Happy Holidays to you, too, Jackie!

Dan Vechiola Congrats Jackie on your 1 year and Happy Holidays to you as well.

James A. Corbett Hi Jackie, thanks for taking the time to update us. Congratulations. It is amazing the skill of these ... Read more

James A. Corbett Hi Jackie, thanks for taking the time to update us. Congratulations. It is amazing the skill of these doctors. My grandson is going to medical school and after my visits to Cedars-Sinai I suggested the look into being a heart surgeon. Anyway I look forward to my one year "badge." My clock starts around the first of the year with the surgery scheduled for Dec. 18th. Happy Holidays. Jim

jackie Taylor After a year , it has been discovered that I have mitral regurgitation. Feeling tired . Anyone else ... Read more

jackie Taylor After a year , it has been discovered that I have mitral regurgitation. Feeling tired . Anyone else have this situation?

jackie Taylorposted a journal

2411 days ago

Penelope Bodek, Susan Lynn, Judy Shaw and 2 others reacted to this

In January the day deemed the cyclone blizzard I had an aortic valve replacement and a repaired aneurysm. 4 months later I am doing extremely well at my gentle ...Read more

In January the day deemed the cyclone blizzard I had an aortic valve replacement and a repaired aneurysm. 4 months later I am doing extremely well at my gentle age of 67. After 2 weeks I started to feel “normal” if there is such a health state and after 2 months I was rolling along. For those about to undergo surgery I send “heartfelt” good wishes and words of encouragement. The nervousness or fear can be a motivator to follow a cardio rehab program and stay the course of a healthy lifestyle after surgery. My very best to you

Judy Shaw Hi Jackie. Happy to hear you are doing so well. I am facing this same surgery. Don't have a date yet ... Read more

Judy Shaw Hi Jackie. Happy to hear you are doing so well. I am facing this same surgery. Don't have a date yet but I'm starting the prelim testing next week. Thank you for the encouragement.

jackie Taylor I hope Judy all went well for you. I am now 8 months post surgery. Hard to believe. I have done very ... Read more

jackie Taylor I hope Judy all went well for you. I am now 8 months post surgery. Hard to believe. I have done very well with my valve. I got a UTI from the catheter and that has continued. I wish I had had more info about UTI's and catheters post surgery. Good luck to all

jackie Taylorposted a journal

2531 days ago

Rose Madura, Phyllis Petersen, John Dodson and 1 other reacted to this

Anyeurysm r paired and aortic valv replaced. Seven days later and. Am home. Thankful for excellent medical professionals and support team of friends and ...Read more

Anyeurysm r paired and aortic valv replaced. Seven days later and. Am home. Thankful for excellent medical professionals and support team of friends and family. It was not as bad as I envisioned but individual moments were frightening. Moving forward. Continue to ne d support . A lot better of f rehab ahead

Rose Madura Welcome to the recovery side. Best wishes on your recovery. May it be uneventful.

Catie B Hang in there, Jackie. Wishing you an excellent recovery!

jackie Taylorposted a journal

2551 days ago

Waiting until surgery on January 4th and making a valiant attempt to stay low keyed for the holidays. Want to have joy for this holiday.

Rose Madura Enjoy the time with the family and have the best Christmas ever. Next year, you will start your jour ... Read more

Rose Madura Enjoy the time with the family and have the best Christmas ever. Next year, you will start your journey. I had the same surgery as you but with a little more going on. I feel wonderful now after ~ 7 months. You will too. It takes time but it was worth it for sure.

Rita Savelis I think everyone, heart patient or not, makes that valiant attempt. It's a hard time for everyone.
I ... Read more

Rita Savelis I think everyone, heart patient or not, makes that valiant attempt. It's a hard time for everyone.
I wish you peace.

Lilly Black I hear you Jackie! Nothing wrong with low key though. Wishing you joy and peace for the holidays. ✌ ... Read more

Lilly Black I hear you Jackie! Nothing wrong with low key though. Wishing you joy and peace for the holidays. ✌️

jackie Taylorposted a journal

2551 days ago

1 person reacted to this

As with most things in life, time is slow until you look back and then it is a wiz....My surgery is January 4th, 2018 and it feels like forever to get there. ...Read more

As with most things in life, time is slow until you look back and then it is a wiz....My surgery is January 4th, 2018 and it feels like forever to get there. But at 66 I know that memories of years past have gone at lightening speed.. I am so anxious to read this post after 4 months.. May 2018 be a hurricane of good recovery..

Marie Myers That is so true. I am 9+ months into my recovery from AVR, root and ascending aneurysm resection. It ... Read more

Marie Myers That is so true. I am 9+ months into my recovery from AVR, root and ascending aneurysm resection. It has flown by! The first 2-3 weeks are exhausting, but every day you will get a little stronger. Now I look back, and can't believe it is all done. I feel back to normal...Best wishes for a smooth course!

jackie Taylor Thank you Marie, so appreciate your perspective..Happy New Year.

Rose Madura Yes, you will look back and see how far you've come. My husband took videos for the first three days ... Read more

Rose Madura Yes, you will look back and see how far you've come. My husband took videos for the first three days doing sort of an "interview" with me. It's very enjoyable to watch them now and see how far I've come. Merry Christmas and Happy New Year. Keep us posted.

jackie Taylorposted a journal

2561 days ago

On January 4th , I will have an aortic valve replacement and an aortic repair. I am feeling positive about this surgery. I have known for 30 years some day ...Read more

On January 4th , I will have an aortic valve replacement and an aortic repair. I am feeling positive about this surgery. I have known for 30 years some day I would need this surgery so no surprise. Sometimes when I read the posts, I wonder if I am too naive about what is possible to come.

Marie Myers I think being optimistic is a wonderful thing. Even though it was a big surgery, I did well. Lean on ... Read more

Marie Myers I think being optimistic is a wonderful thing. Even though it was a big surgery, I did well. Lean on your friends, family, and faith. You will get through it all!

Susan Rush I had AVR replacement just 3 weeks ago. I too knew it was coming 'someday' but still felt unprepared ... Read more

Susan Rush I had AVR replacement just 3 weeks ago. I too knew it was coming 'someday' but still felt unprepared when the time came. It took a lot of organizing on my part with friends, family, and neighbors to have support system set up. Everyone was willing to help some, so with all of them I had it covered! You will do great!

Catie B Welcome, Jackie! These surgeries have become safer and safer, and surgeons and hospitals are highly ... Read more

Catie B Welcome, Jackie! These surgeries have become safer and safer, and surgeons and hospitals are highly skilled. It's great you are feeling so positive. I think that's wonderful!

Bonnie Stone-Hope Hi Jackie, There are always risks in everything, but based on the research I have done, and the fact ... Read more

Bonnie Stone-Hope Hi Jackie, There are always risks in everything, but based on the research I have done, and the fact that my Mother had successful valve surgery 20 years ago, I feel optimistic and you should too!

Rose Madura Information can be a two way street sometimes. Some people don't want to know anything about what to ... Read more

Rose Madura Information can be a two way street sometimes. Some people don't want to know anything about what to expect and others want to know everything. The main thing is to trust your doctors. These surgeries are very safe nowadays and the doctors do them on a regular basis. Even if you have complications, they will know what to do for you. Best wishes. Let us know if you have any questions and keep us posted.

jackie Taylor Thank you for these very kind posts. I have friends or family coming each day when I get home. So ... Read more

jackie Taylor Thank you for these very kind posts. I have friends or family coming each day when I get home. So I hope I am well prepared. Thank you ! Wish the surgery was tomorrow. Want it over !!