I just finished my first week back to work, and it went without any problems. It felt like nothing has happened. I know that everyone recovers at a different ...Read more
I just finished my first week back to work, and it went without any problems. It felt like nothing has happened. I know that everyone recovers at a different speed - for me getting back to "normal" helps with recovery.
I also had my follow-up visit with my surgeon, and everything was going very well, my lungs are clear, and all other values are good. I also feel great, have energy, can walk every day 5-7 miles, and I sometimes wonder just three weeks post surgery if I ever had surgery.
I would rate myself at over 110% - my heart is performing better than before as I can climb any stairs/hill without limitation - and enjoy this a lot. I can't wait to be back on my bicycle, but I have to wait for another five weeks. My mechanical On-X valve is clicking away (I don't hear a thing, or maybe I have already learned to ignore any possible noise) and it seems my INR is stable, and my Coumadin dose (about 7 mg/day) is dialed in. I also purchased my Coagocheck XS meter and started testing myself (really easy) - very reassuring as it allows me to build confidence. I feel the anticoagulation clinic is redundant and a waste of time - so I will try to get out of there soon. Even after this very short period, I feel already that self-management is the way to go and will allow me to stay in range - which I cannot confirm for the anticoagulation clinic - they put me at the beginning for days on 2.5 mg - my INR tanked, and I had to take shots.
I decided that cardiac rehab for me would not be necessary, and I will not pursue this.
My surgeon told me that I am ok to drive after four weeks - so that would be the end of next week. It seems that some of you got different directions - maybe it is because of my partial/mini-sternotomy.
BTW - I also looked into Cleveland Clinic but then learned that an experienced surgeon started May this year at OHSU, and I decided that surgery in Portland, Oregon became a viable option. Based on my personal experience I can confirm that this was the right decision, and I enjoyed the five days in the hospital just 25 minutes away from home and the visits from my family and friends.
congrats great story.
Steven Dean you will be looking down from the top of Mt. Hood in no time.
David C How are you feeling about this 100º weather we are having? Today was the first day since I got home ... Read more
David C How are you feeling about this 100º weather we are having? Today was the first day since I got home that I scaled back versus add distance or maintain the same as the day before.
Congrats on getting back to work. I went in for a few hours on Friday and it wiped me out. :) I start officially back on the 1st, and am hoping I have a little more endurance for the office by then.
Congrats on the speedy recovery. Three weeks and back at it is insanely quick! Nice.
Civita Fahey Congratulations Juergen..this is amazing.. . I'm hoping you can answer a question for me as Im still ... Read more
Civita Fahey Congratulations Juergen..this is amazing.. . I'm hoping you can answer a question for me as Im still in the "not knowing" when surgery is.. since you had a minimally invasive, was there any specific criteria that you had to fulfill? As far as I know my surgery would be an AVR due to severe stenosis and bicuspid valve.. One surgeon I spoke to said "could be done" but he didnt like doing it, so Im going to explore the minimal invasive clinic at the Brigham ( ranked #4 in heart hospitals, I wasn't aware when I went for my first consult and I was referred to another large hospital) here in Boston.. but since I see most people have open surgeries was just wondering how you qualified.. was the time in the OR longer or longer on the bypass Machine? thanks so much and continued healthy recovery.
Juergen Li Civita - I spoke to two surgeons. The first one did not do the minimally invasive procedure and made ... Read more
Juergen Li Civita - I spoke to two surgeons. The first one did not do the minimally invasive procedure and made it sound as if this would be higher risk as he would have less visibility. When I talked to the second surgeon (whom I went with), he was experienced in this procedure and explained that he would have the same field of vision as with the full sternotomy. He also predicted that this method would mean less blood loss and pain - which based on my personal experience seems to be relevant. He mentioned that the process is dependent on the anatomic situation and that in my case (I am of regular weight) an endoscopic procedure would not be possible due to the relative position of the heart and aorta to the breast bone. My conclusion was that this is primarily a question of the experience and skill level of the surgeon. I have not seen the details and times from my surgery but think that it was pretty standard. I read that Clevland Clinic is performing the majority of all OHS with the minimally invasive method which would support that this approach is less patient dependent and possibly more a function of the skills and experience of the surgeon.
Juergen Li David I really feel that I have more energy than before, so the hot weather is not much of a problem. ... Read more
Juergen Li David I really feel that I have more energy than before, so the hot weather is not much of a problem.
Civita Fahey Thank you so much.. that's exactly what I got from my first surgeon. I didn't ask the second one as I ... Read more
Civita Fahey Thank you so much.. that's exactly what I got from my first surgeon. I didn't ask the second one as I was basically thinking , more time, more risk, more anesthesia etc.. But, I know now that the Brigham does do a lot of their surgeries minimally invasive and I will definitely pursue that.. thanks for the information.. I feel this website has opened my eyes to so much more than I would have known without it.. Thank you Adam!! They did tell me right now a TAVR is not an option since I am considered low risk and they are just starting to test out low risk patients.. I would be so much happier to know I could have it minimally invasive if I could.. I like you am pretty active, 55, and good health otherwise and regular weight, so cross our fingers..I have another echo in October, and if time, I will look in that direction.. Thanks again.. Civita
Catie B Juergen, I appreciated reading your post to Lise today where you mentioned managing well just on Tyle ... Read more
Catie B Juergen, I appreciated reading your post to Lise today where you mentioned managing well just on Tylenol. That's encouraging to me, since I can't take NSAIDs or codeine-related meds and have an extremely sensitive stomach. A bit worried about post-op meds. I'm glad you were able to get the minimally invasive approach and it sounds like it has benefited you. Was greatly hoping to go that route, but even in Cleveland I'm having a sternotomy.
Juergen Li Catie - I had a sternotomy as well, however they did not split my breastbone from top to bottom but o ... Read more
Juergen Li Catie - I had a sternotomy as well, however they did not split my breastbone from top to bottom but only the upper half (so called arrowhead cut) which resulted in a 4 inch scar. The surgeon had full access to my valve and ascending aorta, however the whole procedure was less invasive and possibly caused me less pain and discomfort. They only gave me the strong medication on the day of surgery, I took only Tylenol from the next day on, was completely sufficient in my case.
Catie B Ah. I must have my terms a little mixed up then; I was thinking that approach might be a hemisternoto ... Read more
Catie B Ah. I must have my terms a little mixed up then; I was thinking that approach might be a hemisternotomy. For sure, your description sounds less invasive and like your sternum would remain more stable from not being completely divided. I'm amazed that Tylenol sufficed from Day 2 on!! That is marvelous.
Spent half a day at work on Tuesday - and it felt great. If everything goes well I am planning on returning to work next week. I will scale up my daily working ...Read more
Spent half a day at work on Tuesday - and it felt great. If everything goes well I am planning on returning to work next week. I will scale up my daily working hours for a week or two and will see how it goes. I have an office job - so that makes it easier.
i plan on working remotely or at least logging in end if next week. i am in technology so its easy. m ... Read more
i plan on working remotely or at least logging in end if next week. i am in technology so its easy. my wife says she will hide my laptop.
Juergen Li Dan ... great to hear that you are doing well. We should all appreciate our wifes - they all have mea ... Read more
Juergen Li Dan ... great to hear that you are doing well. We should all appreciate our wifes - they all have mean well.
Well don't be overly impressed I am watching a "boob bleed" as I call it. The last day before I was r ... Read more
Well don't be overly impressed I am watching a "boob bleed" as I call it. The last day before I was released I woke up and my right side where they went in looked likeI had a breast implant. Doc said to just put ice and compress on it which they gave me when I left. So far so good.
Juergen Li Dan - I wish you all the best. I am also expecting some speed bumps. Since I have some downtime I had ... Read more
Juergen Li Dan - I wish you all the best. I am also expecting some speed bumps. Since I have some downtime I had a chance to watch an OHS on the web and I am completely amazed for all of us that went through such a procedure that we are recovering so well.
Luke P Juergen - were you cleared to drive? I'm three weeks post-op and feel I need a few more weeks before ... Read more
Luke P Juergen - were you cleared to drive? I'm three weeks post-op and feel I need a few more weeks before going into the office.
Juergen Li No I am not cleared to drive - will probably have to have a driver for another two weeks or so. Regar ... Read more
Juergen Li No I am not cleared to drive - will probably have to have a driver for another two weeks or so. Regarding work - I think everybody should take their time - but I am already so bored. I am planning to not start of with a 40+ hour work week and will probably use the first two weeks as transition weeks. Since it is sumer things at work are a little bit slower anyway.
I enjoy the long walks that I have with my wife and regularly get my 13,000 or so steps in per day. I am still amazed how well I feel and hope that it will ...Read more
I enjoy the long walks that I have with my wife and regularly get my 13,000 or so steps in per day. I am still amazed how well I feel and hope that it will stay this way. The new valve works great and my heart takes full advantage of it I can feel it on the uphill sections were I used to feel that something was starting to max out - but not anymore. My neck/shoulder is still a little bit stiff, but nothing serious.
Susan Schweter So happy for you keep up the good progress
Lise Bowles Terrific!!! I hope I do as well, gulp!
Catie B So good to hear this. Sounds like things are going great and you're working the plan with those walks ... Read more
Catie B So good to hear this. Sounds like things are going great and you're working the plan with those walks!
Steve Wykstra Wow, you are an inspiration as to what is possible, Juergen! Of course not many are as athletic as y ... Read more
Steve Wykstra Wow, you are an inspiration as to what is possible, Juergen! Of course not many are as athletic as you as we go into surgery (way to go on that!) and so will often need lots of patience (Adams' book is good on this!), but still, you are an inspiration to work toward, each at their own pace, once we have our new valves!
The final tube and pacemaker wires came out today. I did not feel any pain, the physician who did this had to pull pretty hard on these tiny wires - great they ...Read more
The final tube and pacemaker wires came out today. I did not feel any pain, the physician who did this had to pull pretty hard on these tiny wires - great they did not break. After the bandage was removed I can now also see my incision - which is nice and short. I was able - on this quiter floor - to hear my valve during the night. Very reassuring - not annoying. Oh, and they let me take a shower which felt great as well. I also could look at an X-ray that they took today that showed the valve and the closing plates and wires.
The final task is to dial in the INR - everything else looks pretty good.
Conrad Skowronski Juergen -- I am so mirroring your experience. Didn't the tubes coming out feel great!! I too, feel ... Read more
Conrad Skowronski Juergen -- I am so mirroring your experience. Didn't the tubes coming out feel great!! I too, feel my new valve at night. Shower felt great also.
Keep on recovering!!!
Catie B Great report, Juergen! Wishing you the best, as you continue to recover.
I am now in the step down unit and walked already several one mile lapses around the 11th floor on the Kohler building - that felt great this morning at 5 am. ...Read more
I am now in the step down unit and walked already several one mile lapses around the 11th floor on the Kohler building - that felt great this morning at 5 am. Most likely the last tubes and wires will come out today.
Conrad Skowronski I have to tell you Juergen -- when they take the tubes and wires out -- it will feel GREAT!!
Surgery went well, I am on Tylenol (feel no pain) and was allowed to go on three walks today with 5 lapses for my last one on the 12th floor with great views ...Read more
Surgery went well, I am on Tylenol (feel no pain) and was allowed to go on three walks today with 5 lapses for my last one on the 12th floor with great views of Portland. I got a 23 mm valve and feel great. Quite a few lines came out as well. I know that there could be set-backs and changes but feel that I got of to a good start. Yesterday on my day of surgery I was obviously not that awake but I do remember my wife and children visiting me. I have been "downgraded" in my care level and will change stations tomorrow since they had no open bed. I valve had a really large opening but the surgeon Jai Raman mentioned that the level of excersice (bicycling) helped to compensate for it and was a great preparation for surgery. I also lost some weight (at least 15 pounds) since Christmas when I learned about my valve condition - I hope that will help also to get back into shape. I got a minimally invasive surgery and hope that this will help with recovery.
Took today of from work and enjoyed the sun. Was even able to go on a 30 mile bike ride - probably the last for some time. I hope this is what will keep me ...Read more
Took today of from work and enjoyed the sun. Was even able to go on a 30 mile bike ride - probably the last for some time. I hope this is what will keep me motivated - tried to memorize as much as possible. Summers in Oregon are fantastic - too bad I have to check into the hospital tomorrow at 5:30 am.
Getting now ready - have check in the hospital at 5:30 am.
Priscila Marino Hope all goes well tomorrow.... Prayers and many blessings to you.
Lise Bowles Best wishes and prayers for a successful outcome and aftercare!
Bridget Sawmiller Prayers for a successful surgery and speedy recovery, good luck today, you got this!
Congrats on getting back to work. I went in for a few hours on Friday and it wiped me out. :) I start officially back on the 1st, and am hoping I have a little more endurance for the office by then.
Congrats on the speedy recovery. Three weeks and back at it is insanely quick! Nice.