So, I haven't been on here in a while and today I realized I need a community to share these moments, so I am back!
I am 8 months post OHS #2, had the Bentall ...Read more
So, I haven't been on here in a while and today I realized I need a community to share these moments, so I am back!
I am 8 months post OHS #2, had the Bentall procedure done by Dr. Starnes. Went through a little hell with my incision opening up and having to have a nurse come to the house every day for 10 weeks to clean and redress the hole in my chest! Whatever, I am young and strong and well it all turned out just fine! But the area is all new skin and more sensitive than further down my chest.
I went through cardiac rehab just fine, lost a little weight (bonus!) and go to the gym 3x a week as instructed. So mainly no structural issues and have been going about daily life as one should...right? Yes and no...and here's where I would love to hear from you.
Even this late after surgery my chest is tight, I have emotional moments where I want to cry (omg..like now writing this!), sometimes I feel a little cracking in the upper chest, I touch my scar and wince a little and want to cry (even though I have lived with a scar down my chest since I was 5 and Dr. says I have double the scar tissue in the exact same place so double the recovery) I think the newness of this one gets to me more, I feel less confident at the thought of being romantic (divorced 2 years ago) let along "hitting the dating scene", and hide all this from friends and family putting on the "I'm great" face. Does anyone else have these emotional moments, these sensations/pains? I was made aware that the anesthesia takes a VERY long time to leave your body because it can get into your muscles and sit there, and that could explain the moments where I tear up...I don't know though.
Anyway, I would love to hear from you. I do find when I eat well, no sugar, no alcohol, no carbs, it is less, and I find when I am close to my woman cycle it is a bit more! lol
Trying to take it all in stride. The more I smile, the better I feel, but I have come to realize there are others out there that have gone through similar situations and I would really like to hear from you. Thank you for your support!
Shannon Gray You are not alone...I’m almost 4 years out from surgery and I still feel “tender and sensitive” ... Read more
Shannon Gray You are not alone...I’m almost 4 years out from surgery and I still feel “tender and sensitive” inside and out. Sending you hugs and thank you for being so brave to share.
T.C. Sayles Thank you Shannon! I hate to say good to know, but it makes me feel better that I am not the only one ... Read more
T.C. Sayles Thank you Shannon! I hate to say good to know, but it makes me feel better that I am not the only one! I keep going back to when I was 5 having had my first surgery and CLEARLY DO NOT remember being like this! I was back on the playground at week 3!!! uggg!
Marie Myers Yes, I also felt that it took a while to get through the emotional/mental aspects of open heart surge ... Read more
Marie Myers Yes, I also felt that it took a while to get through the emotional/mental aspects of open heart surgery. I think the whole experience makes one aware of their own mortality. The enormity of the procedure can take a physical as well as an emotional toll. I felt teary and emotional at times early in recovery. Now at 2.5 years, I feel like I am “back to normal”. However, I do realize that this body isn’t going to last forever, like I thought when younger. It is a process of making peace with what you have been through. Hoping you have a smooth recovery from here on out!
T.C. Sayles Thank you Marie! Yeah, it is a tough one, but I know I will get through it and have been doing so qui ... Read more
T.C. Sayles Thank you Marie! Yeah, it is a tough one, but I know I will get through it and have been doing so quite well. It's just these little moments! ugg!! Thank you for your encouragement and kind words!
I am almost at 10 weeks post surgery...I was wondering if anyone has gone for a massage before this point in recovery? If so, did you find it hard, any discomfort, ...Read more
I am almost at 10 weeks post surgery...I was wondering if anyone has gone for a massage before this point in recovery? If so, did you find it hard, any discomfort, able to lay on your stomach (I still haven't). Thanks!
Marie Myers I am thinking I waited about 3 months before I could get a massage. It took me that long to be comfy ... Read more
Marie Myers I am thinking I waited about 3 months before I could get a massage. It took me that long to be comfy lying on my stomach.
T.C. Sayles Claire, I feel good..but my incision opened up and now I have a hole in my chest! Been dealing with d ... Read more
T.C. Sayles Claire, I feel good..but my incision opened up and now I have a hole in my chest! Been dealing with daily wound care for 3+ weeks. Hoping for only another 2 until it closes. No fun. At 46 I was hoping for smooth sailing and almost back to normal-ish by now. Ugg! My scar is still a bit tender and I am still numb in area of the femoral artery. How about you?
Tracy Fallu I had one sitting in a chair and lying in my side. The massage really helped with my shoulder knots.
Claire Kreger-Boaz TC, omg that sounds traumatic! I’m also 46 & thought age would be on my side but I am still having ... Read more
Claire Kreger-Boaz TC, omg that sounds traumatic! I’m also 46 & thought age would be on my side but I am still having so much pain in my sternum! I’m going to look up the femoral artery to see if that’s where my pain is. I had three good days in a row & today I can barely move from pain! How did your incision open up?! I hope you’re not in too much pain! I really think having boobs slows healing!!
Meredith Bray I went for a massage at about 10 weeks! I told the therapist about my surgery and she helped me maneu ... Read more
Meredith Bray I went for a massage at about 10 weeks! I told the therapist about my surgery and she helped me maneuver when I needed it. I was not uncomfortable laying face down on the table, not one bit. I couldn't roll over by myself (I still have issues with that 5 years later!)
That massage felt SO DAMN GOOD though!
Meredith
Holiday, FL
Gina Fiorentino Yes, all of the above. Difficult to lay on stomach for many months, but did lay on top of a soft blan ... Read more
Gina Fiorentino Yes, all of the above. Difficult to lay on stomach for many months, but did lay on top of a soft blanket
doubled up under my chest for a gentle massage at about 5 months. Still was uncomfortable, but also relieving.
Diane Esposito T.C. I am a licensed massage therapist and you can also have the therapist work on you in a side lyi ... Read more
Diane Esposito T.C. I am a licensed massage therapist and you can also have the therapist work on you in a side lying position with pillow under your neck/ head, between your knees etc to take pressure off sensitive body parts, assuming you are comfortable on your side. I would of course avoid deep pressure over the chest/ upper belly and if you are lying prone, no deep pressure on the back which would push you into the table. Gentle Swedish massage can be very helpful.
T.C. Sayles OMG!!! Everyone!! Thank you so much!! Happy Easter to you all and Happy Passover too! All great tips! ... Read more
T.C. Sayles OMG!!! Everyone!! Thank you so much!! Happy Easter to you all and Happy Passover too! All great tips!! I am going to go brave it next week!
Today I am 7 weeks past my OHS at USC Keck by Dr. Vaughn Starnes! I am 46! I had a complete Aortic Root Replacement and a new Resilia Aortic Valve put in me. ...Read more
Today I am 7 weeks past my OHS at USC Keck by Dr. Vaughn Starnes! I am 46! I had a complete Aortic Root Replacement and a new Resilia Aortic Valve put in me. This is my 2nd OHS, the first was when I was 5 years old! Zipper #2 if you will! Everything went well! But somehow I have managed to mess up my incision and no it wasn't because I lifted or started activity too fast! I had a hematoma pop the night before I flew home to Florida and that started the opening. I now have a 4.8cm long opening - or I say HOLE - in my chest and am set back a few extra weeks. Very upsetting, but I have to get through this.
Me - I'm doing great, driving, walking, being a mom going to daughters tennis matches, walking the dog, resuming mother duties...not walking the 4 miles a day to the beach like before, but will get there. Emotionally, it set me back. I'm a single mom and I'd love to be going out more with friends, but I'm embarrassed and sad that I the top part of my scar is not looking like the bottom part! And now I have a wound vac coming to speed it up! More tubes, great! :(
Anyway...has this happened to anyone? What did you do? The thought of carrying around a wound vac for 2-4 weeks (I think) is very upsetting to me! I have cried about it and even to the local surgeon who is taking on my case since Starnes is in LA. Thanks everyone.
And I am sending all my love and well wishes to everyone on this site! I am new and super thankful to Debby Tomlinson for referring me to it!
Darren Ketchley Good luck to you hope it heals soon. Have you heard of manuka honey? It is trul amazing for healing w ... Read more
Darren Ketchley Good luck to you hope it heals soon. Have you heard of manuka honey? It is trul amazing for healing wounds you may find it in health stores. Google it and you can learn more. I used it on my wound and healed beautifully. Hope that helps god bless
T.C. Sayles Thanks Darren!!! You think it is ok to put in a "hole-like" wound? I have been putting a blend of ess ... Read more
T.C. Sayles Thanks Darren!!! You think it is ok to put in a "hole-like" wound? I have been putting a blend of essential oils on my other parts of my scar and they have been healing nicely...but I will check out the Manuka Honey!! Thanks!
Louanna Miller I was told not to put anything on my scar until it was completely closed and healing, 6-8 weeks.
Darren Ketchley Yes manuka honey is really one of the best things you can use. Trust me. 😁