Hope Farrugia posted a note for Rachelle that says:
Hi Rachelle, my name is Hope. I live in Toronto, Canada and our stories are similar. I was diagnosed with Hodgkin's Lymphoma when I was 18 years old and I ...Read more
Hi Rachelle, my name is Hope. I live in Toronto, Canada and our stories are similar. I was diagnosed with Hodgkin's Lymphoma when I was 18 years old and I am now almost 53. I was treated with radiation, but was never told about the late effects. Almost 3 years ago I had to have a PM installed due to 3rd degree Heart Block. At the same time, I learned I had severe stenosis of my mitral valve and would need to have my valve replaced at some point, or, when my symptoms worsened. Unbeknownst to me, these heart issues were all related to the late effects of radiation treatment.
Would love to chat with you!
Rachelle Booth Hi Hope! Thanks for reaching out. I don't log in so much but would love to chat with you too! I am ... Read more
Rachelle Booth Hi Hope! Thanks for reaching out. I don't log in so much but would love to chat with you too! I am now 50 and having a stent in the 28th and aortic TAVR on the 29th. My personal e-mail is rachellesr1@gmail.com if you want to chat. Did they also tell you about your increased risk of breast cancer? or dental issues?
Michelle Furest Wow, Hope and Rachelle. I am sitting in my hotel room having a total panic attack before meeting with ... Read more
Michelle Furest Wow, Hope and Rachelle. I am sitting in my hotel room having a total panic attack before meeting with the TAVR team tomorrow. I am 44, Hodgkin's in 1998, radiation only to the chest and neck. I'd love to talk with you both.
Rachelle Booth I work in Detroit and live in Windsor if you want to get together when you are in town.