Barbara Maw - Heart Valve Journal

My Journal

2310 days ago

Susan Lynn, Penelope Bodek, Mark Wilbur and 3 others reacted to this

So hard to be dependent. For all the little things. Baby steps for sure.

Susan Lynn Barbara- you're doing great already! The anesthesia is still working its way out of your system and ... Read more

Susan Lynn Barbara- you're doing great already! The anesthesia is still working its way out of your system and getting your energy back takes some time. However, with each passing day, you'll be able to do more on your own and the progress will be very apparent. Take your time. Don't overdo it. You'll be amazed at how different you'll feel in a week or two! It's a small inconvenience for the active future that's ahead! Continued success with your recovery!

LINDA ROBERTS So glad your surgery is behind you and you are on your road to recovery.

Bev Bott Day 3! On this side of healing! That’s great!

Bill Gillam Atta girl!

Dan Vechiola Hi Susan! One day at a time and each one coming day will get easier and better. You are on the righ ... Read more

Dan Vechiola Hi Susan! One day at a time and each one coming day will get easier and better. You are on the right side of the process!

Mark Wilbur Yes, one day at a time... and each day a victory, Barbara! Best wishes for a speedy recovery.

Barbara Mawposted a journal

2334 days ago

Susan Lynn, Kevin Shackelford, Helen Daw and 7 others reacted to this

Chose Dr Westbrook with Catholic Medical Center in Manchester NH. My replacement valve will be the Edwards Inspiris Resilia valve. Access will be a partial ...Read more

Chose Dr Westbrook with Catholic Medical Center in Manchester NH. My replacement valve will be the Edwards Inspiris Resilia valve. Access will be a partial sternotomy. Date is set for July 12. Three weeks away! I will take one week to prepare, and one week vacationing with my family. The week of, maybe learn to meditate to keep the fear monster away. I am so grateful for this website and all of you heart valve brothers and sisters. So comforting to know that I am not alone. Through all of your collective ups and downs, encouragement and positivity abound. Best wishes to each one of you, where ever you are along this journey. ❤️

Dan Vechiola Hi Barbara! Does the Edwards Inspiris Resilia valve require blood thinners?

Adam Pick Hi Dan, Nope. This INSPIRIS does not require blood thinners. I'm hearing a lot of great things abou ... Read more

Adam Pick Hi Dan, Nope. This INSPIRIS does not require blood thinners. I'm hearing a lot of great things about this valve. Here's more about it. https://www.edwards.com/eu/_layouts/Edwards.moss.web.webapp/resilia-eu/?WT.ac=INSPIRISRESILIAAorticValve

https://www.edwards.com/eu/_layouts/edwards.moss.web.webapp/resilia-eu?WT.ac=INSPIRISRESILIAAorticValve

Adam Pick Hi Barbara, So glad to hear the website is helping you along your journey to a healthy heart!!!

Barbara Maw Hi Dan, What sold me was the Resilia valve is more resistant to calcium, so may last longer than othe ... Read more

Barbara Maw Hi Dan, What sold me was the Resilia valve is more resistant to calcium, so may last longer than other.tissue valves and it is built to accept another valve, if and when another replacement is needed, can be TAVR.

Dan Vechiola Hey Barbara! Thanks for the info. I am glad you were able to find your hospital and surgeon and valv ... Read more

Dan Vechiola Hey Barbara! Thanks for the info. I am glad you were able to find your hospital and surgeon and valve. One step at a time in this journey. I like those benefits of the Resilia valve as well. This is scarey stuff and I will be right behind you. I needed to get clearance form a Hematologist (reasons in My story) and my next step is an appointment with my cardiologist next Friday. I will be definitely bring up the Resilia valve. I was supposed to go mechanical but after my horrible experience with blood thinners I will be changing that direction.

On a side note, this morning I watched the video of Paul McCartney Carpool Karaoke with James Corden. During Carpool Karaoke, Paul McCartney talked about when he was starting out and going through some tough times he had a dream of his deceased mother visiting him and she simply said to him "Let It Be." Today because of what is ahead for me that song has a whole new meaning.

Here is a link to the video. Aside from the Let It Be moment it is a great watch! Hope you enjoy if you haven't seen it yet.

https://www.youtube.com/watch?v=QjvzCTqkBDQ

Paul McCartney Carpool Karaoke

https://www.youtube.com/watch?v=QjvzCTqkBDQ

James Corden heads to Liverpool for a special day with Paul McCartney spent exploring the city of Paul's youth, visiting his childhood home where he wrote mu...

Dan Vechiola Adam thanks for the link to the Resilia valve . This is quite of valve and its nice to know that it ... Read more

Dan Vechiola Adam thanks for the link to the Resilia valve . This is quite of valve and its nice to know that it is out there and an option.

Barbara Maw Dan! Thank you for the link! Loved Paul McCartney in carpool karaoke!
Words of Wisdom indeed! Good ... Read more

Barbara Maw Dan! Thank you for the link! Loved Paul McCartney in carpool karaoke!
Words of Wisdom indeed! Good luck to you on the 25th! It is a giant step in the journey, when you are comfortable with the direction.
I don't know if I mentioned it, but I emailed Edwards directly from their web site, I gave them the areas that I would travel to and they sent me a list of the hospitals that had it in stock..
All the best to you and your beautiful family.

Susan Killian Wishing you well for your surgery. I am 64 and had OHS with Full Sternotomy 12 weeks ago and am feel ... Read more

Susan Killian Wishing you well for your surgery. I am 64 and had OHS with Full Sternotomy 12 weeks ago and am feeling fantastic. They repaired my mitral valve with a ring and 8 new chords. Recovery with the full was not bad at all so I hope you the best with yours.