Brian's Posts

Diagnosis: Bicuspid Aortic Valve

Member Since: December 11, 2023

Send Brian a Guestbook

My Posts

Brian O'Neil posted an update
2 years ago (December 11, 2023)
Is it weird I'm less then 48 from my surgery and still haven't made a clear decision on my replacement valve. The surgical team has a plan to use an on-x valve for my replacement and their reasoning and conclusion is sound. Met with a cardiologist who believes I would... Read more.
👍 Christopher Wiggins reacted to this
2 years ago (December 11, 2023)
Valve choice was the hardest decision i ever made, and I went back and forth for weeks when deciding. I was 63 at the time of my surgery, and eventually decided on the tissue valve. May I ask your age? My understanding is the younger the patient, the shorter the... Read more.
2 years ago (December 11, 2023)
I'm 44. I know I can make a life work on blood thinners because I'm responsible. I am afraid though at some point it will lead to me being miserable
2 years ago (December 11, 2023)
I'm 39 and went with the mechanical valve in hopes of not having another procedure. So far, the blood thinners haven't bothered me at all. It is a personal decision and you have to do what you feel the best about.
2 years ago (December 11, 2023)
Thanks for the response Jeff. Right now I think I would be able to withstand another surgery in 10-15 years but I know it's foolish because I don't know what changes those years will bring for me.
2 years ago (December 11, 2023)
I've been on anticoagulants for 9 years because of 2 mechanical valves. There is a period of adjustment and then life goes on and you forget about them. I'm sorry that you have to go through this and make this decision which is very personal and difficult for everyone. There... Read more.
2 years ago (December 11, 2023)
Brian - There are so many advancements in cardiology, the coming decade could offer tons of choices. Even with today's medicine, you'd be looking at TAVR (which is a fairly easy procedure compared to heart surgery) when you need a replacement. Your next bio valve would likely be designed to... Read more.
2 years ago (December 11, 2023)
foldax.com already doing this in India.
2 years ago (December 11, 2023)
It's a tough decision and my advice is to make a choice and go with it. Don't look back. Susan makes a great point but it's still a tough choice.
2 years ago (December 11, 2023)
For what it's worth, I'm 61 and chose the tissue valve. I did not want to mess around with blood thinners and figured, like Susan, if I need to replace this one, I should be able to have a TAVR next time. (surgeon agrees )
2 years ago (December 11, 2023)
Well at young age mechanical valve is good choice.. blood thinners is not a big task. Because of tissue valve after few years u have to go through another surgery.. well it's my personal opinion.. both options are good ..👍 good luck
2 years ago (December 12, 2023)
I want to thank everyone for their responses, information, and well wishes. It really means a lot people would take the time. Knowing the risks and high probability of more surgery I've informed the surgical team of my intentions to go with a tissue valve. I know at 44 this... Read more.
2 years ago (December 12, 2023)
Congratulations Brian! You've made that first step. Personally, I think it's a good decision.
2 years ago (December 12, 2023)
Brian, it is such a hard decision. At your age, the hardest. I can only wish you luck and may your bio valve last for a long long time! You are in my thoughts. You can do this! We are here for the support!
2 years ago (December 12, 2023)
Brian, I think you have made a good choice. My son, who is facing aortic repair (or replace) surgery next week, would have made that same choice. But at only 19 the odds are not in his favor for a long lasting tissue valve. Best wishes for you!!!! We are... Read more.
2 years ago (December 13, 2023)
It's go time. Thanks again everyone.
2 years ago (December 13, 2023)
All the best Brian
2 years ago (December 15, 2023)
All my tubes and catheter are out. I'm off pain medication and oxygen. Getting transferred out of the ICU today!!
2 years ago (December 15, 2023)
Excellent Brian! Welcome to recovery!
2 years ago (December 15, 2023)
Very good! Thanks for keeping us updated.
2 years ago (December 16, 2023)
Great news, Brian! Wishing you a speedy recovery!! ❤️