Hi friends. It has been a while since I posted so I thought I'd share my recovery experience thus far.
First, the challenges. I had 2 days of AFib in the ...Read more
Hi friends. It has been a while since I posted so I thought I'd share my recovery experience thus far.
First, the challenges. I had 2 days of AFib in the hospital which the doctors were finally able to get under control. I have not been in AFib since, but I do get rapid, irregular heartbeats from time to time. I was told this is all common post-surgery, but it's still annoying. Also, I still get dizzy when I stand, I have low energy and no stamina. This is attributed to low hemoglobin due to blood loss during surgery. That will improve over time as my body replaces those lost red blood cells but it's a slow process. In the meantime, it's a bummer.
Now, the good news. I have virtually no pain...just when I sneeze (ouch!) I know many people suffer from pain well after surgery, but I guess I got lucky. I had extreme discomfort immediately following surgery but once the chest tubes came out I rebounded fast. I came out of my post-surgical haze about 2 weeks after my procedure and really feel like I turned a corer about that time. I'm walking about 1.5 miles/day and I start my cardiac rehab this afternoon. I'm hoping that will help propel my recovery.
That's my quick summary. Best of luck to those of you in recovery, and to those of you getting ready for surgery!
Tom McDonald Great news! Everything will come together eventually. Everyone's recovery aliitle different don't ... Read more
Tom McDonald Great news! Everything will come together eventually. Everyone's recovery aliitle different don't push it to hard , remember baby steps Erik. Keep up on the walking and continued success in your recovery! process
Joe Tarango Erik, thank you for the update. Glad you're over the AFib. You will continue to get stronger and your ... Read more
Joe Tarango Erik, thank you for the update. Glad you're over the AFib. You will continue to get stronger and your body will bounce back. I'm sure you'll make strides with cardio rehab.
Herb Greenberg Erik, glad to see you are on your way. Since I am currently in the waiting room - and debating betwee ... Read more
Herb Greenberg Erik, glad to see you are on your way. Since I am currently in the waiting room - and debating between Cleveland and Mayo - how was your Mayo experience? And the surgeon (he is supposed to be very good.) Was the amount of blood loss considered normal for the surgery? Thanks!
Susan Lynn Erik - It sounds like you've made great progress. You're going to enjoy rehab! Continued success!
Joshua Nowack Great job, Erik! Way to turn the corner. I'm grateful to finally be able to sneeze without discomfo ... Read more
Joshua Nowack Great job, Erik! Way to turn the corner. I'm grateful to finally be able to sneeze without discomfort. A couple of things to keep in mind - you're probably on a BP med which may contribute to that dizziness. Extra water if you can. And remember Isaac Newton - an object at rest tends to stay at rest. Cardiac rehab will start raising your capacity and move you to an object in motion, staying in motion. Good luck and continued health.
Erik Jensen Thanks for the encouragement everyone! Herb, I had a VERY good experience at Mayo. Dr. Pochettino and ... Read more
Erik Jensen Thanks for the encouragement everyone! Herb, I had a VERY good experience at Mayo. Dr. Pochettino and his staff were excellent, as was the nursing staff. I had a great experience from beginning to end. In looking at your story, you and I have (had) the same issues; bicuspid aortic valve with a ~4.5cm aneurysm. Turns out my BAV was densely calcified - in fact Dr. Pochettino said it was worse that he suspected. He said the calcium extended to the underside of my aortic valve and was creeping towards the mitral valve. He debrided all that, did an aortic valve/root replacement (Bentall procedure), and he replaced the underside of the aortic arch (a 'hemi-arch procedure). He did the hemi-arch, not because my aneurysm extended that far but because the BAV, ascending aorta and the underside of the arch all share common cells when we develop in the womb. As such, they all have a defect. Doing the hemi-arch was a proactive move to prevent an aneurysm from developing in that area down the road. My blood loss was not unusual. In fact, they did not need to do a transfusion but rather they "recycled" my own blood and put it back into me using "cell saver" technology. Pretty cool. Best of luck as you continue to prepare! I'm happy to answer any more questions you may have.
Herb Greenberg Very glad to hear that. Sounds like you had an excellent experience. Your attitude going in appeared ... Read more
Herb Greenberg Very glad to hear that. Sounds like you had an excellent experience. Your attitude going in appeared to fantastic, and I'm sure that helped. We have family in Rochester (my wife is from St. Paul) and they connected us with a very recently semi-retired Mayo cardiologist who was very big in cardiac imaging. I had a great convo with him and he couldn't rave more about Dr. P. But one of my cardiologists is ex-CC. Question: I take it - given the complexity of you aortic repair – you had a full sternotomy? And did they use wires or plates to close you?
BTW, I should probably update my "story." I'm now 67 and my AA is 4.7-4.9, with the MRI (w/o contrast) the more conservative of the two. Now that I am on the 3-month plan, my next echo is in several weeks.
Erik Jensen Yes, I had a full sternectomy. My incision is only 6" long, however, and you can't see it when I'm we ... Read more
Erik Jensen Yes, I had a full sternectomy. My incision is only 6" long, however, and you can't see it when I'm wearing a polo shirt, or a button up shirt. Mayo found they can stretch/lift the skin on the ends (top and bottom of the sternum), and do a full sternectomy without having to make, say, a 9" incision. That may be the norm now for everyone having a full sternectomy...not sure...but I'm very pleased. As for closure, they used wires to close the sternum...8 loops total. They're of course under the skin and I can't feel them. I don't know how the sealed the skin itself but it didn't require any stitches or staples. It's nice and clean.
Herb Greenberg Very helpful, thanks! Your attitude pre and post was inspiring.
VALVE OPTIONS
Hi everyone. I was chatting with Carlos (fellow member) earlier today about aortic valve options and I want to share some info. I'm 55 and torn ...Read more
VALVE OPTIONS
Hi everyone. I was chatting with Carlos (fellow member) earlier today about aortic valve options and I want to share some info. I'm 55 and torn between going with an artificial valve or a tissue valve. I like the durability of the artificial valve, but leery of being on warfarin the rest of my life (plus I'm a bit nervous about hearing the audible ticking). On the other hand, the idea of signing up for another open heart procedure in 10 years scares the heck out of me. Carlos suggested I look into the possibility of a tissue valve now coupled with a TAVR procedure down the road. I wasn't sure if that was a possibility for me because I'm having an aortic root replacement procedure and they're putting in an aortic prosthesis along with the valve. Curious, I emailed my surgeon's office at Mayo this morning and here is what I heard back:
"If you chose the tissue aortic valve, you would be a candidate for TAVR down the road when you need a valve replacement, the aortic root replacement will not deter you from TAVRs in the future. Depending on the size (diameter) of the original valve placed with Dr. Pochettino, you could probably have 1-2 TAVRs done in the future when the valves wear out. Each TAVR would place a slightly smaller valve to fit inside the previous valve, and the valve sizes only get so small. At that point, depending on your health, you would require another open procedure to replace the aortic valve. We typically tell patients that tissue valves last about 10 years on average, so in theory you could probably get approximately 30 years out of the original surgery and 2 TAVRS before needing another open procedure."
Great news! At this point I think I'm going to go with the tissue valve IF during the procedure Dr. Pochettino determines my valve is big enough to accommodate 1 if not 2 TAVRs down the road. (Who knows what kind of amazing advancements will be available to me (us) 20-30 years from now?) If, however, my valve isn't big enough to accommodate a future TAVR or two, I'll have him put in the On-x artificial valve with absolutely no regrets.
What do you think?
Susan Richards Sounds great! I'm 53 and opted for the tissue valve as well. I'm counting on being able to get the ... Read more
Susan Richards Sounds great! I'm 53 and opted for the tissue valve as well. I'm counting on being able to get the TAVR in the future. I have an appointment with my surgeon on Monday, then surgery on Wednesday, so I'm going to make absolutely sure my valve will be big enough before then. The surgeon said I can change my mind all the way up to being wheeled into the OR! Best of luck to you!
Rose Madura This is good information. I got a tissue valve (Edwards Magna) at age 59. I was told that the valve ... Read more
Rose Madura This is good information. I got a tissue valve (Edwards Magna) at age 59. I was told that the valves are so good now, it may last 15 -20 years which would at 75-80, I'd definitely qualify for TAVR.
John Hannon I went with tissue valves in both the aortic and pulmonic portions. They put in what they said was t ... Read more
John Hannon I went with tissue valves in both the aortic and pulmonic portions. They put in what they said was the largest available - 29mm so that the next time I hopefully won't need open heart surgery. They said the time after that would likely need to be open heart though. I'm 52 and had a Ross procedure when I was 27 and then had to replace both valves 25 years later.
Joe Tarango I think you have a great game plan. I have a similar route. If my surgeon can't repair, I'm looking a ... Read more
Joe Tarango I think you have a great game plan. I have a similar route. If my surgeon can't repair, I'm looking at an inspiris Resilia Valve. If some reason that is not recommended, I'll go On-X and will not look back. Best wishes in your surgery and recovery!
Adam Collins Sounds like you've got it figured out!
Just to reinforce what you've said, though, my surgeon recomm ... Read more
Adam Collins Sounds like you've got it figured out!
Just to reinforce what you've said, though, my surgeon recommended something similar for me.
He's doing the Ross Procedure on me, but if that doesn't work out for some reason, the back up plan is a tissue valve. He recommended against the mechanical in my particular case, and said that the tissue valve should last a decent amount of time, and that by the time it's ready to be replaced, TAVR (or whatever crazy new future-tech they've got going on by then) should be a good option for me.
Frank DeGrazia Erik,
Just went through bicuspid replacement 2 1/2 weeks ago . I too had the option of mechanical or ... Read more
Frank DeGrazia Erik,
Just went through bicuspid replacement 2 1/2 weeks ago . I too had the option of mechanical or bio. At 64, I am very active, andI opted for the Bio for the same reasons as mentioned. They can do TAVR as a follow up. An both my Cardiologist and Surgeon said todays tissue valves are more like 15-20 years. I thought if I have to go TAVR at 79. Sounds good to me, and no blood thinner monitoring. Besides in 15 years they will probably be able to build a custom valve for me with a 3D printer and seed it with some cell culture from me , and Im good for another 25-30 years
Joy Vera I have had 2 surgeries, tissue valves both times (equine in 2010, bovine last May). Part of what my ... Read more
Joy Vera I have had 2 surgeries, tissue valves both times (equine in 2010, bovine last May). Part of what my surgeon did in the May surgery was to increase the size of my valve. My first one was 23mm & the new one is 25mm. His operative report says that my aortic annulus was too small & that he addressed that with a root enlargement by "using a tongue of the ascending aortic graft". He had told me before that he felt my "next procedure" would be transcatheter &, in reading your post, I'm thinking getting a larger valve will be beneficial for that. You might want to ask if your valve can be replaced with a larger one if need be. Best wishes!
Erik Jensen Thanks everyone for your very helpful responses. Every day I'm learning so much from you all. In rese ... Read more
Erik Jensen Thanks everyone for your very helpful responses. Every day I'm learning so much from you all. In researching the Edwards Inspiris Resilia tissue valve, I came across the following video. I found it super interesting. They talk about the science and outlook of this next generation bio valve as well as what will be a valve-in-valve TAVR future for bio valve recipients (and planning for such when the patient's first bio valve is implanted). https://youtu.be/0__V1hMErSY
Subscribe for more Edwards Lifesciences videos: bit.ly/EdwardsYouTube Visit Edwards Lifesciences website: bit.ly/EdwardsLifeSciences Edwards Lifesciences on ...
Marie Myers Choosing a valve was the hardest decision I ever made. My surgery occurred when I was 63, and I went ... Read more
Marie Myers Choosing a valve was the hardest decision I ever made. My surgery occurred when I was 63, and I went with the tissue valve. I am definitely hoping for TAVR next time around..
Willie Radl That sounds like a good plan to me. I'm 34 so went with On-x but probably would have gone with tissue ... Read more
Willie Radl That sounds like a good plan to me. I'm 34 so went with On-x but probably would have gone with tissue at your age. For the reason you stated. You could also do a 2nd OHS and replace the valve and then do TAVR as you are late 80's-90's. You'd obviously make that decision many years from now.
Kirk Bepler Erick, At 53 I was trying to decide on what direction to go either tissue or artificial. I did allot ... Read more
Kirk Bepler Erick, At 53 I was trying to decide on what direction to go either tissue or artificial. I did allot of research and consulted with my surgeon, yes the tissue will need to be replaced down the road but the advancement of medicine in 10 to 15 + years will mean some other type of procedure. Though mine was a mitral valve, the tissue ended up being the best decision for me.
Joe Tarango Erik, keep us posted on the valve your surgeon and you decide to go with. Wishing you all the best!
Dan Baltazor Good on you on your research to find what is best for you. I am 45 years old and had the Resilia ti ... Read more
Dan Baltazor Good on you on your research to find what is best for you. I am 45 years old and had the Resilia tissue valve implanted last year at age 44. My hope is to get 20+ years and then TAVR when needed. Thanks for sharing the Webinar. Great information. You'll find peace when you decide on the right valve for you.
BTW, I should probably update my "story." I'm now 67 and my AA is 4.7-4.9, with the MRI (w/o contrast) the more conservative of the two. Now that I am on the 3-month plan, my next echo is in several weeks.