While I was originally supposed to go home yesterday, I'm not minding staying 2 more days. I will let me get stronger for the things that I have to do when ...Read more
While I was originally supposed to go home yesterday, I'm not minding staying 2 more days. I will let me get stronger for the things that I have to do when I'm at home by myself.
I'm having lots of small victories. Going to the restroom by myself. Being able to take a shower today for the 1st time. Food finally tastes good again.
I have not walked the halls even once today and I know I should but I am tired today. For those of you who have been through this before, what comes 1st?Am I tired because I didn't walk today or did I not walk because I am legitimately tired and need a day of rest? After the shower I will get out and do at least one walk. Being at home will force me to be more active as I won't have the great caring staff that they have here to meet my every need.
Heart Warrior I know its hard because your tired and your body aches but you must walk. You will get stronger quick ... Read more
Heart Warrior I know its hard because your tired and your body aches but you must walk. You will get stronger quicker.
Joy Vera I'm thinking those are pretty big victories, Ruth, I remember them all! On the walking, your tiredne ... Read more
Joy Vera I'm thinking those are pretty big victories, Ruth, I remember them all! On the walking, your tiredness is certainly legitimatel Just think of what the most critical muscle in your body recently went through. So, yes, you should walk but maybe it doesn't have to be as far or as fast when you're feeling so tired. Enjoy that shower!
Marie Myers I was really tired while in the hospital. Once I got home, I did more walking than I did as an inpat ... Read more
Marie Myers I was really tired while in the hospital. Once I got home, I did more walking than I did as an inpatient.
Tracy Fallu You will be tired for many days as your body heals. The best thing you can do for yourself is walk, r ... Read more
Tracy Fallu You will be tired for many days as your body heals. The best thing you can do for yourself is walk, rest... repeat.
It doesn’t have to be a fast walk. I remember barely putting one foot in front of the other before getting back to the bed.
Meredith Bray My first week schedule was
get up, get dressed-ish, eat breakfast, walk a little
NAP
Shower, eat lunc ... Read more
Meredith Bray My first week schedule was
get up, get dressed-ish, eat breakfast, walk a little
NAP
Shower, eat lunch, watch tv
NAP
snack, walk, be social (phone or email)
NAP
walk, dinner, tv,short walk
NAP
wake up at 11pm,get help getting out of bed to pee, watch movies on tablet in bed or recliner for 3 hours, walk around house
NAP
start the next day
Every little bit of walking helps. You don't have to go on a long walk - just walk around the house once or twice.
Remember to stand up straight and do your breathing exercises. The excellent posture will help keep back pain away, and the breathing exercises will help you gain strength.
Meredith
Holiday, FL
Carlos Banuelos Hi Ruth, sounds like you are doing great. I agree - why not stay another night. And I feel your pain ... Read more
Carlos Banuelos Hi Ruth, sounds like you are doing great. I agree - why not stay another night. And I feel your pain re walking. It’s normal. I’m exhausted after my walks. I think showers are even more difficult bc of all the lines you have to try to keep dry and trying to avoid direct water on the incision. It will hopefully start getting much better soon.
Susan Lynn I agree with all of the previous recommendations. You will feel tired, but if you can force yoursel ... Read more
Susan Lynn I agree with all of the previous recommendations. You will feel tired, but if you can force yourself to walk in the house morning, mid-day, and evening and gradually increase the amount of time, you'll get your stamina back. Plus, if you're going home on Lasix, you'll be doing your share of walking.
Rest as much as you need - you're getting better with every passing day. We're here if you have any recovery questions! ❤
Frank DeGrazia Ruth, Glad to hear you're coming home today . My first day home, I was so relaxed to be home, I took ... Read more
Frank DeGrazia Ruth, Glad to hear you're coming home today . My first day home, I was so relaxed to be home, I took a 3 hour nap that afternoon , in my own bed! The sweetest , deepest nap of my life! Welcome Home!
I spent the day at the Cleveland Clinic doing my pre-surgery appointments. Starting at 6:45 AM, I had an echocardiogram. I had x-rays. I had 7 vials of blood ...Read more
I spent the day at the Cleveland Clinic doing my pre-surgery appointments. Starting at 6:45 AM, I had an echocardiogram. I had x-rays. I had 7 vials of blood taken for blood work. I had a carotid doppler. I had a CT scan. I had lung function testing. I met the anesthesiologist. I got registered for the surgery. I met with a cardiologist. My poor sister spent most of the day waiting for me to come out from various tests and appointments (and I appreciate beyond words her joining me for the day!).
And then I met my surgeon, which leads me into the best part of the day.
He was personable, self-disclosing, patient with my many questions and exuded quiet confidence.
More importantly, he does 400 cardiac surgeries a year, including 190 valve replacements similar to mine. And best of all, he will do my procedure in a minimally invasive way with just a 2" incision rather than cutting the length of my ribcage. This means I will have a quicker surgery, a shorter time in the ICU, a faster recovery. I am thrilled!
I wanted to hug him!
So I left my pre-surgery day feeling super tired but upbeat and positive, feeling better about this surgery and almost eager now to do it and get it over with. And I have the utmost confidence inmy surgeon and his skill.
Rose Madura Awesome news! I'm sure you are feeling so much better knowing you are in good hands!
Frank DeGrazia Absolutely Great! May it just be the start of many pleasant surprises for you on your journey to the ... Read more
Frank DeGrazia Absolutely Great! May it just be the start of many pleasant surprises for you on your journey to the other side in the next week . All the Best Ruth!
Marie Myers Good for you! Sounds like you are in the right mind frame for your surgical adventure. I was surprise ... Read more
Marie Myers Good for you! Sounds like you are in the right mind frame for your surgical adventure. I was surprised how extensive the pre op work up was, and I agree it was a tiring day.
Wishing you a smooth trip through surgery and recovery.
Mike Roskowinski Wow Ruth what a long day of testing. It is great to get it all done and get ready for that surgery. ... Read more
Mike Roskowinski Wow Ruth what a long day of testing. It is great to get it all done and get ready for that surgery. Meeting the surgeon was the biggest thing for me. The first one I got told to go to had terrible bedside manners. Then the guy I had do my surgery was great and easy to talk to. This is probably the biggest interview you have to do in your life so make sure you pick the one that you like the best!
Susan Lynn It's a hectic day, for sure! I did my pre-op work in one day and was so busy, I didn't have time t ... Read more
Susan Lynn It's a hectic day, for sure! I did my pre-op work in one day and was so busy, I didn't have time to stress about any of the tests. I also had the side incision mini-thoracotomy. You'll be very pleased with the result and recovery. All the best!
Ruth Rehak Thank you, thank you all for posting here with such encouragement! It really helps.
Joy Vera What a long day but what good news from your surgeon. It's great that you like him too. That's so i ... Read more
Joy Vera What a long day but what good news from your surgeon. It's great that you like him too. That's so important. It won't be long & you'll be in recovery!
Barbara Wood It's so good to go into surgery feeling upbeat & optimistic...best wishes Ruth!
Debbie Moriarty That is great news!!! And yes, your recovery should be good! Wishing you the best!!!
Kimberley Anchell Prayers for you and your family as your surgery approaches - you’re in great hands - best wishes!
Monica McCaa Awesome ! Sending prayers I sure hope you update soon
I'm scheduled for surgical aortic valve replacement surgery at the Cleveland Clinic on July 15th. Assuming all goes well I will be released from the hospital ...Read more
I'm scheduled for surgical aortic valve replacement surgery at the Cleveland Clinic on July 15th. Assuming all goes well I will be released from the hospital on or about Saturday July 20th.
I have aortic valve stenosis caused by a congenital malformation of my aortic valve. I have a bicuspid valve which I've known about since my 20s when it was discovered during an unrelated emergency room visit. I feel lucky that it was discovered early; some people don't become aware until they pass out or die because their body is not getting enough blood flow.
In my 40s I started following it with yearly testing, sometimes MRIs and sometimes echocardiograms. The yearly testing always revealed that all was well. And I had no symptoms at all.
The cardiologists told me that before I was 50 I would need to have the valve replaced. Then the cardiologists started telling me that before I was 60 I would need to have the valve replaced. At 67 I am healthy, a regular exerciser and a world traveler. I really thought I had this beat, especially since I had no symptoms whatsoever.
Imagine my shock when this year's echocardiogram showed that my gradient, involving the measure on both sides of the valve, had dramatically increased and now my stenosis was considered to be borderline severe. The slight breathlessness I felt when I exercised, climbed steps or walked fast, that I had attributed to my age, was actually due to my valve not working properly.
I had hoped to put off the surgery until after some travel I have planned for the fall. But consultations with my cardiologist and 3 cardiac surgeons lead me to believe that the best time to do the surgery is now. And I decided to have it done 2 1/2 hours away at the Cleveland Clinic because they are world renowned for surgical aortic valve replacement.
Of course I am anxious. But, it's a rather common surgery and I have no known complications. My surgeon is one of the best there is and he's done thousands of these. Plus, I am the healthiest I have ever been. I'm continuing to exercise and I'm eating extremely healthfully. It is routine before doing valve replacement to check the patient's arteries to see if they need stents due to blockages, and then the 2 procedures are done during the same surgery. My arteries are as clear as a much younger person's, which I attribute to my healthy vegan diet. This will make my surgery less complicated so I will heal faster.
This has been an exercise in acceptance, humility and vulnerability.
Best wishes to you all!
Joy Vera Hi Ruth. Interesting that you've known about your aortic stenosis since you were in your 20's. I di ... Read more
Joy Vera Hi Ruth. Interesting that you've known about your aortic stenosis since you were in your 20's. I did not know about mine until I was 57 in 2010, by which time it was in the severe range, & I've always wondered how I'd feel if I'd known earlier in life. Worried, relieved to know, who knows? You'll find much support & others' experiences here. Welcome & best wishes!
Ruth Rehak Thanks, Joy! For me, it was better to be aware of it. Truthfully, I thought I was going to skate by ... Read more
Ruth Rehak Thanks, Joy! For me, it was better to be aware of it. Truthfully, I thought I was going to skate by without ever needing surgery because I had no symptoms and my yearly testing was always good. So I didn't spend all those years that I know being worried, I didn't worry until this April when the testing revealed it was time for the surgery. So you have had surgery?
Joy Vera Yes. Two actually. In 2010 I had my stenotic bicuspid aortic valve replaced with an equine tissue v ... Read more
Joy Vera Yes. Two actually. In 2010 I had my stenotic bicuspid aortic valve replaced with an equine tissue valve. I also had aortic coarctation, another congenital condition which is a narrowing of the aorta. That was fixed with a dacron tube conduit that extends from my ascending aorta, behind my heart, to my decending aorta. This year (5/3), my now leaking aortic valve needed re-replacing, there was an aortic aneurysm that had worsened slightly & it was time to repair it, & my leaky mitral valve needed to be repaired. In the process, the conduit blocked access to the mitral valve & had to be redone. My surgeon gave me a larger aortic valve this time which required some additional dacron to widen the opening. So, lots more things were done this time, yet I’d say that despite that & being 9 years older now, I haven’t found recovery #2 any more difficult than the first. Hope that wasn’t too much information!
Rose Madura I'd known about my valve problem since I was about 6 years old! Yet I still attributed shortness of ... Read more
Rose Madura I'd known about my valve problem since I was about 6 years old! Yet I still attributed shortness of breath to old age too. You are healthy so you should do well. They do these every day and the success rate is very high. Best wishes.
Ruth Rehak Joy, no, definitely not TMI! In fact, I find your story fascinating. An equine valve, I've never hea ... Read more
Ruth Rehak Joy, no, definitely not TMI! In fact, I find your story fascinating. An equine valve, I've never heard of that being used! I've gone in and read some of your story in your journal and you are inspiring to me! I'm glad your reco very is no more difficult and that it seems that you are doing well.
It doesn’t have to be a fast walk. I remember barely putting one foot in front of the other before getting back to the bed.
get up, get dressed-ish, eat breakfast, walk a little
NAP
Shower, eat lunc ... Read more
get up, get dressed-ish, eat breakfast, walk a little
NAP
Shower, eat lunch, watch tv
NAP
snack, walk, be social (phone or email)
NAP
walk, dinner, tv,short walk
NAP
wake up at 11pm,get help getting out of bed to pee, watch movies on tablet in bed or recliner for 3 hours, walk around house
NAP
start the next day
Every little bit of walking helps. You don't have to go on a long walk - just walk around the house once or twice.
Remember to stand up straight and do your breathing exercises. The excellent posture will help keep back pain away, and the breathing exercises will help you gain strength.
Meredith
Holiday, FL
Rest as much as you need - you're getting better with every passing day. We're here if you have any recovery questions! ❤