Sue Stone - Heart Valve Journal

My Journal

Sue Stoneposted an update

455 days ago

Sue Stone reacted to this

What is it like to take blood thinners? Please tell me what you have experienced... thanks..

Renee Leunig I’ve been on warfarin since diagnosed with AFib in May. Other than needing to be mindful of what yo ... Read more

Renee Leunig I’ve been on warfarin since diagnosed with AFib in May. Other than needing to be mindful of what you are eating and drinking, it hasn’t significantly affected my life. I had surgery in July and did experience massive bruising which still hasn’t completely resolved. I do visit the anticoagulation clinic for a 5 to 10 minute appointment every week or so, but reducing the risk of stroke makes it worth my time.

Sue Stone they said I can not drink much.. what other items do you look for when you eat?

Renee Leunig I don’t drink much anyway, but alcohol will increase your INR. If I plan to have a drink, I’ll al ... Read more

Renee Leunig I don’t drink much anyway, but alcohol will increase your INR. If I plan to have a drink, I’ll also plan to have a nice green leafy salad or broccoli. It seemed to keep me in balance. Just stay mindful.

Sue Stoneposted an update

456 days ago

I'm still looking for materials to understand the risk of replacing the aortic and mitral valve at the same time. my doctor has been pretty responsive to my ...Read more

I'm still looking for materials to understand the risk of replacing the aortic and mitral valve at the same time. my doctor has been pretty responsive to my emails and I'm going to a second doctor that only does Mitral valves.. we will see what he says.

Valerie Allen Sue, you might want to start by talking with Delise Becker, above. It looks like she is researching a ... Read more

Valerie Allen Sue, you might want to start by talking with Delise Becker, above. It looks like she is researching a double valve issue, but a different second valve. Since no one else is jumping in.

Sue Stone thanks..

Sue Stoneposted an update

457 days ago

Is there more video and info on double valve replacement? outcomes? what to expect? etc.

Sue Stoneposted an update

457 days ago

Sue Stone, Pamela Gregory reacted to this

I feel like just need to cry this out.. why me... what if there is a third one in the future.

Valerie Allen I hear you. It’s a terrible shock. I know others will have better information on two valves.

Richard Munson Don’t think why me is that unusual a reaction when finding out about impending open heart surgery. ... Read more

Richard Munson Don’t think why me is that unusual a reaction when finding out about impending open heart surgery. Most of us might have thought that at some point. Me included. Concentrating on the surgery you currently require and not worrying about a third one which may or may not happen might be good medicine.

Rose Madura Once again, Richard is right! Try to focus on the here and now. Do research. Ask questions. Ask your ... Read more

Rose Madura Once again, Richard is right! Try to focus on the here and now. Do research. Ask questions. Ask your cardiologist what you can do now to help have a good outcome. Get a second opinion. I know you are shocked right now but you must be your own advocate. Godspeed.

Sue Stone thanks all.. just tearing up reading this.. thank you.. you have to love tech !! I think what is ki ... Read more

Sue Stone thanks all.. just tearing up reading this.. thank you.. you have to love tech !! I think what is killing me more is that I have to explain this to my 11 year old son. I don't want to lie but I don't want to sugar coat it it either ...

Richard Munson Never lie to an 11 year old. They are smarter than we give them credit for. There must be a way to co ... Read more

Richard Munson Never lie to an 11 year old. They are smarter than we give them credit for. There must be a way to convey that mommy has to have a serious operation to make her better stressing better, and that she has a great doctor to do it. I bet you will get some great answers from folks on this site that faced the same issue. I think you need to be strong which in turn sends the right message to your child.