Hi Sue! You are in my prayers 🙏💖 I'm from Portland CT but now live in Alabama with my significant other. He's going through exactly what you are but his ...Read more
Hi Sue! You are in my prayers 🙏💖 I'm from Portland CT but now live in Alabama with my significant other. He's going through exactly what you are but his Dr will not operate. We are in the process of getting a second opinion. His Dr feels that his heart couldn't handle the repair. We're frustrated but hopeful. All the best to you!!
Patricia Miller Sue- Heart warriors are behind you. Hope everything goes really well.
Susan Dunne Get that second opinion and even a third. Some doctors are hesitant to operate because of the risk. ... Read more
Susan Dunne Get that second opinion and even a third. Some doctors are hesitant to operate because of the risk. Others have knowledge of techniques to lessen that risk. Shop around. Maybe he can find the right doctor.
Sherrie M Difusco Update: we are sending out medical records to Dr David Adams office today. They will call us as soon ... Read more
Sherrie M Difusco Update: we are sending out medical records to Dr David Adams office today. They will call us as soon as they have a report.
susan harris I just read a profile (Dr Ibrahim at Penn, I think) on this site, who specializes in high risk. I’l ... Read more
susan harris I just read a profile (Dr Ibrahim at Penn, I think) on this site, who specializes in high risk. I’ll look further tonight and post if I find it.
susan harris Yes, search in upper right for Dr Michael Ibrahim. I don’t know him but I think people have mention ... Read more
susan harris Yes, search in upper right for Dr Michael Ibrahim. I don’t know him but I think people have mentioned he’s their surgeon in this community. Hope it helps.
Sending prayers. Hope you find the right surgeon for you🙏🏻
sue burns Thank you for the note! I would recommend he get the opinion of Dr. Adams at Mt. Sinai Hospital in NY ... Read more
sue burns Thank you for the note! I would recommend he get the opinion of Dr. Adams at Mt. Sinai Hospital in NYC . I think it will be worth your trip there!
Best of luck with your surgery this week! Sending good vibes for skilled surgeons and a speedy recovery.
Valerie Allen Wow, Sue, your GP actually contacted you regarding the diagnosis. That is a keeper. Best of luck with ... Read more
Valerie Allen Wow, Sue, your GP actually contacted you regarding the diagnosis. That is a keeper. Best of luck with your upcoming surgery. You are in good hands.
I knew about my MV regurgitation but I didn't know about my VT until the surgery, so good they found both! I ended up with some scary complications after surgery ...Read more
I knew about my MV regurgitation but I didn't know about my VT until the surgery, so good they found both! I ended up with some scary complications after surgery and a week later had an ICD implanted. They couldn't find any electrical issue they could ablate, so I have this "insurance policy". Haha Keep us posted and best of wishes to you!
Saw that your were going with Dr. Adams. I did too for the same surgery, plus I have severe calcification so it was not an easy surgery. ...Read more
Hi Sue,
Saw that your were going with Dr. Adams. I did too for the same surgery, plus I have severe calcification so it was not an easy surgery. If I have any sage advice to share know that you will wake-up post surgery the most exhausted you have ever felt in your life, but it is short term. Every day you will get that much stronger. Also, get your protein levels up before surgery ( ups your hemoglobin) to assist with the lower hemoglobin that you will have post-surgery. I was too tired to eat much the first two days, so if someone can get your some protein shakes with a nice long straw it will help. Also, use earplugs in the step-down at night. A lot of bathroom and whatever else bells going-off:)
You will soon be in recovery and focusing on your daily walks. You got this. Godspeed.
sue burns Thank you so much! I, too, have calcification and have been very nervous about that. Today is all my ... Read more
sue burns Thank you so much! I, too, have calcification and have been very nervous about that. Today is all my pre-op testing. Thank you for connecting 💕
sue burns I’m also glad to hear you traveled a distance. I am a few hours from NYC and was hoping that won’ ... Read more
sue burns I’m also glad to hear you traveled a distance. I am a few hours from NYC and was hoping that won’t be a problem going forward.
Deena Z Don't worry about the calcification. - a key benefit of going via sternum. In fact, Dr Adams said ... Read more
Deena Z Don't worry about the calcification. - a key benefit of going via sternum. In fact, Dr Adams said mine was even more severe than he thought;, and he picked some off my valve.