Rebecca Gober - Heart Valve Journal

My Journal

154 days ago

Yesterday, I was told this is my new normal and nothing can be done. I walked out when she tried telling me valve repair requires surgery every 10 years. It ...Read more

Yesterday, I was told this is my new normal and nothing can be done. I walked out when she tried telling me valve repair requires surgery every 10 years. It tells me they only do replacements. I feel like I was told my years as an NPC athlete were for nothing because now that I can’t complete my usual workouts I can’t go pro. That’s all I heard. I feel I was, as an athlete who lifts 3+ hours session and cardio x2 a day when cutting for a show, not taken seriously when I say I can complete my workouts as I have been for the last 2 years. This is my full time job and it seems like they think I workout like an average person. I just refuse to believe I am going to be short of breath forever. I’m just putting this here because I have no where else. I will be seeking second opinions by Drs from this site.

Suzette Schear Definitely get another opinion and continue being your own advocate. I can’t help you but I unders ... Read more

Suzette Schear Definitely get another opinion and continue being your own advocate. I can’t help you but I understand and hear you.

J Alexander Lassally Wait - valve repairs or valve replacements last 10 years? Valve repairs can last a long time if done ... Read more

J Alexander Lassally Wait - valve repairs or valve replacements last 10 years? Valve repairs can last a long time if done properly on the right patients. Upwards of 15-20 or longer if lucky. Replacements can wear out naturally at 10-15 years, hence the need for sparing native tissue if possible.
Being an athlete will help you in recovery and your heart is healthier than many from that. But, it does not spare you a valve pathology.
If they only offer replacements without a dialogue on repair, they are a crappy practice !!!

Rebecca Goberposted an update

178 days ago

Darrell Malone, Teressa Phillips reacted to this

Hello- longtime YouTube viewer first time joiner- scared but hopeful

Suzette Schear Hi Rebecca you’re in a good company . What made you join? I like your fur friend.

Klara Čičić Welcome Rebecca to this wonderfuly helpful community

Rebecca Gober Thank you for the warm welcome. I’m here while I undergo new testing to see why my symptoms from MV ... Read more

Rebecca Gober Thank you for the warm welcome. I’m here while I undergo new testing to see why my symptoms from MVR (diagnosed in 2005) have become so difficult. I’m an amateur bodybuilder going for my pro card and suddenly I couldn’t get through my weight lifting sessions. My ability to do cardio on my cross trainer also has also diminished to zero and I’m only getting about 6k steps a day but even that lays me up if I go too far. Right sided chest pressure is a constant as well as a cough and hoarseness. Sleep is so uncomfortable it takes hours to fall asleep and I awake with a feeling that I need to sit up and breath. PA measured 3.8 on CT. New echo and echo stress being done on the 25th. I just can’t understand how I go from lifting for 2 hours to being out of breath while getting dressed. Im only 42 and this is really hard to process.

Richard Munson Wow, 2005 was almost 20 years ago and you are still a kid at 42. The echo should tell the story.

Rebecca Gober Unfortunately my diagnosis was difficult because they required me to do a psych eval. I always felt l ... Read more

Rebecca Gober Unfortunately my diagnosis was difficult because they required me to do a psych eval. I always felt like maybe I was overthinking my symptoms and haven’t returned to a cardiologist since I was told it would be fine.