Hayden's Posts

Diagnosis: Aortic Regurgitation, Bicuspid Aortic Valve, Aortic Aneurysm

Member Since: January 31, 2017

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Hayden Pomeranz posted an update
9 years ago (February 26, 2017)
So today has been 10 days since the day of my surgery. I came home Tuesday. Unbelievably I was only in the hospital for 5 days. The pain is getting better but I am still very tired. It's amazing how I can't get through my day at home without taking... Read more.
9 years ago (February 26, 2017)
Hi Hayden! Glad to see you are home. were you able to sleep flat when you got home? My mom is still in an upright position for sleep in the hospital and I'm wondering if she will be able to sleep in a flat bed.
9 years ago (February 26, 2017)
Hi Lisa I am 7 weeks post surgery I have just started feeling comfortable sleeping flat.
9 years ago (February 26, 2017)
Hayden I wish the best for you. my chest felt very achy it was my neck back and shoulders. I was told it had a lot to do with the position of my body during surgery.
9 years ago (February 27, 2017)
Glad the surgery went well. It takes a bit. Naps are good, your body needs rest. It gets frustrating not being able to do all the things you want. I never knew I would be so stir crazy I would enjoy the grocery store so much.
9 years ago (February 27, 2017)
Of course you are tired! You've been through a lot. Take those naps and allow your body to recuperate. It's okay. I was told by my surgeons that I would be exhausted for a long time and was really glad they said that so that when it happened I knew... Read more.
9 years ago (February 27, 2017)
Hi Lisa. My stay at the hospital wasn't the best for me, the care was phenomenal. But I am used to sleeping on my stomach and sides and often move around quite a bit in the night. I found myself sleeping in the chair more then the bed. The doctors... Read more.
Anonymous, heart valve patient
Anonymous
9 years ago (February 27, 2017)
Hope your recovery is coming along Hayden. Sounds like your doing pretty well. I would say from your description that your progressing nicely. Good Luck and God Bless
9 years ago (February 28, 2017)
Hi Hayden - I too had way more back and shoulder pain than chest pain. But it's really because of what they do to open your chest during surgery. Your ribs and muscles are not supposed to stretch like that so I know in my case, it took quite a... Read more.
Hayden Pomeranz posted an update
9 years ago (February 19, 2017)
So today is post op day 3. I'll be honest the pat few days since Thursday have very rough. I've been getting barely any sleep. A lot of it has to do with the spleeping position on the bed and chair. I am fighting through. The doctors say my recovery... Read more.
9 years ago (February 19, 2017)
Thanks for your willingness to share. The reality of this recovery is important and inspiring. It benefits all of us to hear your news. Congratulations on your ability to fight through!
9 years ago (February 19, 2017)
So glad they could repair instead of replace. Sorry sleep is tough. I so understand, but it will get better. Best to you!
9 years ago (February 19, 2017)
Hayden- That is SUCH great news that you were able to have a repair to your aortic valve instead of a replacement! I am SO sorry sleep is difficult and that pain is not fully managed. Maybe some folks who had your same procedure might have some suggestions for pain... Read more.
9 years ago (February 19, 2017)
Hayden it is great to hear from you and hope for the best in your recovery ❤
9 years ago (February 19, 2017)
Day 3/4 was the worst for me too. Maybe the anaesthetic had worn off fully but I was definitely in most pain then and hadn't developed a technique for getting out of the bed which had become like sleeping on a rock. So stick with it. It only gets better... Read more.
9 years ago (February 19, 2017)
Ask, ask, ask! Let then know the issues and see if they have solutions you haven't tried yet. Those first days are awful, but it will improve. Congrats on being on the other side now.
9 years ago (February 19, 2017)
Yes - it's normal for everything to be a bit crazy for the first few days. I didn't get much sleep because they kept waking me up for tests, checks, meds, more checks!! This will pass quickly and you'll be back to getting some decent sleep soon!
9 years ago (February 19, 2017)
You probably know this, but if a doc says the pain is 'normal', it does not hurt to ask if they can do something about it! If you think they should be able to provide better pain control, let them know.
9 years ago (February 19, 2017)
Good comment Steve. Ask what they can do to get rid of the pain. Don't be shy. Be forcefull!
Hayden Pomeranz posted an update
9 years ago (February 16, 2017)
We'll I didn't get much sleep last night which was expected. I'm writing this as I'm sitting in the room at mass general. I'm all checked in and they say I should be getting taken to the OR within the hour. It's been a long 4 months. And I'm ready... Read more.
9 years ago (February 16, 2017)
God bless you Hayden and my prayers for you today ❤
9 years ago (February 16, 2017)
Prayers for a successful surgery Hayden.
9 years ago (February 16, 2017)
God bless you and your surgeon/team.
9 years ago (February 16, 2017)
good luck to you! look forward to seeing your post op post!
9 years ago (February 16, 2017)
Hope it all goes well, Hayden...prayers to you and you team of healers.
9 years ago (February 16, 2017)
Best wishes for a comfortable post-op. I hope that you will be resting and smiling soon.!
9 years ago (February 16, 2017)
Prayers are with you
9 years ago (February 16, 2017)
We are all praying for very smooth and successful surgery Hayden!

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