John Crawley - Heart Valve Journal

My Journal

21 days ago

Valerie Allen, Pamela Gregory, Geoff Curtis and 2 others reacted to this

Morning guys! Hope everyone is well and recovering well!
A week home and things are getting better most days, can't say everyday yet...
Took almost a ...Read more

Morning guys! Hope everyone is well and recovering well!
A week home and things are getting better most days, can't say everyday yet...
Took almost a week to get the smell from the hospital outta my system, figured it out in the shower one evening, they use Dial Antibacterial Liquid soap, same stuff they sent me home with lol!
Appetite is improving steadily, down about ten pounds I could afford to lose and I can't wait to get back to my kettlebells, which I know are a good ways off still...pain management has been pretty easy, read on my surgical notes they destroyed my thoracic nerve, so I'm pretty numb.
Up to 15 min of walking three times a day, I'm ready for more but they are doctors orders, learning everyday how good of shape my body was/is in and how far gone my Aortic valve was gone!
I'm extremely blessed with my wife, a wonderful care giver and some great friends,it's been a steady stream of people this week, that means alot to my wife and myself!
First cardiologist follow up is Tuesday, I see my personal physician the 25th and I'm guessing Cardiac PT will start in about two weeks...

Richard Munson

Pamela Gregory Sounds like things are going relatively smoothly. Slow with steady improvements are the best way not... Read more

Pamela Gregory Sounds like things are going relatively smoothly. Slow with steady improvements are the best way not to overdue it. Glad your home and able to change your soap!!!

Deena Z Sounds all going well. Congrats! Hardest part is so over.

Geoff Curtis Yay! Sounds awesome! Every day you'll improve, small steps!

Suzette Schear What an awesome post, glad you are make strives.

Kimberly Eisenhut John, so glad to see your progress and how well you are doing! Great update!!!

Ana Brusso Welcome to recovery heart warrior. God bless you 🙏❤️❤️‍🩹

Rose Madura You are doing well. You brought back a memory for me .. the Dial antibacterial soap! Glad things ar ... Read more

Rose Madura You are doing well. You brought back a memory for me .. the Dial antibacterial soap! Glad things are progressing well

John Crawley Thank you all...the last couple of days have been a roller coaster...got sore from walking on the tre ... Read more

John Crawley Thank you all...the last couple of days have been a roller coaster...got sore from walking on the treadmill rather than the neighborhood, big difference to me in my walking form, woke up in the middle of the night with sore ribs...been wanting to sleep a little more than usual too...get to see the doc tomorrow, lotsa questions!

John Crawleyposted an update

31 days ago

Geoff Curtis, Rose Madura, Pamela Gregory reacted to this

Good morning! Discharged yesterday, I feel like a baby right now, no sleep schedule, sleeping on my reclining sofa at the moment. and I'm having to change some ...Read more

Good morning! Discharged yesterday, I feel like a baby right now, no sleep schedule, sleeping on my reclining sofa at the moment. and I'm having to change some of my routine around to help my lovey wife with care giving duties for me...I start on a walking routine today, and really gotta get used to the pill regimen, I had no idea!

Rita Savelis Yeah. Surgery is over quickly, and then there's recovery. One day at a time. Your heart needs time to ... Read more

Rita Savelis Yeah. Surgery is over quickly, and then there's recovery. One day at a time. Your heart needs time to heal. And all of your body and rhythms have been traumatised by sugery. It gets better, but sleep can be hard for a few weeks. Take care.

Rose Madura Glad you are home and making necessary adjustments.

Marcus Krauss Welcome home!

John Crawley Thanks !

John Crawleyposted an update

31 days ago

Got a phone call about thirty minutes ago, my surgery has been moved to Monday the 28th...the next date after that was the 15th of November...

Joshua Clegg Was it because of nationwide shortage of IV fluids? I was supposed to have surgery on Oct 18th, but t ... Read more

Joshua Clegg Was it because of nationwide shortage of IV fluids? I was supposed to have surgery on Oct 18th, but they called me and said it's been rescheduled to Nov 13th, but about a week later, got another call from them asking if I want to push the date up to Oct 25th. So I'll have Ross procedure with Bentall as a back up tomorrow.

Joshua Clegg Hang in there.

Richard Munson They must think we are sitting in the car with the motor running while waiting for the call.

Robert Miller It's a bit disappointing when the date moves because you set your mind on that date. Having said that ... Read more

Robert Miller It's a bit disappointing when the date moves because you set your mind on that date. Having said that, maybe there was someone that needed surgery more urgently. So you helped them. Or maybe there was just a scheduling issue. My viewpoint is, don't push it. You have a major surgery and you want everything/everyone in the right state. Unless it's a real emergency, a few more days should be fine. Just make sure you feel comfortable with the surgeon and the hospital.

John Crawley This was the second postponement, the first was for a critically ill patient my surgeon was attendin... Read more

John Crawley This was the second postponement, the first was for a critically ill patient my surgeon was attending to, this time they gave no reason...I'm not in a rush, in fact it's not bothersome or an inconvenience at all, it'll get done when it's supposed to

Robert Miller Good attitude. I wish you all the best.

Aaron Potter All the best John for tomorrow, we are having ours on the same day, looking forward to hearing about ... Read more

Aaron Potter All the best John for tomorrow, we are having ours on the same day, looking forward to hearing about your progress post surgery

John Crawley Thank you Robert and Aaron ...Aaron all the best to you as well...

Anna Rakowicz John, sending wishes for a smooth surgery and recovery.

Aaron Potter Hi John, I hope you are going well post surgery, we both had ours the same day. Stay well and keep ge ... Read more

Aaron Potter Hi John, I hope you are going well post surgery, we both had ours the same day. Stay well and keep getting stronger!

John Crawley Hey Aaron, doing better than I figured I would be at this stage

hope your recovery is going well als... Read more

John Crawley Hey Aaron, doing better than I figured I would be at this stage

hope your recovery is going well also!

John Crawleyposted an update

40 days ago

Aaron Potter reacted to this

Up early even for me...starting my last full day with a wonky stenotic aortic valve, that up until the last few month was well behaved...my surgery got moved ...Read more

Up early even for me...starting my last full day with a wonky stenotic aortic valve, that up until the last few month was well behaved...my surgery got moved back to Friday the 25th, and strangely enough I'm looking forward to the surgery and recovery just to have an insight on how bad I actually feel now, I'm sure it's been a progressive decline that months ago, I attributed to growing older!

Suzette Schear It’s strange how our bodies and mind adjust to the decline. glad your surgery is coming up. it was ... Read more

Suzette Schear It’s strange how our bodies and mind adjust to the decline. glad your surgery is coming up. it was easier once I resign that surgery would be better.

Rose Madura I too attributed my symptoms as getting older. I guess it is a natural defense mechanism. Once I ac ... Read more

Rose Madura I too attributed my symptoms as getting older. I guess it is a natural defense mechanism. Once I accepted that I needed the surgery, I actually looked forward to getting it behind me. Over 7 years later, I feel great. Godspeed.

John Crawley Mine actually started going down hill in Dec after an upper respiratory infection...it was actually c ... Read more

John Crawley Mine actually started going down hill in Dec after an upper respiratory infection...it was actually concerning how much it progressed before I had my Echo in Aug...my body was adjusting but not fast enough...Congratulations Rose and Suzette I'm in that mindset now that the surgery will fix a world of problems!

Robert Miller I am not sure I looked forward to the recovery. But I did look forward to the surgeries. I knew I wil ... Read more

Robert Miller I am not sure I looked forward to the recovery. But I did look forward to the surgeries. I knew I will be in a better place afterwards and be under constant surveillance.