Today is my 2-year anniversary! I still get regular echoes, My mitral repair looks great but I have learned my tricuspid valve has started to leak a little ...Read more
Today is my 2-year anniversary! I still get regular echoes, My mitral repair looks great but I have learned my tricuspid valve has started to leak a little more, but I feel great! My scar is a little pinker than I'd like but I think that's just my skin pigment. To all of you awaiting surgery--I wish you the best of luck. Seems like mine was only yesterday. Stay safe and healthy everyone!
Congratulations on your 2 year anniversary Lisa. So glad you’re feeling great. Stay in touch and be ... Read more
Congratulations on your 2 year anniversary Lisa. So glad you’re feeling great. Stay in touch and be safe. God bless you
Marie Myers Happy anniversary, Lisa! Time does fly...
I had my surgery 18 months ago. My scar developed a keloid. It was a dark pink ridge. I just visited my dermatologist recently. She treated it with a steroid ...Read more
I had my surgery 18 months ago. My scar developed a keloid. It was a dark pink ridge. I just visited my dermatologist recently. She treated it with a steroid injection, and it’s already reduced it significantly. Just thought I’d put that out there in case others didn’t know about this option.
Diane Maher This is very interesting, Lisa. My scar developed the same way and would like more info as to how th ... Read more
Diane Maher This is very interesting, Lisa. My scar developed the same way and would like more info as to how this treatment works. Thanks
Shannon Gray It does work and can be very helpful, however please talk with your dermatologist about taking the pr ... Read more
Shannon Gray It does work and can be very helpful, however please talk with your dermatologist about taking the process slow and also ask about any possible effects. I did it, had one like every 6 weeks...3xs, and it was too powerful so that the skin thinned out so much you could see through to the internal surtures. I promise I don’t share this to scare, but it was such a horrifying experience and scary. I was meeting with plastic surgeons and also cardio thoracic surgeons to see about surgery to correct, when thankfully skin rejuvenated and started growing back.
Lisa Guinan Yikes Shannon. Glad everything turned out ok. I only had one injection. She told me to come back in a ... Read more
Lisa Guinan Yikes Shannon. Glad everything turned out ok. I only had one injection. She told me to come back in a month if it wasn’t better. I think it’ll be good enough from what I’ve seen so far.
Civita Fahey I developed a keloid also. I had the same treatment as Shannon and mine is finally flat. What Shannon ... Read more
Civita Fahey I developed a keloid also. I had the same treatment as Shannon and mine is finally flat. What Shannon describes is true, my dermatologist was very wary doing too many. thankfully, I did have 3 treatments but spread over a year so , the skin is ok, does feel thinner, but, not itchy and irritated as before.
Just had my 18 month echo today post mitral valve repair. Good news is the repair looks great. Not so good news is my tricuspid valve has gone from mild regurgitation ...Read more
Just had my 18 month echo today post mitral valve repair. Good news is the repair looks great. Not so good news is my tricuspid valve has gone from mild regurgitation to moderate regurgitation in a year’s time. My doctor said not to worry. By the time I need it repaired there will probably be a cath procedure in place. He told me to watch for bloated belly, shortness of breath or swollen ankles. Seems like I just got done watching for symptoms and here we go again. (And who doesn’t have a bloated belly these days?😊)
Adam Pick Hey Lisa, I imagine this might have been quite difficult to hear. But, I think your doctor makes a ... Read more
Learn exciting facts about the SCOUT feasibility for treating tricuspid regurgitation with the Mitralign transcather device from Dr. Charles Davidson.
Lisa Guinan Thanks so much for the encouraging words Adam. I just go back to when they told me at 50 that it woul ... Read more
Lisa Guinan Thanks so much for the encouraging words Adam. I just go back to when they told me at 50 that it would be a long time until my mitral needed repaired. Four years later I had OHS.
Today is the one year anniversary of my mitral repair. My how time flies. No more irregular heartbeats for me. My blood pressure is also at normal levels now. ...Read more
Today is the one year anniversary of my mitral repair. My how time flies. No more irregular heartbeats for me. My blood pressure is also at normal levels now. I wasn’t really experiencing fatigue before surgery, do there’s not really a change there. I’m still exercising regularly. My scar gets better every day. There’s still a bit of a ridge there. Luckily, I gave up m swimsuit modeling career years ago. To those of you facing an upcoming surgery—you can do it! The wait is much worse than the actual surgery. I’ll also always remember how wonderful the ice chips were when I woke up.
Susan Lynn Happy Anniversary, Lisa! Wishing you many decades of good health and happiness! ❤
Lisa Guinan Thanks Susan! Good to see you’re still on here offering support.
Adam Pick Woo-Whoooooo!!!!! Congrats Lisa!!!!! (Hah! The ice chips!!!)
Lena Afanaseva Ice chips! I even remember what I said, I said ,,it even better then champagne:))))
Lorraine Mobley When I had the breathing tube in my mouth for 24 hours I wrote the nurses a note that said, I will wo ... Read more
Lorraine Mobley When I had the breathing tube in my mouth for 24 hours I wrote the nurses a note that said, I will work for ICE.
I’m approaching my 7 month post-op mark. I completed my phase 3 rehab and weekly BP checks had my systolic around 118. I went for my 6 month echo last week ...Read more
I’m approaching my 7 month post-op mark. I completed my phase 3 rehab and weekly BP checks had my systolic around 118. I went for my 6 month echo last week and systolic was 107. Cardiologists did say my interior pressure was borderline high but he thought that would right itself. Checking my BP this week and systolic is mid to upper 90s. I feel fine but wonder why my BP keeps dropping. Maybe my heart is still adjusting to the new norm?
Echo did show that the mitral repair job was great-not too tight.
Louanna Miller I have experienced the same with my BP and heart rate. I am 8 months post OHS for mitral valve repai ... Read more
Louanna Miller I have experienced the same with my BP and heart rate. I am 8 months post OHS for mitral valve repair and mine are both becoming more stable and normal. It happens slowly.
Mike Roskowinski See even rock stars have to go through this and they plan for him to be on tour this summer. We can a ... Read more
Mike Roskowinski See even rock stars have to go through this and they plan for him to be on tour this summer. We can all do this.
Kevin Bradley Hopefully he has his this Wednesday as I do. What a great story to have that we share the same heart ... Read more
Kevin Bradley Hopefully he has his this Wednesday as I do. What a great story to have that we share the same heart surgery date!
Catie B I read about his needing surgery earlier today. Isn't that something?
Rob Sparling If he wants any tips maybe Adam can reach out! My sister texted me earlier today to tell me “I’v ... Read more
Rob Sparling If he wants any tips maybe Adam can reach out! My sister texted me earlier today to tell me “I’ve got moves like Jagger” and I had to pause and think. But I got it without googling (but then googled anyway). I wish him luck! Apparently going to be in NYC according to what I saw online. If I’m Mick, I send a decoy story out to get the entourage headed a different direction and get it done in my penthouse! All the best, Mick! You got this! ❤️💪
This YouTube channel contains four informational videos and one 5 minute overview for those who are about to undergo open heart surgery or who have just had ...
Sara Moyce This was very helpful for me prior to my surgery- thank you for posting ❤️
I had my mitral valve repaired 12 weeks ago. Funny how I used to keep track of time in months and since surgery everything is measured in weeks. I'm back ...Read more
I had my mitral valve repaired 12 weeks ago. Funny how I used to keep track of time in months and since surgery everything is measured in weeks. I'm back to work full-time and halfway through my cardiac rehab. They let me start on weight machines today since I no longer have lifting restrictions. I'm no longer on any meds other than what I took before surgery. My nurse let me quit taking my Warfarin a little early because my hair was falling out. Sleeping has returned to normal. I do feel some discomfort after I've done some lifting but nothing big. My knots at the top and bottom of my sternum are almost gone. The bottom does feel different than before. Not sure if that'll go away or not--it may be the wires. Scar is healing nicely. I did use Mederma and Vitamin E oil.
I didn't have any noticeable symptoms before surgery. People ask if I can tell a difference in my energy level since surgery. I was hoping climbing stairs might be easier than before but if anything, it's a little more difficult. It may still be a little soon to notice an improvement if there will be one.
To all you out there waiting for your surgery, that's the toughest part. Recovery takes time but I've been fortunate enough to not have any setbacks. Thanks to all of you who encouraged me ahead of surgery and after.
Phil Neidner Lisa, I work out everyday and did so prior to surgery. I can be on the treadmill doing HIIT or a fast ... Read more
Phil Neidner Lisa, I work out everyday and did so prior to surgery. I can be on the treadmill doing HIIT or a fast walking pace for 45-60 minutes without any difficulties. I lift weights every other day BUT stairs have me gasping for breath and really tire me out!! If that doesn't go away, I will be seeing a specialist. I had my Mitral Valve repaired and a Coronary Artery Bypass Graph. My Aortic Valve is a Bicuspid rather than a Tricuspid and have been told in 5-8 years this will need to be replaced. Keep up the great work!
Susan Lynn Congratulations on your 12 week anniversary!!! I have my moments on stairs - there are days I can ru ... Read more
Susan Lynn Congratulations on your 12 week anniversary!!! I have my moments on stairs - there are days I can run up them without a problem and others when I feel winded. I definitely have noticed improvement - you will too, Lisa! All in good time!
Robert Bach Lisa, I just saw an entry that you posted in my journal last November. You sound like you're doing gr ... Read more
Robert Bach Lisa, I just saw an entry that you posted in my journal last November. You sound like you're doing great. I didn't have any setbacks either. I'm three months ahead of you. After six months, I do feel like I'm better than I was before. Keep up with your cardiac rehab. I think you will see more improvement over the next few months, if you're experience is anything like mine.
I went to get my hair cut today. My hairdresser said I’m losing hair at my temples. Checked out Dr. Google and it says that can be a side effect of Warfarin. ...Read more
I went to get my hair cut today. My hairdresser said I’m losing hair at my temples. Checked out Dr. Google and it says that can be a side effect of Warfarin. Has anybody else had this happen? I hope it grows back. I should get to stop taking it in about 3 weeks.
Diane Maher Hi Lisa...you might want to check out Sommer Russell’s journal...a number of member’s responded t ... Read more
Diane Maher Hi Lisa...you might want to check out Sommer Russell’s journal...a number of member’s responded to her question 2 days ago, “Coumadin and Hair Loss.
Lisa Guinan Thanks, I’ve been out of town and got behind on my journal reading.
Louanna Miller Yes, a side effect. I was on Warfarin for 4 months post surgery. I lost hair for a couple more week ... Read more
Louanna Miller Yes, a side effect. I was on Warfarin for 4 months post surgery. I lost hair for a couple more weeks after discontinuing it. I haven’t noticed my hair growing back yet. May be too soon.
Those of you who had a mitral repair, how long did your dr wait until your first post-surgery echo? Mine waits 6 months but just curious if other drs do it ...Read more
Those of you who had a mitral repair, how long did your dr wait until your first post-surgery echo? Mine waits 6 months but just curious if other drs do it sooner.
Sara Moyce Hi Lisa - my dr wants me to have one in mid to late January for a baseline(which will be approx 2 mon ... Read more
Sara Moyce Hi Lisa - my dr wants me to have one in mid to late January for a baseline(which will be approx 2 months post-op)
Barbara Wood I'm pretty sure mine was at 6 months.
Louanna Miller My surgeon had one completed in the hospital prior to discharge.
Thomas Brusstar They did one transesophageal at the end of the operation before they finished; one 48 hours later whi ... Read more
Thomas Brusstar They did one transesophageal at the end of the operation before they finished; one 48 hours later while still inpatient; and then about 8 weeks later.
Rita Savelis I had my mitral valve replaced and had numerous echos afterwards while still in hospital and then at ... Read more
Rita Savelis I had my mitral valve replaced and had numerous echos afterwards while still in hospital and then at 3 months, then 6 months after that and now yearly.
Karrie Irby-Williams My son is having his today 2 weeks post op , also had one after surgery in OR and before being discha ... Read more
Karrie Irby-Williams My son is having his today 2 weeks post op , also had one after surgery in OR and before being discharged
Busy week for me so far. Had my follow-up with my surgeon yesterday. Had 2 chest x-rays and everything looked good. Incision looks good-have 2 sutures slightly ...Read more
Busy week for me so far. Had my follow-up with my surgeon yesterday. Had 2 chest x-rays and everything looked good. Incision looks good-have 2 sutures slightly sticking out but he said they’ll go away. Resting heart rate is still in the low 90s. Surgeon didn’t seem concerned. Cardiologist PA wants me to go on beta blocker if it doesn’t get below 90. I’m not too wild about that. Got to stop taking the Lasix and had my lifting restrictions raised to 20 lbs.
Had a little trouble getting my rehab scheduled. Had my orientation visit today and start tomorrow bright and early at 8:30. Glad they’ll be monitoring my HR and BP.
Jill McDonald Lisa, I have been running in the 90s. I am on a small dose of beta blocker. 12.5mg twice a day. I ... Read more
Jill McDonald Lisa, I have been running in the 90s. I am on a small dose of beta blocker. 12.5mg twice a day. I was off Lasix after 6 days.
How is rehab? Is it helping?
Lisa Guinan Jill, I just saw your post. My resting heart is down in the low 80s now. Not sure if it was from reha ... Read more
Lisa Guinan Jill, I just saw your post. My resting heart is down in the low 80s now. Not sure if it was from rehab or just time. Probably a combination of both. I can tell my energy level is higher than before surgery. I’m enjoying rehab and bet you will too. It’s good to have sore muscles from something other than surgery.
Jill McDonald Amen to that! I will look forward to sore muscles other than from the surgery. I go to the cardiolo ... Read more
Jill McDonald Amen to that! I will look forward to sore muscles other than from the surgery. I go to the cardiologist on Wednesday for follow up. I am not sure what to expect but you know I have questions! Best to you and Dan!
Had my first follow-up with the cardiologist today. EKG showed normal sinus rhythm. My heart rate is still in the 90s. She sent me home with a 24-hr. holter ...Read more
Had my first follow-up with the cardiologist today. EKG showed normal sinus rhythm. My heart rate is still in the 90s. She sent me home with a 24-hr. holter monitor. There’s still a chance my heart rate will go down on its own (I was at 107 a week ago). If it stays in the 90s, we’ll have to find a beta blocker dosage that doesn’t lower my BP too much. She also commented on how good my incision looks. Luckily my surgeon has plastic surgeon abilities too. I’m 3 weeks post mitral repair.
Hi Lisa!
Glad you had your follow up visit. Good to hear also that your heart is in normal sinus rhyt ... Read more
Hi Lisa!
Glad you had your follow up visit. Good to hear also that your heart is in normal sinus rhythm.
My heart rate is still in the 90's (sometimes low 80's).
I have a home care nurse who comes twice a week and she says my heart rhythm sounds very good.
Neither she nor my heart surgeon seem to be concerned about my high heart rate, as long as the resting rate stays 100 or less beats per minute with no symptoms of anything abnormal going on. They believe it will settle down.
I'm hoping my heart rate will settle down a bit. I hope the same for you also Lisa.
Peace and blessings to you and your family!
Jill McDonald Hi Lisa! Thank you for posting! I have my angiogram tomorrow. Getting a wee bit nervous. I am cur ... Read more
Jill McDonald Hi Lisa! Thank you for posting! I have my angiogram tomorrow. Getting a wee bit nervous. I am curious to talk to PA about medications I will come home with. I currently do not take any. Hoping I am smoothije your since we had the exact same thing. Are you keeping up your walking?
Louanna Miller Thankful you had a good report at your appointment. Keep positive and take it one day at a time. ... Read more
Louanna Miller Thankful you had a good report at your appointment. Keep positive and take it one day at a time. Be gentle with yourself.
Lisa Guinan Jill, I’m still treadmilling 2 times a day. Had a busy day yesterday so got my exercise running err ... Read more
Lisa Guinan Jill, I’m still treadmilling 2 times a day. Had a busy day yesterday so got my exercise running errands. I do 15-20 min twice daily and try to increase my speed every couple of days. I’m waiting on the hospital to get my rehab scheduled.
Here’s a link to a video that’s been shared in the past. I found it very helpful (particularly the part about the vent tube).
https://www.youtube.com/channel/UCRd22xoRmEi7i7-hIkrVUSg ...Read more
Here’s a link to a video that’s been shared in the past. I found it very helpful (particularly the part about the vent tube).
https://www.youtube.com/channel/UCRd22xoRmEi7i7-hIkrVUSg
This YouTube channel contains four informational videos and one 5 minute overview for those who are about to undergo open heart surgery or who have just had ...
Dan Baltazor Yes I also found this video series to be very helpful also!
Hard to believe 2 weeks ago now I was on the table. I’m still finding and removing sticky stuff from the medical tape. My surgeon used Dermabond tape on ...Read more
Hard to believe 2 weeks ago now I was on the table. I’m still finding and removing sticky stuff from the medical tape. My surgeon used Dermabond tape on my incision. I removed that yesterday and incision looks great. I’m off pain meds and am just taking a Tylenol from time to time. I’m still sleeping in my recliner. I just can’t seem to get comfortable lying down. I’m doing about a mile a day on the treadmill. My resting heart rate was averaging around 105 last week but has been down to 96 for two days in a row. BP is also about 10 points lower than before surgery. Guess my heart is getting used to it’s new functionality. Waiting now for a ride to meet a group of friends for a pre-holiday lunch. Hope you all have a great Thanksgiving, I sure have a lot to be thankful for this year.🙏
Sara Moyce Wonderful! Happy Thanksgiving to you and yours!
Lisa that's great!
Wow, a mile on the treadmill after only two weeks. Good for you! 👍
My pulse is ... Read more
Lisa that's great!
Wow, a mile on the treadmill after only two weeks. Good for you! 👍
My pulse is up in the 80's and 90's right now. Needing occasional pain meds but the pain is nowhere near what it was last night thank God.
Lisa you are a true Heart Warrior! Thank you for sharing your recovery process with us here on this website.
Richard Buckley Wow, you are coming a long way, rapidly. Congratulations.
Dan Baltazor Great to hear, I can relate to some of what you’re experiencing. We have much to be Thankful for!! ... Read more
Dan Baltazor Great to hear, I can relate to some of what you’re experiencing. We have much to be Thankful for!! Congratulations on your recovery.
Jill McDonald This is a great update Lisa and so great to hear. I am hopeful in my case by Christmas day I will be ... Read more
Jill McDonald This is a great update Lisa and so great to hear. I am hopeful in my case by Christmas day I will be able to go out to lunch such as you. Something to look forward to!
James A. Corbett Hi Lisa, my surgery is a month away. Just had my Angiogram. All good. Great to read such a nice stor ... Read more
James A. Corbett Hi Lisa, my surgery is a month away. Just had my Angiogram. All good. Great to read such a nice story. I hope mine goes well also. I too am having a Mitral valve repair and hope all goes well. Congrats on all of your progress. Jim
Heart rate has been in the 90s since I got home. Was 107 this morning. Guess I’ll be calling the dr. Sure hope it isn’t AFIB. I should listen to my dr and ...Read more
Heart rate has been in the 90s since I got home. Was 107 this morning. Guess I’ll be calling the dr. Sure hope it isn’t AFIB. I should listen to my dr and stay away from internet research.
Sommer Russell My doc told me the same thing, and I had to explain that I have my PhD in WebMD!!! I can take a simp ... Read more
Sommer Russell My doc told me the same thing, and I had to explain that I have my PhD in WebMD!!! I can take a simple cough and diagnose Ebola. I hope that it isn't afib either. Good luck!!!
Susan Lynn Lisa - that's not that high. My heart rate was in the 80s before I started exercising at rehab this ... Read more
Susan Lynn Lisa - that's not that high. My heart rate was in the 80s before I started exercising at rehab this morning. Your heart is getting used to the increased blood flow. By all means, call your cardiologist if you're concerned, but I don't think it's afib. Take care.
Hope it isn't anything serious Lisa.
My heart rate has been in the 90's and up and then back down in ... Read more
Hope it isn't anything serious Lisa.
My heart rate has been in the 90's and up and then back down in the 70's, 60's, and then up again. Of course, this is before surgery.
Hope your heart rate stabilizes.
Oh btw, did you have a full sternotomy or was your mitral valve repair done minimally invasive? Mine will be the full sternotomy route. Ouch!
Oh, and I do internet research too. My wife says sometimes I read too much, and she's right. Reading too much and overloading on information can scare the daylights out of you!
Lisa Guinan I had the full sternotomy. My dr. said minimally invasive isn’t less painful and more suspceptible ... Read more
Lisa Guinan I had the full sternotomy. My dr. said minimally invasive isn’t less painful and more suspceptible to infection. He also said he preferred to have a full picture of what he’s doing. I’m already off pain meds. Chest tube holes hurt worse than incision.
Oh okay thanks Lisa.
My surgeon says minimally invasive surgery keeps the patient on the heart lung ... Read more
Oh okay thanks Lisa.
My surgeon says minimally invasive surgery keeps the patient on the heart lung machine longer as the operation takes longer for mitral valve repair than the full sternotomy. He doesn't like the risks involved with minimally invasive and prefers to go the traditional full sternotomy route. I'm okay with that.
Oh, and did you have a drain tube in your neck after surgery and if so how does that feel now?
My neck is still sore from the right heart cath I had done several days ago. They also did the left heart cath through my wrist but the pain has subsided there.
I have a high pain tolerance level but obviously I do have my limits. That neck cath REALLY hurt when they inserted it!
Lisa Guinan It’s an IV in your neck (called an IJ). They put it in before surgery after you’re asleep. Mine w ... Read more
Lisa Guinan It’s an IV in your neck (called an IJ). They put it in before surgery after you’re asleep. Mine was sore for a couple of days after they removed it but is fine now.
Oh okay thanks for the info Lisa. Glad to know I'll be sleep when they put the iv line in my neck.
Louanna Miller Lisa, you are doing great. I wasn’t walking a mile for a lot more time than you. Also had MVP repa ... Read more
Louanna Miller Lisa, you are doing great. I wasn’t walking a mile for a lot more time than you. Also had MVP repair through the sternum. All of us Heart Warriors have so much to be thankful for...Happy Thanksgiving!!
Everything is going like it should. Had a couple very short bouts with SVT. Just got a letter that my cardiologist is going to Northwestern 😥. Waiting for ...Read more
Everything is going like it should. Had a couple very short bouts with SVT. Just got a letter that my cardiologist is going to Northwestern 😥. Waiting for them to tell me when I can go home. Thanks for all your support.
I'm proud of you Lisa!
You came through like a champ!
Praying for a complete and total recovery f ... Read more
I'm proud of you Lisa!
You came through like a champ!
Praying for a complete and total recovery for you.
Susan Lynn You did it, Lisa! So glad you're on the road to recovery! ❤
Dan Vechiola Welcome to the recovery side. Take it one day at a time and prepare to walk walk and walk some more, ... Read more
Dan Vechiola Welcome to the recovery side. Take it one day at a time and prepare to walk walk and walk some more, Keep grinding each day gets better and better!
I’ve been having problems with my sinuses. Drainage leads to nausea. I’ve been taking Claratin which takes care of it but I was afraid to take my 24-hr ...Read more
I’ve been having problems with my sinuses. Drainage leads to nausea. I’ve been taking Claratin which takes care of it but I was afraid to take my 24-hr dose before surgery so I waited and asked at my pre-opp appointment today. Well I waited too late and ended up getting sick. Might be a little bit of nerves too. Don’t think I’ll have trouble meeting my no eating after midnight deadline. Nothing but ginger ale right now.
Susan Lynn No worries, Lisa. By this time tomorrow, you will be on the speedy road to recovery! Try to rela ... Read more
Susan Lynn No worries, Lisa. By this time tomorrow, you will be on the speedy road to recovery! Try to relax. Let your anesthesiologist know about your nausea - they might let you take your Claritin with sip of water. Positive thoughts! Please give us a thumbs up when you can! ❤
Dan Baltazor Sorry to hear it's going rough the day before. Hope you can relax. Prayers for swift surgery tomorr ... Read more
Dan Baltazor Sorry to hear it's going rough the day before. Hope you can relax. Prayers for swift surgery tomorrow and on to recovery. Yes, give us a thumbs up!
Lisa Guinan My friend Mona will give you an update when I’m done (yes, Mona & Lisa).
Jill McDonald Good luck Lisa! We will all be anxious to hear about your successful surgery!
Helen Daw All the best to you!! Cant WAit to hear about your recovery.
Lisa Guinan Thanks everybody. Feeling much better. Heading to the hospital cool as a cucumber
I'm pulling for you Lisa!
Stay strong and positive.
You'll be fine.
Louanna Miller Stay strong. Anxiety is normal....we have all had it in the days leading up to surgery. In a mat ... Read more
Louanna Miller Stay strong. Anxiety is normal....we have all had it in the days leading up to surgery. In a matter of days, you will be on the other side if surgery and be recovering.
I had mitral valve repair 9 weeks ago. I just completed my first week of Cardio Rehabilitation.
Just remember we are all different, experience pain differently and heal differently. Allow yourself to proceed one day and one step at a time. I share this with you because I felt like I wasn’t progressing quick enough or on the same schedule as others. I accepted that is not important. This is my own unique journey.
Those of you who had MVP--did you have an irregular heartbeat before surgery and did it rectify itself after surgery? I'm not in AFIB but my beat is irregular. ...Read more
Those of you who had MVP--did you have an irregular heartbeat before surgery and did it rectify itself after surgery? I'm not in AFIB but my beat is irregular. Drs. don't seem to worry about it but am wondering if I might be more at risk for AFIB after surgery.
Bradley Dunn I had my aorta replaced... it had crazy HB, and PVCs.. PVCs occurred often.. Now, I have had a couple ... Read more
Bradley Dunn I had my aorta replaced... it had crazy HB, and PVCs.. PVCs occurred often.. Now, I have had a couple since surgery but the rate is much lower... So, mine has improved.
Jennifer McInerney I had AVR. Prior to surgery I had an irregular heartbeat , palpitations etc. Nothing since surgery ... Read more
Jennifer McInerney I had AVR. Prior to surgery I had an irregular heartbeat , palpitations etc. Nothing since surgery so vast improvement
Barbara Wood I had a mitral valve repair 1 1/2 years ago. I had an irregular hb, & 3 episodes of afib before surge ... Read more
Barbara Wood I had a mitral valve repair 1 1/2 years ago. I had an irregular hb, & 3 episodes of afib before surgery. About 10 days after surgery I had afib again. I had an electrical cardioversion & have been in normal rhythm since. I wore a 24 hour holter monitor a few months ago & had very minimal pvcs - I never feel them like I did before surgery. Afib is really common after mitral surgery particularly - I think I was told 40% of patients are affected. I wouldn't worry too much about it - most of us have some complications & glitches post surgery & it all works out. You're young & in good health, this works tremendously in your favor! All good wishes & vibes sent for your upcoming surgery & recovery!
Duane Brown I had AVR and often experienced frequent skipped or delayed and double beats. I think the reason it w ... Read more
Duane Brown I had AVR and often experienced frequent skipped or delayed and double beats. I think the reason it wasn't a concern is that the heart is still pumping sufficient blood to the body and its not a stress on the heart muscles itself as it would with a racing heart or trying to overcome stenosis.
Jill McDonald Would you be able to explain AFIB? I hear this but not sure what it is. I have had plentry of palpi ... Read more
Jill McDonald Would you be able to explain AFIB? I hear this but not sure what it is. I have had plentry of palpitations and extra beats though.
Lisa Guinan I believe AFIB is just irregular heart beats where the upper chamber and lower chamber aren't beating ... Read more
Lisa Guinan I believe AFIB is just irregular heart beats where the upper chamber and lower chamber aren't beating together. I know it causes a greater risk for stroke from a blood clot. I think an EKG is the only way to find out if you're in AFIB.
One of my concerns is waking up while I'm still intubated. I know that some patients wake up before their lungs do. I have a pretty strong gag reflex. Anybody ...Read more
One of my concerns is waking up while I'm still intubated. I know that some patients wake up before their lungs do. I have a pretty strong gag reflex. Anybody have experiences or advice to share?
Lisa Burck I woke up while still intubated after my valve surgery, but the doc was right there at the time and r ... Read more
Lisa Burck I woke up while still intubated after my valve surgery, but the doc was right there at the time and removed it right away.
Judy S Talk to your surgical team and let them know. Whenever possible they remove it while you're still so ... Read more
Judy S Talk to your surgical team and let them know. Whenever possible they remove it while you're still so sleepy that you don't even know. I have a vague memory/dream of possibly having it removed (still don't know if it really happened or if I dreamed it) and it was no big deal! Hope the same for you!
Sommer Russell I share this same concern. Someone on here had said that they had to wait for 30 minutes breathing o ... Read more
Sommer Russell I share this same concern. Someone on here had said that they had to wait for 30 minutes breathing on their own before they would remove it. He mentioned it being a really long 30 minutes but wasn't that bad because you are so groggy. I'm kind of getting more worried about all the tubes coming out of me for the first few days. And then anxiety goes through the roof thinking about being away from kids for so long. My youngest hasn't been away from me since birth.
Marie Myers I also worried about waking up with the tube. But as it turned out, it was a non-event for me. I don ... Read more
Marie Myers I also worried about waking up with the tube. But as it turned out, it was a non-event for me. I don't remember coughing or gagging, just remember chewing on it a bit...It came out shortly after I woke up. Remember, you will still be metabolizing lots of anesthetic drugs, so the first day is really a blur. Really don't have any strong memories of the first day. It is hard, but try not to worry.
Chris Purvis I was the complete opposite. I woke up and I was completely awake and breathing fine and had to wait ... Read more
Chris Purvis I was the complete opposite. I woke up and I was completely awake and breathing fine and had to wait 30 minutes. Yawzer is all I’m going to say about that part. It is surgery so there are some components that unfortunately aren’t a walk in the park.
Rob Sparling I woke up and it was still in. But have no recollection of it coming out. As noted in my journal I wa ... Read more
Rob Sparling I woke up and it was still in. But have no recollection of it coming out. As noted in my journal I was thirsty and was begging for water. Lips were in dire need of chapstick. Other than that no other complaints or recollections.
Molly Ivers I really doubt you will wake up when they do that - they monitor you so closely. Just banish that tho ... Read more
Molly Ivers I really doubt you will wake up when they do that - they monitor you so closely. Just banish that thought.
Dan Vechiola I woke up from the most colorful and beautiful dream and said to myself "omg I just woke up from hear ... Read more
Dan Vechiola I woke up from the most colorful and beautiful dream and said to myself "omg I just woke up from heart surgery!" It was a beautiful feeling. My daughters came running in with their thumbs up and big smiles. The tube was in and I was slightly uncomfortable but I was so happy. The nurses asked if I can blow and knew it was a loaded question so I blew so hard that they said you are good to go lets get this tube out. They told me to cough and they just pulled it out. This made me feel even better because it was my first accomplishment on the recovery side. Think positive and don't let your negative thoughts win. Most negative thoughts don't ever materialize anyway. Best wishes!
Noreen Kitchen I woke up a few times with the tube still in. It doesn’t hurt and I can’t say it made me gag at a ... Read more
Noreen Kitchen I woke up a few times with the tube still in. It doesn’t hurt and I can’t say it made me gag at all it’s more awkward feeling than anything. I just kept telling myself I was fine and to not panic. When they took it out they told me to cough and it was out! My throat hurt for a few days after. It’s so hard not to worry about what’s ahead for you but I will say that your imagination of what’s to come will be far worse than the reality. You’ll do great. The worst part is waiting for surgery.
Steve Farthing Some docs can remove the tube before you leave the OR! Requires co-ordination with the anesthesiolog ... Read more
Steve Farthing Some docs can remove the tube before you leave the OR! Requires co-ordination with the anesthesiologist.
timothy morris Worst part of my entire stay in the hospital. I was awake for two hours before it came out and those ... Read more
timothy morris Worst part of my entire stay in the hospital. I was awake for two hours before it came out and those two hours felt like two days. I was gagging like crazy. I am glad most people's experience was not bad the odds are in your favor for a good experience.
Louanna Miller They could not remove mine for 8 hours due to my pain level and unstable blood pressure, which was ne ... Read more
Louanna Miller They could not remove mine for 8 hours due to my pain level and unstable blood pressure, which was negatively impacted by pain meds. I was mostly sedated during that time but could hear my husband and the RNs talking. Once they determined they cold remove it, they had me cough and out it came. Not bad. My throat was sore and I couldn’t talk well for about 12 hours. I took a lip moisturizer with me and had my husband keep it so he could put it on my in ICU.
Susan Lynn You might want to ask about early extubation. Many tubes are now removed in the OR. I reminded my ... Read more
Susan Lynn You might want to ask about early extubation. Many tubes are now removed in the OR. I reminded my anesthesiologist that was one of the reasons I chose my surgical team. My tube was removed upon reaching the CICU because it's in a different building from the OR, but I had no memory, no sore throat, no coughing - it was a worry for me and turned out to be nothing.
Rita Savelis Many people (me included) don't have a memory of the breathing tube being removed because it was take ... Read more
Rita Savelis Many people (me included) don't have a memory of the breathing tube being removed because it was taken out before they were truly awake. It is there as a precaution and will be removed as soon as possible if everything is going fine. This is a fear that everyone has, and truly is then not an issue for most patients. Wishing you a smooth surgery and recovery.
LINDA ROBERTS I remember waking up with the tube in me and laying there worrying about when it would be removed. H ... Read more
LINDA ROBERTS I remember waking up with the tube in me and laying there worrying about when it would be removed. However, when it was removed it was totally painless for I have no recollection of that event. My anxiety was my worst enemy.
Nancy LeClair Gottlieb They checked my breathing and I wasn't ready. The sedated me again. I had my surgery late on a Fri ... Read more
Nancy LeClair Gottlieb They checked my breathing and I wasn't ready. The sedated me again. I had my surgery late on a Friday. It came out Saturday morning.
Lisa Guinan Thanks for all the insight. Sounds like not remembering is the norm. Will put that worry aside. ... Read more
Lisa Guinan Thanks for all the insight. Sounds like not remembering is the norm. Will put that worry aside. If I do wake up, at least I know to be prepared that it might still be there and not freak out.
Civita Fahey I woke up with it and I remember saying Oh the tube is still in.. but in a second it was gone.. I can ... Read more
Civita Fahey I woke up with it and I remember saying Oh the tube is still in.. but in a second it was gone.. I cant remember how long it was between my waking and it being out.. so, don't worry, it was my biggest fear and it was ok.
John Lant All I remember is the nurses waking me up & then telling me they were going to pull out the breathing ... Read more
John Lant All I remember is the nurses waking me up & then telling me they were going to pull out the breathing tube. It came out fast and thats all I remember of that removal proceedure post surgery untill the next day.
Steven Liebowitz I had the same concern, and woke up in ICU still intubated, with my hands tied...I apparently tried t ... Read more
Steven Liebowitz I had the same concern, and woke up in ICU still intubated, with my hands tied...I apparently tried to pull the tube out myself😡 the doctors were trying to balance my pain level, narcotics, and my ability to breathe over the machine for 15 minutes. You don’t have any sense of time, but it’s a relief to breathe on your own. I’m sure you will be just fine, just tell your doctors your expectations.
Sommer Russell So, I decided to ask my cardiologist at my appointment yesterday exactly what OHS look like and I spe ... Read more
Sommer Russell So, I decided to ask my cardiologist at my appointment yesterday exactly what OHS look like and I specifically asked about when I would be extubated. He told me that I would be extubated after leaving the OR and after recovery. He said it would happen after I could prove that I could breath on my own. He did tell me that he would be there, though. That made me feel better.
Rita Savelis Your anasthesiologist is the person to ask this question of. He/she should/can run through exactly wh ... Read more
Rita Savelis Your anasthesiologist is the person to ask this question of. He/she should/can run through exactly what surgery will entail and he/she is the person to tell all your fears to and ask questions of.
Wanda Mroz This was my worst fear. And I did wake up with the tube in. I did what I was told... let them kno ... Read more
Wanda Mroz This was my worst fear. And I did wake up with the tube in. I did what I was told... let them know you’re awake. I did... unfortunately the tube had to stay in a tad longer because my BP was kind of low. I started to move around but they calmed me down... I remember dozing off for a few minutes and then when I woke up and started moving around they finally removed it. It did not hurt, nor did I gag while it was in, but when it is pulled out you will gag. However, it is brief and it feels good to finally have it out. All in all not pleasant, but it’s just a few seconds coming out and the whole ordeal is doable. Try not to stress over it.. you’ll get thru it. I have a bad gag reflex too, and I was able to get thru it. Best of luck to you!
Robert Bach They told me that I woke up and began to pull at the tubes, but that I calmed down when they talked t ... Read more
Robert Bach They told me that I woke up and began to pull at the tubes, but that I calmed down when they talked to me. I don't remember that at all.
Jill McDonald These are great responses. Some things I never thought of. Chapstick is your friends.