Yesterday was the 1 year anniversary for my Aortic Valve Replacement ❤️🩹 I celebrated the occasion by participating in THE PACEMAKERS 5K Presented ...Read more
Yesterday was the 1 year anniversary for my Aortic Valve Replacement ❤️🩹 I celebrated the occasion by participating in THE PACEMAKERS 5K Presented By The Marshall University Joan C. Edwards School Of Medicine in Barboursville WV. Proceeds go toward helping support medical student health, physical activity, and wellbeing.
Marie Myers Great achievement! Congrats on your anniversary!
*I was released by Dr. Lars Svensson, my surgeon at Cleveland Clinic, one month after surgery with no restrictions. *My ...Read more
6 weeks today! Post-surgery update
*I was released by Dr. Lars Svensson, my surgeon at Cleveland Clinic, one month after surgery with no restrictions. *My heart has returned to a normal sinus rhythm with no atrial fibrillation. *I’ve been able to manage any discomfort with only the occasional Tylenol, no opioids or narcotics. *I’ve been able to walk up to 3 miles a day including inclines. I’ve also started some short intervals of light jogging on the treadmill. *I had my introduction to cardiac rehabilitation at SMMC in Huntington WV this week. I'm hopeful there's a 5K in my future this spring.
We have been blessed with the most amazing family and friends supporting us with their love and prayers. We appreciate everyone who checked in on us.
We are still in awe of all the amazingly talented doctors, nurses and staff who touched our lives while at the Cleveland Clinic. God has been so good to us. We cannot begin to praise him enough for all he has done!
Karen Hommel Looking good, Sean, keep up the good work!
Grace Mason You are doing awesome! Keep it up and you will be joining your next 5k before you know it
18 days post surgery. Taking my Yorkie for his morning walk. It feels good to have some elements of normalcy back
Valerie Allen I am so glad to hear you have done so well! I will be having the same surgery at CC in 2024.
Jennifer Fuller Yeah! And I’m sure you’re pup is happy as well!
DeWayne Adamson Sean, do you think that at 18 days you could fly cross country with a layover? How about 14 days?
J Alexander Lassally Super inspirational. Will be hoping for the same thing from CC!
Sean Adkins I was able to tolerate the drive home at 10 days. It was about 5 1/2 hours with stops. You just need ... Read more
Sean Adkins I was able to tolerate the drive home at 10 days. It was about 5 1/2 hours with stops. You just need to be sure to try to stand and walk every hour
Sean Adkins I had meds for pain while in ICU. Managing discomfort with Tylenol. My surgery 1 week ago. I received ... Read more
Sean Adkins I had meds for pain while in ICU. Managing discomfort with Tylenol. My surgery 1 week ago. I received the Edwards Inspiris Resilia tissue valve
Mohammed Abdulrahman Have you felt with breathing problems , heavy sweeting and difficulties in breathing while you are t ... Read more
Mohammed Abdulrahman Have you felt with breathing problems , heavy sweeting and difficulties in breathing while you are trying to sleep on back ؟
J Alexander Lassally Thanks Sean. So it seems like you rebounded really fast once out of ICU. Was that true. Like day 4 to ... Read more
J Alexander Lassally Thanks Sean. So it seems like you rebounded really fast once out of ICU. Was that true. Like day 4 to 5 things improved fast?
Dennis Shaffer Oh wow! You look like you're doing great. I am so happy for you. I hope I bounce back half as fast a ... Read more
Dennis Shaffer Oh wow! You look like you're doing great. I am so happy for you. I hope I bounce back half as fast as you. Thank you so much for sharing your progress and story.
Sean Adkins Yes - the ICU days were the longest most difficult. I had a painful spasm after the nurses pulled one ... Read more
Sean Adkins Yes - the ICU days were the longest most difficult. I had a painful spasm after the nurses pulled one of my tubes, an allergic reaction to some medication administered during day 2. CPAP was used to help me get weened off the oxygen quicker. The most important thing is to get your procedure at a high volume center of excellence
Sean Adkins Still waiting on my heart rate to acclimate - regulating it with medication
Deena Z Nice day for a walk and you went for it! WTG, Sean. You look great. Bet the nap felt wonderful aft ... Read more
Deena Z Nice day for a walk and you went for it! WTG, Sean. You look great. Bet the nap felt wonderful after this walk too:)
Dennis Shaffer I heard the drains could be one the worst parts. Guess just gotta take a day at a time. Hopefully you ... Read more
Dennis Shaffer I heard the drains could be one the worst parts. Guess just gotta take a day at a time. Hopefully your heart rate will settle soon so you can get back to feeling good and normal again.
Larry Peterson Looking good, Sean! Hope the trip goes well!
Keith Rosine Wishing you a quick recovery. Daily walks were the key for me.
Sean Adkins We arrived on Tuesday October 17th for presurgery appointments, surgery was Oct 20th, discharge Oct 2 ... Read more
Sean Adkins We arrived on Tuesday October 17th for presurgery appointments, surgery was Oct 20th, discharge Oct 26th. Follow up appointments Oct 30th for a total of 13 days from home
Dennis Shaffer So great to see the progress! Smile says it all! Hope your recovery goes perfect.
I’m thankful to be on the recovery side of this. I did my first walk today and Dr Svenssons said this morning I could go to step down later today where I ...Read more
I’m thankful to be on the recovery side of this. I did my first walk today and Dr Svenssons said this morning I could go to step down later today where I could get some better rest
Grace Mason Great news Sean! Moving on to step down soon! You look great. Glad to see you are feeling up to posti ... Read more
Grace Mason Great news Sean! Moving on to step down soon! You look great. Glad to see you are feeling up to posting🙏❤️🩹 PS if you can get some earplugs or buds that helped me drown out some noises.
Valerie Allen Sean, congrats and great to see you! We so appreciated hearing from your wife. Continued good progres ... Read more
Valerie Allen Sean, congrats and great to see you! We so appreciated hearing from your wife. Continued good progress….and earplugs, Grace you are a genius!
Made it to Cleveland yesterday. Just now out of recovery from my heart cath. They were able to go through my wrist. I got the all clear with no blockages - ...Read more
Made it to Cleveland yesterday. Just now out of recovery from my heart cath. They were able to go through my wrist. I got the all clear with no blockages - what a relief!
Pamela Gregory Wonderful news! That picture brings back memories. They will take the best care of you!!! All the be... Read more
Pamela Gregory Wonderful news! That picture brings back memories. They will take the best care of you!!! All the best thoughts and prayer will be with you
Jay Burgess Great news that is always fun have to have open heart surgery while were in there lets do a bypass. I ... Read more
Jay Burgess Great news that is always fun have to have open heart surgery while were in there lets do a bypass. I was glad when mine cleared too and didn’t need it. I create plaque and they were at one point 50% block and 25% block on the other side. This was from a CT Angiogram. The Coronary in the gold standard. I went back to being a vegan and also take repatha for my LPa/LDL issue. I don’t ever want to have bypass surgery or another open heart surgery for that matter. Hopefully in 14 years TAVR is all I need.
Larry Peterson Great news on the catheterization, Sean. Good luck this week!
It was beautiful weather for a wedding this past weekend. It was a blessing to be able to watch my son marry the woman he loves then I did some site seeing ...Read more
It was beautiful weather for a wedding this past weekend. It was a blessing to be able to watch my son marry the woman he loves then I did some site seeing on the way back home with the woman I love.
Grace Mason Beautiful pictures Sean! Lovely memories to to enjoy before and after your surgery 💖
Pamela Gregory Congratulations for your son! This was a great way to spend the weekend before your surgery. Will be... Read more
Pamela Gregory Congratulations for your son! This was a great way to spend the weekend before your surgery. Will be sending prayers for a successful surgery!
Rose Madura Beautiful pictures. Where was the wedding ? You are in good hands at the CC. Godspeed.
Larry Peterson Congratulations to you and your family, Sean! Looks like a wonderful event.
Sean Adkins Rose - the wedding was at Watauga River Lodge near Johnson City, TN
Susan Lynn Beautiful pics! Best wishes to the newlyweds!
Ana Brusso Congratulations all around your family. They make a beautiful couple. 🎉🎊
I was given the opportunity to have my surgery the last of August but decided to wait until after the birth of our first grand child and my son’s upcoming ...Read more
I was given the opportunity to have my surgery the last of August but decided to wait until after the birth of our first grand child and my son’s upcoming wedding. What a blessing to be at the hospital to get to hold this big boy :-)
Kath Duggan I am so happy you got to enjoy both of these big events❤️ before your surgery! Nothing is better ... Read more
Kath Duggan I am so happy you got to enjoy both of these big events❤️ before your surgery! Nothing is better then a wedding and a beautiful grand baby!
Rose Madura Very cute baby! Congratulations and enjoy your son's wedding.
Robert Miller Congratulations!!! Two big events. If your condition was ok to delay it a bit then that was the right ... Read more
Robert Miller Congratulations!!! Two big events. If your condition was ok to delay it a bit then that was the right thing to do. Just don't take it as an excuse to delay it further. Get it done so you can enjoy your grandchild for many years to come. Congrats, again!
Larry Peterson Great photo, Sean! Grandkids are the best!
Rich Butela Beautiful Picture. Now get yourself fixed up right. That boy is going to need his Grandpa around to ... Read more
Rich Butela Beautiful Picture. Now get yourself fixed up right. That boy is going to need his Grandpa around to spoil him for a long time.
Sean Adkins I have heard of it. I haven't been given that option to consider as of yet.
Erica Archibald I chose On-x 22years ago. Fun fact I was part of the FDA approval for mitral. My mitral is awesome st ... Read more
Erica Archibald I chose On-x 22years ago. Fun fact I was part of the FDA approval for mitral. My mitral is awesome still! I do need my aortic redone… working on that now
Sean Adkins I've been looking at the On-x and the Edwards Inspiris Resilia. I'm not that familiar with blood thin ... Read more
Sean Adkins I've been looking at the On-x and the Edwards Inspiris Resilia. I'm not that familiar with blood thinners and I'm not sure how I will do on them. I'm not excited about the prospect of another procedure in the future either. It's a lot to consider.
Adam Pick Sean, Great job doing a lot thinking, research and more thinking about your options. The really gr... Read more
Adam Pick Sean, Great job doing a lot thinking, research and more thinking about your options. The really great news is that are in the care of Dr. Svensson. He'll definitely have really good information, data and clinical experiences to support your choice.
So you know, I had the Ross Procedure over 17 years ago. Thus far, knock on wood, I have not had any issues. It might be worth learning more about that if you are a candidate for it.
All the best with your choice! Please keep us updated!
Sean Adkins I greatly appreciate your prayers, Grace.
Adam - thank you. I feel extremely fortunate and bl ... Read more
Sean Adkins I greatly appreciate your prayers, Grace.
Adam - thank you. I feel extremely fortunate and blessed to be at Cleveland Clinic with Dr. Svensson as my surgeon.
Rajan Parrikar Age also factors into the decision. In February this year, at 59, I got the Edwards Inspiris bio valv ... Read more
Rajan Parrikar Age also factors into the decision. In February this year, at 59, I got the Edwards Inspiris bio valve to replace my bicuspid aortic valve. These new valves are said to represent a significant advance in durability.
Matthew Allen G’day Sean, I’m going in Monday 9/11 to have a similar repair to you. Im 47 and like you was really fit and racing (cycling not running) when my GP picked up a heart murmur in March this year 2023. A month later I was being told I had a 50cm ascending aorta and regurgitation and to stop racing!
I’m fortunate that my BAV is a candidate for a repair ( I.e. nothing has ruled me out yet). however the surgeon can’t say for certain until he’s had a close look at the valve.
So I’ve opted for a tissue valve as my back up plan - which I know want last my expected lifetime and will need repair/replacement in 15-20years. However I’m a very active guy and the blood thinners seem to be “fun adventure killers”! I can’t imagine life without taking a few knocks! ... Read more
Matthew Allen G’day Sean, I’m going in Monday 9/11 to have a similar repair to you. Im 47 and like you was really fit and racing (cycling not running) when my GP picked up a heart murmur in March this year 2023. A month later I was being told I had a 50cm ascending aorta and regurgitation and to stop racing!
I’m fortunate that my BAV is a candidate for a repair ( I.e. nothing has ruled me out yet). however the surgeon can’t say for certain until he’s had a close look at the valve.
So I’ve opted for a tissue valve as my back up plan - which I know want last my expected lifetime and will need repair/replacement in 15-20years. However I’m a very active guy and the blood thinners seem to be “fun adventure killers”! I can’t imagine life without taking a few knocks!
I was advised by a couple of cardiologists that mechanical valve was the only way and that my karate, mountain biking, snow boarding, bouldering says we’re over .
I’ve recently sold my business and after working my arse off for 12 years I had been looking forward to more of the above adventures with my teenage kids. The whole deal didn’t really seem fair!
I did my research, found a surgeon who can most likely repair my valve and I’m going to give it a crack.
Feels like a big thing to opt for a backup plan that’s counter to the advice of the cardiologists, but in the end the decision is not just a statistical durability one. Quality of life is an equally important metric to me.
So I’m getting the biggest tissue valve I can as this opens up the option for a TAVI if needed in future.
And in the meantime I’m going to grab this second chance with two hands!
David Sabritt I received a Medtronic porcine valve at age 68 to replace a bicuspid valve with severe stenosis. A ... Read more
David Sabritt I received a Medtronic porcine valve at age 68 to replace a bicuspid valve with severe stenosis. Almost 10 years later I'm doing fine. Choosing a tissue valve might have saved my life, since I turned out to have a previously undiagnosed blood disorder that would have made anticoagulants very risky. I think it would be wise to have some specialized blood work done, since some conditions like mine (Factor XI Deficiency) are not picked up by standard lab tests.
William Gentile Sent you a note to your guest book. Go git' em Sean!
Rose Madura I chose a tissue valve at age 59. The choice is such a very personal one and only you can make it. O ... Read more
Rose Madura I chose a tissue valve at age 59. The choice is such a very personal one and only you can make it. Once you decide, don't look back or question yourself. It will be the right decision for you! Godspeed.
Brent Musat Sean, I too had a hard time weighing pros/cons of artificial, ross, or tissue valve for my aortic va... Read more
Brent Musat Sean, I too had a hard time weighing pros/cons of artificial, ross, or tissue valve for my aortic valve replacement and root repair.. It's been 16 months since my surgery and I went with the tissue valve (27m). I just turned 49 and I fully know I will need a TAVR in roughly 15 years.. but I feel great now, honestly better than before surgery.
I decided against Ross because I didn't want to have a two valve problem and was worried about my dilated root, and chose against mechanical because of the blood thinners and the lifestyle change and risks associated with that.. but I am gambling on the future procedure(s) that I will need. But I think that the TAVR technology will get better by the time I need one in 15 or a second 30 years from now.
Truth is it's an individual choice and I just wanted to prioritize my life in my 50's without many restrictions so that's what swayed my decision.
I know it seems overwhelming right now but give it some time and I'm sure the right decision will present itself to you.. trust me I felt the same way at the time.
Michael Kluse May 15 I had an Edwards Inspiris bio valve replace my stenotic aortic valve. I just turned 72. Didn ... Read more
Michael Kluse May 15 I had an Edwards Inspiris bio valve replace my stenotic aortic valve. I just turned 72. Didn’t want to take blood thinners. Surgeon said I’d likely never have to worry about this new valve again. But if I do TAVR will be an option. I got through the surgery and recovery fairly easily and am now back to normal. Recent CT showed valve doing great.
Michele Miller Great responses on this post! I will have an Inspiris Resilia replace my regurgitating aortic valve o ... Read more
Michele Miller Great responses on this post! I will have an Inspiris Resilia replace my regurgitating aortic valve on Oct. 19. I am 54 and thought very hard about getting a mechanical valve, like my dad got 23 years ago. He is doing well but I would like to avoid blood thinners. I hope that if I need this valve replaced in 10-15-20 years, it can be by TAVR
William Trankle Got a St. Jude porcine valve after my aortic valve repair failed shortly after surgery. Unfortunatel ... Read more
William Trankle Got a St. Jude porcine valve after my aortic valve repair failed shortly after surgery. Unfortunately, I got just less than 5 years of use before it started to stiffen up, so now I'm clicking away with an On-X valve that should outlast me. Warfarin is no joke, but it's not as bad as some people make it out to be (been on it for 10 years now).
Sean Adkins I appreciate all these great responses! I'm inspired and encouraged by everyone of them.
Dana Knight I had a Edwards Bovine Aorta valve put in 2016. Oct 4 I am getting it redone (not because it is bad) ... Read more
Dana Knight I had a Edwards Bovine Aorta valve put in 2016. Oct 4 I am getting it redone (not because it is bad) dr put in to small of one , since I’m having MV replaced I’m having a larger Aorta put in. The reasoning is I have Radiation Heart Disease and if I need surgery again a TAV-R valve will fit without OHS. Mechanical clicking would drive me nuts and I’m on blood thinner right now due to my heart issues and I look like an abused woman. Bruises don’t go away. Also having tricuspid valve repaired and an ablation done. I am 62 with a sticky, hostile, and stiff heart. Heart of an 85 year old. I survived cancer twice. First time I was 15. To live this long after having treatments twice is a miracle. I have been blessed. Just make sure they put a large enough of one in so you can have TAVR in the future.
DeWayne Adamson Ross Procedure would be a good choice because of your age. Next would be a biologic in my opinion as ... Read more
DeWayne Adamson Ross Procedure would be a good choice because of your age. Next would be a biologic in my opinion as a TVAR valve in valve in the future will likely be done with a polymeric valve that will last 25 years or maybe much longer. (Not much talk about that yet) That being said, you have one of the best surgeons in the world who may be able to repair the one you have. That would be the best. I hate blood thinners. I also dont think a TVAR down the road is possible with a mechancal. Cleveland knows best and will guide you.
Rich Butela I went Bio because I did not think I would do well on blood thinners. I'm way too active and prone to ... Read more
Rich Butela I went Bio because I did not think I would do well on blood thinners. I'm way too active and prone to busting my knuckles in the shop. I'm 61 so if It lasts 10-15 years I'll be a good candidate for a TAVR replacement.
I celebrated the occasion by participating in THE PACEMAKERS 5K Presented ...Read more
I celebrated the occasion by participating in THE PACEMAKERS 5K Presented By The Marshall University Joan C. Edwards School Of Medicine in Barboursville WV. Proceeds go toward helping support medical student health, physical activity, and wellbeing.