First of all, I loved this site and would visit often prior to my surgery. But then in recent weeks, it was harder to find time and I prioritized getting organized ...Read more
First of all, I loved this site and would visit often prior to my surgery. But then in recent weeks, it was harder to find time and I prioritized getting organized for my Jan. 21 AVR and ascending aorta replacement. So, color me 'shocked' that I haven't even done a journal update until today!!! I swear I did one in the hospital, but evidently my drug addled brain didn't follow through....or something. Didn't even take the "required" selfie. I'm sorry. But there were a couple things I hadn't planned on. I thought it would be easier than it was to check in here from the hospital, but didn't account for the tubes, wires, leads, IVs, etc. that were constantly in my way making it difficult to do anything. Guess I hadn't thought that part through - but there were many other thing in that category - and you know what? It all came out fine.
So here's a little bit of what went on (although I won't be able to do this all in one sitting and will (wisely) save some for other times that I have the energy.)
The surgery went well. I was very calm and focused on God through music the night before. The day of surgery, I got to select any music I wanted - nice surprise. I chose Fernando Ortega, and the surgical assistant hit the perfect, calming songs and hymns of his. I thought - WOW, listening to Fernando before they open me up - this is pretty cool. I remember the safety check with the surgical team, handing out my gifts* to them, the anesthesiologist talking, then before I knew it, I was on the flip side.
I don't remember the intubation tube being taken out, and not even sure if when I woke up it was still in. Even now, I'm trying to remember ICU. There are some things (the curtains!), but I didn't bother to journal anything, so most things weren't important enough to remember! It did take extra time to get to the step down unit as there were 5 people ahead of me who were waiting as well. Finally transferred the evening of the second ICU day. Of course I was antsy and wanted out of ICU. It was so noisy with the adjoining rooms separated only by curtains and I wanted peace and quiet. Was sure I'd feel better once I got to my private room.
Well, I needed to be a patient patient, and was AMAZED to find out I got one of the very BEST rooms they have! The patient before me just left after a 4 month stay! Thanked God for His perfect timing! It was well worth the delay in order to have the beautiful view that I did. Oh, and my room number was J62-12. One of the churches I attend is 62:12 Ministries. How cool was that! Of all the rooms I could have been put in, I was constantly reminded of all my dear friends who were praying for me.
I'm going to rest now and pop in another time with more of the story...
Susan Lynn Yeah! You did it, Deb! Welcome to recovery - Thanks for the update and sharing your experience! ... Read more
Susan Lynn Yeah! You did it, Deb! Welcome to recovery - Thanks for the update and sharing your experience! ❤
Tracy Fallu Happy to hear you are out of ICU! Enjoy your room with a view.
John Isham Deb....We have been waiting for you to arrive to the recovery side so Welcome to Recovery and we all ... Read more
John Isham Deb....We have been waiting for you to arrive to the recovery side so Welcome to Recovery and we all wish you a very successful and speedy recovery! Yes...you did it!
leslie terjesen Wish you continued recovery. Getting ready for my AVR up at NY Presbyterian on the 19th. The countdo ... Read more
leslie terjesen Wish you continued recovery. Getting ready for my AVR up at NY Presbyterian on the 19th. The countdown begins today. Trying to get all done, bills paid, all that stuff!!! Glad you are doing well; looking forward to getting this done and over with!
I got tired of planning and packing today - just would love chill and relax today. I think I have everything packed and ready. There were a few items left on ...Read more
I got tired of planning and packing today - just would love chill and relax today. I think I have everything packed and ready. There were a few items left on my to-do list, but I don't care at this point. Reporting for surgery tomorrow at 5:15 am! This is it!
John Morales Best of Luck Deb , we are all be saying a prayer that all goes well and you in recovery quickly , Go ... Read more
John Morales Best of Luck Deb , we are all be saying a prayer that all goes well and you in recovery quickly , God's speed please come back and let us know your ok..
John Isham Ok Deb.... we Heart Warriors have got you right now on our Radar Screen! You will have an incredible ... Read more
John Isham Ok Deb.... we Heart Warriors have got you right now on our Radar Screen! You will have an incredible number of Prayers and Support from this point forward! Our mission is to be with you Spiritually and Mentally through the Forum! Your job RIGHT NOW is to get mentally, physically and spiritually prepared for your Surgery in the morning! I had an incredible amount of “peace and serenity” inside me mentally and spiritually the morning of my surgery last Tuesday! Again... have Faith and TOTAL CONFIDENCE in your Surgeon and the entire medical/surgical team tomorrow am. Turn YOU and yourself over to them entirely; then lay down and enjoy the ride to the recovery side!
We Got You!
All our prayers are in MEGA DRIVE for you right now!
We look forward to hearing from you on the recovery side very soon!
Louanna Miller Deb, I had to be at Northwestern at 530 am for first surgery of the morning. I think it really helpe ... Read more
Louanna Miller Deb, I had to be at Northwestern at 530 am for first surgery of the morning. I think it really helped as I went to sleep at 10:30 pm and awoke at 4 am. No time to think about very much. They took me in for prep at 6 and took me into the OR at 6:50.
I’ll be praying for a successful surgery and an uneventful recovery. Be gentle with yourself we all are unique and heal differently. My journey was different than what I was told to expect. I didn’t have to be a superhero or Wonder Woman. I just walked through each step and listened to my body and the medical staff. God speed.
Susan Lynn All the best, Deb! We'll be here waiting to welcome you to recovery! You can do it!!! ❤
All the tests are done and I spoke to the gastroenterologist yesterday who cleared me for Monday's TEE and surgery. Friends have been wishing me well and praying ...Read more
All the tests are done and I spoke to the gastroenterologist yesterday who cleared me for Monday's TEE and surgery. Friends have been wishing me well and praying earnestly for me. It was amazing to hear from old friends, too, as they messaged/texted encouragement and verses.
Still a bit stressed about bras! I bought and tried some front-opening ones, but could barely get them on now let alone after surgery! There was one that was soft but so little support that I couldn't even get it hooked in front. Wondering if there is a big Velcro wrap type thing or something I should get. The girls are large and I'm afraid to go without something because I don't want my incision to be pulled.
Have been knocking things off , but also adding to my to-do list and trying to find time to just relax and chill - perhaps tomorrow !
jennifer jacobs deb I was worried about the same thing. My hospital told me they would be giving me a bra to wear. ... Read more
jennifer jacobs deb I was worried about the same thing. My hospital told me they would be giving me a bra to wear. One that does Velcro on the front and on the shoulders. Maybe they will have something. they did tell me they wanted me to wear something because, of them pulling on the incision. Praying you have a good surgery and great recovery.
Lisa Guinan My hospital gave me a velcro one as well. They put it on right after surgery. I spilled a little ju ... Read more
Lisa Guinan My hospital gave me a velcro one as well. They put it on right after surgery. I spilled a little juice on mine so they gave me another. Not a bad idea if you want more than one for when you get home.
Louanna Miller Northwestern gave me one too. Praying for a successful surgery and recovery.
leslie terjesen Good to know. I am scheduled for 2/19 and bought some of the soft bras with front enclosure and havi ... Read more
leslie terjesen Good to know. I am scheduled for 2/19 and bought some of the soft bras with front enclosure and having difficulty closing without surgery!
Amy Steele I ended up purchasing a post-surgical compression vest (bra) from WearEase. The hospital tried getti ... Read more
Amy Steele I ended up purchasing a post-surgical compression vest (bra) from WearEase. The hospital tried getting me a compression vest from Hangar which is a 'tube'. Who, especially those of us women who are more well-endowed, is shaped like a tube? I ended up wearing the vest from WearEase all the time for months. It made it much more comfortable to sleep as well... go to www.wearease.com and take a look. They're not cheap, but it made all the difference for me.
Deb Amstutz Molnar Thanks everyone for your suggestions! Sorry, I've been busy packing and not checking this site.
Debbie Moriarty For any other gals with surgery coming up.... they will def provide a post surgical bra for you. So y ... Read more
Debbie Moriarty For any other gals with surgery coming up.... they will def provide a post surgical bra for you. So you don’t really need to buy one. But here’s the deal: (and I laugh about it now) I bought a bra to take with me. After surgery (at least for me) I had so much fluid in me that I couldn’t begin to get my own fastened!! Way to tight! So I got one from the hospital (they do not want you to go any time without one!!) After a few days of diuretic and other meds, my hospital bra was hanging on me!! It was no help at all!! So I started trying out ones I had bought since they actually fit!!! 😂
I'm getting a bit frantic - so much to do before surgery! There are things that must be done and those I'd like to have done. I spent Thursday at the Cleveland ...Read more
I'm getting a bit frantic - so much to do before surgery! There are things that must be done and those I'd like to have done. I spent Thursday at the Cleveland Clinic for what I had hoped would be the final clearance appointments, but ended up having two additional tests scheduled. Which sounds easy, except they weren't able to schedule them both at one location, so I drove an hour (one way) today for a 15 minute test. I didn't have that extra time in my schedule... if it wasn't for the fatigue that I'm dealing with these days, I wouldn't be so frantic. Can't make it too many days without a nap.
In any case, the cardiologist told me yesterday that my arteries are pristine! Hooray! Thankful for that! He showed me the image of my ascending aorta compared with the back side - quite a difference in size!
Back to editing my "To Do" list!
Catie B I'm glad you're here, Deb! I had a very similar surgery to yours with an aneurysm close to the same ... Read more
Catie B I'm glad you're here, Deb! I had a very similar surgery to yours with an aneurysm close to the same size at CC in late 2016. Successful surgery, great aftercare. Great news about your clear arteries! Wishing you the best in your journey!
Rob Sparling Deb, your journey so far shows how patient and methodical you and your team are. I believe that show ... Read more
Rob Sparling Deb, your journey so far shows how patient and methodical you and your team are. I believe that shows a lot about how risk has been and will be eliminated by you and your team. So then it comes down to faith and turning it all over to God, and you seem ready for that, too! So the list of things to do is a good way to stay distracted until “go time”, right? Right! You are going to rock this!
Phyllis Petersen If it's something you really need to get done, do it. Otherwise, don't stress it or ask for help. Fin ... Read more
Phyllis Petersen If it's something you really need to get done, do it. Otherwise, don't stress it or ask for help. Find something fun to do before your surgery to take your mind off of it. CC takes care of most of the things you'll need in the hospital. I brought a loose part of pajama pants and robe for when I could walk around, a pair of slip-on sandals that the bed socks could fit in, and my cell phone (if you have a long cord for recharging that's helpful). My sister brought me my clothes when it was time to leave. I have family in Alliance, so I was able to stay there after getting out and before making the journey home to Tucson. You, thankfully, won't have that problem. Anything else you need, just ask. They really do try to make you comfortable at CC.
Sara Colosimo My big things where lip gloss, Pj pants and comfy underwear, slippers, and an extension chord with my ... Read more
Sara Colosimo My big things where lip gloss, Pj pants and comfy underwear, slippers, and an extension chord with my phone charger. I really didn’t need anything else. You got this!
Deb Amstutz Molnar Thank you all for your encouragement and suggestions! Added those missing items to my list!
Amy Goines My Aorta replacement valve is failing early as it is to small. My complete aorta is diasected and Im ... Read more
Amy Goines My Aorta replacement valve is failing early as it is to small. My complete aorta is diasected and Im being told by Cleavland Clinic they cant take care of all of it at one time. Im due to go back to Cleavland for further testing. Im so happy for you.