Suzette's Photos

EEG came back negative. My eyes were closed as they put a light show in my brain.  It was weird had a headache all day. Next test carotid.  I’m worn out I haven’t left my apartment in two days.  

Two more days and the heart monitor comes off.  I was going to get Turkey sandwich at the dinner when I open my door and saw this on my neighbors lawn .  Needless to say I changed my lunch menu.  

After everything the test couldn’t be done they blew out my veins. So I went home teary eye but now I’m like f it. I do heart monitor and if after meeting with doctor and discussing the monitoring results - if needed I let them take another stab at it

Never had stress test was ready to walk on treadmill was informed my doctor doesn’t want that so I’m sitting here waiting to go in and get my picture taken wore my sneakers for nothing. 

Bugs bunny was making fun of Elmo Fudd. He kept singing a hunting we will go a hunting we will go .  I just made up my own song and changed the lyrics to a testing we will go a testing we will go . Hi ho the merry  another a testing I will go.  Cardiologist did a test last Thursday which cause him concern had to go straight for an X-ray. Came back good.  18 vials of blood came back In range ( Dracula will be happy)  without it being too long I now have 7 more test to between cardio and neuro.  

Had a slight pity party including tears, isolation flowed with frustration. Saw cardiologist wed who did ekg. This week holster monitor. Following Monday an echocardiogram. I held off because I wanted to celebrate another birthday. Very low key with car ride to Jackson pollocks studio and house. Very slow pace. My breathing still hurts as if a board is pushing on my chest. Still lightheaded and at time dizzy. I wanted to be normal for a day.
Cardiologist indicated keep hydrated, if we don’t find anything you are going to neurologist. Since Breathing still hurts on Friday even after doing nothing. I decided this is ridiculous, took control and played the game what we can rule out.
On sat I took a shower packed a book, phone, a protein bar, in my backpack. I drove myself to the ER. I didn’t want to explain anything to family friends. So I just went. They ruled out my lungs and ruled out no blood clot in legs, ruled out my brain with a ctscan, They did echocardiogram and it appeared normal for what my normal is. They did a position blood pressure test lay down, sit up then stand up and my blood pressure dropped. So they said I had to move slow with position change 1 minute in each change should help. (orthostatic hypertension). I still know there is something wrong. But I was able to rule out a few things instead of waiting weeks hoping things don’t get worse.
I did ask about overdoing things. The cardiologist talked about commuting walk and he asked me about the time it took and it was double from what it was before ohs. He was okay with the mile walk. So even though I cut back 50% of my activity he doesn’t think I should cut back anymore because then there would be no activity. There seems to be a lot unknowns about side effects of OHs A lot of the doctors didn’t know about pump head. (So thanks to the person who mentioned that). Just doing my best to navigate through this. I got another pair of socks.