Hi, my name is Sher and I discovered Adam's amazing site last year and started to watch the presentations he arranges which have been truly educational and ...Read more
Hi, my name is Sher and I discovered Adam's amazing site last year and started to watch the presentations he arranges which have been truly educational and amazing and learning from others to determine my next steps. Today I am taking my first step in moving forward with trying to determine what I should do about Ascending Aortic Aneurysm surgery. This is the start of my journal. I hope I don't bore you but thought I would give you more context about me. I am a mom to one terrific young man and married for 44 years. I turned 66 years old March 2024. If you read my valve story, I haven't made a decision since the surgeon wanted to do elective surgery within 3 months of me seeing him in June 2023.
A lot happened at the time I met the surgeon. My Dad was admitted into the hospital the first of June and I was there everyday taking care of him and going back and forth to the hospital for my Dad and making sure my Mom was okay so was extremely busy. My Dad passed away the evening of June 26th. My Mom hadn't been tracking quite right for a week and I thought it was stress over my Dad. The morning of June 26th I sent my Mom by ambulance to the hospital. I knew my Dad would likely not be alive long so I was running up and down from emergency where Mom was and back up to where Dad was. Mom was admitted to the same floor where Dad was after he passed. I was continuously at the hospital then taking care of my Mom. Mom passed away on July 10, 2023, 14 days after Dad.
I had agreed to a Cardiac CT Scan which took place in July 2023 but just put my heart issues completely on hold with planning Celebrations of Life for my parents for September and all of the hard things like cleaning out their home and setting up estate stuff and their final graveside service. A lot of stuff.
A little bit about me: I had started a health improvement journey in 2015 just before I broke my ankle, which was severe. I had 2 surgeries on my ankle in 2015. I met my coach in 2015 to improve my nutrition, reduce stress and help me learn how to walk again. He started me slowly on resistance training with the emphasis on strengthening the ankle and learn how to walk again. But he was strengthening all areas mind, sleep, stress, eating and physical strength. In March of 2016 I found out I had Breast Cancer and that started a whole new crazy time. Surgery, radiation and now physically trying to strengthen more. My immune system was extremely low so I felt like I was trying to climb out of a very deep hole and my ankle wasn't helping me much. 2016 was pretty much a struggle year but I had a great coach and he worked with me all the way. Any heart issues I had was pretty much not on my radar screen especially since nothing was alarming and me being monitored by my physician and cardiac doctors.
I really increased my resistance training after I retired in 2019. COVID hit in 2020 and since I had a home gym continued to work out and people told me that I should tell more people about my story. I met with the with the head of the NPAA (Natural Physique Athletes Association) and they wanted me to do transformation so that I could show others that you can overcome issues and improve your health. In 2022 did my first competition in the transformation division and then in 2023 bikini and fitness. I tell you this because its important to know that I feel the best I've ever felt, in the best shape of my life, eat nutritionally (still love my chocolate covered jujubes though) and I lift heavy weights and do body weight workouts and I walk alot. I am asymptomatic for heart problems and have great blood pressure and weight is good. But, I am told there is a 2% mortality with surgery versus 7-12% risk of dissection now. I am struggling with the numbers. My Mom was 93years old when she passed. She had congestive heart failure and AFIB. She died of an embolic stroke. She had a Bicuspid Aortic Valve too.
So sorry for the long start to my journal but now you know more about me. I am now thinking about getting second opinions. My coach wants to see if other surgeons will come back with the same prognosis of doing surgery now versus later and believes I would have a great recovery because of my fitness level. Me, I am worried about complications, post strokes, dementia (my Dad), medications (I am medication free and want to stay that way) and ability to travel and compete in the future. I worked for 40 years and was taking care of my parents while I worked and fully after my retirement in 2019. Now I just want to have fun but maybe have to just wait until after surgery.
Are there others that were asymptomatic prior to having surgery? My Ascending Aorta is now 48mm. Did others get second opinions? How did you go about doing that? I am going to reach out to Adam for help on this as there are some doctors that I really resonated with from some of the presentations. How long did it take to getting back to normal life after surgery? Have others gone back to rigorous exercise post surgery? How about medication free? I so appreciate any helpful suggestions as I navigate through this and appreciate all of you! You are heart warriors!
Rose Madura You sure have been through a lot! I always recommend a second opinion. OHS is definitely a journey a ... Read more
Rose Madura You sure have been through a lot! I always recommend a second opinion. OHS is definitely a journey and we are here to help. I got a second opinion by just calling another cardiologist in a totally different practice and made an appointment for a second opinion. Then, I liked him so well, I made him my cardiologist and fired the other one. I believe he saved my life. I had a bicuspid aortic valve, an aneurysm and my surgery was replacement of the valve with a tissue valve, an ascending aorta, arch repair and root replacement. I had a lot of complications post surgery but not every one does so I don't want to scare you but it does happen. But the good news is that now, 6+ years later, I feel greater than I ever have. Recovery is different for everyone so ita difficult to put a time limit on it but I'm not out of the ballpark by saying full recovery can take up to a year. But the important thing is to not compare yourself to others. Your recovery is yours and there is no textbook answer. I am not medication free but am on a low dose 25 mg of a beta blocker Metrolpol and low dose 5 mg of amlodipine to keep BP in check. I would say I don't do rigorous exercise but I do exercise with no limitations. Hope this helps. God bless you on this journey.
Rebecca J Thank you for sharing your journey to health after broken bones and cancer and coming through your transformation. Inspirational.
I have severe Mitral Valve regurgitation and am asymptomatic. It was discovered from a murmur heard during a well exam. Who know how long I’ve had it. The diagnosing cardiologist told me I needed to have surgery, that it was urgent. I started researching, also found Adam’s amazing videos and started wondering about “urgency” and decided to get surgical consultations. I was told surgery is optional, not at all urgent, and about the success rates, etc… It’s been 6 months since my diagnosis. I took my time to research, plan, prepare and I don’t want to wait until my heart is getting irreversibly damaged.
Rebecca J Thank you for sharing your journey to health after broken bones and cancer and coming through your transformation. Inspirational.
I have severe Mitral Valve regurgitation and am asymptomatic. It was discovered from a murmur heard during a well exam. Who know how long I’ve had it. The diagnosing cardiologist told me I needed to have surgery, that it was urgent. I started researching, also found Adam’s amazing videos and started wondering about “urgency” and decided to get surgical consultations. I was told surgery is optional, not at all urgent, and about the success rates, etc… It’s been 6 months since my diagnosis. I took my time to research, plan, prepare and I don’t want to wait until my heart is getting irreversibly damaged.
Getting a second, third and even fourth opinion made all the difference to me. It took that to find a team that fits my desire to be informed and involved and like you - recovered fully and sooner than later. NOTE: Finding a team that uses the Enhanced Recovery After Surgery (ERAS) protocols aka Rapid Recovery was really important to me. I discovered that many heart surgeons aren’t part of the ERAS society - or even heard of it.
My surgery is upcoming in 5 days so I can’t answer your questions from my experience though I’m looking forward being able to. I am hoping post-recovery you’ll find me still medication free, fully active (with more energy) and back to my career that I really enjoy.
Marie Myers I was also asymptomatic with my bicuspid valve until age 62, when a routine echo showed an aortic ro ... Read more
Marie Myers I was also asymptomatic with my bicuspid valve until age 62, when a routine echo showed an aortic root aneurysm and an ascending aortic aneurysm. My aneurysm ( 48 mm) was the driving force for my surgery. For my size ( 5’ 5” and 105 lbs) , I was told that size aneurysm is large, and to do the surgery sooner, not later. So i had the valve replaced and aneurysms repaired when i was 63. The experience, although anxiety-provoking to the max, was not as difficult as my worrying mind had me believing. The hardest part was deciding whether to go mechanical or tissue. Eventually i chose a tissue valve and am in my 8th year with my bovine friend. . I am back to playing pickleball, tennis, yoga, Pilates, and a little horseback riding. I am on a beta blocker, a statin, and a baby aspirin since my surgery. I do not mind the medications, since i am used to taking several supplements anyway. Hope my story helps you in your journey!
Susan Lynn Sher - I'm so sorry to read about the loss of your parents and all that you've been through. I thin... Read more
Susan Lynn Sher - I'm so sorry to read about the loss of your parents and all that you've been through. I think almost everyone on this site will advise you to get multiple opinions. Timing is probably the biggest question when it comes to having heart surgery and that judgment call can vary from one surgeon to the next. The only thing we do know is that valve issues don't get better on their own. Do your research, make an informed decision, and you'll feel more confident when the big day does arrive. Best of luck to you!
Larry Peterson Hi Sher- my ascending aortic aneurysm was about 48mm and my bicuspid aortic valve was labeled moderat ... Read more
Larry Peterson Hi Sher- my ascending aortic aneurysm was about 48mm and my bicuspid aortic valve was labeled moderate to severe stenosis when I had my surgery done last November. My surgeon's advice was "let's get this done before you are in full-blown heart failure". I believe my surgery and hospital stay were shorter and less painful because I was in relatively good shape. Then you have to face recovering from a sternotomy: doesn't really matter how fit you are, just takes time and patience. Be prepared for at least a 3 month recovery (maybe more) before you are weightlifting. Good luck!
Sue Maize Hi Sher, I am amazed by all you have endured over the past few years and my prayer for you is that yo ... Read more
Sue Maize Hi Sher, I am amazed by all you have endured over the past few years and my prayer for you is that you will find the right strategy for you with the right person. Enjoying these years after caring for others and going through your own health challenges is something to hold on to. I have a different diagnosis but I agree that other opinions can bring tremendous peace of mind. I, too, am Canadian, and my initial thought was to just go with whoever my cardiologist referred me to—that’s generally how our system works. But just because our healthcare is covered, does not mean we need to settle for whatever is offered to us. I ended up discovering a whole different surgery than the one initially presented to me, and this has lead to consultations with 2 other surgeons, one of whom I found on this site! Our peace of mind is so important—my gp looked a bit askance at me when I told her I was seeking other opinions, but quickly changed her tune when I said, “this is my only heart and if I can shop around for a car or a new cell phone, surely that’s the least I can do for my health!”. Self-advocacy is critical. Please keep sharing your journey with us, I’d love to hear what happens next. 💕🙏🏻
Sher Follett Thank-you to everyone for your kind words, encouragement and things for me to think about. I probably ... Read more
Sher Follett Thank-you to everyone for your kind words, encouragement and things for me to think about. I probably am not navigating the site correctly and probably need to put things in the news feed because I don't know how to respond to each of you individually but know I really have appreciated your comments!
Rebecca J Yeah Sher, I can’t find a way to individually respond either but to do it in the same thread or on ... Read more
Rebecca J Yeah Sher, I can’t find a way to individually respond either but to do it in the same thread or on their own journal.
A lot happened at the time I met the surgeon. My Dad was admitted into the hospital the first of June and I was there everyday taking care of him and going back and forth to the hospital for my Dad and making sure my Mom was okay so was extremely busy. My Dad passed away the evening of June 26th. My Mom hadn't been tracking quite right for a week and I thought it was stress over my Dad. The morning of June 26th I sent my Mom by ambulance to the hospital. I knew my Dad would likely not be alive long so I was running up and down from emergency where Mom was and back up to where Dad was. Mom was admitted to the same floor where Dad was after he passed. I was continuously at the hospital then taking care of my Mom. Mom passed away on July 10, 2023, 14 days after Dad.
I had agreed to a Cardiac CT Scan which took place in July 2023 but just put my heart issues completely on hold with planning Celebrations of Life for my parents for September and all of the hard things like cleaning out their home and setting up estate stuff and their final graveside service. A lot of stuff.
A little bit about me: I had started a health improvement journey in 2015 just before I broke my ankle, which was severe. I had 2 surgeries on my ankle in 2015. I met my coach in 2015 to improve my nutrition, reduce stress and help me learn how to walk again. He started me slowly on resistance training with the emphasis on strengthening the ankle and learn how to walk again. But he was strengthening all areas mind, sleep, stress, eating and physical strength. In March of 2016 I found out I had Breast Cancer and that started a whole new crazy time. Surgery, radiation and now physically trying to strengthen more. My immune system was extremely low so I felt like I was trying to climb out of a very deep hole and my ankle wasn't helping me much. 2016 was pretty much a struggle year but I had a great coach and he worked with me all the way. Any heart issues I had was pretty much not on my radar screen especially since nothing was alarming and me being monitored by my physician and cardiac doctors.
I really increased my resistance training after I retired in 2019. COVID hit in 2020 and since I had a home gym continued to work out and people told me that I should tell more people about my story. I met with the with the head of the NPAA (Natural Physique Athletes Association) and they wanted me to do transformation so that I could show others that you can overcome issues and improve your health. In 2022 did my first competition in the transformation division and then in 2023 bikini and fitness. I tell you this because its important to know that I feel the best I've ever felt, in the best shape of my life, eat nutritionally (still love my chocolate covered jujubes though) and I lift heavy weights and do body weight workouts and I walk alot. I am asymptomatic for heart problems and have great blood pressure and weight is good. But, I am told there is a 2% mortality with surgery versus 7-12% risk of dissection now. I am struggling with the numbers. My Mom was 93years old when she passed. She had congestive heart failure and AFIB. She died of an embolic stroke. She had a Bicuspid Aortic Valve too.
So sorry for the long start to my journal but now you know more about me. I am now thinking about getting second opinions. My coach wants to see if other surgeons will come back with the same prognosis of doing surgery now versus later and believes I would have a great recovery because of my fitness level. Me, I am worried about complications, post strokes, dementia (my Dad), medications (I am medication free and want to stay that way) and ability to travel and compete in the future. I worked for 40 years and was taking care of my parents while I worked and fully after my retirement in 2019. Now I just want to have fun but maybe have to just wait until after surgery.
Are there others that were asymptomatic prior to having surgery? My Ascending Aorta is now 48mm. Did others get second opinions? How did you go about doing that? I am going to reach out to Adam for help on this as there are some doctors that I really resonated with from some of the presentations. How long did it take to getting back to normal life after surgery? Have others gone back to rigorous exercise post surgery? How about medication free? I so appreciate any helpful suggestions as I navigate through this and appreciate all of you! You are heart warriors!
I have severe Mitral Valve regurgitation and am asymptomatic. It was discovered from a murmur heard during a well exam. Who know how long I’ve had it.
The diagnosing cardiologist told me I needed to have surgery, that it was urgent. I started researching, also found Adam’s amazing videos and started wondering about “urgency” and decided to get surgical consultations. I was told surgery is optional, not at all urgent, and about the success rates, etc… It’s been 6 months since my diagnosis. I took my time to research, plan, prepare and I don’t want to wait until my heart is getting irreversibly damaged.
... Read more
I have severe Mitral Valve regurgitation and am asymptomatic. It was discovered from a murmur heard during a well exam. Who know how long I’ve had it.
The diagnosing cardiologist told me I needed to have surgery, that it was urgent. I started researching, also found Adam’s amazing videos and started wondering about “urgency” and decided to get surgical consultations. I was told surgery is optional, not at all urgent, and about the success rates, etc… It’s been 6 months since my diagnosis. I took my time to research, plan, prepare and I don’t want to wait until my heart is getting irreversibly damaged.
Getting a second, third and even fourth opinion made all the difference to me. It took that to find a team that fits my desire to be informed and involved and like you - recovered fully and sooner than later. NOTE: Finding a team that uses the Enhanced Recovery After Surgery (ERAS) protocols aka Rapid Recovery was really important to me. I discovered that many heart surgeons aren’t part of the ERAS society - or even heard of it.
My surgery is upcoming in 5 days so I can’t answer your questions from my experience though I’m looking forward being able to. I am hoping post-recovery you’ll find me still medication free, fully active (with more energy) and back to my career that I really enjoy.