Bicuspid Aortic Valve, Joined April 22, 2023
Bicuspid Aortic Valve
Joined April 22, 2023
Kathryn Wylde
Mitral Regurgitation
March 4, 2025
divya gangadharan
Mitral Regurgitation
March 4, 2025
Ellen S.
Mitral Regurgitation
March 5, 2025
Dr. Luis Castro is a leading cardiac surgeon who specializes in minimally-invasive heart valve surgery.
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After watching a presentation by Dr. Kevin Hodges and Dr. Patrick McCarthy of Northwestern in Chicago I sent a note off to Dr. Hodges for a second opinion. I started the process to fill out the many forms Northwestern required and I sent over my lab data and CTScan and MRI results/pictures. Unfortunately they wanted the actual pictures so I had to go back to our medical system to try and get there admins at Northwestern to have access to the data. They were having a problem with our platforms and were timed out of our system for security reasons. The admins were going to get their IT specialists to access the data but at the time I was just waiting for another CTScan so we were going to wait until that was done so they had the latest information. CTSCan was scheduled for October 2024. I live in Calgary Alberta Canada so going to the US for an opinion and possible surgery I would have to pay for it myself.
In the meantime, I saw something about the South Health Campus Complex Aorta Program here in Calgary and my husband's vascular surgeon and our friend (we live in the same City and our kids went to school together) Dr. Randy Moore is a team member on the program. I asked my GP since I know Randy to see if she could refer me to the Complex Aorta Program. Only people with complex aorta surgeries are admitted to this program. My husband and I met with Dr. Moore (he's a vascular surgeon that worked on my husbands leg blood clot), Dr. Robert Scott McClure (Cardiac Surgeon), RN, other doctors top talk about by heart issues. They would not let me leave unless I agreed to surgery because of my size and my aorta size.
This started a a whole bunch of more lab testing, the CTSCan and TEE (Transesophageal Echo). Some interesting things came out of the TEE including a PFO with left to right shunt and a hypermobile septum. So far it looks like the valves are okay and do not need to be fixed.
I do not have my surgery date yet but was told as soon as I have the pre-admission clinic that I would get a call with my surgical date. They originally said surgery late February once pre-admission clearance. The have to give me 14 days notice to stop certain things 14 days prior to surgery. On Monday I have all my surgery labs done and on Tuesday February 11th I was at the pre-admission clinic for the afternoon going over everything, meeting the anethesiologist and nurses etc. What a great anesthesiologist. He took the time to explain everything and answer my bazillion questions. I felt much better after that. Anxiety has been higher but my coach has given me mobility exercises to help with that along with my training program. I still train and lift weights but everything is controlled. If I experience any symptons I have a direct line to call.
S