2 Years Ago Yesterday -
2 years ago yesterday I went in to replace a bum heart valve and met with quite an adventure.
3 hours after a very successful ...Read more
2 Years Ago Yesterday -
2 years ago yesterday I went in to replace a bum heart valve and met with quite an adventure.
3 hours after a very successful surgery, my heart rolled over and put kink my coronary artery. A very rare and completely unavoidable accident. Don't let that scare you - while you need to make sure you take care of things, the odds of something like that happening are truly a billion to 1. On April 7th they gave me 50% chance to survive and were putting me on ECMO.
4 months later I was home.
I'm doing fabulously and the journey back to everyday-mostly-normal has been uneventful in the health department.
I take a single baby aspirin before bed and that's it for medicine.
I like to live while sitting. Getting me up and moving around is a challenge - but then - I hear my heart beat when things are quiet and it reminds me I need to lose some weight.
My husband, David is thinking of writing a book about our adventures - could never compete with beloved Adam Pick, but his story is informative and has been really helpful for me while I advocate for my father who had a stroke recently.
I wake up feeling good and so very thankful every day (no bs here, every single morning), with my champion, David, by my side. Thanks again to him for keeping up with me, my journal and reaching out to you guys for support.
I am convinced your thoughts and prayers brought me back home.
106 Days of Hospital Life. Retrospective highlights.
Re-learning to sit up.
Re-learning roll over.
Re-learning to stand.
Re-learning to walk.
Constant companions: Ice Chips,Spoon & Yonker.
Spectacular hallucinations
Heparin shots in the belly
Delcolax: Wow, that was fast!
Ever changing Nursing staff
Explaining history of events over and over and over.
Sponge baths: brrrrr
Tape glue everywhere
Vicky the wound care nurse: The BEST!
Ticket to Ride on Steam.
How can you ruin scrambled eggs?
Joining Facebook.
puuhleeese shut off that alarm!
Day 86: First shower
Day 106: Home. The journey back to 'normal' began.
Clare Auten Wow. Robin I remember your journey so well and prayed for you everyday. So glad life is mostly normal ... Read more
Clare Auten Wow. Robin I remember your journey so well and prayed for you everyday. So glad life is mostly normal for you. So good to see an update from you. Take care!
Rhonda Rawles Wow, I do remember your story very well. Both you and I had very non traditional recoveries and exte ... Read more
Rhonda Rawles Wow, I do remember your story very well. Both you and I had very non traditional recoveries and extended hospital stays, only my hospital stay was about half of yours. I'm very fortunate to be here today and try to live every day remembering how blessed I am. It is good to share as others need to know that even though things can get very bad, there is life on the other side. So good to hear from you!
Barbara Wood That was an adventure! So good to hear that you are doing well!
Pat Bluemel I remember reading the updates from David back when, what an experience, so glad to read your update! ... Read more
Pat Bluemel I remember reading the updates from David back when, what an experience, so glad to read your update!
Catie B My word, what an ordeal! Good to read your update and know that things are better.
Barbara Laurie Hi Robyn, I'm sorry I missed your story Heart sister!
What an ordeal! My husband Dave and I marvel, ... Read more
Barbara Laurie Hi Robyn, I'm sorry I missed your story Heart sister!
What an ordeal! My husband Dave and I marvel, since my stay of 100 days was plenty for me!! I was sedated for over two weeks and I understand learning to move again, so very hard. I used to joke with my nurses and staff that I was a T-Rex since it was a week before I finally moved my arms, but only at the elbows.😄 Anyway YOU are a miracle! I find walking so very difficult, even in Cardiac Rehab I did my exercise sitting. I am on Oxygen 24/7 so getting around takes me a someone else to drag my bottle, until I'm stronger. My friend has committed to walking me twice a week, so that's a huge help. I never thought I'd be the one asking for so much help, it's humbling. All of your list is SO TRUE. I often would get a whiff of those eggs and weep with sorrow. I often went to sleep hungry, but I tried to remember, if my Dad ate in the Navy, on a Sub, in the 40's-60's then I can shovel down this stuff☄️😄It helped. Best Regards Robyn, thanks for your post! 💕🌿
Today will be the 6th month anniversary of my heart valve surgery.
Here is an update:
One of my physical therapy goals is to walk on a treadmill so I ...Read more
Today will be the 6th month anniversary of my heart valve surgery.
Here is an update:
One of my physical therapy goals is to walk on a treadmill so I can eventually go to and complete Cardio rehab. I started walking on the treadmill at physical therapy last week! I do PT 3 days a week in the morning. My stamina and endurance are pretty low. Cardio Rehab will improve this!
I'm walking on a quad-cane - which is slow but steady.
MRI (For the eyes) revealed no continuing vision loss, but is not expected to improve. They think that loss of blood flow to the brain was the cause.
My kidneys are functioning at 27%. While this may seem horrible, it WAS just 12% (just above dialysis) when I was discharged on the 21st of July. The kidney Dr feels this will be the peak of improvement. We are hoping some non-Western medicine may give me back some percentage points.
My right foot is wearing an AFO brace for the drop-foot and I still don't have any feeling in the foot except for nerve pain, which sucks. Also still numb in the left thigh. The Dr who did the nerve conduction study feels that the thigh numbness is permanent and guesses it was caused by the severing of that nerve during surgery. The drop-foot (right foot) is also likely a permanent feature (No nerves to enervate the muscle), but said to give it a year. Again, we hope non-Western medicine can improve this.
Gene Krantz: What have we got on the spacecraft that's good?
Sy Liebergot: errrm... I'll get back to you Gene.....
No more wounds! All healed finally.
I'm back to work full time (Since August 24th). Save for lots of on-going Dr. appointments which are finally tapering off.
I'm learning to drive by way of hand controls. I tried left-footed driving, but the left leg is still too weak to brake fast enough and the right leg is a wash out. While driving around with hand controls is a mind blow - my Occupational therapist seems to have a lot of confidence in me, explaining that I know how to drive, I just have to teach my brain to handle these controls. I panicked twice during the test drive and tried to punch the brake like I would normally, but was able to stop the car correctly with the braking hand control before it was too late. We get those installed in my car on the 14th. Extremely liberating!! And David won't have to haul me everywhere.
I don't seem to have any cognitive damage. Which is miraculous. I still don't know - what I don't know - and while I don't remember anything from April 6th to May 20th- that is just as well, frankly. With a few exceptions that whole 7 weeks is gone.
It's not gone for David; however.... I think he may have some on-going stress from the event. It's understandable - sudden, unexpected horrible events over and over......and now there are many demands on him and he's still got his hands full. But he's getting help.
He expressed concern about *my* having PTSD. When I was laying helpless in my hospital bed I thought often about what disasters would leave me to rot there. But that's just from living in California for 20 years and being so earthquake aware. I go through periods of being sad or angry, but mostly - I'm A-OK - looking to press forward.
I have come a long way since April the 7th and even farther since July the 21st.
I understand this was better posted as the events unfolded. I will do better.
Thanks again for your prayers and good thoughts.
Clare Auten So good to hear from you. I think of you and David often. It sounds like you have made progress and ... Read more
Clare Auten So good to hear from you. I think of you and David often. It sounds like you have made progress and have a positive outlook. You have my continued prayers.
Gerald Schaffer Thanks for the update, I've been wondering how you have been doing. I'm sorry that some of your issue ... Read more
Gerald Schaffer Thanks for the update, I've been wondering how you have been doing. I'm sorry that some of your issues may be permanent. I hope some of your planned alternative treatments will help you.
Jason Lathrop So wonderful to read your spirit and strength come through. We had our surgeries the same day and my ... Read more
Jason Lathrop So wonderful to read your spirit and strength come through. We had our surgeries the same day and my wife and I followed your reversals and progress on this site closely. God bless you, Robyn. May you and David enjoy many wonderful days.
Tim Goff Robyn, how great to hear from you and the fact that you have made such miraculous progress. Your will ... Read more
Tim Goff Robyn, how great to hear from you and the fact that you have made such miraculous progress. Your will and strength, and that of David's is simply amazing. I am headed to Atlanta in a few weeks and while trip planning was thinking of you both.
Tammy Pilcher Robyn, I am in awe of your strength. You and David are in my prayers for continued progress. God bl ... Read more
Tammy Pilcher Robyn, I am in awe of your strength. You and David are in my prayers for continued progress. God bless you both!
Eddie Patton Great to get an update. I would say keep fighting but considering how far you have come no need, you ... Read more
Eddie Patton Great to get an update. I would say keep fighting but considering how far you have come no need, you are obviously a fighter by nature.
Robert Osmachenko So happy for you, Robyn. I followed David's posts and several times it brought a tear to my eye. It ... Read more
Robert Osmachenko So happy for you, Robyn. I followed David's posts and several times it brought a tear to my eye. It was really intense.
I'm guessing it will take some time to re-balance after this event and glad you can talk about it and share.
I'm glad you are using "alternative therapies" as they are often called. I would like to hear more.
Take care with prayers aloft for you and David.
Shirley Turner Dear Robyn I have only recently joined this wonderful community and I wanted to get to know you so I ... Read more
Shirley Turner Dear Robyn I have only recently joined this wonderful community and I wanted to get to know you so I just caught up with all your posts during your very difficult journey. I am so pleased you are now doing well. I am very sorry this all happened to you and for you to come out the other side is nothing short of a miracle. Hugs Shirley
Enrique K I wish you the best moving forward. Joining this community has been very encouraging and getting upda ... Read more
Enrique K I wish you the best moving forward. Joining this community has been very encouraging and getting updates from everyone is what we all need to help each other. Take Care and keep up the progress.
Ginger Marine Robin, glad to hear about you. I had a little complication (nothing like yours) but I feel sad that ... Read more
Ginger Marine Robin, glad to hear about you. I had a little complication (nothing like yours) but I feel sad that my daughters had to experience it. I wish I could undo that for them. They are both women of faith, but I wish they had not had to deal with it. However, now we are enjoying and savoring our time so much, and I am so thankful to everyone who encouraged and cheered them while I was recovering.
Elaine Cutri It sounds like your are making great progress now. I'm newer to the group so I went back and read you ... Read more
Elaine Cutri It sounds like your are making great progress now. I'm newer to the group so I went back and read your journal. You and David have a wonderful love story. Hugs and prayers, Elaine
Patrick Kennedy Robin, your consistent positive attitude, perseverance and general awesomeness has been an inspiratio ... Read more
Patrick Kennedy Robin, your consistent positive attitude, perseverance and general awesomeness has been an inspiration to me for months now. You are simply a badass!
The dialysis catheter is gone! They took it out this morning and I was a real baby about it, too. I held David's hand.
Hey! No complications - how refreshing! ...Read more
The dialysis catheter is gone! They took it out this morning and I was a real baby about it, too. I held David's hand.
Hey! No complications - how refreshing!
Tomorrow the pic line gets removed, we load my new equipment in to the car, and I go home. I wonder if I can sleep without falling asleep to Law & Order?
Your prayers helped me get this far and I can't say enough about this site and it's educational, outlet, supportive aid. Thank you, thank you. More from the home front.
Terrie Syvertsen Wonderful to read about the catheter being removed! One less thing to take home with you(Ha?). Seriou ... Read more
Terrie Syvertsen Wonderful to read about the catheter being removed! One less thing to take home with you(Ha?). Seriously great news and the thought of you and David packing up tomorrow is a sweet one. Can't wait for you to get settled in and continue your healing and recovery AT HOME! Prayers for a safe departure and
a gentle re-entry home. Happy for you both. Be well........
Tammy Pilcher Praise the Lord! So happy you're almost home, Robyn! What a journey you've had, heart sister! You' ... Read more
Tammy Pilcher Praise the Lord! So happy you're almost home, Robyn! What a journey you've had, heart sister! You're a Superhero!! God bless you!
Nancy D Prayers continue for you and David for renewed energy at home and complete recovery ahead!!! You are ... Read more
Nancy D Prayers continue for you and David for renewed energy at home and complete recovery ahead!!! You are doing so fabulously!!!!!!!! Keep up the great progress!
Barry Van Gemert So great to see you pull through and finally head home. Congratulations with a capital C!
Gerald Schaffer Congrats, I'm so happy for you. Your fight to get to this point is inspirational.
Elaine Foster Such good news! You are a warrior, and you inspire all of us. May our Heavenly Father continue to h ... Read more
Elaine Foster Such good news! You are a warrior, and you inspire all of us. May our Heavenly Father continue to help you with everything you need.
Adam Pick A big, huge, incredible, extraordinary, vast, expansive, wonderful, thankful, happy, appreciative and ... Read more
Adam Pick A big, huge, incredible, extraordinary, vast, expansive, wonderful, thankful, happy, appreciative and amazing sigh of..... relief. My thoughts and prayers continue with you and all those around you and David. Hallelujah!!
Lewis Garlisi Great news Robyn. Sounds like your wrapping up the worst chapters of your long ordeal.
Congratulations. You have been such an inspiration and a great teacher to us all. You taught us th ... Read more
Congratulations. You have been such an inspiration and a great teacher to us all. You taught us the true meaning of recovery. Thank you for sharing your journey with us. Prayers to you for a safe trip home and for a full recovery as you begin the next chapter of your life.
Lora Lee Peterson You go girl! You were just starting your journey when I found this site, and I waited for David's re ... Read more
Lora Lee Peterson You go girl! You were just starting your journey when I found this site, and I waited for David's reports daily! I found your story to the greatest love story ever, and the greatest story with a never give up ring to it! Thank you for sharing such a personal journey!
Terry Shermeister Hi Robyn, I'm the ZZ-Top guy and have followed you along the way. Thank God you have come so for and ... Read more
Terry Shermeister Hi Robyn, I'm the ZZ-Top guy and have followed you along the way. Thank God you have come so for and for your wonderful David. Two weeks after my MVR my son and I went to John Mellenkamp here in Madison. It was a great concert, but I was very tired. We parked the car about 4 blocks away and I remember how hard it was trying to walk be to the car. I'm so grateful that I'm regaining my strength and healing. What a summer huh!!! Hugs to you.
Cheryl Batzing Robyn, you are so brave! I shed many tears myself...but you were so much braver than I was....and so ... Read more
Cheryl Batzing Robyn, you are so brave! I shed many tears myself...but you were so much braver than I was....and so glad God has carried you this far! Prayers for continued healing & going home.
Ann Keating So glad to hear this news. You and David have truly been an inspiration!
This is day 100 of hospital life. I spent Occupational therapy in the beautiful hospital garden picking bush beans and tomato's and herbs.
I got the word ...Read more
This is day 100 of hospital life. I spent Occupational therapy in the beautiful hospital garden picking bush beans and tomato's and herbs.
I got the word today that they will send me home on Tuesday. (The 21st) I have the same feeling I did when I moved to this facility, "But, I"m not ready...." but I guess they think I'm ready. Although home seems still a long way away, I am quite ready to be home. David will join me in therapy with me on Friday and we will learn how to get me up off the floor (should I fall) and how to get in to the car. There will be an in-home nurse who'll stop by as needed and an in home therapist to help me get used to my equipment at home (wheel chair, walker, bedside toilet....)
My groin wound is a spec and a band-aid. All healed. Not a miracle but dang close.
And although I don't want to jinx anything, my kidneys are showing signs of life and they are going to take out the dialysis catheter on Friday. This may be a miracle.
Homeword bound!
Tim Goff Great news Robyn! You are an inspiration to so many here and no doubt there at home also. I wish you ... Read more
Tim Goff Great news Robyn! You are an inspiration to so many here and no doubt there at home also. I wish you continued progress and happiness.
Kimberly Biddick Such wonderful news!!!!! So happy for you Robyn!!!!!
Nancy D Great news!!! You will do well, it will seem hard at first but there is nothing you and David can't f ... Read more
Nancy D Great news!!! You will do well, it will seem hard at first but there is nothing you and David can't figure out and work through!! You have made so many milestones, I have no doubt you will succeed at home!! Continue to rest some, and progress will be wonderful once home!! Keep on with the forward progress! Prayers continue for a full recovery!!
Kelly Weisgarber Great news Robyn. So happy for you. I pray you get stronger every day!
Rhonda Rawles Whoo hoo! I know this is a bit scary for you but with each passing week you will become more and mor ... Read more
Rhonda Rawles Whoo hoo! I know this is a bit scary for you but with each passing week you will become more and more comfortable with the new you.
Clare Auten Wow. What a long journey you and David have been on. I am sure you will be glad to get home.
Tammy Pilcher You are a superhero, Robyn! Prayers for continued progress! God bless you!
Bob M Yes, it is truly a miracle! God bless! Your recovery reminds me about my favorite verse from my favor ... Read more
Bob M Yes, it is truly a miracle! God bless! Your recovery reminds me about my favorite verse from my favorite song from Kutless: "I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do."
Jim Kelly-Evans Glad to read your good news! Best wishes for a continued recovery.
Lora Lee Peterson I am amazed at your progress. You are such an inspiration to all of us, and I'm so happy for you and ... Read more
Lora Lee Peterson I am amazed at your progress. You are such an inspiration to all of us, and I'm so happy for you and David that you are able to go Home!!
Cheryl Batzing So glad to hear our great news on going home, Robyn. You and David continue in my prayers for healing ... Read more
Cheryl Batzing So glad to hear our great news on going home, Robyn. You and David continue in my prayers for healing & recovery!
Robyn asked me to copy today's Facebook post:
7/4/15 Saturday
Tomorrow will be day #90 since Robyn had her surgery and day 7 since transferring to the inpatient ...Read more
Robyn asked me to copy today's Facebook post:
7/4/15 Saturday
Tomorrow will be day #90 since Robyn had her surgery and day 7 since transferring to the inpatient rehab unit.
What a journey it has been.
I don't know if "thriving" is a term used for people in hospitals, but Robyn is doing very well in this, her last, hospital location.
Robyn has a schedule each day. This alone makes such a difference. Instead of laying in a bed waiting to see who may come in, she sets her alarm, and knows what is going to happen and when. She does 3 or more hours of therapy each day. Part of her therapy is getting dressed, transferring to and from the wheel chair, eating in the group cafeteria area, taking a shower, standing and even walking within the parallel bars. She still needs various levels of help with most of these task.
They rate the amount of help needed in 25% increments. So for some tasks, she needs 75% help and for others she needs only 25% help. It is a big deal when the therapist upgrade her assist rating from full, to moderate to minimum to none.
Dialysis is continuing but she is skipping some scheduled appointments as her kidneys are starting to show signs of working.
The big wound on her left leg is just a small surface sore. The muscle that was removed will never grow back so it will take a while to build up the remaining muscles in the leg to compensate.
The wound on her right foot, and the drop foot issue is still a problem. Being the last thing to heal has moved it into the #1 spot of frustration. But something had to be the last thing to get better.
Moving out of here is still evaluated every day. But we think she only has about 2 weeks left before she gets sent home. She will still have therapy; both in home and out-patient, and she will still have a lot of work and rebuilding of her body to do. But just as the move here has made such a difference, coming home will bring an exponential improvement.
We are having a 4th of July slumber party and making a list of places to eat at once Robyn is able to get around. The last day at the hospital includes a 4 hour training session for us both doing transfers in and out of the car. Based on the list of places Robyn wants to go to, we will be using those skills often.
Cheryl Batzing David and Robyn, continued prayers for you guys! Such great news Robyn is doing more and more for her ... Read more
Cheryl Batzing David and Robyn, continued prayers for you guys! Such great news Robyn is doing more and more for herself.
Clare Auten Glad you are enjoying your fourth. So happy to hear that the new facility is working out. Can't wait ... Read more
Clare Auten Glad you are enjoying your fourth. So happy to hear that the new facility is working out. Can't wait to read the post about Robyn going home.
Bob M Home is where Robyn's fixed heart is. She is getting better day by day. God bless and rise up!
Continuing prayers for strength and healing. So glad you had fun on the 4th.
Nancy D my prayers join the others, and continue as you both are such a source of inspiration, and Love!! Th ... Read more
Nancy D my prayers join the others, and continue as you both are such a source of inspiration, and Love!! Thanks for the update, I was just wondering about Robyn's progress. Praying for complete recovery! Going home will do the heart, mind and spirit a world of good!!
Eleanor R That is the best thing ever, to be taught how to get in and out of the car, in preparation for going ... Read more
Eleanor R That is the best thing ever, to be taught how to get in and out of the car, in preparation for going home. So glad you both are doing well, and will continue to thrive at home. Eleanor
Gerald Schaffer So glad your kidneys are starting to respond. Hopefully your leg strength returns soon and you can be ... Read more
Gerald Schaffer So glad your kidneys are starting to respond. Hopefully your leg strength returns soon and you can become more mobile. Keep on fighting, you've done great so far.
Tammy Pilcher Prayers for y'all on continued recovery! God bless you both!
Tim Goff Thank you for the update. You are both continually in our thoughts and prayers. I've got some great r ... Read more
Tim Goff Thank you for the update. You are both continually in our thoughts and prayers. I've got some great reccomendations for restaurants in ATL when Robyn is ready. You both deserve a real treat!
I've been only a fair weather visitor to the site that last few days
I have landed at the new facility and already I'm a busy bee. This is definitely a ...Read more
I've been only a fair weather visitor to the site that last few days
I have landed at the new facility and already I'm a busy bee. This is definitely a step up in rehab. We started at 7:30 this morning with transferring to wheel chair, getting dressed and washed up and them moving to the gym. THey gym area is very close to my room so I hear therapists working with the other patients. There are only about 13 of us in rehab right now.
NOt a lot of laying around time what with meals and rehab. I am finally back in bed at 2pm after a full morning. I have occupational and physical therapies.
Occupational involves pulling pony beads out of a big glob of silly putty and putting pegs in holes. Getting to the toilet (still a huge goal. )
Physical therapy has to do with strength, endurance, standing up, walking. Etc.
I took 3 steps today. I was helped by the therapist (David was there watching) and I do consider this some forward progress. I still have a ways to go.
The one thing I can do to pay David for his hard work is to kick butt at therapy and get home asap!!
we get to eat together in a common room. It has forced me to eat slowly and concentrate on not being sick. I hated the food so much at the last place i threw up a good portion of it. and was constantly nau-shuss! I think the problem my finally be behind me as I've enjoyed the last meals quite a bit.
So. Here's to taking a little rest now.
to be continued ................
Oh, and I will try to take my first shower tomorrow. Complete with washing my hair. !!!
Wonderful progress, Robyn! I would be elated to have taken three steps, after all you've been through ... Read more
Wonderful progress, Robyn! I would be elated to have taken three steps, after all you've been through!
Sounds like they are keeping you extremely busy!
I remember not feeling rested until I got home.
I'm glad your more recent meals have been enjoyable for you.,
Awesome about your first shower & hair washing, tomorrow! Enjoy!
God is Good! Keep your positive attitude!
Lora Lee Peterson That is awesome, Robin! You continue to be an inspiration to me!
Tammy Pilcher Robyn, I'm so happy you're doing so well! You are so strong and like Pamla and Lora Lee said, your p ... Read more
Tammy Pilcher Robyn, I'm so happy you're doing so well! You are so strong and like Pamla and Lora Lee said, your positive attitude is an inspiration! God bless you!
Lewis Garlisi Busy is good. Your rehab is a full time job now. Best wishes for you and David, and God bless.
Clare Auten Busy is great and being tired because you worked hard will feel good too. Glad the food is better. I ... Read more
Clare Auten Busy is great and being tired because you worked hard will feel good too. Glad the food is better. It will feel great to wash your hair....yeah! Take care.
Rhonda Rawles Sounds like a full day indeed which is what you need. You want a facility that will schedule your da ... Read more
Rhonda Rawles Sounds like a full day indeed which is what you need. You want a facility that will schedule your day pretty full to keep you moving forward and it sounds like they are doing just that. I have no doubt that your next post will have even more accomplishments to you have achieved. Keep up the great work!
Gerald Schaffer Sounds like good news to me. From what you describe this place means business and will get you up and ... Read more
Gerald Schaffer Sounds like good news to me. From what you describe this place means business and will get you up and moving as well as doing what is needed to get you back home. Good luck with your next phase of recovery.
Janice Powell Sounds great Mrs.Robyn get well soon bless you
Bob M Awesome progress heart sister. You are feeling better day by day! Amen!
Tim Goff Great to hear of your progress, it is inspiring! I hope all continues to move in the right direction. ... Read more
Tim Goff Great to hear of your progress, it is inspiring! I hope all continues to move in the right direction.
Looks like I'm graduating to a new facility for a more intense rehab. Same hospital setting with dialysis and wound care - but the focus is on rehab and getting ...Read more
Looks like I'm graduating to a new facility for a more intense rehab. Same hospital setting with dialysis and wound care - but the focus is on rehab and getting my body bits back to functioning. I'm excited enough to have not gotten any sleep last night - but I'm also a little anxious about my readiness. Two things are for sure. I can't lay around here much longer and I really would love to go home.
And...... who's going to wash my hair? ...To be continued.
Susan Bach If I was there, I would wash your hair ! God bless you !
Hang in there, sounds like your new rehab will be helping you get back to where you need to be. Pray ... Read more
Hang in there, sounds like your new rehab will be helping you get back to where you need to be. Praying for comfort and peaceful sleep.
Gerald Schaffer Best of luck Robyn. Hope they get all the parts working so you get to go home.
Barry Van Gemert Robyn, you have been through a lot. Looking where you are today you are clearly on your way home. It ... Read more
Barry Van Gemert Robyn, you have been through a lot. Looking where you are today you are clearly on your way home. It may take longer than you want, but you are headed home.
Tammy Pilcher Robyn, I'm so glad you are getting better and better! You are such an inspiration to everyone! I st ... Read more
Tammy Pilcher Robyn, I'm so glad you are getting better and better! You are such an inspiration to everyone! I still say you are SuperWoman! God bless you!
Bob M Great news. Feeling better day by day. Amen!
Clare Auten It won't be long before you will be washing your own hair at home! You and David have amazed and insp ... Read more
Clare Auten It won't be long before you will be washing your own hair at home! You and David have amazed and inspired many of us.
Rhonda Rawles Steps in the right direction for sure. My best advice is to push yourself but find the balance witho ... Read more
Rhonda Rawles Steps in the right direction for sure. My best advice is to push yourself but find the balance without over doing it. By the time I made it to rehab I was anxious like you to go home and so I did whatever was asked and then some, resulting in a much shorter time there. The best part of rehab is feeling like you are contributing to the recovery process. Hope you get a hair wash soon, that alone will make you feel amazing I am sure!
Lewis Garlisi Congratulations on your graduation! I agree with Rhonda and others above, challenge yourself only sl ... Read more
Lewis Garlisi Congratulations on your graduation! I agree with Rhonda and others above, challenge yourself only slightly. Patience is key (not that you haven't been very patient already). I had a setback when I tried to go back to work too soon. Get David to wash your hair :-).
For those of you with surgery tomorrow. The worst part of your journey is almost over! Wishing you the best and praying for your peace of mind and your fast ...Read more
For those of you with surgery tomorrow. The worst part of your journey is almost over! Wishing you the best and praying for your peace of mind and your fast recovery. We look forward to your posts. God Bless.
Terrie Syvertsen My Dear, Dear Heart Sister Robyn- You of all people have a right to not only feel but Sing the "Blues ... Read more
Terrie Syvertsen My Dear, Dear Heart Sister Robyn- You of all people have a right to not only feel but Sing the "Blues" as well. You and David have been thru many days of things beyond your control and thru it all taken it all each day, one day at a time...facing it all together. Always forward.
Even those of us who have gone through their/our surgeries and never had to deal (thanks be to God) with what you have had to go through, understand that none of these surgeries is a picnic nor can one be sure where the mind and heart will go in the days that follow...We all just come away knowing that challenges both big and small await us all after we roll back out those surgery doors.
You, dear Lady as you said yourself are making progress and Hooray for you as this is such a wonderful change and I pray for your progress each and every day as you move forward (Again, like many of us!)
It is good to hear too that the wound is smaller and healing.......It will take time. And patience. I know you have both.
You say you can sit on the edge of the bed by yourself. I remember shortly after my surgery how difficult it seemed to do the same thing and was sure I wouldn't be able to do it and was amazed that in a short time it grew to be less and less difficult. I in no way had to deal with this "feat" the way you have. The fact that you have been able to do this is such a remarkable
achievement. Each new thing that becomes easier is no less an achievement and I applaud you with all my heart because getting to this place for you must be much more difficult than the norm......... As for feeling the burden to David you make me cry but I understand as I remember my first mornings home trying to get up and out of bed with my husband gently putting his arms behind my shoulders as I cried for with every movement my 13 staples in my sternum pained me so I cursed like a drunken sailor yet he patiently counted to 3 each time and helped as Gary gently but forcefully push me up and into a standing position where it was easy to go from there to my destination( power chair/ restroom/ etc). As the days continued for a bit all I could do was wallow in how much help he seemed to have to give and I felt a portion of what you did in the burden dept. but with you and all you have been through, so many hours and so many days it must be horrible and hard not to feel you are at times a burden. But Robyn, I am and so is this entire community and probably Facebook(which I am not a member of) bare witness and have for weeks of one Special Man who showed nothing but Love, Faith and certainty that you were going to be ok, you were his priority, you his mission in life and nothing nor no one was going to keep you down. His waking moments were all "You". I am sure what little sleep he was getting was more about getting back to "You". The updates and his every intention was and is to honor "You" and your needs and to know he is there for "YOU"! so how in
God's name can you feel a burden when YOU ARE SO LOVED BY THIS MAN?
Please lay back or sit in a chair if you can and take a deep breath and relish in the fact that every effort you make in getting stronger, trying new things with your PT is bringing you one step, one day closer to getting well enough to go home with your partner in life where you will show him for the rest of your lives together just how much you appreciated...appreciate
all he is still doing to make your healing happen and your recovery as smooth from here on out as you can BOTH make it go. Remember Robyn that it is the TWO OF YOU who are responsible now in being PATIENT and Moving forward together to make you healthier and stronger so that one day you can get into a waiting vehicle that will direct you home to continue with your recovery. You are doing so well. Don't Doubt for one moment that every minute of each and every struggle you have faced or will face getting you out those doors to home isn't worth the price you have to pay.
And don't doubt that feeling yourself a burden on your husband at times will slow that energy down!
So it is ok to let the tears roll when they brim your eyes and need to be released but be gentle with your heart. Tears you weep today will dry up
and hopefully be replaced with the understanding that you are getting better and beginning to heal. With this healing brings you new strength and day by day I hope you will begin to feel it more and more. It will lighten the load and when you are with David let his love for you and him being by your side provide you with more strength until that love lifts you up even more...Please be very patient with each other and with each day and know that the entire community of heart brothers and heart sisters is with you every step of the way. (By the way you two I have a card I want to send to Robyn but I am not aware of any address so will you please let us know where we can send cards(or if someone already knows please pass it along to the community!) Thank you.
Take care now and know we are thinking of you and sending prayers.
Love, Terrie, Hunter and Kat
Joe __ Thank you Robyn! I know you're confronting so much yourself and appreciate that you take the time ou ... Read more
Joe __ Thank you Robyn! I know you're confronting so much yourself and appreciate that you take the time out to encourage the rest of us too. Best wishes for your continued recovery.
Elaine Foster I understand how you feel Robyn. I have always been very self-sufficient and helping others, so it w ... Read more
Elaine Foster I understand how you feel Robyn. I have always been very self-sufficient and helping others, so it was hard to receive and ask for help, but keep in mind that you would do the same for David and not want him to feel bad. We all "heart sisters and brothers" are cheering for you with each step toward home you are making. Picture a hometown basketball team, and the winning shot is made, how the crowd stands and cheers--thats all of us! So just concentrate on you and take it a day at a time. I'm not discounting the trouble you've been through, but try to look forward and reach out to the Lord who has brought you through. God Bless you
Eleanor R You have come such a long way Robyn, I know it must seem endless to you, and you certainly want to be ... Read more
Eleanor R You have come such a long way Robyn, I know it must seem endless to you, and you certainly want to be home, finally, but you are moving ahead steadily. No more steps back, everything now is ahead of you now. Soon you will be walking more, washing your own hair, and before you know it at home stirring up something to eat. It sounds like your rehab facility is really working you well, so you will be getting stronger and stronger soon. Keep up the good work. Eleanor
A Sunday full of challenges.
I've been on edge all day. I only just started to calm down. I've been unyielding and impatient. The list of needs seems daunting. ...Read more
A Sunday full of challenges.
I've been on edge all day. I only just started to calm down. I've been unyielding and impatient. The list of needs seems daunting. Full of tears today. I am appreciating the site today for a place to vent.
ON the positive side; I AM making progress.
My wound is much smaller. Still needs the wound vac, but it's actually healing.
I'm no longer just two arms with a head. I'm getting stronger. I can almost roll over by myself. I can sit on the edge of the bed - and get there by myself.
David continues to rest and to also be a rock and advocate. But some days - like today - it just isn't happening fast enough. I feel the burden I am to my husband and see the time I still need before I can go home.
On Tuesday of last week I saw a therapist - like before surgery, I needed some tools to help me cope and keep a positive attitude. He said "When frustration mounts, take a breath and try let it go. Breathe the food of the angels and the love of Jesus Christ."
I just need to continue to practice that.
Thanks, again and again, for the continued prayers and good wishes.
Here's to a better tomorrow.
Nancy D Praying with you that the love of our Lord, gives you the strength and stamina to do the work you nee ... Read more
Nancy D Praying with you that the love of our Lord, gives you the strength and stamina to do the work you need and give yourself the time you need to get stronger and better. It is your strong will to be better NOW, that will serve you well. We all had to start with baby steps and slower than we wanted graduate up. The progress you have made is inspiring, as are your posts of encouragement to others! Some days are better than others and you are allowed a down day- just know a brighter day awaits you tomorrow. In the mean time, rest, relax and know you will soon be back to your life you want, at home with your amazingly supportive husband! Be kind to yourself! Know many besides me are praying for your complete recovery! ((HUGS)) & +++++ Prayers!
Gerald Schaffer Thanks for the update, I've been wondering how you've been doing. I can't imagine how difficult it's ... Read more
Gerald Schaffer Thanks for the update, I've been wondering how you've been doing. I can't imagine how difficult it's been for you but I find you to be an incredibly strong person and a real inspiration. You're probably frustrated because you want to do more and give your husband some much needed rest. I take that as a good sign that you're getting stronger and healthier. It's just that your body is a little bit behind your mind in the recovery. I pray that you get the comfort needed to deal with all that's going on and that you continue to gain the strength that you'll need to become even more independent. I have full confidence in your ability to rehab yourself based on the fights you've won so far. You're alive, you have a husband that loves you so much and though it's been a tough road you have a heart valve that's healthy. Though I don't know you at all other than what I've read about your surgery and recovery, that's enough for me to know you're special and nothing will stop you from recovering. Be patient with your progress and I'm sure that soon you will get better in leaps and bounds. Though at times you may not feel like it but you're a blessed person and I look forward to your encouraging me after my surgery on August 26.
Tammy Pilcher Dear Robyn, it is completely understandable for you to have tearful days. You have been through so mu ... Read more
Tammy Pilcher Dear Robyn, it is completely understandable for you to have tearful days. You have been through so much more than most of us and survived. I had tearful times during my early recovery and my experience was a piece of cake compared to what you've been through. Take one day at a time. Focus on each small improvement instead of the things you can't quite do yet. You'll get there, because look how far you've come. Like Nancy said, be kind to yourself. I love what the therapist told you! He must be a very wise man! I'm keeping you in prayer for complete healing. Remember: Philippians 4:13 "I can do all things through Christ who strengthens me.". God bless you! Hugs from me too!
Virginia (Ginger) French Bless you, Robyn! So delightful to have you able to post. Know that every one of us are lifting you ... Read more
Virginia (Ginger) French Bless you, Robyn! So delightful to have you able to post. Know that every one of us are lifting you up to the Almighty in prayer. The trials of this Earth are sometimes so seemingly overwhelming, yet we do come out stronger and more capable. I have been in the pit often and long enough with what I feel is a boulder pressing upon me - that one of my long time friends of many decades told me the other day that she was going to have a conversation with God and ask why my family was the closest thing on Earth that she has ever seen to Job. I certainly do not want to be Job, and know none of us envy his trials. But even Paul had the "thorn" in his side that God would not take away. So we survive and work to live another hopefully better day. Leaning on God for strength is the best I often can do.
If you look in my photos, there is a picture with my favorite verse:
For God has not given us a spirit of fear, but of power and of love and of a strong mind. -- II Timothy 1:7
Know how much love and prayer envelop both you and your dear David, and that they will continue for a long time to come.
I wish you faith, strength, Joy, and the healing that comes from Him.
Love and hugs,
Ginger
Kenneth Cole Tammy is right Robyn. God bless her for her wisdom. God bless you too.
Patrick Kennedy Robyn, you are a hero to many here. You have the right to many teary days. It is hard to see the smal ... Read more
Patrick Kennedy Robyn, you are a hero to many here. You have the right to many teary days. It is hard to see the small steps forward. Keep your head up! We all believe in you!
Tammy Pilcher Thank you so much, Kenneth, for your kind words. You touched my heart.:-)
Cheryl Batzing Robyn....amen to all the comments above! You are a rock star already, dear! You've come through so mu ... Read more
Cheryl Batzing Robyn....amen to all the comments above! You are a rock star already, dear! You've come through so much. One hour at a time....and prayers are with you heart sister!
Bob M One day at a time heart sister. Take it easy.
Robyn, you are strong. It is OK to feel the way you do. I am praying that you feel better today. I ... Read more
Robyn, you are strong. It is OK to feel the way you do. I am praying that you feel better today. I hear birds singing in the early morning darkness. So peaceful, I hope you feel peaceful today.
Terry Shermeister Hi Robyn, it's been a while since I posted you, I'm the ZZ Top guy if you remember. I'm so glad you ... Read more
Terry Shermeister Hi Robyn, it's been a while since I posted you, I'm the ZZ Top guy if you remember. I'm so glad you are getting better, and your humor is just as good as before. Take care, Terry
Rhonda Rawles Robyn - It may hard to imagine now, but several weeks or months from now you will look back on this t ... Read more
Rhonda Rawles Robyn - It may hard to imagine now, but several weeks or months from now you will look back on this time and it will be hard to imagine. Like you I had major complications and spent about 6 weeks in the hospital with the last week on the rehab floor. When I look back on it now it is very surreal and with great pride for all I have overcome. Praying you are home soon where you can really start to recover. As for feeling like a burden, I found comfort knowing that if the tables were turned I would do the same for my spouse. Love conquers all!
I'm having trouble clearing out the "unread messages" tally at the top right of the web page. The number next to the read heart (when you are logged in.)
I'm ...Read more
I'm having trouble clearing out the "unread messages" tally at the top right of the web page. The number next to the read heart (when you are logged in.)
I'm missing something ? - does anyone know how to do that?
Adam Pick Hi Robyn, To clear out the "unread messages", simply click the "Mark as read" link. Fyi, it may take ... Read more
Adam Pick Hi Robyn, To clear out the "unread messages", simply click the "Mark as read" link. Fyi, it may take up to 5 minutes to clear out all the messages. I hope that helps! Adam
My last memory was the doctors preparing to put in my IV's. Then a few psycho episodes - my cousin visiting....but I was unaware a of time passing. The last ...Read more
My last memory was the doctors preparing to put in my IV's. Then a few psycho episodes - my cousin visiting....but I was unaware a of time passing. The last few months hold only a few memories.
I have not read Davids entries.
To be honest, some of the details frighten me and I am not ready to hear a lot about the details.
David worked feverishly on this journal for us. I am still amazed at the detail he recorded. I do look forward to reading it soon.
Regarding the experience in a nutshell:
Negatively;
I've got a large mountain of rehab ahead.
Things just move too slowly.
On the positive side:
I never had sternum pain / or trouble with my scar. (other than drainage holes - its mostly healed)
My new valve is working like a champ.
I discovered there are true Heros. (David)
I never thought anyone could love me the way David does. I am so incredibly fortunate.
Now that I am awake, David is busier than ever. He's got 100% of the household and me. I am keeping him hopping and he is just too busy to post - besides - other than rehab, I seem to be on the mend.
David - Thank you, I love you.
For now I'll be looking forward to melding back into the population at large with my heart brothers and sisters. I know I have many people to connect with and thank.
I'd like to thank Adam Pick for creating this site - for one, right?
To Pre-OPs Chris, Larry, & Donna;. know there are many folks, including me, sending prayers and good wishes to you.
Mary Myers Robyn, good to hear from you. Keep up your positive thoughts. You and David are an excellent example ... Read more
Mary Myers Robyn, good to hear from you. Keep up your positive thoughts. You and David are an excellent example of true love....So happy your valve is working like a champ!!! God bless you and David as you continue on the journey to return to normal day life! Big hugs! I agree thanks go to Adam for writing his book, creating the site and for his continued dedication to his heart family!
Ann Keating I am teary-eyed reading your post. You and your wonderful David are true inspirations.
Nancy D You and your hero hubby David are and have been wonderful through all this. We had the easy part of ... Read more
Nancy D You and your hero hubby David are and have been wonderful through all this. We had the easy part of praying for you both, and watching for updates!
It is probably better that you read the journal he shared with us. It helped me to know how to pray specifically for you and he both! I hope he felt the concern and prayers for you both! I know you will work hard to regain your strength, and hope you celebrate your mini milestones as they add up quicker than big ones! You have already made some major ones, and I hope all your progress is forward to home and complete recovery soon!! ((HUGS))
Rhonda Rawles We have so much in common Robyn and your words above bring me back to where I was just a few short mo ... Read more
Rhonda Rawles We have so much in common Robyn and your words above bring me back to where I was just a few short months ago. My hospital stay was about 5 weeks with the last week in rehab. For the first 3 weeks I too had no memory of what had taken place. The last memory I had was sitting in the waiting room of the hospital with my husband and two grown children. Like you I bypassed the whole "sternum pain" stage which was fine with me!
Rehab may seem to be going slowly but there will be days that you look back at how far you've come. It's a delicate balance to work as hard as you can without over doing it so you don't have a setback.
Your husband truly loves you beyond words and is most definitely a hero. It's so often that us women are traditionally the caretakers of our families so when a husband steps up as yours (and mine) did, it is something worth shouting about. There is nothing I can do to repay my husband enough as I truly believe he saved my life.
As for going back and reading through the details my advice is to wait. My family did not tell me any more than they needed to until several weeks after I was home. Of course I did peek at Facebook and read posts there which was very emotional to know what they were going through but it did not have all of the details of what had transpired. I'm a little over 5 months post op now and still ask questions.
Thinking of you and praying for you daily. Just now that better days are ahead. I just took a cruise to Alaska with my husband and feel better than ever. You will be there before you know it!
Kenneth Cole I'm so happy for you, recovering with a great husband like David. You are blessed.
Gerald Schaffer David did a great job. He probably saved your life a couple of times making sure the doctors did the ... Read more
Gerald Schaffer David did a great job. He probably saved your life a couple of times making sure the doctors did the right thing. I hope you don't have anymore setbacks and your strength comes back quickly.
Janet R Robyn, It is so wonderful to see you back and recovering. God bless you and David.
Eleanor R You truly are lucky Robyn to have had the care that David made sure you got, and provided himself. I ... Read more
Eleanor R You truly are lucky Robyn to have had the care that David made sure you got, and provided himself. I agree that you don't need to read it all right now, just look forward now and receive greetings and blessings. In the future, when you are strong and back to "normal" you can then see what a journey you were on, and you will see how many of us patients walked that path with you, through David's words. We are all so blessed, and so happy to have you "back". Keep on healing, love that now it seems slow to you, you are right, you are so ready for things to move quickly now. Best wishes. Eleanor
David posting:
Well Robyn is getting better at working on the laptop. I am going to stop on my posting and let Robyn take over. It is her journal after all. ...Read more
David posting:
Well Robyn is getting better at working on the laptop. I am going to stop on my posting and let Robyn take over. It is her journal after all. I was just filling in until she was well enough to return.
She has not gone back to read everything I posted yet; that is something she will do later. So she has not seen all of your post but she will get to them and reply in time when she is ready to read through all the details of her ordeal.
I want to thank everyone for all of your support. Your kind words, advice, prayers, letters, packages, presents, and encouragement made this journey possible. I really needed all of your help to get through this.
Robyn started on this site, her first step into the social media world, as a leap of faith. She was looking for advice and to learn from others who have been through OHS. I don't think she realized, and I certainly did not know, that she (we) would become part of this wonderful community of heart brothers and sisters. You all have been amazing and I hope we will have a chance to meet some of you someday. And at the very least, we will continue to follow everyone here and look forward to giving back to this community that has given so much to us.
Thanks, David J Tatu
Gerald Schaffer Another good sign. I'm looking forward to Robyn's thoughts on her recovery. Just think about how far ... Read more
Gerald Schaffer Another good sign. I'm looking forward to Robyn's thoughts on her recovery. Just think about how far she has come in the past week. Hopefully the recovery is smooth sailing from now on.
Tammy Pilcher So happy for Robyn! Continued prayers and best wishes! David, you've been amazing keeping us update ... Read more
Tammy Pilcher So happy for Robyn! Continued prayers and best wishes! David, you've been amazing keeping us updated with all you've had going on! Thank you! God bless y'all!
Lewis Garlisi Dsvid, thank you for your consistent job keeping everyone posted. You did an incredible job. Looking ... Read more
Lewis Garlisi Dsvid, thank you for your consistent job keeping everyone posted. You did an incredible job. Looking forward to some good news regarding Robyn's recovery.
Cheryl Batzing David, you have been a great blessing to get to know, and see your beautiful heart of love and suppor ... Read more
Cheryl Batzing David, you have been a great blessing to get to know, and see your beautiful heart of love and support for Robyn. Will continue to lift you up in my prayers for your support for Robyn, and can't wait to see how her health improves!
Eleanor R Thank you for taking such good care of Robyn and of us through your posts. We have been with you on ... Read more
Eleanor R Thank you for taking such good care of Robyn and of us through your posts. We have been with you on your journeys, and celebrate the happy outcome. Best wishes to you both, Eleanor.
Rhonda Rawles This is great David, you've done amazing at keeping us updated. I have followed closely and checked ... Read more
Rhonda Rawles This is great David, you've done amazing at keeping us updated. I have followed closely and checked every day on Robyn's progress and will continue to pray for her daily until she is home. Take care and God bless you!
Jim O'Brien I'm so happy for Robyn and you, David. Both of you have gone through so much and here she is finally ... Read more
Jim O'Brien I'm so happy for Robyn and you, David. Both of you have gone through so much and here she is finally on the road to recovery. Take it one day at a time Robyn, your strength will get better and better. Best wishes and prayers for you both.
9PM Thursday 6/4
Robyn did not quite get her shower but she did get her hair washed. After PT we got into the wheelchair. She did some cruising about and ...Read more
9PM Thursday 6/4
Robyn did not quite get her shower but she did get her hair washed. After PT we got into the wheelchair. She did some cruising about and then the OT (occupational therapy) team came in and set up a trash can behind the chair and Robyn leaned her head back and they used a cup to pour water over her head. She had to help with the soaping and rubbing and the towel drying as this was officially an OT work out. Then a combing and a french braid finished it off. She was quite happy.
Tomorrow we have a meeting regarding timeline and goals. The biggest issues are wound care and dialysis. There may be a transfer to another type of facility for additional PT and OT prior to coming home. We will know more tomorrow.
Robyn also looked at Facebook some today and read just the comments from the past two days. She said she had know idea so many people would be "liking" and posting about her. Wait until she reads more. I have read and shown her some post in the past but she really does not remember much from more than about a week ago.
I am going to bring her laptop in tomorrow and she is going to give that a try. She did do some typing but is was hard to stay on the home keys so she did not stick with it too much. Her voice is getting strong enough for short phone calls and voice to text on the phone; but correcting the text is a challenge so far.
Baby steps, or baby typing as the case may be.
Clare Auten The hair wash must have felt great! Everything is a step closer to full recovery.
So great to hear of Robyn's continued progress. God Bless You, both.
Gerald Schaffer A little bit of progress each day is great. I'm sure things will be progressing much faster as she re ... Read more
Gerald Schaffer A little bit of progress each day is great. I'm sure things will be progressing much faster as she regains her strength. Keep up the good work, walking is probably not far away.
...and yes.....Merideth, Ice chips are quite meaningful.
1 day at at time. Today I am thirsty.
I am keeping David hopping!
Robyn
Clare Auten I bet David is happy to see you well enough to keep him hopping. Hoping you continue to make steady ... Read more
Clare Auten I bet David is happy to see you well enough to keep him hopping. Hoping you continue to make steady progress.
Tammy Pilcher Ice chips were the best thing ever! So happy for you, Robyn!
Terrie Syvertsen Hello Robyn- Happy for your Progress and that things are falling into place with the tube out, gettin ... Read more
Terrie Syvertsen Hello Robyn- Happy for your Progress and that things are falling into place with the tube out, getting to wheel into the "shower" tomorrow and that you are enjoying the ice chips! I am sorry that you had to experience all that you did up until this point and look forward to reading more as you progress! Take care!
Wonderful progress!!! Praying that you continue to move forward!
Nancy D Robyn you enjoy those ice chips...and the cherry popcicles are awesome too!! ;-) I am so happy to se ... Read more
Nancy D Robyn you enjoy those ice chips...and the cherry popcicles are awesome too!! ;-) I am so happy to see you feeling well enough to post! Prayers continue for you in your steady forward progress you are now accomplishing!!! Hang in there! You have come so far!!! ((HUGS))
Lora Lee Peterson So wonderful to "hear" you! When I came on this sight, you were not able to tell your story, and now ... Read more
Lora Lee Peterson So wonderful to "hear" you! When I came on this sight, you were not able to tell your story, and now you can. You and David are such an inspiration!
Ann Keating Robyn, it is so good to hear from you. My thoughts and prayers are with you as you recuperate!
9PM Tuesday 6/2
No more feeding tube.
The tube has been removed and Robyn could not be happier. Well, she could be happier but she will take this small victory ...Read more
9PM Tuesday 6/2
No more feeding tube.
The tube has been removed and Robyn could not be happier. Well, she could be happier but she will take this small victory for today.
Each day she now spends two hours in the chair at the end of PT. But tomorrow we are moving her to a wheel chair and I get to tour her about the facility and outside. I just hope she does not push me to make a break for home.
But that is not all. On Thursday we are wheeling into the shower room for a real shower.
So lots happening and steady progress.
David posting this time:
9PM Monday 6/1
Robyn had PT and they got her to stand (with assistance) and then sit in a chair. While sitting the occupational ...Read more
David posting this time:
9PM Monday 6/1
Robyn had PT and they got her to stand (with assistance) and then sit in a chair. While sitting the occupational therapy folks came in and did some coordination work like changing her shirt and washing up. From now on she will get at least 2 hours in a chair each day.
Then wound care and the nutritionist came by.
Robyn is now drinking the liquid used in the tube feed as a between meal snack. Assuming she can get 8 oz of it in, she will get the feeding tube removed in the morning.
Speech and swallow cleared her to drink water (which means no more nectar and thickened drinks).
Then an afternoon dialysis treatment and on to an early bedtime. If her electrolytes and mineral counts continue to improve, the dialysis will taper off and hopefully stop soon.
And I went into work for a few hours and actually got a good 15 minutes of work accomplished in that time. Hopefully my focus and cognitive abilities will return soon too.
Clare Auten David, you and Robin have been through so much. You are using all your focus and energy on her. It wi ... Read more
Clare Auten David, you and Robin have been through so much. You are using all your focus and energy on her. It will come back. Take care.
Tim Goff Thank you for the encouraging and positive update David. We are praying for her continued progress.
Terry Shermeister To David and Robyn: One must trust that God will take care of all and that soon you both will be res ... Read more
Terry Shermeister To David and Robyn: One must trust that God will take care of all and that soon you both will be resting at home. Prayers and blessings
Thank you to all for the prayers and good thoughts. Able to post myself today. I would really like to wash my hair!
Tammy Pilcher Yay Robyn!!! It is sooooo good to hear from you!! I felt the same way about my hair! My husband be ... Read more
Tammy Pilcher Yay Robyn!!! It is sooooo good to hear from you!! I felt the same way about my hair! My husband became a great hairdresser during my early recovery! I'm so happy to hear of your progress! You are a Superwoman!! Continued prayers for you and David! God bless y'all!
Janet R Dear Robyn, It is so wonderful to hear from you. The hair washing is one of the best things. Contin ... Read more
Janet R Dear Robyn, It is so wonderful to hear from you. The hair washing is one of the best things. Continued prayers for your recovery. You are on our prayer list at church.
Terrie Syvertsen Short note back...to Robyn and David! Hello and great you are posting yourself Lady! Hope you get you ... Read more
Terrie Syvertsen Short note back...to Robyn and David! Hello and great you are posting yourself Lady! Hope you get your hair washed soon as that is such a great feeling, is it not? You have such beautiful hair, too, so I imagine it isn't an easy task for you! You keep on getting better Heart Sister! Terrie, Hunter and Kat!
Pat Bluemel YAY ROBYN!!! This note made my day. Boy do you have a tale to tell!
Rhonda Rawles At first the shower caps felt heavenly and then after a few weeks of that I felt the same way. You w ... Read more
Rhonda Rawles At first the shower caps felt heavenly and then after a few weeks of that I felt the same way. You will feel like a new woman when you get to take your first real shower! You will be supervised I'm sure but still, it will feel amazing.
Clare Auten I am so happy for you. A hair wash or shower would feel great I am sure. David has done such a wonder ... Read more
Clare Auten I am so happy for you. A hair wash or shower would feel great I am sure. David has done such a wonderful job of keeping us updated and taking care of you. You are one lucky lady. Take care!
Sandy Davis Great to hear from you Robin! I pray for your continued recovery.
Laura Metrano Well hello there!! So great to hear from you... lot of people waiting for your post! You and your hus ... Read more
Laura Metrano Well hello there!! So great to hear from you... lot of people waiting for your post! You and your husband make a great team. Wishing you both many good days ahead!
btw... my new favorite product is 'Tony & Guy Dry Shampoo' (don't think brand matters). As good as it felt to wash my own hair, it was exhausting! This stuff really works and it's easy :)
Bob M Great to hear from you heart sister! God bless and rise up!
Tim Goff So happy to read "your" post. We have been eagerly awaiting your return!
Gerald Schaffer Good to hear directly from you now, nothing against David. You are a remarkable person to be able to ... Read more
Gerald Schaffer Good to hear directly from you now, nothing against David. You are a remarkable person to be able to fight through everything you have.
8PM Sunday 5/31
Robyn had some visitors, ate real food, did the in-the-bed exercises and has come to the conclusion that she is ready to do the follow: ...Read more
8PM Sunday 5/31
Robyn had some visitors, ate real food, did the in-the-bed exercises and has come to the conclusion that she is ready to do the follow:
Get out of the bed
Get rid of the feeding tube
Have some private time in a bathroom
Take a real bath (by herself with a tub and water, not a chemically saturated cloth rubbed about by health care professionals)
And come home
It all sounds like good ideas to me too.
There will be a full team meeting on Wednesday to discuss her case and set up the full treatment plan with goals and milestones. Personally. I think the feeding tub will be out in a day and dialysis will wrap up this week.
We both are looking forward to seeing how fast she gets her strength back and when they think she will be able to come home. There will still be some in-home and out patient physical therapy after that but getting home is the big goal we are looking forward to right now.
Judith Collins God bless both of you. I was only in the hospital 7 days and I was ready to get out. I hope everyth ... Read more
Judith Collins God bless both of you. I was only in the hospital 7 days and I was ready to get out. I hope everything goes well from now on.
Nancy D Saying a few thank you prayers for all of the wonderful progress she has made with your great care!!! ... Read more
Nancy D Saying a few thank you prayers for all of the wonderful progress she has made with your great care!!! I know the progress at times will be slower than she or you want, but remember it takes time for those of us who had minor speed bumps along the road, and she has had a lot to deal with. Remind her to be ever so gentle and patient with herself!! It will happen, I know this as I see improvements even now at 9 months out!!!
Rhonda Rawles They all sound like great goals to have! I can totally relate to the private bathroom time, this was ... Read more
Rhonda Rawles They all sound like great goals to have! I can totally relate to the private bathroom time, this was probably number one in my book too! Take care, continuing to pray for her daily!
So great to hear all of the progress Robyn has made. God is Faithful. God Bless You, both.
Tammy Pilcher Great news! So happy to see this! Thank You Lord!!
Terrie Syvertsen David and Robyn...Sounds like things are moving right along! I hope you know how great it is for all ... Read more
Terrie Syvertsen David and Robyn...Sounds like things are moving right along! I hope you know how great it is for all of us at the heart community to hear these recent updates of the progress being made and the continued excellent care all are giving to Robyn, especially by you. Many Heart Brothers and Heart Sisters are smiling tonight just knowing the most recent updates are heading you both closer to "Home". Love and hugs, Terrie, Hunter and Kat
Gerald Schaffer Fantastic. I'm so happy for you two I actually have to wipe tears from my eyes.
Eleanor R It sounds like she is now firmly on the recovery path. Just being strong and brave enough to think a ... Read more
Eleanor R It sounds like she is now firmly on the recovery path. Just being strong and brave enough to think about getting out of there is a good sign. Her list of things to do sounds just right. Best wishes to both of you! Eleanor
10PM Saturday 5/30
I brought over a TV and DVD player so we could watch some movies and shows. Robyn did her assigned in-the-bed exercises and tried to figure ...Read more
10PM Saturday 5/30
I brought over a TV and DVD player so we could watch some movies and shows. Robyn did her assigned in-the-bed exercises and tried to figure out this new thing called eating real food. Her tummy needed to do some sorting out and getting use to eating again. But I think by dinner we got the right set of medications in place so she can start getting more of her calories by mouth and not the tube.
We are having a slumber party tonight and I am looking forward to spending the night with my wife even if I am on a fold out chair/bench/bed thing off to the side.
Lewis Garlisi Perfect description of those bed things. Hope you two are enjoying the slumber party.
Cheryl Batzing so glad to hear or Robyn's progress! Continuing to pray for her full recovery, and for your continued ... Read more
Cheryl Batzing so glad to hear or Robyn's progress! Continuing to pray for her full recovery, and for your continued patience & stamina. You guys both are my heroes!
Terrie Syvertsen Robyn and David, Throw in the popcorn and it seems like Gary and I were doing the same thing last nig ... Read more
Terrie Syvertsen Robyn and David, Throw in the popcorn and it seems like Gary and I were doing the same thing last night at 10PM last night! (Watching TV) Gary left at 5:30 this morning to golf leaving Hunter, Kat and I waving at the door. It is beautiful although light gray outside here in California and the grey and white neighbors cat is on the porch teasing Kat and Hunter through the storm door screen. I am going to throw on some clothes and join one of my neighbors for a walk this morning before things get hot! I want Robyn to think of the days ahead where She and you both will check out the morning skies and say to yourselves......Let's take a walk. You can hold hands and feel the early morning breeze on your face. Maybe one of the family pets will want to go too? I can't wait for you to heal up, Woman! It is so good you are having a chance to eat "real food".
If you like fish, see if they have baked salmon as it is one of the favorite things I had at the hospital and it is easy to get little bites that to me went down smoothly. Little tiny bites cut with a fork were easy on the stomach too which I hope you are able to enjoy soon. Your Slumber Party sounded like a great idea even if sleeping on his chair made David into a pretzel by morning it will have been worth it. If you have a chance David or Robyn, please send us your address so that we all here in the community can send y'all a card or two?! Others have asked the same and we would appreciate it! So looking forward to hearing how you are doing and I think the two of you are absolutely wonderful and know your love for each other will continue to get you through all of this that you are experiencing. Time to move forward......slowly....one gorgeous God given day at a time. Love to you from many, many heart brothers and sisters. I am off to catch up with my neighbors walking the park! Bless you both and all of the many Heart Creatures that today is a wonderful day! Looking forward to another update!
3:30 PM Thursday 5/28
Busy day in the LTAC.
We have been visited by everyone and moved to a new room. Robyn has been seen by Physical Therapy, Occupational ...Read more
3:30 PM Thursday 5/28
Busy day in the LTAC.
We have been visited by everyone and moved to a new room. Robyn has been seen by Physical Therapy, Occupational Therapy, Speech and swallow, a dietician, infectious disease, wound care, and the occasional nurse.
Everyone is developing baselines and plans. We still do not know exactly how each day will go but we should have a better idea soon.
Most people need to work with her around dialysis which is M, W, F. But we hope she can stop that; as soon as her kidneys get a little stronger. We are finished with antibiotics for now. If her white cell count stays down, then we are clear of infectious diseases. And her leg wound continues to slowly get smaller.
Still no idea how long we will be here but she is doing very well for someone who has been in bed for 51 days.
Thank you everyone for all of your support. Robyn's concentration is getting better and she will be able to read all of your posts soon. I can't wait for her to see all of your support and messages.
Thanks,
David
Sandy Davis That is great! Glad is all going good. When you have time can you post her new address, I have a car ... Read more
Sandy Davis That is great! Glad is all going good. When you have time can you post her new address, I have a card I would like to send.
Ann Keating So glad the move went well and Robyn is moving in the right direction. Thank you for the updates. So ... Read more
Ann Keating So glad the move went well and Robyn is moving in the right direction. Thank you for the updates. So many of us are pulling for Robyn and you, too!
Lora Lee Peterson Wow, 51 days, you guys are troopers! Your faith in God is showing! :)
Praise the Lord!
Terrie Syvertsen Robyn and David- As I was riding my bike in the gentle wind and sunshine I had a moment of thinking o ... Read more
Terrie Syvertsen Robyn and David- As I was riding my bike in the gentle wind and sunshine I had a moment of thinking of you both and the recent move you have made and felt joy for you both so that this giant grin lit up my face and I couldn't get it to leave all the way around the Park for quite some time!
That be me.....the grinning fool doing circles round the park. One day in the future I hope this to be the case for you and David! Fresh air and sunshine as you begin your rehab once you get yourselves home. So for now, one day at a time and progression in health and healing. Take care you two and Robyn, Heart SIster, love and prayers will continue until and after you are HOME! Be patient....it will come! Bless you Both and all those taking care to help you get "better".
3PM Tuesday 5/26
As I suspected, insurance could not get everything processed in time for a move today.
But we had some PT and more pureed food.
Hopefully ...Read more
3PM Tuesday 5/26
As I suspected, insurance could not get everything processed in time for a move today.
But we had some PT and more pureed food.
Hopefully early tomorrow for a ride OTP (outside the perimeter).
Tim Goff Good to hear a move is in the works, that is progress
It's good you were prepared for possibly not moving, given the Holiday.
I'm so thankful.....and I kno ... Read more
It's good you were prepared for possibly not moving, given the Holiday.
I'm so thankful.....and I know you both are, too...that Robyn continues to move forward.
Praise the Lord!
Terrie Syvertsen Fingers crossed (and everything else!) for a move tomorrow. Hope the swallowing of the pureed food Is ... Read more
Terrie Syvertsen Fingers crossed (and everything else!) for a move tomorrow. Hope the swallowing of the pureed food Is becoming easier for Robyn. Thinking of you both and continued prayers coming from all directions to you both!
Tammy Pilcher Prayers for good news tomorrow. God bless y'all!
6PM Monday, 5/24
Started the day with Dialysis.
Then Speech and swallow. Robyn will be enjoying a dinner of fine pureed food tonight.
Next was wound care. ...Read more
6PM Monday, 5/24
Started the day with Dialysis.
Then Speech and swallow. Robyn will be enjoying a dinner of fine pureed food tonight.
Next was wound care. Her leg wound is still healing well.
Then PT came by. After some leg lifts and foot flexing exercises, she did some sitting on the edge of the bed and some arm and torso movements. This about wore her out but it was good to see her up.
Then the Infectious Disease doctor came by. Her white blood count is just barely above normal. She has finished this course of antibiotics and they will look everything over tomorrow and decide if she needs another course or if she is finished with all of that.
I have asked everyone to make sure their notes are up to date and that they have their recommended treatments in her file. I want to make sure there is no confusion about treatment when we transfer to LTAC.
It is still looking like the plan is to make the move tomorrow. I think the only thing that might trip us up is getting insurance approval after the holiday week-end.
Doctor Brown, her heart surgeon and the doctor that is untimely in charge of her case, does rounds and office work tomorrow. So he will review everything and make the final decision.
I will let everyone know what happens next as soon as I know.
This is day 49; thanks for sharing this journey with us.
Gerald Schaffer Sounds like all good news. I'll bet once she starts eating real food she'll start gaining more streng ... Read more
Gerald Schaffer Sounds like all good news. I'll bet once she starts eating real food she'll start gaining more strength and will improve much faster. Its a shame that she's had so many issues for 49 days instead of being out and about like most people after 49 days. She has shown incredible strength to go through all that she has and is not only still with us but improving once again. Keep up the good job watching over her treatments.
Rhonda Rawles The pureed food was not my favorite so hubby got me baby food which tasted a whole lot better, just a ... Read more
Rhonda Rawles The pureed food was not my favorite so hubby got me baby food which tasted a whole lot better, just a thought if Robyn gets to this point.
Oh my goodness..... Day 49. So glad she continues to move forward!
God Bless You, both.
Virginia (Ginger) French Continuing to pray for you both as you have had so many trials on this Journey. Know that many of us ... Read more
Virginia (Ginger) French Continuing to pray for you both as you have had so many trials on this Journey. Know that many of us who do not write regularly are still acutely aware of how things are going for you and Robyn. May the Lord ease and smooth the rest of the way so you can get to the point of looking back on this as a memory.
Love, hugs, and prayers ongoing, Ginger
jan murphy Sounds great she is taking in food.You are definitely on top of things,
5PM Sunday, 5/24
Pretty slow day.
Still looking good for a Tuesday move back to the LTAC.
Robyn used the spoon and then drank from a cup to have some nectar ...Read more
5PM Sunday, 5/24
Pretty slow day.
Still looking good for a Tuesday move back to the LTAC.
Robyn used the spoon and then drank from a cup to have some nectar and applesauce today. She is very much ready to start the rehab and get out of that bed. I am not sure how she is going to be able to wait another day and a half to get moving. I ask every Doctor that comes in to see if they can get PT to drop by. But I think everyone is off for the holiday.
Tomorrow we have wound care coming by, a dialysis treatment and hopefully a swallow test.
Otherwise, just hanging out and getting stronger and more tired of laying about.
Rhonda Rawles This is a common issue, seems like the better you get in the hospital, the less attention you get by ... Read more
Rhonda Rawles This is a common issue, seems like the better you get in the hospital, the less attention you get by some of the staff. It's a good sign as it means she's doing better than other patients requiring more attention. I know after I was up in a chair a few times my husband and I cheated and he was able to help me get in/out from chair to bed and to the potty which was so much better than waiting on nurses all of the time. Holidays and weekends are bad so hang in there!
Sounds great! I'm sure she IS tired of the bed. When I went home, eight days after my surgery....I wa ... Read more
Sounds great! I'm sure she IS tired of the bed. When I went home, eight days after my surgery....I was soooo thankful not to spend anymore time in that hospital bed!
Great progress with the nectar and applesauce!
God is Good.
God Bless You...
Bob M I pray that Robyn will rise up. More prayers. David, you are a saint on Earth and Robyn's guardian an ... Read more
Bob M I pray that Robyn will rise up. More prayers. David, you are a saint on Earth and Robyn's guardian angel.
8PM Saturday 5/23
Not much going on but everyone is saying that a Tuesday transfer is looking good.
Kidney Dr. is fine with it, Infectious Disease is happy ...Read more
8PM Saturday 5/23
Not much going on but everyone is saying that a Tuesday transfer is looking good.
Kidney Dr. is fine with it, Infectious Disease is happy with her white count and lack of growth in the cultures from around the lung and wound care is going to do a repack and exam on the leg on Monday. About the only thing that might slow us down is getting the insurance paperwork sorted because Monday is a holiday.
Robyn is so much stronger today than she was last Friday when we did the transfer. I am feeling very good about this one. But I am also quite willing to call for a re-evaluation if things look funny.
Hoping for a visit from PT and Speech/swallow tomorrow but otherwise not much on the schedule.
Sounds like steady progress. One day at a time. Any step forward is good. Praise the Lord!
God Bless ... Read more
Sounds like steady progress. One day at a time. Any step forward is good. Praise the Lord!
God Bless You, both.
Robert Osmachenko Fingers crossed hoping nothing else pops up. Prayers aloft for you and Robyn.
Eleanor R Hopefully the weekend and holiday will give a bit more time for Robyn to gain strength and prepare fo ... Read more
Eleanor R Hopefully the weekend and holiday will give a bit more time for Robyn to gain strength and prepare for the move, and for you to prepare for the new set of care providers. Of those, you are the principal provider as you know her history, what has been tried, what specifically she has been through and what to look for. You probably never knew you would need to learn so much about medical care, but you can certainly be proud of your accomplishments in getting on board with details, and for being so vigilant to spot things and speak up. You two are quite a team. Best regards, Eleanor
Rhonda Rawles Slow and easy is the best progress of all! Continuing to pray for you both!
4PM Friday 5/22
I had no idea today would be like this.
As I was leaving last night they told me that Robyn is leaving the ICU and going upstairs to the ...Read more
4PM Friday 5/22
I had no idea today would be like this.
As I was leaving last night they told me that Robyn is leaving the ICU and going upstairs to the cardiac recovery floor. This is where you typically go after two days in the ICU. But it was not clear when and it was thought to be in the morning.
I left Robyn her phone and the nurse said she would help Robyn call me if she got disorientated with the move. When I got up this morning I saw there was a text (the nurse sent it) saying Robyn moved around 1AM.
Then I got a call from a friend I had not talked to in years. It seems that Robyn called him and was talking a little crazy. I explained she was in the hospital and was a little disorientated and had meant to call me but hit the wrong number. I called and she answered and I told I would be right over. She had woke up in the new room and had no idea what was going on.
Yesterday and today Robyn has been having some gastrointestinal issues so she has needed a lot of nurse visits.
Then she got sent down for one more (last?) echo cardiogram. About as soon as we got back to the room, they wanted to take her to x-ray to look at her belly and make sure there was no blockage or anything causing her to be having the nausea and such. The x-ray came back clear so we are just treating with some meds.
Then PT came in and got her sitting up on the side of the bed. Next speech and swallow are coming by. In some of the confusion with moving last night, Robyn pulled out the feeding tube so maybe she can get cleared for food or maybe we need to put it back in for a while. Of course the gastro issues are making that all hard to sort out.
And now we are waiting to roll her off to dialysis. (now that she is not in ICU, she has to roll all around the hospital instead of everyone bringing portable equipment to her).
We had planned for a morning and afternoon visit thinking we would be in the ICU and a little stir crazy. But I had to cancel the guests as the day has been non-stop.
I was not at all packed and ready for all of this activity. I rushed out of the house to got to the hospital as soon as I could. So I did not get a chance to really pack up lunch and supplies. Typing this post is the first chance I have had to sit down all day.
But this is all good news and steps in the right direction. I think we are still tracking to move back to the LTAC early next week.
Tammy Pilcher Hope she has a restful night and can have a comfortable day tomorrow. You both need a break. Prayin ... Read more
Tammy Pilcher Hope she has a restful night and can have a comfortable day tomorrow. You both need a break. Praying for y'all. God bless!
Eleanor R This is a good kind of busy, as Robyn begins the "normal" recovery of being in a cardiac step-down un ... Read more
Eleanor R This is a good kind of busy, as Robyn begins the "normal" recovery of being in a cardiac step-down unit from the ICU. She will be tired, and I know you are too. I wish you both a good, quieter, healing weekend holiday.
3:00PM Thursday, 5/21
Started off with Dialysis and a visit from a friend. The PA from Infectious disease came by and so far the cultures from the fluid ...Read more
3:00PM Thursday, 5/21
Started off with Dialysis and a visit from a friend. The PA from Infectious disease came by and so far the cultures from the fluid around her lungs is not growing anything. But they are not ready to rule out infection quite yet. So we are still on hold for a possible procedure to do a more thorough cleaning from around her left lung.
We also had an afternoon visit from some out of town friends who are here for a gaming convention.
The schedule got a little screwed up with PT showing up at the same time as dialysis. PT got bumped. If they can still get out this afternoon, the plan is to use some type of harness to help Robyn stand up and then get her to sit in a chair. I am picturing something like those baby jumper things. We shall see.
She is currently off all IV drips and she took her pills orally today.
I have not heard of a release date but I am hoping for Tuesday. Since Monday is a holiday, I do not think we will move then. This will give us more time to work on swallowing and to make sure her lungs are stable.
Looking for a quite evening and night.
Thank you for the update. Praying that things go smoothly and that Robyn is comfortable. God Bless ... Read more
Thank you for the update. Praying that things go smoothly and that Robyn is comfortable. God Bless You, both.
Tammy Pilcher Praying for continued progress for Robyn. She's come so far and you are an outstanding caregiver, Da ... Read more
Tammy Pilcher Praying for continued progress for Robyn. She's come so far and you are an outstanding caregiver, David! God bless y'all!
jan murphy Things are improving ,our prayers continue for y'all.
Terrie Syvertsen David-Thanks so much for the update. Tell Robyn that we are hoping to hear she got a chance to use th ... Read more
Terrie Syvertsen David-Thanks so much for the update. Tell Robyn that we are hoping to hear she got a chance to use the "device" to give her a chance to stand upward as it must feel grand to let the blood get flowing again and hopefully get a chance to stare eye to eye with you if only for a short time!
I hope too that the cultures remain free of infection and that Robyn is able to slowly make her way back to her facility where she with all her continued love and support from you can begin her Healing Journey. Your awareness level and love for her has gotten her through another hurdle and we admire and love you for your continued show of love and strength.
Warmest regards to you both as many prayers and good wishes are continuing for you both-Have a nice quiet rest tonight and feel the LOVE.
Jim O'Brien Wonderful news to hear of the progress made. She indeed has come so far and gone through so much. She ... Read more
Jim O'Brien Wonderful news to hear of the progress made. She indeed has come so far and gone through so much. She's lucky to have you as such a wonderful caregiver. God bless you both.
Eleanor R Thank you for letting us know, as you can see you have a lot of support here thinking about you both ... Read more
Eleanor R Thank you for letting us know, as you can see you have a lot of support here thinking about you both and praying for the best healing going forward. After this experience, I believe you could write a book! We are with you.
2:30PM Wednesday, 5/20
Infectious Disease thinks that the fluid from around her lungs is infected. Cultures will be back tomorrow but preliminary results ...Read more
2:30PM Wednesday, 5/20
Infectious Disease thinks that the fluid from around her lungs is infected. Cultures will be back tomorrow but preliminary results lead them to believe that the area needs to be cleaned out. This will require a surgery. Not a big deal, they make a small incision in her side and run a tool in there and a second incision for a camera. Then clean everything out so there is good fluid flow around the lungs. A drain tube is placed in and it drains for 3 days. Antibiotics will take care of the rest.
The infection has returned to her lungs but the cultures are still treatable with the same antibiotics as before. She also has infection in the bones of her neck. Antibiotics for that to.
We will keep doing dialysis in an attempt to support the kidneys which will be effected by all the antibiotics.
Her leg wound continues to heal well (infection still present but antibiotics...). Her ICU delirium is getting to be full time right now. She has not had much clarity for the past three days. While this is normal (sleep deprivation, trauma, noises, lack of day and night and on and on.) and it normally clears up after a day or so; or at least within two weeks, it is hard seeing her so confused and distraught.
To help this I have music playing during the day (she sometimes sings along) and visitors lined up each day. She gets so much better when someone new comes in the room.
Not sure on time line for surgery or release to LTAC. I suspect surgery is any day and LTAC could be next week. I will make sure she gets transferred early in the week. The Friday transfer was a bad deal; she ended up spending the week-end laying in bed with minimal help and lacking evaluations and treatment plans for PT and speech and swallow.
Rhonda Rawles Haven't checked in for a few days so I'm sorry to hear of your setback. Want to say what an amazing ... Read more
Rhonda Rawles Haven't checked in for a few days so I'm sorry to hear of your setback. Want to say what an amazing job you are doing being Robyn's advocate. You know her better than anyone else so if you feel something isn't right you should go with that instinct until they listen. Keep fighting for Robyn, she will be back to a new improved version of herself hopefully before you know it.
Terrie Syvertsen David and Robyn. Thinking of you and appreciate the updates. I wish there was something I could do to ... Read more
Terrie Syvertsen David and Robyn. Thinking of you and appreciate the updates. I wish there was something I could do to lessen all that is happening to you both. I will be praying and sending out clear and heartfelt thoughts for Robyn to continue to tolerate all of the antibiotics and changes taking place. I wish you continued strength in all of this and if there is anything I can do, anything any of us can do please don't hesitate to let us know. Prayers for healing continue. Take care of You too.
I'm so sorry to hear about the complications. May God continue to heal Robyn from the inside out.
Yo ... Read more
I'm so sorry to hear about the complications. May God continue to heal Robyn from the inside out.
You are so lucky to have each other.
When I was in the hospital I would go to Pandora on my phone and listen to Gary Prim's beautiful piano music. It helped shut out so many other hospital noises and was relaxing.
God Bless you, both.
Tammy Pilcher Praying for y'all. Your strength is an inspiration! God bless!
Eleanor R It is good they have figured out what the issue is, I am sure that not only will Robyn breathe easier ... Read more
Eleanor R It is good they have figured out what the issue is, I am sure that not only will Robyn breathe easier, so will you. The good thing about cultures is that they indicate what is going on, and what the remedy should be. You are in the right place for now. Keep your strength up, you are such a part of her healing.
4:30PM Tuesday 5/19
The doctors drained 600ml from around her left lung. It looked like old fluid, probably been there a while. Her lung looks good and open ...Read more
4:30PM Tuesday 5/19
The doctors drained 600ml from around her left lung. It looked like old fluid, probably been there a while. Her lung looks good and open at the bottom.
The tube came out at 4PM.
She is resting now and her stats all look good. Hopefully an easy restful night.
Clare Auten Wow. What a long journey you have already had. Praying that Robyn is on the road to recovery. Praying ... Read more
Clare Auten Wow. What a long journey you have already had. Praying that Robyn is on the road to recovery. Praying for your continued strength as you support and lead her on this journey.
Tim Goff Great to get the tube out. I hope that she continues to make some progress into tomorrow.
Nancy D wow...she should feel better after that! Would be like trying to breathe through soup! So glad you ... Read more
Nancy D wow...she should feel better after that! Would be like trying to breathe through soup! So glad you got her back there when you knew something wasn't quite right!! Praying for her complete recovery and you to maintain your health and stamina during this trying time!! ++++
Ann Keating Worrying and praying for both of you. This has to be one of the hardest things you and Robyn have ev ... Read more
Ann Keating Worrying and praying for both of you. This has to be one of the hardest things you and Robyn have ever had to go through. Hoping for the best.
Janet R Continued prayers for you and Robyn so that all of this will be behind you and on the road to recover ... Read more
Janet R Continued prayers for you and Robyn so that all of this will be behind you and on the road to recovery and healing.
Kathleen Peterson You two are having quite a journey. Robyn is so blessed to have such a devoted and loving husband. ... Read more
Kathleen Peterson You two are having quite a journey. Robyn is so blessed to have such a devoted and loving husband. Prayers continue for you both.
11:30 AM Tuesday 5/19
Robyn is still stable.
Another round of HD dialysis today. She is very awake but with the tube in her mouth she really can not communicate ...Read more
11:30 AM Tuesday 5/19
Robyn is still stable.
Another round of HD dialysis today. She is very awake but with the tube in her mouth she really can not communicate very well. She thinks she can write but nothing legible comes out. She does know sign language and she thinks she is spelling things but it does not quite make sense. It is hard to judge someone lucidity when they have a tube in their mouth and some sedatives in their system. So I am not sure what she wants to say but it seems that she is not in distress and we tell her she just needs to wait awhile until we get the tube out.
The LATC never sent over her CT scan films yesterday. We called this morning and they had put them in the regular mail. So I drove out there and picked up a CD copy and brought it back for the team to review. Once they have looked we will hopefully know if there is a need to do something or not. X-rays do not show anything as dramatic as the LTAC doctor indicated in his notes. But that is why the Piedmont doctors want to see the scans.
Unless she is going to need surgery, and the tube in for that, we will start to see if it can be removed in the next hour or so. Since she was breathing fine with good O2 levels on Sunday, I suspect it will come out soon.
Still lots of questions but I do not think she is in danger. My hope is that early next week we can have her stable and strong enough to leave the ICU for the last time. Yesterday was the 6 week mark in this journey. Thanks for following along and for all of the support.
Laura Metrano David, your strength and dedication continue to amaze me. Robyn is a lucky woman to have you by her s ... Read more
Laura Metrano David, your strength and dedication continue to amaze me. Robyn is a lucky woman to have you by her side. Its been a tough 6 weeks but clearly not more than you can handle. Happier, healthier times are coming for both of you! Hang in there... you are an inspiration for all of us :)
Duane Beeman I can't believe it has been six weeks. I hope above hopes that you are almost finished and that she ... Read more
Duane Beeman I can't believe it has been six weeks. I hope above hopes that you are almost finished and that she can begin to rebound in earnest.
Gerald Schaffer Thank God you were there for her to make sure the move back to the ICU happened. I feel so bad she ha ... Read more
Gerald Schaffer Thank God you were there for her to make sure the move back to the ICU happened. I feel so bad she had this big of a setback but she's in good hands and she has you to make sure things go better.
We have Robyn back in the ICU with her old team. Still assessing but she is stable and safe and will be that much stronger when she returns to rehab.
Even ...Read more
We have Robyn back in the ICU with her old team. Still assessing but she is stable and safe and will be that much stronger when she returns to rehab.
Even when she was seeing things and confused, she kept saying "I need to get motivated. I need to get up. I need to get going." She really is ready for rehab and getting on with recovery.
Praying for you and Robyn. She is in good hands. Sounds like she is very strong spirited. God Bless Y ... Read more
Praying for you and Robyn. She is in good hands. Sounds like she is very strong spirited. God Bless You,both.
Sandy Davis prayers being sent up the 2 of you. Stay strong!
jan murphy David don't worry about freaking out.The nurses really want you to be involved and freaking out gets ... Read more
jan murphy David don't worry about freaking out.The nurses really want you to be involved and freaking out gets their attention so be it.
Nancy D Praying for you both and all who are caring for her! I hope this is the start of her healing fully a ... Read more
Nancy D Praying for you both and all who are caring for her! I hope this is the start of her healing fully and completely! Keep standing up for her, and being the wonderful advocate for her!! Also take good care of you, as you are so key in her progress !!!!
What an ordeal! My husband Dave and I marvel, ... Read more
What an ordeal! My husband Dave and I marvel, since my stay of 100 days was plenty for me!! I was sedated for over two weeks and I understand learning to move again, so very hard. I used to joke with my nurses and staff that I was a T-Rex since it was a week before I finally moved my arms, but only at the elbows.😄 Anyway YOU are a miracle! I find walking so very difficult, even in Cardiac Rehab I did my exercise sitting. I am on Oxygen 24/7 so getting around takes me a someone else to drag my bottle, until I'm stronger. My friend has committed to walking me twice a week, so that's a huge help. I never thought I'd be the one asking for so much help, it's humbling. All of your list is SO TRUE. I often would get a whiff of those eggs and weep with sorrow. I often went to sleep hungry, but I tried to remember, if my Dad ate in the Navy, on a Sub, in the 40's-60's then I can shovel down this stuff☄️😄It helped. Best Regards Robyn, thanks for your post! 💕🌿