Hi All, It's been 3 and 1/2 years since my mitral valve replacement and mostly I'm fine, at least my heart is. I'm wondering if any of you "old timers" have ...Read more
Hi All, It's been 3 and 1/2 years since my mitral valve replacement and mostly I'm fine, at least my heart is. I'm wondering if any of you "old timers" have experienced continued tightness around the scar, muscle tightness in the upper body, and high levels of anxiety and fear. Since my cardiologist doesn't have much to say since tests show all is well I'm hoping that someone out there can relate. I wish great health to all of you and rapid recovery to those awaiting surgery.
Michael Bronshteyn Hey Susan. I had my surgery about few months after yours. I liked your posts a lot when I was reco ... Read more
Michael Bronshteyn Hey Susan. I had my surgery about few months after yours. I liked your posts a lot when I was recovering after mine, so I set a notification when you post again.
To answer your question. I do feel my scar often. Especially when I do pull ups ( I do around 10 ) or push ups. My surgeon told me that it was expected. I guess it will stay with me. But I don't feel muscle tightness in upper body.
Anxiety, fears. Not as much. One thing I have noticed, that late dinner will cause the heart pump harder. Thus I started to avoid all the late night eats, drinking etc. That really helped.
Catie B Hi Susan! I'm sorry you're experiencing these struggles. I don't have scar tightness that I know of, ... Read more
Catie B Hi Susan! I'm sorry you're experiencing these struggles. I don't have scar tightness that I know of, but there are a lot of positions where I experience my sternal wires poking me inside. At least, that's what I attribute the sharp pangs to. It's nothing I can't cope with but can be uncomfortable. Also, I have had medical-related anxiety for a long time...
Shannon Gray Yes to both... not so much on my main scar, but I had a second surgery with a pericardial window ( ab ... Read more
Shannon Gray Yes to both... not so much on my main scar, but I had a second surgery with a pericardial window ( about a one inch length scare underneath my initial scar) that is really uncomfortable. It can feel tight, itchy, sore... nothing to do about it.
As for medical related anxiety ( or anxiety in general), Inam the poster child. It has increased greatly before and after surgery. I am in counseling, avoid caffeine except one cup of half caf coffee, and have turned to meditation. Not over it but am a work in progress.
I wish you good health and peace as you continue on this journey.
Marie Myers Yes, I still experience a little fear/anxiety at 2 years post op. I find myself worrying a bit over ... Read more
Marie Myers Yes, I still experience a little fear/anxiety at 2 years post op. I find myself worrying a bit over routine doctor visits, even though I feel fine. I guess it is just the fact that this whole surgery was so unexpected for me, I find myself wondering what is next? I can say that yoga and meditation has helped, and I am doing better at this point. I am still a work in progress, though...I Hope you find more and more peace your journey.
susan kotansky It is very comforting knowing that you are all out there. The medical world does its amazing job for ... Read more
susan kotansky It is very comforting knowing that you are all out there. The medical world does its amazing job for us but then we;re out there with no explanation for some weird symptoms. When you think of the trauma our bodies have undergone it seems logical that there would be residual effects. What is missing for me is the doctor, or PA, or nurse, or counselor, whose job is to be present for patients undergoing OHS, Marie I experience the same thing everytime I go to any doctor.After all it was a routine visit with my cardiologist that started the ball rolling, I also have become deeply involved with yoga, which has helped enormously. Many have encouraged me to go to therapy which is my next step. Accepting that I must learn to live with some discomfort is a challenge as I tend to obsess over it. In any case thank you all for responding, We are indeed a funny family that understands each other as no one else can,
Civita Fahey Gee Marie we are so alike.. I feel the same thing. I find myself not wanting to make routine appts be ... Read more
Civita Fahey Gee Marie we are so alike.. I feel the same thing. I find myself not wanting to make routine appts because of the anxiety of hearing something is wrong.. and not only heart issues. So, Susan it is normal I guess. I am much more anxious than before my surgery. so hang in there.
Rita Savelis Oh yeah 4 yrs later the tightness comes and goes. As does the anxiety. Our bodies let us down and it' ... Read more
Rita Savelis Oh yeah 4 yrs later the tightness comes and goes. As does the anxiety. Our bodies let us down and it's hard to trust again. I hear and I feel for you. But after 2 yrs I started to be a bit more relaxed about what I was physically feeling in my chest. Perhaps it's my new norm? Time heals but it's a long process. Wishing you some peace . Take care.
Here I am two years later, with this surgery pretty much in the background of my life. I am writing again to ask if there is anyone who has dealt with the ...Read more
Here I am two years later, with this surgery pretty much in the background of my life. I am writing again to ask if there is anyone who has dealt with the flu while having a prosthetic valve. I seem to have caught it from my husband and am concerned about secondary infections although I am in very good health otherwise. I was given a prescription for tamiflu but after reading about benefits vs. side effects I opted not to take it. I am taking lots of natural remedies: vit. c, vit. d, oregano, garlic and cannabis oil.......but reading about dangers of flu has gotten me scared. As for my heart, that has gone really well, especially in the last several months. My scar is barely visible and my echo shows all is normal. I wish good luck and good health to all of you in the new year and look forward to hearing from anyone who has experience with my latest issue.
Lilly Black Hi, Susan. I have had colds and I have had the flu, and none of it has caused any unwanted infections ... Read more
Lilly Black Hi, Susan. I have had colds and I have had the flu, and none of it has caused any unwanted infections surrounding my heart. I agree with you, we must weigh our options and make wise decisions for ourselves. I tend to freak out over everything, but once I calm myself and weigh all my options, I can honestly say that I have managed quite well. You have to do what is good for you. I don't think Tamiflu will cause issues, but like you, I always prefer to go the natural route. I also usually have a bottle of antibiotics in the fridge, just in case I have an accident, as I did the other day almost slicing my finger off with a hedge trimmer. I always check with my doctor, but then decide for myself what is best. Hope this helps, let me know if you have questions.
susan kotansky Dear Lily, I so appreciate your reply. No one understands these questions better than those of us on ... Read more
susan kotansky Dear Lily, I so appreciate your reply. No one understands these questions better than those of us on this list. I do prefer natural remedies but I will take drugs when necessary. Reading about Tamiflu made me wonder what's the point. They claim it shortens symptoms by one day but has a whole list of possible side effects. I also freak out easily (must be the valve!) so any new symptoms can throw me into a panic attack. I have an appointment with my doctor this afternoon and will decide what to do then. Again, thank you so much!
Sophia Ridley Hi Susan, Here in the UK I’m entitled to a flu jab, which seems to have worked this year. It’s so ... Read more
Sophia Ridley Hi Susan, Here in the UK I’m entitled to a flu jab, which seems to have worked this year. It’s sore throats that panic me more and I gargle diluted TCP the moment I sense one which, frankly, would scare anything away!
Can you take paracetamol which will help with the fever? Hot lemon, honey and ginger tea is a favourite as combined with paracetamol is as close to Lemsip as I’ll get! I can’t take any decongestants, but do use steam inhaler. I wish you a speedy recovery.
Whenever I’m run down / ill, it’s like a little nudge to remind me I’m a heart patient, have sinus rhythm with a split second beat and more ectopics at the moment. Hoping a rest will fix it, as I limp through to my annual check up this week!
Bonnie Stone-Hope Hi Susan, Good idea to speak with your family physician about your concerns.
Best wishes for a spe ... Read more
Bonnie Stone-Hope Hi Susan, Good idea to speak with your family physician about your concerns.
Best wishes for a speedy recovery!
Anna Jones Hi Susan, I have the flu. I haven't had surgery yet. My PCP put me on the TamiFlu. This is rough s ... Read more
Anna Jones Hi Susan, I have the flu. I haven't had surgery yet. My PCP put me on the TamiFlu. This is rough stuff. It is making me very ill. I'm not sure I will continue taking it if I continue to feel this nauseous.
My PCP also put me on Mucinex DM because he said he doesn't want mucus accumulating in my lungs. He has also put me on Cheratussin to thin out the muscus.
My PCP was more concerned about pneumonia than my MV.
Hope this helps.
Michael Bronshteyn Susan. The only precaution I am aware of is having antibiotic for dental work. Flu is a virus. I ... Read more
Michael Bronshteyn Susan. The only precaution I am aware of is having antibiotic for dental work. Flu is a virus. I don't think it will affect the valve as bacteria would.
Michael Bronshteyn Susan. I just checked with cardiologist. He said that it was no evidence that flu virus could affec ... Read more
Michael Bronshteyn Susan. I just checked with cardiologist. He said that it was no evidence that flu virus could affect the prosthetic heart valve. It can cause heart muscle inflammation, myocarditis, but it is a different story.
susan kotansky Thanks everyone! It appears thus far that all the immune building remedies I've been taking have less ... Read more
susan kotansky Thanks everyone! It appears thus far that all the immune building remedies I've been taking have lessened the severity of whatever it is that I have. I didn't take Tamiflu cause of the possibility of nausea (I don't deal with it very well) and of all things "dangerous arrythmias"!...as if I haven't had enough of those. In any case it's too late for it so I will never know if it helped or not. In the meantime I'm taking vitamins & homeopathic remedies and seem to be improving. My husband got sicker after a few days so I'm not out of the woods but I am optimistic that I will be fine. I so appreciate all the feedback. Michael...the concern is that a secondary infection (bacterial) could affect the heart. The flu itself is not the issue. So that's why I've been so nervous which is not good for healing. Thank you for checking!! Anna, sorry about your nausea...it at least validated my choice so thanks for sharing. Good luck with your surgery which I'm sure will go well. Happy New Year to everyone!!!
susan kotansky Thanks for asking Sophia. I'm feeling almost better. Fortunately it was milder than I thought it migh ... Read more
susan kotansky Thanks for asking Sophia. I'm feeling almost better. Fortunately it was milder than I thought it might be, given how sick my husband was. In fact, if I didn't have a cow's valve in my heart I would not have thought twice about the flu. I guess staying healthy is the best protection. Hope all goes well with your check up. Just had my second yearly echo and thank God all is good.
First anniversary mitral valve replacement! On October 1st, 2015 I went into surgery hoping for minimally invasive repair of my mitral valve, defective from ...Read more
First anniversary mitral valve replacement! On October 1st, 2015 I went into surgery hoping for minimally invasive repair of my mitral valve, defective from early childhood. When I woke up it was with a replaced valve (bovine) through the sternum. My surgeon (Dr. Argenziano, Columbia Presby. the best!) had told me that this was possible but in any case I would wake up with the situation taken care of. So here I am a year later, after an uneventful (thank goodness) recovery, healthy and active...no more skipped beats (a lifelong disruption). I was extraordinarily anxious beforehand, used ativan to get me through the pre op terrors, was quite anxious for the first few months believing I would never be the same. The good news is the anxiety passed as I improved from month to month. By January I was dancing again and soon thereafter traveling, dancing, hiking, galloping up the stairs. The only issue I feel still is a tightening sensation around the top of the incision but hey... a small price to pay for being healthier than before. My love goes out to all of you about to undergo this life saving, life changing event This site really helped me get through the rough times with all the support available from those with experience and it can do the same for you. I feel so fortunate to be where I am in my recovery and wish you the best too. We are so lucky to live in a time where such surgery is so common and perfected.
Ellen Leng thanks so much for checking in and bringing such good news from the far side of OHS. Congratulations! ... Read more
Ellen Leng thanks so much for checking in and bringing such good news from the far side of OHS. Congratulations!
Carmen P Wow, that was something I needed to hear. Thank you Susan.
Emily Rowley Happy Year Valve-Anniversary 😃 Great to hear you recovery has went well and you are back to enjoyi ... Read more
Emily Rowley Happy Year Valve-Anniversary 😃 Great to hear you recovery has went well and you are back to enjoying things you love. 💖
Nancy Lewis This was inspiring. I'm 17 days post op and feeling a little blue under the "homebound" clause. Loo ... Read more
Nancy Lewis This was inspiring. I'm 17 days post op and feeling a little blue under the "homebound" clause. Looking towards a time when I can get out and walk some more and get the strength back. Your story is great and good to hear. It will pick up a lot of us.
Charles Haas Glad to hear the progress. I'm just a few days past you (Oct 5) and had a successful MV repair. All ... Read more
Charles Haas Glad to hear the progress. I'm just a few days past you (Oct 5) and had a successful MV repair. All the best.
Susan Lyons Thank you for writing this,very encouraging.
Having had mitral valve prolapse all of my life ...and with moderate to severe regurgitation since I've been getting echoes..I also suffered with anxiety and ...Read more
Having had mitral valve prolapse all of my life ...and with moderate to severe regurgitation since I've been getting echoes..I also suffered with anxiety and panic attacks. My resting pulse was often 90 with bouts of tachycardia and skipped beats. I am now almost 11 months post surgery (OMG I can't believe it!). Although I have wanted to get off metoprolol (25mg) my resting pulse has gradually gone down to 65-75 and interestingly I feel so much calmer. I have always thought my anxiety caused a rapid heart beat not that the rapid heart beat caused anxiety. In any case I'm feeling really well and so grateful for this surgery . For all waiting in the wings....we are so fortunate that our hearts are fixable in this day and age. I am also grateful to this site at which we can receive and give support to each other.
Catie B I'm glad to hear of your recovery and that your anxiety is better these days. It sounds like your qua ... Read more
Catie B I'm glad to hear of your recovery and that your anxiety is better these days. It sounds like your quality of life has improved, and that's worth celebrating. :)
Corey Sines MV prolapse syndrome and anxiety often go hand and hand for some reason:
Anxiety, panic disorder and other anxiety disorders are very common in patients with mitral valve prolapse. Disorders can make a person become phobic and agoraphobic, not wanting to leave their home. List the different types of disorders and explain biochemical changes
susan kotansky Interesting Corey....thanks for posting. Perhaps OHS is an option for curing panic attacks!!! Just ki ... Read more
susan kotansky Interesting Corey....thanks for posting. Perhaps OHS is an option for curing panic attacks!!! Just kidding. In all seriousness it appears that a lot of the malaise that I have felt so often in my life, is simply gone and it feels directly related to the gentle beating of my heart. As I went through preparation for the most anxiety provoking episode of my life, I never anticipated the positive outcome I am experiencing now. For all of you out there awaiting this event...look forward to the renewed health you are about to receive!!!!
8 months after mitral valve replacement and I have a question about weaning off of metropolol. My heart rate has always been on the high side (90) and was ...Read more
8 months after mitral valve replacement and I have a question about weaning off of metropolol. My heart rate has always been on the high side (90) and was even higher after surgery for awhile, even with metropolol. Now it has come down to 75ish at rest to the high 80s when up and about. I like the fact that it is slower, which makes me calmer however, I really don't like taking it or any drug and would love to wean off of it. Can anyone share his/her experience getting off of this drug. I've read a lot of discouraging accounts online. I am concerned about rapid pulses and arrythmias if I wean off. My bp is already on the low side. I would so appreciate some suggestions. Thanks!!!
Rita Savelis I went off betablockers after a year (had halved the dose at 6 months and felt so much more energetic ... Read more
Rita Savelis I went off betablockers after a year (had halved the dose at 6 months and felt so much more energetic). Yes, my heart rate did go up (in the 100's) and was a bit irregular (I have always had very low blood pressure) but the cardiologist said that was okay and that I was "safe " because anticoagulants protected me from blood clots. My depression also lifted almost immediately after stopping betablockers. I say, give it a try, you can always go back on. Also there are other meds for patients who don't do well on betablockers. My cardio said that if I was "disturbed" by a high heart rate I could go back on meds, but I'm trying to not be "disturbed"...
Clare Auten I'm still on a beta blocker but not metroprolol. I take Bystolic which works much better for me with ... Read more
Clare Auten I'm still on a beta blocker but not metroprolol. I take Bystolic which works much better for me without so many side effects. If your doctor says you still need one, maybe you could get something different.
susan kotansky In actuality I feel fine with the metropolol. I don't have any side effects but I do think I'm more t ... Read more
susan kotansky In actuality I feel fine with the metropolol. I don't have any side effects but I do think I'm more tired than usual. I just don't like being dependent upon a drug. The cardiologist also told me to try weaning off of it. I'm an anxious kind of person and a rapid pulse makes me even more anxious so everyday I say, tomorrow, I'll halve it. I was hoping for someone to tell me how easy it was for them to stop it, but so far no luck! Thanks for your responses!!!!
Clare Auten Unfortunately for me, my blood pressure still runs high so I am stuck on a drug for a while. Good luc ... Read more
Clare Auten Unfortunately for me, my blood pressure still runs high so I am stuck on a drug for a while. Good luck. If the cardiologist says to cut it in half, try it. Do you take it morning or night? I take my beta blocker at night....works better for me that way. Not so tired.
Rita Savelis I understand your not wanting to be on anymore drugs than you need to be. And if your cardiologist re ... Read more
Rita Savelis I understand your not wanting to be on anymore drugs than you need to be. And if your cardiologist recommends weaning off, you really should give it a go... You don't have to halve it. You can just lower it a bit and then go from there. I understand the anxiety issues though. It's all hard, really... I feel for you.
Sophia Ridley Susan, Reducing my beta blockers are on my mind too. Thank you for raising the question and the advic ... Read more
Sophia Ridley Susan, Reducing my beta blockers are on my mind too. Thank you for raising the question and the advice.
susan kotansky When my pulse goes near 100 and over...I start to freak out. I have to be willing to possibly experie ... Read more
susan kotansky When my pulse goes near 100 and over...I start to freak out. I have to be willing to possibly experience that if I cut down. I'm wondering if there's anyone out there who has gotten off of metoprolol successfully i.e. their heart rate returned to a slower pace without a drug.
Wanda Mroz I'm trying to get the OK to come off metropolol because my HR is down quite a lot since right after s ... Read more
Wanda Mroz I'm trying to get the OK to come off metropolol because my HR is down quite a lot since right after surgery. I wear a Fitbit HR to sk
Keep and it shows my rate in the50s at night... Plus my bp runs low also. So I'm hoping when I see my cardiologist in a couple of months I'll be able to come off of it.
It's been 8 months and really I can hardly believe that I've had open heart surgery. For all of you about to undergo this procedure I hope you find comfort ...Read more
It's been 8 months and really I can hardly believe that I've had open heart surgery. For all of you about to undergo this procedure I hope you find comfort in the fact that so many here are well and thriving and you will too. I just came back from a 6 week journey in Europe, dancing, climbing hills and steps, hiking, living life to the fullest. I thought several months ago that I would never be able to go on this trip...I thought I would never feel "normal" again. In fact, I feel a whole lot better than normal. I thought I had had no symptoms...but I realize now I had symptoms, which I lived with my whole life and considered to be part of the human condition. The first few months were challenging but things get increasingly better with time. I wish you all good health!!!!
Michael Bronshteyn Hi Susan. Thanks for your post. I remember myself 2 weeks after my surgery reading your 3.5 months p ... Read more
Michael Bronshteyn Hi Susan. Thanks for your post. I remember myself 2 weeks after my surgery reading your 3.5 months post. It was very inspirational and it really helped me out.
I can concur. I am now 5.5 months after my surgery. While I still feel my scar I am back to my full workout schedule.
For those like me 5 months ago, right after surgery. Things will get better. It is hard to push yourself back into your previous life. But it is doable. Don't rush. If you need more time, take it.
Bridget Sawmiller So great to hear, I am about 60 days out for my OHS and your posts do really help to know that I will ... Read more
Bridget Sawmiller So great to hear, I am about 60 days out for my OHS and your posts do really help to know that I will recover and get this chapter behind me.
Betsey West thanks for posting these wonderful updates. I'm two weeks from my surgery date (aortic valve), feeli ... Read more
Betsey West thanks for posting these wonderful updates. I'm two weeks from my surgery date (aortic valve), feeling ready to "get on with it" and move forward into a more functional part of my life. REally great to know that you're doing so well.
Wanda Mroz I agree Susan. I too thought I had no symptoms. I was wrong. I feel much better now after my repai ... Read more
Wanda Mroz I agree Susan. I too thought I had no symptoms. I was wrong. I feel much better now after my repair. Glad you are doing so well.💞
Don Taylor I am having my surgery after meeting with surgeon on June 9th, should be two weeks after. Your post h ... Read more
Don Taylor I am having my surgery after meeting with surgeon on June 9th, should be two weeks after. Your post helps me understand that maybe the way I have been feeling for years is not the way it should be. I am hoping for better. Thank you.
Wanda Mroz You will see some difference I guarantee that. Wishing you well on your meeting with the surgeon.
It's been 8 months and really I can hardly believe that I've had open heart surgery. For all of you about to undergo this procedure I hope you find comfort ...Read more
It's been 8 months and really I can hardly believe that I've had open heart surgery. For all of you about to undergo this procedure I hope you find comfort in the fact that so many here are well and thriving and you will too. I just came back from a 6 week journey in Europe, dancing, climbing hills and steps, hiking, living life to the fullest. I thought several months ago that I would never be able to go on this trip...I thought I would never feel "normal" again. In fact, I feel a whole lot better than normal. I thought I had had no symptoms...but I realize now I had symptoms, which I lived with my whole life and considered to be part of the human condition. The first few months were challenging but things get increasingly better with time. I wish you all good health!!!!
7 months!!!! Mostly I have been absolutely great however, I am now on a 6 week trip to Europe...starting with a two week transatlantic cruise (teaching on it). ...Read more
7 months!!!! Mostly I have been absolutely great however, I am now on a 6 week trip to Europe...starting with a two week transatlantic cruise (teaching on it). Today for the second time in two weeks I woke up with my heart beating at 116. This happened once at home as well. It wouldn't slow down so I went to the ship's doctor who after an ekg and some bloodwork recommended upping the dose of metropolol. I called my own cardiologist and he said he agreed. I have been taking 25 mg extended release since my surgery and except for these few episodes it has been working. I am really nervous about increasing the dose especially while I am away from home and my own doctors. It has been my goal to eventually stop taking it and I'm really concerned that it will be so much harder to get off of it if I increase. On the other hand the rapid heartbeat was terrifying. It lasted for an hour and I'm afraid it will happen again. Any suggestions????
Denise Campbell That is scary. Especially be away from home. Be had to up my metoprolol to 50mg a day too. My h ... Read more
Denise Campbell That is scary. Especially be away from home. Be had to up my metoprolol to 50mg a day too. My heart rate stayed between 100-115.
I'm 6 weeks post op. Go to doc when u get home to double check. Anxiety makes it worse so try to stay calm. Good luck
Michael Bronshteyn Hi Susan. You can always decrease your dose later, once you feel better. I was on 50mg extended rel ... Read more
Michael Bronshteyn Hi Susan. You can always decrease your dose later, once you feel better. I was on 50mg extended release and went down to 3/4 and later to half of the pill. It took approximately 2 weeks for each step down.
I noticed that if I have to eat or drink late at night, my heart rate goes up. Thus I avoid it.
Besides, I try to eat light for dinner. If I have something heavy, like steak, even at regular time I feel it at night.
Michael Bronshteyn Another thing which may happened. Metoprolol has rebound effect ( my cardiologist warned me about it ... Read more
Michael Bronshteyn Another thing which may happened. Metoprolol has rebound effect ( my cardiologist warned me about it ). If you miss a doze, your heart rate will go up and will stay there. Before extended release I was on two 25 mg regular pills. Once I took my pill a lot early in the evening and I woke up with the same thing you did. Went to ER. They said that I was fine. My doctor later told me that what happened was combination of pill wearing out along with me becoming a lot more active at the gym, what could wear out the pill sooner. He told me that if it happens again just take an extra doze to quite heart down. You will feel rebound effect a bit later once this extra doze wears out, but it would not be that bad.
susan kotansky Thank you Michael.....This trip has included many time changes, late nights and lots of dancing and w ... Read more
susan kotansky Thank you Michael.....This trip has included many time changes, late nights and lots of dancing and walking...also late eating....much more than at home. I'm going to wait a few days and try to regulate myself cause my concern is that my blood pressure will go down if I increase the dosage....it's already on the low side. It's weird....I'm fine all day.. It helps to know that others have had this experience and were ok.
Betsey Osgood So happy for you going on such a great trip!!! I just cut my metropolol 25mg in 1/2 because my blood ... Read more
Betsey Osgood So happy for you going on such a great trip!!! I just cut my metropolol 25mg in 1/2 because my blood pressure was too low and I was getting light headed. I have noticed that my heart rate and PVC's increased. My cardiologist said to take an additional 1/2 if I'm having to high a heart rate or PVC's. It will take time to adjust. Scary when you're out to sea. What are you teaching on the ship?
susan kotansky Hi Betsey...my husband and I are teaching international dance on board....I've never been on a cruise ... Read more
susan kotansky Hi Betsey...my husband and I are teaching international dance on board....I've never been on a cruise, ever and it's amazing! Of course my one fear before we left is that something would happen with my heart in the middle of the Atlantic so my self fulfilling prophecy came true. Thank the lord I was all right. This has happened a few times since the surgery...always in the morning which is odd or is it? I've decided to hold off on increasing the dosage of metropolol because the side effects might be worse than a rapid pulse and I so hate depending on drugs. If I need to increase I always can. I just feel that some doctors are so quick to dole out meds without personalizing. My blood pressure was so low after surgery (in the 80s and 90s) I couldn't take a higher dose. Now it's kind of normalized to 110ish and I don't want to jeopardize the stability. I really appreciate people responding to me....it so unbelievably comforting!!!! Love to everyone!!!!!
Michael Bronshteyn Susan. Do you take metoprolol in the morning? If so, it would explain if it wears out by next morni ... Read more
Michael Bronshteyn Susan. Do you take metoprolol in the morning? If so, it would explain if it wears out by next morning. I switched to take mine at lunch once a day. A bit inconvenient, but it reduced morning problems.
susan kotansky So I didn't up the dose, as an experiment. I don't eat at night nor have decaf after 12 noon. I pract ... Read more
susan kotansky So I didn't up the dose, as an experiment. I don't eat at night nor have decaf after 12 noon. I practice my yoga breathing whenever I remember. So far so good. My bpm has remained in the 80s. From reading many many entries on this site and others I know that people get sudden unexplained spikes in heartrate so it's one day at a,time. In my gut I don't believe it's related to the metropolol. I'm open to it if necessary but it's just so easy for doctors to jump to that as the first solution. At least I'll wait till I get home. Love to all! !!!
I just wanted to share how great I feel...especially in comparison to how I felt! Since my last post, which was a turning point in itself ,( to which I attribute ...Read more
I just wanted to share how great I feel...especially in comparison to how I felt! Since my last post, which was a turning point in itself ,( to which I attribute the benefits of moving) life has become, may I say, "normal". My always rapid heart beat, which has been around 90 for many years and which rose higher after surgery, causing panic and anxiety...making it go even higher, is now somewhere between 70 and 88 (with metoprolol). When it races, I feel crazy...so I feel so much calmer. I still wake up feeling weird and nervous but it passes. My cardiologist told me I have no restrictions so I feel comfortable doing whatever. I'm about to go on a work/vacation on a two week cruise (my first ever) trans-atlantic to Barcelona followed by dance related events in Hungary and Albania! I'm more than a little nervous about being in the middle of the ocean and having a panic attack but hey I'll deal with it.
I want to let everyone who is at the beginning of this journey know that If I could get this far...so can you!!!! I was not the best patient. I freaked out at every symptom. I was depressed and panicky. In my frustration and discomfort, I was mean to my family. As my physical condition improves, so does my attitude.
If there is one thing I could have controlled or changed about this whole ordeal it would be having had more knowledge from the doctor about what kinds of post surgical symptoms are normal and which are signs of trouble. I worried about them all. It was hard to know whether to call the surgeon or the cardiologist or primary care physician. From what I've read on this website some of you seemed to have 24 hour access to on call physicians. What a great idea.
I am very grateful for this forum....it was where I learned what was normal and what wasn't. Thank you all, heart family, for being out there. Sharing with people who know what you're talking about is the best medicine ever. Love and good health to you all!!!!
Kate Watson Thanks for sharing this Susan. I am a chronic worrier too, so I appreciate hearing this from you and ... Read more
Kate Watson Thanks for sharing this Susan. I am a chronic worrier too, so I appreciate hearing this from you and your advice about learning what is normal. So glad to hear you are doing well too. Thanks for the encouragement!
Sophia Ridley Totally agree with you about advice post surgery on what to expect. I didn't even realise what medica ... Read more
Sophia Ridley Totally agree with you about advice post surgery on what to expect. I didn't even realise what medication I would be on. I'm not usually one to worry about things but have since surgery. What I thought was minor chest pain turned into open heart surgery so have a bit of issue keeping perspective. Having exercise echo on Friday as when walking uphill I get more breathless than I had been (might be that I'm walking faster etc), trying to keep a lid on this but be glad for the 'all clear'.
In my last post I talked a lot about anxiety and depression. The way I feel now may well be the best way to demonstrate how much of a roller coaster ride this ...Read more
In my last post I talked a lot about anxiety and depression. The way I feel now may well be the best way to demonstrate how much of a roller coaster ride this whole experience has been. In fact, I feel WONDERFUL (at least for the last few days). This past week end I had the opportunity to be at a dance festival at which I DANCED FOR THREE DAYS IN A ROW with no problem!! It was the best I have felt since the surgery and it showed me how important it is to MOVE, even when I don't feel like it. A nagging soreness, painful stiffness in the middle of my back which I have felt since the procedure, which I feel when breathing deeply, disappeared after all that dancing. It's not totally gone, but I know it is fading. I have had more energy and less sadness. I understand that there will be up and down days but I am thrilled to feel WELL for a while. It's important for me to share with you all that I actually feel healthy!!! I was seriously doubting that I ever would again. I am feeling deep gratitude. So to all my heart family.....if you haven't had this moment yet...you will!!!!
Kate Watson That's wonderful to hear! Thanks for sharing.
Sheila Harrison That is such great news. I am so looking forward to that moment! Thanks.
Gail Magnus Thanks for sharing for us newbies, or in my case, 2nd time for OHS. However, it was 16 years ago. Co ... Read more
Gail Magnus Thanks for sharing for us newbies, or in my case, 2nd time for OHS. However, it was 16 years ago. Congrats!
Wanda Mroz Awesome! It is definitely a good feeling.
Sophia Ridley That's wonderful news! I'm fed up with some aches so love posts like this :)
Emily Rowley That is wonderful Susan 😊 I am still waiting for that moment...
Michael Bronshteyn Great news!!! Totally happy for you. I have same thing before going to gym. After a good workout ( ... Read more
Michael Bronshteyn Great news!!! Totally happy for you. I have same thing before going to gym. After a good workout ( cardio only for now ) I always feel better, especially mentally.
Shirley Wong-Cruz Hi Susan, I'm glad you are feeling much better. Maybe one day we meet in NYC. I live on Long Island. ... Read more
Shirley Wong-Cruz Hi Susan, I'm glad you are feeling much better. Maybe one day we meet in NYC. I live on Long Island. Be well ❤️
Dear Heart Family, I am seriously seeking support and comfort for profound anxiety...and am not sure what avenue to tread. I did suffer from anxiety/panic different ...Read more
Dear Heart Family, I am seriously seeking support and comfort for profound anxiety...and am not sure what avenue to tread. I did suffer from anxiety/panic different times in my life before the surgery for a mitral valve replacement.Now it's a whole lot worse as there is actually something big that I've gone through which causes symptoms.Those of you who know what I'm talking about it is a stressful way to live, hypersensitive to all physical nuances, never knowing if what you feel is serious. Often just experiencing those sensations is enough to send me into a deeper state of fear..It is crippling. I usually take .5mg of Ativan once a day but worry that I will become dependent upon it. It does however, seem to return me to some normalcy. There are no support groups near my home and I've thought of starting one. My doctors usually encourage me to take the drugs. I work with a chiropractor, acupuncturist,and do yoga but getting out of bed is a giant challenge.I am afraid I will suffer panic away from my home. Have any of you dear people dealt with this and could advise me on how to get help. Thank you so much.
Shirley Wong-Cruz Hi Susan, I Just finished reading your journal and wanted to give you my opinion and personal experie ... Read more
Shirley Wong-Cruz Hi Susan, I Just finished reading your journal and wanted to give you my opinion and personal experience. I had OHS on Septrember 11 of 2015. My mitral valve was repaired using minimally invasive approach. Prior to surgery I was always a very hyper person and never had any anxiety issues. However, after surgery I started feeling depressed and anxious. My solution to these problems were 2: Deep breathing exercises and working to keep my mind always busy. I'm from Long Island, NY and I'm also a home care physical therapist and a Rehab therapist too. Therefore, as a heart patient and a physical therapist, I highly recommend these 2 relaxation techniques. Best of luck and ask any questions you have for me. BTW, I went back to work 3 wks after my surgery and that was the key to my quick recovery ❤️
Sheila Harrison Hi Susan you are not alone my surgery was Sept 9, Aortic, Mitral valve replacement and a pace maker a ... Read more
Sheila Harrison Hi Susan you are not alone my surgery was Sept 9, Aortic, Mitral valve replacement and a pace maker after having a bought of AFIB before I left the hospital. I to suffer from anxiety and depression, I am having a terrible time reconnecting with the world. Dr put me on Cymbalta it seems to work somewhat and I do the breathing to relax. I started seeing a councilor. I told myself I would have a whole new lease on life after surgery and set myself up for more anxiety because I am not there yet. Lack of sleep due to nerve pain in my chest and shoulder keep me up most nights exhaustion just makes things worse. I force myself to keep moving,going back to work part time,exercise,cardiac rehab keep me moving. I wish a had an easy solution for both of us. Hang in there and keep moving. I live in Cleveland to far away to join a support group but I would join if I could. All the best Sheila
Sophia Ridley Susan, I'm so sorry to hear that you're feeling like this. Have you thought of having any CBT treatme ... Read more
Sophia Ridley Susan, I'm so sorry to hear that you're feeling like this. Have you thought of having any CBT treatment? I found it useful to address my needle fear and prepare for my op. It gets to the root of the fear and reprograms it.
To take your mind off the anxiety - I always find colouring with my daughters is all encompassing. I do find their colouring books more therapeutic than the more complex ones. Cooking new recipes have also helped, and there's the added benefit of the improved nutrition.
The days I've felt the best post surgery is when I've arranged to go for a walk - the company, exercise and chatting about 'normal' life has really lifted my spirit.
susan kotansky Thank you so much ladies. The first thing is knowing I'm not the only one having this experience. I i ... Read more
susan kotansky Thank you so much ladies. The first thing is knowing I'm not the only one having this experience. I identify with everything you all said...such as expecting to be better all ready and I'm not, thinking that means there's something gone wrong and getting more anxious. Being busy is so important but if I have fear attached to leaving my safe zone I tend to avoid getting out. When I did a few days work I got so tired that that caused fear too. I definitely think I could use a CBT therapist.It's so good to know that you are all out there!!!!! xxxxoooo
Kate Watson Yes, I know anxiety all too well. I weaned off antidepressants about 6 months ago, which was a helli ... Read more
Kate Watson Yes, I know anxiety all too well. I weaned off antidepressants about 6 months ago, which was a hellish process. I was on them for over 10 years, which I started in the first place because of the anxiety and depression I was experiencing about my heart condition and impending surgery. Unfortunately, a few months after I stopped them, I found out that my replaced valve is now declining along with my mitral valve. And my anxiety is definitely ramping up again while I wait to see my surgeon. But I have had a lot of success in reducing anxiety with meditation, guided visualizations, deep breathing, yoga, and also CBT is critical. I have an awesome therapist. I'm also trying to stay busy and distracted. I take xanax as needed at night when I just can't quiet my mind no matter what I do. So you are Definitely not alone!!
John White Depression has been with me for years. Only drugs help me. God Bless
Liz Burroughs I know how you feel! I think I've sort of become a workaholic since my surgery. That way I can keep m ... Read more
Liz Burroughs I know how you feel! I think I've sort of become a workaholic since my surgery. That way I can keep my mind on work and I don't have to deal with my feelings. Best wishes to you and I hope you can find some help & peace in your life.
Jean Raber I am so sorry you are having this problem. It is hellish.
Yoga, visualization, exercise, and CBT ar ... Read more
Jean Raber I am so sorry you are having this problem. It is hellish.
Yoga, visualization, exercise, and CBT are great--and they have helped me somewhat. But let's face it, health insurance coverage for anxiety and depression therapies are usually substandard, and some folks can't afford the out-of-pockets. Moreover, these therapies take practice, and they don't provide immediate help.
I'd talk to my doctor about the pros and cons of one of the benzodiazepines, and I wouldn't look at this as a matter of "dependency," which isn't the same as "abuse." Many people on here are dependent on warfarin/Coumadin after surgery. If I were so anxious I couldn't function--as my mother was after AVR--I might feel it was worth it to depend on an anti-anxiety med.
Oxazepam allows Mom to function normally. She has taken it for years, and it has vastly improved her quality of life. For you, it might be a bridge to relief as you explore other forms of therapy that might work as well.
Prayers for your recovery of mind and body.
Susan, you are not alone. I am sorry you are experiencing such profound anxiety. These surgeries can ... Read more
Susan, you are not alone. I am sorry you are experiencing such profound anxiety. These surgeries can definitely impact our emotions. My anxiety was sky high right before my surgery; to the point where I told my husband that if anything else happened, I was going to have a nervous breakdown. Have you talked to a professional (therapist, psychologist, etc.) who specializes in anxiety treatment? For severe cases of anxiety/agoraphobia, research suggests that therapy (usually cognitive behavioral therapy) paired with medication is most efficacious. I am not sure where you are, but can find some professionals that you can contact. I will say this group helped ease my anxiety significantly, but in times like these, it is helpful to have a place where you can learn to cope with the everyday anxiety and panic you are experiencing. I wish you the best.
susan kotansky My Dear Heart Family, Thank you for being there for me. It really helps to hear how you all have met ... Read more
susan kotansky My Dear Heart Family, Thank you for being there for me. It really helps to hear how you all have met these challenges. Thanks for taking the time to respond.
I have this "thing" about taking drugs and am very resistant even though it has really helped me move forward. I will follow up with my doctor and see who else I can find to help me with the psychological issues....which translate directly into my body. My love to all of you. It's wonderful to have you out there!!!!!!
Mary K Audio programs by Technomind are helpful. They are available on Amazon, and are cheap. There is actua ... Read more
Mary K Audio programs by Technomind are helpful. They are available on Amazon, and are cheap. There is actually on called "Anxiety Relief " that is very effective.
Jean Raber Mary K, thanks for the lead on Technomind! I love white noise, and it looks like these will play on m ... Read more
Jean Raber Mary K, thanks for the lead on Technomind! I love white noise, and it looks like these will play on my Kindle Touch, which has sound. Can't go wrong for 89 cents.
Four month update: physically I think I'm doing really well. I'm working out on a treadmill, doing yoga, dancing. I have a few annoying symptoms...I'm still ...Read more
Four month update: physically I think I'm doing really well. I'm working out on a treadmill, doing yoga, dancing. I have a few annoying symptoms...I'm still experiencing extremes of temperature, often either too hot or too cold. There is pulling around the incision, particularly at the top and my mid back and shoulders are often stiff and uncomfortable. I used to experience lots of arrhythmias and now just an occasional pvc (yay). If I do too much I feel an unequalled degree of exhaustion. I feel very fortunate that I have not thus far experienced any major problems and as I read what some have had to deal with I know that I am lucky.
Emotionally I'm not doing as well. I am often tearful and depressed and anxious. I am reluctant to do some of the things I want and need to do out of fear of something bad happening. I think a support group would be so helpful but haven't been able to find one near me. I am so thankful for this list and reading all the different ways that people deal with this experience. My healthier heart goes out to all of you, especially those about to have surgery. If you're not neurotic like me...it'll be a breeze...if you are...reach out and the support will come.
Elaine Cutri It would be so nice to meet heart buddies in person. I guess we'll have to settle for this online opt ... Read more
Elaine Cutri It would be so nice to meet heart buddies in person. I guess we'll have to settle for this online option. Hugs and well wishes for you Susan. Thinking of you as you make your way through your recovery!
Terry Shermeister Hi Susan: I just happened on your journal and found it interesting. I don't think you are neurotic ... Read more
Terry Shermeister Hi Susan: I just happened on your journal and found it interesting. I don't think you are neurotic at all! I had my MV repaired last May, and all was sailing along just fine. Then I began to have anxiety and worry, and started to feel very venerable. I'm very active, biking, swimming, yoga, etc., and so I began to go to therapy, and gain a support group. It all worked out quite well, and I even started acupuncture! That really helped. Anyway, good luck, and you look great!
Michael Bronshteyn Susan. Thanks for posting on your journal. I found it very inspirational. I was reading it 2 weeks ... Read more
Michael Bronshteyn Susan. Thanks for posting on your journal. I found it very inspirational. I was reading it 2 weeks after my surgery and it helped me a lot
You are not alone feeling worried about doing things. I have same feeling. Every little bump worries me. Even though I realize that before I found about surgery I was so confident that my heart was fine that did not pay any attention to anything there, thinking it was just normal. Now it is other way around. My cardiologist and surgeon tell me that I am fine and I am still worried :).
I guess you have to break yourself into all the activities you want to do. Probably start slow. Myself, I am still planning to return to playing ice hockey ( recreational ), doing pull ups, kettlebells and all kind of workout I did before surgery.
All the best on your adventure. I hope you will achieve your goals.
Liz Burroughs I understand how you feel! Even though my cardiologist says that my heart function is normal, I still ... Read more
Liz Burroughs I understand how you feel! Even though my cardiologist says that my heart function is normal, I still feel like I'm not back to my normal self. I wonder why I still feel short of breath & I can't bring this up to my family. I think a support group would really be helpful!
I agree; a support group would be awesome. It makes it so much easier when there are people who have ... Read more
I agree; a support group would be awesome. It makes it so much easier when there are people who have been through something similar. I think your emotional reaction is normal. This is scary stuff. I am grateful of this group, but could see the in person group being a great option too. I wonder if your local American Heart Association has any options? Best wishes!
Going on four months and was feeling quite good. On Thursday however, for the first time, I put in a full day's work after an interrupted night of sleep and ...Read more
Going on four months and was feeling quite good. On Thursday however, for the first time, I put in a full day's work after an interrupted night of sleep and felt so tired after, that I needed two days to recover. I am kind of disappointed as I felt that I was returning to a semi "normal state. Now I'm filled with anxiety and am reluctant to do anything out of fear of exhausting myself again. I'm also still feeling pulling sensations around my incision and stiffness in my upper back. I know that movement is important but I've been coddling myself and actually doing less. Can any of you folks relate?
Sharmin Atker I'm close to three months since surgery, median stern., and I, too, have pulling sensations around my ... Read more
Sharmin Atker I'm close to three months since surgery, median stern., and I, too, have pulling sensations around my incision when I'm not wearing a bra - I'm small chested, so it cant't be the weight. Also, I'm fine doing a lot of walking, but noticed, on Thursday, I became out of breath by pushing a small generator to the cash register. I'll be starting cardiac rehab tomorrow, which should help with the shortness of breath.
Elaine Cutri It will get better. There will be some days that are a little too long, but they will become much les ... Read more
Elaine Cutri It will get better. There will be some days that are a little too long, but they will become much less frequent. I'm eight months out and last week a nap one afternoon was just what I needed. I'm still want to sleep 8 hours, but the naps are just occasional these days! It sounds like you're right on target. Best wishes!
Liz Burroughs It's been three months since my surgery. I do pretty good during the week with cardiac rehab and work ... Read more
Liz Burroughs It's been three months since my surgery. I do pretty good during the week with cardiac rehab and working full-time. Sometimes on the weekends, however, I get short of breath just walking up the stairs or doing simple chores around the house. I'm getting an echo this Friday so I'm hoping that my heart function has returned to normal. I hope your energy level improves & you feel better soon!
Wanda Mroz Yes! I'm over 5 months and last week was the first week after returning to work on Dec 1 that I work ... Read more
Wanda Mroz Yes! I'm over 5 months and last week was the first week after returning to work on Dec 1 that I worked 4 days in a row... I was tired! I still get tired at the end of the day. It's normal. Body has been through a lot and it takes up to a year to be considered fully recovered. I'm better of course but still recovering. Energy will improve for both of us !
Terrie Syvertsen Oh Yes. So many of us can relate to your feelings whether it is months or
into a year or two we can a ... Read more
Terrie Syvertsen Oh Yes. So many of us can relate to your feelings whether it is months or
into a year or two we can all look back at what is this "process" of healing and recovering and no two of us is alike in this. Because I was operated on back in August of 2014 I can visit my journals and see where I grew frustrated with myself and especially with a full sternotomy a bit impatient with my progress until I realized just how my bodies "chest wall" had been impacted with all of the changes it was going through trying to mend with the heart doing the same! Over time I learned to be a little more gentle with my healing "chest wall" and not push myself in the garden among the roses or try to paint a room giving myself a time limit......Over and over when my body grew tired I allowed myself a nap as my energy level picked up the pace and time and patience taught me to work with that knowledge that this surgery takes time to recover from and patience is key to doing just that! Remember too that your "chest wall" takes time to feel a normalcy with movements of our everyday lives and in time it will be less and less tender. Take care. Things will improve.
susan kotansky Thank you so much everybody. As someone who experiences panic attacks I feel as if my current body i ... Read more
susan kotansky Thank you so much everybody. As someone who experiences panic attacks I feel as if my current body is a garden of symptoms for anxiety to take hold....fatigue, stiffness, loud heart beats, an incision that has a life of its own etc....(fill in the blanks!!!). I have beside me a prescription for ativan, which I must say does help, but which I really do not want to depend on. My family thinks...there she goes again and doesn't understand how difficult it is to free oneself of the fear and concern that I will never be myself again. I am extremely grateful for all of you out there who I know understand what I am feeling. I wish there were actual support groups to attend but thus far haven't found any in my area (near NYC). I have enormous gratitude that I have a heart that now works normally (it's probably the healthiest part of my body now!!!) while the rest of me seems very confused. Thanks for listening!!!!!!!!!xxxxoooo
Ed Miskovic Thanks for sharing your feelings about how you are handling your disappointment months after surgery. ... Read more
Ed Miskovic Thanks for sharing your feelings about how you are handling your disappointment months after surgery. To know this helps me set realistic expectations for myself. My surgery is Feb 5th, but the intensity of my daily exercise routine is decreasing daily due to aegina, but its frequency is the same. Instead of intermediate pilates, I've switched to beginning. Instead of Wii-Fit cardio games, I do balance & yoga. As my body fat increases, without weight gain, I've added walking at an indoor track for 30 minutes daily, instead of power walking on a treadmill. Being retired, I consider my job as "movement." So whether a tortoise or a hare, I aim to move. Your story helps guide my future post-op expectations. Thanks.
susan kotansky Please remember Ed, that everyone's recovery is different, and everyone perceives things in a differe ... Read more
susan kotansky Please remember Ed, that everyone's recovery is different, and everyone perceives things in a different way. It could be that someone else with my symptoms would be happy that they have come so far whereas I am feeling kind of depressed that I'm not able to do more. Being in tune with your own body is the key and it sounds as if you are. I wish you the best as you head into surgery...being in shape beforehand will be a huge asset in your recovery and I'm sure all will go smoothly!!!!
Wanda Mroz Good idea Ed... I made sure to walk almost everyday before surgery... I made it a mile. Just somethi ... Read more
Wanda Mroz Good idea Ed... I made sure to walk almost everyday before surgery... I made it a mile. Just something to keep me moving. I think it helped a great deal.
Three and 1/2 month check in: feeling so much better than before...I sometimes forget for long stretches of time that I had this major surgery. I am doing gentle ...Read more
Three and 1/2 month check in: feeling so much better than before...I sometimes forget for long stretches of time that I had this major surgery. I am doing gentle yoga 4-5 times a week and joined a gym for the treadmill (cardio rehab was actually not working for me as they had trouble hearing my blood pressure and would follow me around the whole time. My bp always was very low there because the cuffs were too big for me and the readings inaccurate. I ended up having to go to the cardiologist to check it out and my bp was at least 15 points higher there!) My doctor said I should do exercise on my own, do the things that I love to do such as dance, that rehab was causing me stress and therefore not helpful. At the gym I monitor myself. I'm not recommending that anyone else avoid rehab...it just didn't work for me. I don't think my experience is common. My heart rate is still rather fast...I finally went below 90 for my resting pulse. I find that during exercise my muscles get really stiff, making it difficult to push myself. My neck, shoulders, and back get so tight. The incision is healing although more sensitive now than earlier. Nights and morning are the hardest...I have trouble sleeping and when I get up I'm very stiff but movement helps. I'm grateful that sometimes I feel "normal" and am hoping that the next few months will be even better. I send my love to all of you in our heart community..and wish you the very best outcomes no matter what stage you're in.
Wanda Mroz I'm sorry rehab didn't work out. I very much love it! Going to the gym is a great idea! I'm surpri ... Read more
Wanda Mroz I'm sorry rehab didn't work out. I very much love it! Going to the gym is a great idea! I'm surprised they didn't have a smaller coff for your bp... My rehab place has two sizes. My incision is still sensitive at time almost five months post op. And I know what you mean about stiffness. Slowly things are getting better though. More normal days ahead! Wishing you the best as well !
Three months and feeling mostly really well except for insomnia and occasional nightsweats. Does anyone still experience nightsweats this long after surgery? ...Read more
Three months and feeling mostly really well except for insomnia and occasional nightsweats. Does anyone still experience nightsweats this long after surgery? I have no other symptoms of infection.
pino correale I can symphatize with you wholeheartedly. I had to resort to medication for my insomnia.
Wanda Mroz Occasional sweats becoming less and some insomnia yes. I take half a Xanax to help sleep when necess ... Read more
Wanda Mroz Occasional sweats becoming less and some insomnia yes. I take half a Xanax to help sleep when necessary.
Jacqueline Cook Hi Susan. I am 7 weeks post-op and have to change my pjs once or twice every night. I have yet to get ... Read more
Jacqueline Cook Hi Susan. I am 7 weeks post-op and have to change my pjs once or twice every night. I have yet to get a good nights rest since my surgery.
Thursday marks 3 months!!!! I feel very lucky that most of my recovery has been smooth so far. Many symptoms that I thought I was stuck with for the rest of ...Read more
Thursday marks 3 months!!!! I feel very lucky that most of my recovery has been smooth so far. Many symptoms that I thought I was stuck with for the rest of my life are quietly disappearing: hoarse voice, thick throat, insomnia (I actually slept through the night last night!!!!), middle of back pain, restless legs, depression/sense of hopelessness, anxiety, racing heart, pvcs, lack of energy. Not to say that they are all gone...but a part of everyday I forget that I had surgery and that is a good thing because then I don't hold myself back. I have had lots of help from acupuncture, homeopathy, chiropractic, yoga, and dancing and especially my husband who is always by my side ready to help if needed. I am still very conscious of tightness around the incision. It feels as if it wants to close itself ever more firmly whereas I feel that I must open out my chest. Exercise, movement is good but I always feel sore for several days after. I hope that gets better. For all of you who have come after me keep the faith. It does get better, slowly, slowly. And I trust from reading about those that have gone before me, that it will get much better, slowly, slowly. And for those that are awaiting the big day....you surely can see that this is a great thing that you are about to do...just knowing how many people have successfully done it already. Love to all of you out there. Thanks so much for sharing your experiences and wisdom. It carries me through.
Elaine Cutri Thanks for the update Susan. It sounds like you're doing all the right things. The tightness near the ... Read more
Elaine Cutri Thanks for the update Susan. It sounds like you're doing all the right things. The tightness near the incision will go away. You may not notice until one day you realize you're not tight or sore. It may take a year, that was the case for me in the past. I'm 6 months from my last OHS and I feel a lot better than I did at 3 months. Best wishes!
Steven A Husted WOW SO GLAD YOU ARE FEELING BETTER THE TIGHTNESS IN THE AREA OF THE INCISION WILL GO AWAY BUT EVEN AT ... Read more
Steven A Husted WOW SO GLAD YOU ARE FEELING BETTER THE TIGHTNESS IN THE AREA OF THE INCISION WILL GO AWAY BUT EVEN AT ABOUT 17 MONTHS OUT I STILL GET A LITTLE TIGHTNESS FEELING NOW AND THEN IT MAY TAKE SEVERAL YEARS FOR ALL THE NERVE ENDINGS TO HEAL THIS BODY OF OURS IS A WONDER HOW IT HEALS ITSELF
Wanda Mroz You sound like you are doing great. I'm over 4 months after surgery and the tenderness around the in ... Read more
Wanda Mroz You sound like you are doing great. I'm over 4 months after surgery and the tenderness around the incision but it'll get better. Some days I hardly notice it though.
I had an important lesson today, in the middle of my 7th week post op. I have been very down and interested in doing absolutely nothing as I get very stiff ...Read more
I had an important lesson today, in the middle of my 7th week post op. I have been very down and interested in doing absolutely nothing as I get very stiff in my upper body and find it hard to tolerate. So I tend to resist pushing myself other than walking, which my legs enjoy. I was scheduled to attend a professional training early this morning and when I awoke I thought to myself...no way. Getting up in the morning is so difficult. I am sore and stiff and aware of my incision. But I decided to get up and dressed and act AS IF I were going to go. By the time I was ready I actually felt like going. The stiffness was lessened by movement, a major discovery. Whenever I feel that very yukky sensation of my chest being in a steel cage I stick out my chest, rotate my shoulders and there is much improvement. I attended the training and when I returned home actually felt energized! My lesson for today is to be patient and push myself just a little bit more than I think I should. The accomplishment of attending a work related event also helped my self esteem greatly. Regards to all my heart family and wish you all a wonderful Thanksgiving. This one has very special meaning!!!!
Billy G Your story reminds me of working out sometimes. There are always those days where it's so hard to get ... Read more
Billy G Your story reminds me of working out sometimes. There are always those days where it's so hard to get going, but if I could push through to just get started, everything would warm up and I'd start feeling better and better. By the end, I'd feel great!
I'm glad you were able to make the breakthrough and recognize the results. Hopefully memories of this will help ensure you push through in the future as well.
Tammy Pilcher Good for you, Susan! I have to push myself sometimes, too, and always feel better afterwards. Keep ... Read more
Tammy Pilcher Good for you, Susan! I have to push myself sometimes, too, and always feel better afterwards. Keep on keeping on. God bless!
Liz Burroughs Hi Susan, I'm glad you were able to get up & attend the training! I think that you learned a very goo ... Read more
Liz Burroughs Hi Susan, I'm glad you were able to get up & attend the training! I think that you learned a very good lesson that I need to put into practice too. I find myself feeling like I just want to sit on the couch & rest all day. I need to push myself a little more each day, especially since I'm supposed to go back to work in 2 weeks! Have a Happy Thanksgiving!! Liz
Doran Herritt Good for you. Keep pushing forward! Take care. Drn
Wanda Mroz I'm not feeling like going back to work next week either, but I know I will get back into routine soo ... Read more
Wanda Mroz I'm not feeling like going back to work next week either, but I know I will get back into routine soon. good for you! a little push at a time! Happy thanksgiving to you!!
Jean Raber Susan, what you say is SO familiar. I am on watch-and-wait (possibly forever), but cardiologist and h ... Read more
Jean Raber Susan, what you say is SO familiar. I am on watch-and-wait (possibly forever), but cardiologist and hematologist both encouraged me to move, even a token amount. But making that first move past inertia is really hard, isn't it?
Doran Herritt Interesting you guys say that. I went back to work early just cause I was bored and i think it was th ... Read more
Doran Herritt Interesting you guys say that. I went back to work early just cause I was bored and i think it was the best thing for me. Yes ther was some pain and fatigue. But each day I felt better. I think the body is made to move. Get moving. It will make you feel better. I hope you both are doing well. Take care. Drn
7 weeks post op. In general I feel physically much stronger. I can walk as far as I feel like it, at least on flat surfaces. Stairs are fine. My sternotomy ...Read more
7 weeks post op. In general I feel physically much stronger. I can walk as far as I feel like it, at least on flat surfaces. Stairs are fine. My sternotomy incision looks quite artistic and is healing however, it is more irritating now than before. Sometimes it itches and sometimes it feels tight and has a pulling sensation. Do others feel this too? My lower body is a champ...I can do most anything, but I somehow don't feel integrated with my upper body. Bending down still doesn't feel good and I have lots of muscle discomfort...in certain spots when I move. Even though it's discomfort, not pain, it gets me down to the point that I don't feel like pushing myself. I will start cardio rehab on Dec. 1 and am hoping that will kick start me to the next level of recovery. I keep expecting to feel more
"like myself" and I just don't. I'm still very emotional and worry that I'm not making more physical progress. Does this "ring a bell" for anyone? Looking for some support here, heart friends!!!!
Lisa Shepherd Rehab will be good you will see your recovery is as it should be 18 months on I still have an itchy o ... Read more
Lisa Shepherd Rehab will be good you will see your recovery is as it should be 18 months on I still have an itchy outburst on my scar it's tough surgery
Steven A Husted yes it sure does ring a bell i agree with every thing you said and i still have those feelings now at ... Read more
Steven A Husted yes it sure does ring a bell i agree with every thing you said and i still have those feelings now at times and i am over one year out but the cardio rehab did help a lot and i am in cardio rehab phase 3 now it is just a continuation of phase 2 for as long as you like it will get better
Michael Shaughnessy I am a runner and triathlete but couldnt go full out early on. My wife got a yoga instructor to come ... Read more
Michael Shaughnessy I am a runner and triathlete but couldnt go full out early on. My wife got a yoga instructor to come to the house 2x/week starting about 6 weeks out. It was great for that upper body disconnect. I was skeptical but 4 years later still love yoga. My scar is my badge. Your journey has just begun but there is no end. I mean this in a positive manner. You are forever different and better. The journey reveals your potential constantly. Enjoy all the steps easy and hard, do not focus on where you are going just where you are. Good luck.
susan kotansky Thank you so much for sharing your experiences with me. It is so very helpful and reassuring. I was d ... Read more
susan kotansky Thank you so much for sharing your experiences with me. It is so very helpful and reassuring. I was doing yoga daily before surgery but have been reluctant to go back to the studio fearing I'll be unable to do anything. Having an instructor come to my home is a great idea.
:))))
five weeks post op and I have a question....During the day I feel fine but everyday around 4 o'clock I feel really tired and achy. My temperature is usually ...Read more
five weeks post op and I have a question....During the day I feel fine but everyday around 4 o'clock I feel really tired and achy. My temperature is usually 97 + but at 4 it goes up to 98+ , still normal, but I feel as if I have a low grade fever. I just had blood work so no infection. Does anyone else share this?
Elaine Cutri I don't know if my temperature changed in the afternoon, but I felt like I was running out of steam. ... Read more
Elaine Cutri I don't know if my temperature changed in the afternoon, but I felt like I was running out of steam. If I took a nap 15-60 min I felt recharged and still went to sleep at my normal time. I notice I sleep a few more hours post op. I'm almost 6 months post op and the amount of sleep I need is around 7-8 hrs per night, naps are much les frequent.
Doran Herritt Two plus weeks post op. Run out of gas as day goes on. Also feel different right around med time. Dou ... Read more
Doran Herritt Two plus weeks post op. Run out of gas as day goes on. Also feel different right around med time. Doubt it's infection. I would try to track it to meds, eating, drinking or something else you do. Take care drn
Emily Rowley
Hello Susan,
What valve replacement did you have performed?
Four 1/2 weeks and yesterday was given the go ahead to drive, to dance, to do whatever I am able to do (being mindful that the chest is not fully healed). Just ...Read more
Four 1/2 weeks and yesterday was given the go ahead to drive, to dance, to do whatever I am able to do (being mindful that the chest is not fully healed). Just seeing my wonderful surgeon (Dr. Argenziano) who is the warmest, most communicative, and compassionate human being I have ever encountered gave the healing process a huge boost. Learning that many of the discomforts are still considered normal and will take some time to go away strengthened my resolve to move myself out of some sadness and gloom. I have a prescription for cardio rehab which I'm excited about and can resume some aspects of my yoga practice (no downward facing dog!!!!) I also learned that my mitral valve was so badly calcified that it had to be replaced, the assumption being that I must have had rheumatic fever as a child. I was very very lucky that nothing happened before I did the surgery. So today is a new day....for the first time in many months I feel happy to get out of bed and face life with a smile. I am aware that there are many ups and downs to deal with before I am fully recovered but having been so afraid, so uncomfortable, so depressed for these past six months...learning that I needed a surgery for which I had no symptoms and making the decision to go forward as quickly as possible, I now feel relief and joy and total gratitude that I am alive.
Doran Herritt Congratulations. Thoughts and prayers to you for a continued speedy and un eventful recovery.
Drn
As I've just passed the third week mark I can testify that what you've all said about not looking at day to day but rather week to week makes much more sense. ...Read more
As I've just passed the third week mark I can testify that what you've all said about not looking at day to day but rather week to week makes much more sense. In the moment I often feel depressed, as if I'm not making any progress...here comes another day of shuffling around the house and breathing into the spirometer! However, some really pleasant and surprising things are happening in spite of me...yesterday I went to breakfast with my husband and then walked part way around a local lake, taking in the foliage. Last night I slept eight hours without any pain medication, not even an advil. I cried perhaps 75% less. Every day around 4 o'clock I feel very low, achy, and irritable but it usually passes (anyone else have this experience?) I'm walking easily up and down a very steep staircase in my home and have been doing some really helpful exercises given me by a p/t with ease. My cardiologist told me yesterday that I'm fine heartwise and just need to allow my body to heal...he said you'll just have to get through it, it will get easier and easier, week by week. So for those of you about to have surgery, you can see this is not so terrible....just about having patience and allowing the body to heal. A positive attitude and loving support go far in making this happen. The pain has not been bad at all, it's more about discomfort and not immediately being able to do whatever I want. So this week is a whole lot better than last week and I'm really looking forward to NEXT week!!! I wish everybody health and happiness and for those about to have surgery, I wish you peace of mind as you wait and know that you will be just fine, really soon!!!
W. Carter The worst thing that you can do going into recovery is thinking it will be a piece of cake. That just ... Read more
W. Carter The worst thing that you can do going into recovery is thinking it will be a piece of cake. That just adds depression. Recovery from open heart surgery is HELL and takes 6-12 months. Knowing what you are up against and accepting it makes it easier to take mentally and physically.
susan kotansky Piece of cake...nope....knowing that you are healing despite the daily challenges makes it manageable ... Read more
susan kotansky Piece of cake...nope....knowing that you are healing despite the daily challenges makes it manageable. The tears come from a deep place...my body has been violated. I felt healthy before, now I need help to do some of the most mundane things. I understand that had I not done this my health would have steadily deteriorated. But it HAS gotten easier as the days go by and acceptance, though hard for me, is the key.
Betsey Osgood I'm four weeks post op yesterday. It's true what you say about looking at a week at a time not day t ... Read more
Betsey Osgood I'm four weeks post op yesterday. It's true what you say about looking at a week at a time not day to day. The 4 week mark has been a turning point for me. I'm feeling SO much better. No pain, just pesky heart palpatations that are PAC's and should resolve. It's certainly a personal journey for all of us...one we all have to face after OHS. Glad your doing so well, hope your 4 week mark is a good one too!
susan kotansky Thank you Betsey. Knowing I'm right behind your good news makes me look forward greatly to next week. ... Read more
susan kotansky Thank you Betsey. Knowing I'm right behind your good news makes me look forward greatly to next week. I must say there is a huge difference in the last few days, i.e. it's 8:30pm and I'm wide awake! I wish you all the good health and well being in the world.
Elaine Cutri Susan and Betsy so glad to hear your recovery is going well. Continue to be patient with your progres ... Read more
Elaine Cutri Susan and Betsy so glad to hear your recovery is going well. Continue to be patient with your progress. Bones, nerves and muscles take 8-12 weeks at least. I'm at 5 months and feel almost 100%, but know I'll have this behind me at a year (next May)!
11 days post op and some good things and some "challenging". First, the good news: my appetite is BACK! Eating feels good again. Instead of pushing every morsel ...Read more
11 days post op and some good things and some "challenging". First, the good news: my appetite is BACK! Eating feels good again. Instead of pushing every morsel of food away I'm requesting meals all day long and have managed to keep my weight the same for three whole days.
I found a way to get myself to walk...just put on some of my favorite music and pretend that I'm dancing. It elevates that feeling of just walking in circles to a "higher" form. My husband is taking such good care of me and he's been cleaning the house to a ridiculously high standard.
And the challenges? I am so stiff in the chest and back area that I can barely move. ouch. Breathing through that gadget gets harder as I get stiffer. The other night I got a tickle in my throat. Imagine how that felt. Any suggestions? One of the chest draining sites is oozing a little as it is right in the fold of my belly. It coagulates and then gets dislodged. I cry quite a bit for "no" reason. That's about it for now. My thoughts are with those who are about to have surgery and will soon join in the healing fest and with those who have just arrived, like me, into this unknown zone and need lots of encouragement. Love to all!!!!
Steven A Husted take your time dont rush your recovery slow and easy time is a healer you will have up and down days ... Read more
Steven A Husted take your time dont rush your recovery slow and easy time is a healer you will have up and down days but it will get better
Kelly Weisgarber Susan, I'm happy for you you're on the recovery side! Keep dancing, keep gaining strength. I hope soo ... Read more
Kelly Weisgarber Susan, I'm happy for you you're on the recovery side! Keep dancing, keep gaining strength. I hope soon all the good things outnumber the bad.
Rita Savelis It's okay, even necessary, to cry. There are a lot of emotions that need to come out bit by bit when ... Read more
Rita Savelis It's okay, even necessary, to cry. There are a lot of emotions that need to come out bit by bit when your center has been traumatised and when you have used all your core to be physically strong. Your husband does sound wonderful, though...! And "pretending" to dance, that is so very very lovely!
Ruth Valenzuela I found a tickle in my throat and I take a cough drop to help with that. Also they might need to cha ... Read more
Ruth Valenzuela I found a tickle in my throat and I take a cough drop to help with that. Also they might need to change your blood pressure meds which could be causing it. Good to see you coming along the road to progress. Tomorrow it'll be 2 weeks post op for me. We must be patient which is not my best virtue. I always remember my high school English teacher saying that patience was the perfume of all virtues.
Terry Shermeister Hi Susan: You are just getting started in your recovery. I went for a walk the first week home and ... Read more
Terry Shermeister Hi Susan: You are just getting started in your recovery. I went for a walk the first week home and couldn't even finish a block. I'm now walking hills and doing all types of exercise. Just got back from an hour walk. Will swim in about an hour, and yesterday went for a bike ride for 15 miles. I'm about five months out and have been an exercise guy all my life. I still feel anxious at times, especially in the middle of the night. I'm getting better. I am getting tired of the constant medical visits, tests, and stuff. I agree, take it EZ!! Sounds like you are on your way.
Gerald Schaffer You may not think so but you sound like you're doing great. The stiffness in your chest and back will ... Read more
Gerald Schaffer You may not think so but you sound like you're doing great. The stiffness in your chest and back will eventually go away. I have chest stiffness a little over 6 weeks from surgery but I only feel it when I move. It used to feel tight all the time. As far as the drainage tube sites ozzing as long as it's not puss it's normal. Mine oozed a clear fluid with a little blood for about a week.
Eddie Patton You are doing all the right things. Just keep going and you will be surprised how quickly all those ... Read more
Eddie Patton You are doing all the right things. Just keep going and you will be surprised how quickly all those pains and annoyances go away. Congrats on the recovery.
Liz Burroughs Take it slow & easy and continue to let your family take care of you. You're lucky to have such a won ... Read more
Liz Burroughs Take it slow & easy and continue to let your family take care of you. You're lucky to have such a wonderful husband! I hope you feel better with each passing day. Take care.
susan kotansky Thank you heart friends...it's such a comfort that you are out there reassuring me of the normalcy of ... Read more
susan kotansky Thank you heart friends...it's such a comfort that you are out there reassuring me of the normalcy of my experience. It's amazing how rapidly I go from feeling so well to utter despair. My daughter did my toenails today which was very therapeutic and I have to be grateful for the total support my family is bestowing upon me.
Terrie Syvertsen Susan-Your heart and chest wall have been through a tremendous amount of change and the stiffness wil ... Read more
Terrie Syvertsen Susan-Your heart and chest wall have been through a tremendous amount of change and the stiffness will stay with you as your body mends along with your heart. When you are told it is ok to do some stretching it will aid in lowering the tightness but will take time and you will have to continue to be patient with yourself as it seems you are doing now. As a person who dances I believe you have an added advantage to serving your chest wall better than most as you are aware of the body and movements and will settle into those movements you are used to with your partner sooner than you think. The mental experience of healing after surgery is also a very delicate balancing act one to which you are up to and I hope your progress continues. Take care heart sister.
Today is day 7 post op and I have been home now for 2 days. The surgery was more complicated than anticipated as the surgeon first repaired my mitral valve ...Read more
Today is day 7 post op and I have been home now for 2 days. The surgery was more complicated than anticipated as the surgeon first repaired my mitral valve and wasn't happy with it, and then replaced it with a bovine valve. He had also hoped to use the minimally invasive technique but as I am so small couldn't gain access. With all that being said, I seem to be doing just fine....sore, a little surprised that I don't want to do more, and incredulous that I just underwent this big "thing" and it's OVER!!!! Of course, it's clear that the hard work is just beginning but I am so happy I didn't postpone the surgery, or get yet another opinion. The anticipation and fear that came with it was by far the most difficult aspect to bear. I think I walked through the surgery in my mind daily for at least 4 months. If you haven't done your surgery yet...that's my first suggestion...push it out of your mind.Get busy. Meditate.
Thank you to all those who put in their prayers for me as I am now going to do for those about to have surgery. I am so grateful to be this far along and look towards those who have made so much progress as my inspiration. Love to all.
Gerald Schaffer I'm glad you're home. I found I got much stronger after eating better food and sleeping better once I ... Read more
Gerald Schaffer I'm glad you're home. I found I got much stronger after eating better food and sleeping better once I got home. Don't push it too much yet as you still have healing to do.
Terry Shermeister Hi Susan: I relate totally to your perceptions of this surgery. The anticipation very stressful. S ... Read more
Terry Shermeister Hi Susan: I relate totally to your perceptions of this surgery. The anticipation very stressful. Sorry you had to have an alternative to your first repair, but I'm glad your surgeon chose to do the right thing. I had a repair and made it through as they thought things would go. Yup, now is the time to work on your recovery. Remember, be gentle with yourself. My surgery was May 14th, and I'm swimming, biking, walking, doing weights, and yoga. I think, by your comments you are active. Nice to have another Heart Sister.
Tammy Pilcher Great news, Susan! I'm so happy you have your surgery behind you now. Praying for a smooth recover ... Read more
Tammy Pilcher Great news, Susan! I'm so happy you have your surgery behind you now. Praying for a smooth recovery for you, heart sister. God bless!
Elaine Cutri Congratulations on your discharge. Now is the test of another round of patience. Do your breathing ex ... Read more
Elaine Cutri Congratulations on your discharge. Now is the test of another round of patience. Do your breathing exercises and walking, but don't push too hard yet. Your body has a lot of healing to do. Best wishes!
susan kotansky A few bouts of crying for no apparent reason (well maybe there are a few!) but I have wonderful fami ... Read more
susan kotansky A few bouts of crying for no apparent reason (well maybe there are a few!) but I have wonderful family and friend support and two excellent responsive physicians so I know I'm covered. It's difficult feeling so sore just sitting but I know it will get better. I'm walking a lot around the house and got myself up a flight of stairs for my first post op shower. And of course in the midst of all this, there are the unexpected gifts....a wonderful roommate in the hospital, some amazingly dedicated nurses and doctors, the total devotion of my grown kids, and my husband's unwavering presence next to me. He sat beside me for six nights in the hospital, in a chair! My dogs cuddled next to me....So I think it's clear which way to see this experience. I am very lucky and I am lucky that there is an entire community of us out here to help each other achieve our best recovery.
Steven A Husted best wishes susan and prayers for you in your recovery take your time dont rush it time is a healer
Doran Herritt Fantastic news Susan. Still praying for a quick recovery for u. Drn.
Mary K I agree with Elaine. Patience is the watchword right now. Many of us cried afterward. Relief, gratit ... Read more
Mary K I agree with Elaine. Patience is the watchword right now. Many of us cried afterward. Relief, gratitude, vulnerability..... It is all wrapped up in those tears. Be kind to yourself. Breathing and walking are your friends the next few weeks. And this time is for you. You got a second chance.
Terrie Syvertsen Susan-Great reading all of the responses to your successful surgery and where you are coming from at ... Read more
Terrie Syvertsen Susan-Great reading all of the responses to your successful surgery and where you are coming from at this point in recovery. Patience is the key as you will hear from the whole community who have gone before you and experienced the many emotions and joys of being on the other side of it. The tears that come are for "good" as they come from that gentle place in your mended heart and the release of them will only lighten the load as you get stronger and stronger. Look forward to the dances in your future and envision it while gaining back your strength and working through the effects of having gone through this experience. Take care Heart Sister-
Patrick Kennedy Your on the road to recovery! Best advice I got on here was to walk... A lot. Then walk some more and ... Read more
Patrick Kennedy Your on the road to recovery! Best advice I got on here was to walk... A lot. Then walk some more and walk tall with my shoulders back! My very similar surgery was back in May and I'm back to 100%.
Yesterday was so so difficult, projecting all the terrible things I'm imagining (I almost cancelled the surgery) I have to go through, that I finally took some ...Read more
Yesterday was so so difficult, projecting all the terrible things I'm imagining (I almost cancelled the surgery) I have to go through, that I finally took some steps in a good direction. I posted my situation on FB, asking for support and got immediate helpful encouraging responses from so many friends that I actually managed to smile through the rest of the day. I've decided that I have more than enough information and am going to attempt to stop reading anything that might be scary, to face the rest of this with the open, trusting mind of a child. I bought myself an ipad to fill with music that I love, that will help transport me away from my fear and dark places. Everything is in place. I really like and have confidence in my surgeon. It's in a great hospital (NY Presbyterian-Columbia U.) Now I have to have faith that all will be well and distract myself. I'm no drinker but does a little wine help in your experience???? (now that's my healthy brain talking....trying to drown out the terror that lurks beneath..sigh)
Steven A Husted hi heart sister if you have read some of the posts here you know it is not as bad as you may think we ... Read more
Steven A Husted hi heart sister if you have read some of the posts here you know it is not as bad as you may think we all have come thru it and are better the surgery and recovery will be over before you know it and you will be back to your self again i am one year out and feeling pretty good i go to rehab twice a week to keep my heart in shape and have fun too your heart brother steve (popeye)
susan kotansky Thank you Steven(popeye)...That's what I need to hear!
Tammy Pilcher That sounds really good, Susan. I'm so glad you're feeling better. I also really liked and had conf ... Read more
Tammy Pilcher That sounds really good, Susan. I'm so glad you're feeling better. I also really liked and had confidence in my surgeon and hospital. That makes a huge difference! You will do great and be back here encouraging others in no time. I'm almost one year post-op and feel great! God bless you!
Eleanor R You did exactly the right thing, deciding that your imagination is not being your friend right now, a ... Read more
Eleanor R You did exactly the right thing, deciding that your imagination is not being your friend right now, and that you need to stop it. I was like you, I was constantly stuck in "what if...". Not like I had a choice of having surgery, but I got stuck in fear and indecision about valves, timing, etc. My surgeon told me the only wrong choice would be to do nothing, and try to live with the stenotic valve. Somehow, I was able to tell myself to stop imagining dire outcomes, and trust this surgeon to do his best. he did, and now more than a year after surgery, I can do everything I could not do before the surgery. I just came in from cutting the front yard, and am getting ready to go to a garden center for plants. I am a very active 69 year old, and am loving living. We are all blessed to live today, when medical science can outpace us and give us second, third, fourth chances. I am glad you are feeling better, keep it up. When I first came home from the surgery, which was "textbook perfect" according to the surgeon, I again had to take control of my over active imagination, and stop "remembering" the surgery, which I was not even conscious for. Really, at night I would imagine going down the corridor to the OR, when I was totally knocked out already! It took some talking to myself to stop that nonsense, realize it was over, I survived, I am healthy, and I could stop reliving the past. Our minds are very active, very creative, and for the most part that is a good thing, but other times not so much, and it takes some controlling our imagination. I wish you the very best, so that you soon back dancing and stretching and enjoying life. Best wishes, Eleanor
susan kotansky Thank you Eleanor. .it is so reassuring knowing that you've been through this successfully and can re ... Read more
susan kotansky Thank you Eleanor. .it is so reassuring knowing that you've been through this successfully and can relate to the early stages of this overwhelming process. I can't wait for the surgery to be over!
Elaine Cutri You're on the right track. The iPad with your favorite music or meditation aids sound like a great id ... Read more
Elaine Cutri You're on the right track. The iPad with your favorite music or meditation aids sound like a great idea. The mind is very powerful and can get going in these unpleasant loops. I got a little short fused a few months before my surgery, #4. My husband put up with it. I am now 4 months post-op and feeling really good, almost 100%. I'll be thinking of you!
Rita Savelis Go ahead and have a glass wine! What you have to go through is not fun, but you'll get to the other s ... Read more
Rita Savelis Go ahead and have a glass wine! What you have to go through is not fun, but you'll get to the other side. Take care.
Now that I made a decision to go ahead with surgery on 10/1 I am in a state of terror. I feel angry at my family for comforting me and telling me all the great ...Read more
Now that I made a decision to go ahead with surgery on 10/1 I am in a state of terror. I feel angry at my family for comforting me and telling me all the great reasons for the surgery, which of course I'm aware of. At this point there really isn't a choice and as someone who has never really been ill I feel so helpless. I am isolating myself from everyone, basically to protect my loved ones from my wild emotions. I have an appointment with a hypno therapist next week to help me calm myself down but I'm barely functioning. I teach dance with my husband, practice yoga, teach early childhood teachers at a university, and am (was) extremely active...but now I'm basically immobile, paralyzed by fear. Please help!!!!
Mary K Sending prayer, Susan. I was blindsided by the news of needing surgery, and was hysterical at first. ... Read more
Mary K Sending prayer, Susan. I was blindsided by the news of needing surgery, and was hysterical at first. (Look at my first few blogs). I hope that as the time comes closer that you will find peace. Wonderful that you are seeing a therapist. Stay in touch. We are all here for you.
susan kotansky Thank you Mary K.! Hearing from people who have shared this experience is a very powerful support. I ... Read more
susan kotansky Thank you Mary K.! Hearing from people who have shared this experience is a very powerful support. I am very grateful.
Eddie Patton Don't feel bad I was blindsided by this as well and rode the emotional roller coaster for a while. T ... Read more
Eddie Patton Don't feel bad I was blindsided by this as well and rode the emotional roller coaster for a while. The feeling of being helpless to do anything to make it better was the worst. As I became more educated on this and started going through all the pre op stuff it got better. Good luck and feel free to ask any questions.
Tammy Pilcher Susan, I think most ( if not all ) of us felt the same fear when we were told we had to have OHS. It ... Read more
Tammy Pilcher Susan, I think most ( if not all ) of us felt the same fear when we were told we had to have OHS. It's not something anyone wants to do, but like you said in your post "At this point there really isn't a choice". Once I accepted that as my reality ( and I didn't have long to come to terms with it ), I did the only thing I knew to do. I prayed for the Lord to give me peace and courage. He did and I felt at peace for the first time since being told. That doesn't mean those fears didn't try to creep back into my mind, but as soon as they did I would remind myself of God's promise to never leave us alone and that assurance got me through everything. I started writing a journal of favorite scriptures and would take that out and read it often. That really helped me. I think actually "writing" them in my journal as well as reading them was very helpful. I will pray for you and if I can help answer any questions I will. My surgery and recovery were not as bad as I had anticipated they would be. I wrote a post in my heart valve journal here about my actual surgery experience. If you would like to read it, just scroll through my posts to find it. Isaiah 41:13. God bless you heart sister.
Rita Savelis I know what you are feeling Susan and I'm sorry that you have to go through with surgery. Often famil ... Read more
Rita Savelis I know what you are feeling Susan and I'm sorry that you have to go through with surgery. Often family members don't really know the right things to say. They do their best. Anger is a common emotion to have. So is fear. Seeing a hypno therapist is good - someone who is not family or a friend and who you can be honest with.
Angelo Varrone Susan, I was in your place a little over 2 years ago. The magnitude of it all was really hard for me ... Read more
Angelo Varrone Susan, I was in your place a little over 2 years ago. The magnitude of it all was really hard for me to deal with. But, the more I read the posts on this wonderful website the more aware I was about the extremely high success rate that our wonderful surgeons have. And, when I thought about the alternative- not having surgery, well that was not comforting at all. You just have to trust in the skill of your surgeon. Your fear stems from going through something unknown and significant. Remember, your surgical procedure isn't unknown to your surgeon; they do this virtually every day. Let that give you more confidence. A few months after your surgery, you'll be in awe of what you went through and thankful for the new lease on life.
Ruth Valenzuela Susan,
I wished I had a magic wand that would chase all your fears away. I've not had my surgery a ... Read more
Ruth Valenzuela Susan,
I wished I had a magic wand that would chase all your fears away. I've not had my surgery as of yet, but as I read what others have experienced, it brings a level of peace and comfort to me. Of course as my time approaches, I know I'll go through the same fears you talk about but as I cry out to God, I have faith he will see me through. I will pray for you...
Rodger Dixie Relax. I have had two heart surgeries in the last seven years, a quad bypass and an aortic valve repl ... Read more
Rodger Dixie Relax. I have had two heart surgeries in the last seven years, a quad bypass and an aortic valve replacement. Surgeons, technology and God can do miracles. I have never felt better.
Enrique K Susan, take it one day at a time and keep calm:-)
Duane Beeman 50 years ago we'd all be in big trouble. Try not to focus on the negative and instead be glad that yo ... Read more
Duane Beeman 50 years ago we'd all be in big trouble. Try not to focus on the negative and instead be glad that you are living in an era where these problems can be fixed,
I am scheduled to have cardiac catheterization the day before my surgery and am more frightened about that procedure than the actual surgery! I am prone to ...Read more
I am scheduled to have cardiac catheterization the day before my surgery and am more frightened about that procedure than the actual surgery! I am prone to anxiety and panic and am ready to run for the hills. Can someone reassure me about this procedure?!?
Judith Collins Don't worry about cardiac cath. I had mine done thru the wrist and had no problems. You will get me ... Read more
Judith Collins Don't worry about cardiac cath. I had mine done thru the wrist and had no problems. You will get medication that will make you relax and they gave me enough meds that I didn't feel anything but the dye which felt warm. I was only there about 4 to 5 hours and went home without any complications.
Jeanette Davidson I agree with Judith , mine went about exactly the same. Let the Dr know you get anxious . He will tak ... Read more
Jeanette Davidson I agree with Judith , mine went about exactly the same. Let the Dr know you get anxious . He will take good care of you.
susan kotansky Thank you! How long did the actual procedure take?
Clare Auten I did mine the day before surgery. Mine was in groin. Similar experience to the ladies above. I slep ... Read more
Clare Auten I did mine the day before surgery. Mine was in groin. Similar experience to the ladies above. I slept that night at the hospital and was ready for the OR bright and early the next morning.
Mary K It is easy. I agree waiting afterward is tedious . And having one's private parts shaved by someone ... Read more
Mary K It is easy. I agree waiting afterward is tedious . And having one's private parts shaved by someone is strange (I wished that I had done that myself). Otherwise, no problem, and I was so happy to hear that my arteries are clear. Worth it.
Ruth Valenzuela I having a cardiac catheterization tomorrow morning. I will let you know how it went. I'm not look ... Read more
Ruth Valenzuela I having a cardiac catheterization tomorrow morning. I will let you know how it went. I'm not looking forward to it but I'm glad it will give my cardiologist a better picture.
Meredith Bray I've had two cardiac caths and they are both fuzzy memories. One I was semi-lucid for, and the other ... Read more
Meredith Bray I've had two cardiac caths and they are both fuzzy memories. One I was semi-lucid for, and the other not at all. The worst part for me was using the bed-pan because I had to stay flat for 4-6 hours after. Mine were both done through the groin. One left a massive bruise that turned beautiful shades of purple, green, & yellow. The other left a small mark that faded in a year. The doctor that explained the results to me was a doll though - in his 60s with gorgeous hair and a movie star smile. So none of it mattered to me ;)
It didn't hurt. I was on lifting restriction for 2 days.
I wonder if I could have had a sleep mask to wear. The lights are bright so the doctor can see what he's doing, and I wasn't completely out. I have issues remaining completely still, so I asked for something to figit with in my hand, like stress ball. They gave me a pen to play with. it distracted me a bit.
In the grand scheme of things, it wasn't bad.
Jacqueline Cook Hi Susan. I just had a heart cath this past Wednesday. Even though many in our community here assured ... Read more
Jacqueline Cook Hi Susan. I just had a heart cath this past Wednesday. Even though many in our community here assured me that "it's a piece of cake"...I was still very anxious when I arrived at the hospital and they started to prep me for the procedure. I expressed my apprehension to the nurse and tech and they took special care to help calm my fears. The medication they gave me really helped out too! Now that I am on the other side of it, I too can say that it was not as bad as I had imagined. Sending you a big hug. You got this!
Your heart sister, Jacqueline
To answer your question. I do feel my scar often. Especially when I do pull ups ( I do around 10 ) or push ups. My surgeon told me that it was expected. I guess it will stay with me. But I don't feel muscle tightness in upper body.
Anxiety, fears. Not as much. One thing I have noticed, that late dinner will cause the heart pump harder. Thus I started to avoid all the late night eats, drinking etc. That really helped.
As for medical related anxiety ( or anxiety in general), Inam the poster child. It has increased greatly before and after surgery. I am in counseling, avoid caffeine except one cup of half caf coffee, and have turned to meditation. Not over it but am a work in progress.
I wish you good health and peace as you continue on this journey.